Post-Stroke-Life
post-stroke-life.bsky.social
Post-Stroke-Life
@post-stroke-life.bsky.social
After a stroke in 2022, I‘ve really struggled to adapt. This is me; blunt honesty, a weird sense of humour and a changed life.
This place is my honest view, as no one I know follows me. Life after a brain injury has floored me. I have days where I feel like I’m doing ok and days, such as today, when I don’t know how to keep going. I question why I “made” it. It’s such a negative, horrible headspace; I hate it. #braininjury
April 14, 2025 at 3:14 PM
I haven't posted for a while, but I felt the need to vent in my “free” space today. It finally hit me how you can't expect people to fully understand the effects a brain injury can have on you. My loss of Independence has been soul-destroying. I was at an event with friends this past week
March 16, 2025 at 5:09 PM
This is the one place where no one I know follows me. Essentially, it's the only place I can be honest! I’ve never had good mental health, but since my stroke, it spiralled right down. There are people in my life who won't listen to anything I say. I overreact, use fake news, I’m too sensitive
February 27, 2025 at 8:00 PM
For those living with a disability, a question. Am I the only one who thinks that it hurts like hell when family members show f*** all interest in your life? When I try to talk to them, I get NOTHING! They either change the subject or turn it back to themselves. Am I being self absorbed? #disability
February 16, 2025 at 8:40 PM
I think all workplaces should practice diversity without being told to. I hope at least some companies will ignore the bulls*it from the tangerine and his cult and still make a basic effort to employ based on skill set and not view disability as a hindrance to their business.
the OTHER thing about the white house’s anti-diversity push is that like old fashioned segregation it is explicitly an effort to undermine unions! like c’mon! don’t be stupid!
February 7, 2025 at 2:58 PM
I’m one of five girls and have two nieces, and I’m also disabled. I know people who support the current US situation, and whenever I try to explain why it upsets me, I get told, “You’re in the UK; why do you care?” “It’s all exaggerated by the media and woke libs”, “you’re overreacting “.
February 7, 2025 at 11:25 AM
I’ve struggled with mental health since my stroke. Losing things like independence is crushing, yet others can see it as inconsequential. I’m incredibly grateful for all the help and support I’ve had, but at the same time, I feel so alone.
February 6, 2025 at 6:30 PM
Extra strong neuro fatigue kicks in on Christmas Eve. How perfect… 🤦🏻‍♀️. The joys of life as a stroke survivor!!! Trying to explain to people that sleep doesn't help is so hard! #strokesurvivor #neurofatigue #braininjury
December 24, 2024 at 12:47 PM
Out of all of the post-stroke effects I have, one of the biggest has been people not understanding the struggles you go through. I frequently get,
“Why are you worried about (XYZ)? You’re fine now.”
“You've done nothing today. Why are you tired?”
“What have you got to be depressed about?” 1/
December 20, 2024 at 9:54 PM

Neurofatigue is a b*tch. Explaining to people that it’s not purely physical activity that exhausts you but cognitive stimulation can also.

Therapy has helped me massively. I spent four months very ill in intensive care which I don't remember.
December 15, 2024 at 11:51 AM