Positively Rheumatoid
@positivelyrheum.bsky.social
Rheumatoid Arthritis page
Chronic illness takes zero days off. Who approved this?
December 29, 2025 at 9:12 PM
Chronic illness takes zero days off. Who approved this?
Stop blaming yourself for what’s out of your control. If you have a flare, you are not a failure.
🔗
Join our support group: www.facebook.com/groups/19491...
🔗
Join our support group: www.facebook.com/groups/19491...
December 29, 2025 at 12:26 PM
Stop blaming yourself for what’s out of your control. If you have a flare, you are not a failure.
🔗
Join our support group: www.facebook.com/groups/19491...
🔗
Join our support group: www.facebook.com/groups/19491...
Things no one warns you about chronic illness
It’s not just pain.
It’s fatigue that drowns everything out.
It’s canceling plans you wanted to keep.
It’s anxiety on good days.
It’s questioning yourself constantly.
If this feels familiar, you’re not alone. 💛
It’s not just pain.
It’s fatigue that drowns everything out.
It’s canceling plans you wanted to keep.
It’s anxiety on good days.
It’s questioning yourself constantly.
If this feels familiar, you’re not alone. 💛
December 28, 2025 at 8:58 PM
Things no one warns you about chronic illness
It’s not just pain.
It’s fatigue that drowns everything out.
It’s canceling plans you wanted to keep.
It’s anxiety on good days.
It’s questioning yourself constantly.
If this feels familiar, you’re not alone. 💛
It’s not just pain.
It’s fatigue that drowns everything out.
It’s canceling plans you wanted to keep.
It’s anxiety on good days.
It’s questioning yourself constantly.
If this feels familiar, you’re not alone. 💛
Rare Patient Voice is a safe, secure way to participate in medical research from home. No scams, no selling your info, just real researchers who need your insight so they can build better treatments.
🔗
Sign up here: rarepatientvoice.com/rp/positivel...
➖
#chronicillness
🔗
Sign up here: rarepatientvoice.com/rp/positivel...
➖
#chronicillness
December 28, 2025 at 1:13 PM
Rare Patient Voice is a safe, secure way to participate in medical research from home. No scams, no selling your info, just real researchers who need your insight so they can build better treatments.
🔗
Sign up here: rarepatientvoice.com/rp/positivel...
➖
#chronicillness
🔗
Sign up here: rarepatientvoice.com/rp/positivel...
➖
#chronicillness
She said “absolutely not” and slammed the door
December 28, 2025 at 12:02 AM
She said “absolutely not” and slammed the door
Love when strangers cure me for free.
December 27, 2025 at 12:31 PM
Love when strangers cure me for free.
Cold. Stiff. Full of cheese.
Chronic illness but make it winter.
Chronic illness but make it winter.
December 26, 2025 at 10:09 PM
Cold. Stiff. Full of cheese.
Chronic illness but make it winter.
Chronic illness but make it winter.
That weird in between week after Christmas where time is fake, symptoms are loud, and pants are optional.
December 26, 2025 at 12:56 PM
That weird in between week after Christmas where time is fake, symptoms are loud, and pants are optional.
Merry Christmas to the ones resting instead of rushing.
To the ones pacing themselves.
To the ones celebrating quietly, differently, or from the couch.
May your body cooperate (even just a little).
May your plans be flexible, your expectations low, and your nap be restful.
To the ones pacing themselves.
To the ones celebrating quietly, differently, or from the couch.
May your body cooperate (even just a little).
May your plans be flexible, your expectations low, and your nap be restful.
December 25, 2025 at 12:51 PM
Merry Christmas to the ones resting instead of rushing.
To the ones pacing themselves.
To the ones celebrating quietly, differently, or from the couch.
May your body cooperate (even just a little).
May your plans be flexible, your expectations low, and your nap be restful.
To the ones pacing themselves.
To the ones celebrating quietly, differently, or from the couch.
May your body cooperate (even just a little).
May your plans be flexible, your expectations low, and your nap be restful.
Left out a Christmas treat for Vecna. A broken clock, eggos, and the last shred of my nervous system. 😬
December 24, 2025 at 3:44 PM
Left out a Christmas treat for Vecna. A broken clock, eggos, and the last shred of my nervous system. 😬
’Twas the night before Christmas…and chronic illness did not take the night off.
If you’re cancelling plans, celebrating from the couch, or calling survival “festive enough,” this one’s for you. Rest counts. Existing counts. You’re doing great even horizontally.
If you’re cancelling plans, celebrating from the couch, or calling survival “festive enough,” this one’s for you. Rest counts. Existing counts. You’re doing great even horizontally.
December 24, 2025 at 3:17 PM
’Twas the night before Christmas…and chronic illness did not take the night off.
If you’re cancelling plans, celebrating from the couch, or calling survival “festive enough,” this one’s for you. Rest counts. Existing counts. You’re doing great even horizontally.
If you’re cancelling plans, celebrating from the couch, or calling survival “festive enough,” this one’s for you. Rest counts. Existing counts. You’re doing great even horizontally.
Autoimmune friends: if you nodded while reading this, we see you. This is the part of chronic illness that’s hardest to explain, the flu like exhaustion that never really leaves.
December 23, 2025 at 12:51 PM
Autoimmune friends: if you nodded while reading this, we see you. This is the part of chronic illness that’s hardest to explain, the flu like exhaustion that never really leaves.
These are a top tier Christmas cookie. Change my mind.
December 23, 2025 at 12:27 AM
These are a top tier Christmas cookie. Change my mind.
The holiday spirit is willing. The body is doing its own thing. If you’re excited, exhausted, overwhelmed, and still trying your best, these are for you.
December 22, 2025 at 1:13 PM
The holiday spirit is willing. The body is doing its own thing. If you’re excited, exhausted, overwhelmed, and still trying your best, these are for you.
My immune system: Is it a threat? No. Am I mad anyway? Yes.
December 22, 2025 at 1:36 AM
My immune system: Is it a threat? No. Am I mad anyway? Yes.
Gifts you can give a chronically ill friend (that matter more than stuff)
A reminder that holiday gifts don't have to be expensive, they just have to be thoughtful. Showing up. Helping out. Listening without fixing. These are the gifts that stay.
A reminder that holiday gifts don't have to be expensive, they just have to be thoughtful. Showing up. Helping out. Listening without fixing. These are the gifts that stay.
December 21, 2025 at 1:14 PM
Gifts you can give a chronically ill friend (that matter more than stuff)
A reminder that holiday gifts don't have to be expensive, they just have to be thoughtful. Showing up. Helping out. Listening without fixing. These are the gifts that stay.
A reminder that holiday gifts don't have to be expensive, they just have to be thoughtful. Showing up. Helping out. Listening without fixing. These are the gifts that stay.
Holiday Giveaway!
Only 2 days left to enter! We know how much the holidays take when you have chronic illness. That’s why we’re giving away $100 cash, a $10 Amazon gift card and a Rare Patient Voice sticker.
🎄
How to enter:
Like this post
Comment with your favorite holiday sweet treat!
That’s it!
Only 2 days left to enter! We know how much the holidays take when you have chronic illness. That’s why we’re giving away $100 cash, a $10 Amazon gift card and a Rare Patient Voice sticker.
🎄
How to enter:
Like this post
Comment with your favorite holiday sweet treat!
That’s it!
December 20, 2025 at 12:52 PM
Holiday Giveaway!
Only 2 days left to enter! We know how much the holidays take when you have chronic illness. That’s why we’re giving away $100 cash, a $10 Amazon gift card and a Rare Patient Voice sticker.
🎄
How to enter:
Like this post
Comment with your favorite holiday sweet treat!
That’s it!
Only 2 days left to enter! We know how much the holidays take when you have chronic illness. That’s why we’re giving away $100 cash, a $10 Amazon gift card and a Rare Patient Voice sticker.
🎄
How to enter:
Like this post
Comment with your favorite holiday sweet treat!
That’s it!
Comfort counts. Rest counts. And whatever version of the holidays you can manage this year? That one is enough.
December 19, 2025 at 12:39 PM
Comfort counts. Rest counts. And whatever version of the holidays you can manage this year? That one is enough.
My go to attire is sweatpants so I don’t know how to dress like a real grownup.
December 19, 2025 at 12:43 AM
My go to attire is sweatpants so I don’t know how to dress like a real grownup.
Winter when you’re immunocompromised. Every cough is suspicious. Every plan is a risk. Every holiday gathering is a trap. Stay safe my friends.
December 18, 2025 at 12:50 PM
Winter when you’re immunocompromised. Every cough is suspicious. Every plan is a risk. Every holiday gathering is a trap. Stay safe my friends.
Chronic illness is rarely just one thing. It’s not just pain. Not just fatigue. Not just medication. Not just a diagnosis.
It’s the physical and emotional weight of living in a body that changes without warning and learning how to keep going anyway.
It’s the physical and emotional weight of living in a body that changes without warning and learning how to keep going anyway.
December 17, 2025 at 12:30 PM
Chronic illness is rarely just one thing. It’s not just pain. Not just fatigue. Not just medication. Not just a diagnosis.
It’s the physical and emotional weight of living in a body that changes without warning and learning how to keep going anyway.
It’s the physical and emotional weight of living in a body that changes without warning and learning how to keep going anyway.
I know I didn’t take them…right? Or maybe I did. Why does my brain always do this?
December 17, 2025 at 12:55 AM
I know I didn’t take them…right? Or maybe I did. Why does my brain always do this?
Matter of fact, I can’t see my bank account until after Christmas. I’m scared.
December 16, 2025 at 9:21 PM
Matter of fact, I can’t see my bank account until after Christmas. I’m scared.
On the twelfth day of Christmas, my body gave to me… absolutely zero notice. Not festive but very accurate.
December 16, 2025 at 12:18 PM
On the twelfth day of Christmas, my body gave to me… absolutely zero notice. Not festive but very accurate.
As a new week begins, a reminder for anyone living with chronic illness:
You don’t have to do it all.
You don’t have to feel ready.
Showing up in the ways you can is enough.
Take this week at your own pace.
♥
You don’t have to do it all.
You don’t have to feel ready.
Showing up in the ways you can is enough.
Take this week at your own pace.
♥
December 15, 2025 at 9:20 PM
As a new week begins, a reminder for anyone living with chronic illness:
You don’t have to do it all.
You don’t have to feel ready.
Showing up in the ways you can is enough.
Take this week at your own pace.
♥
You don’t have to do it all.
You don’t have to feel ready.
Showing up in the ways you can is enough.
Take this week at your own pace.
♥