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Primary Progressive Aphasia Awareness @ppaphasiaawareness.bsky.social · Apr 17

@dementiaresearcher.bsky.social @lissbee.bsky.social @dementiacommunity.bsky.social @ukdri.ac.uk @theaftd.bsky.social

Reposted by Primary Progressive Aphasia Awareness

Dr Anna Volkmer @annavolkmer.bsky.social · Apr 17

We are doing a survey to understand why other professionals do/don't refer people with Primary Progressive Aphasia for speech-language support

We want Drs, nurses, psychologists, social workers, OTs, PTs & any other profession.

The survey can be accessed here: qualtrics.ucl.ac.uk/jfe/form/SV_...

Qualtrics Survey | Qualtrics Experience Management

The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.

qualtrics.ucl.ac.uk

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Primary Progressive Aphasia Awareness @ppaphasiaawareness.bsky.social · Apr 8

The 1st ever PPA awareness day was Friday 4 April 2025

We had webinars in the UK, Greece, Italy, Canada, France & USA.

Recordings will be available soon speechtherapyppa.com/ppa-awarenes...

Give us your views forms.office.com/e/ARRes9j9bV

PPA awareness day 2026 will be Friday 10th April!

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Reposted by Primary Progressive Aphasia Awareness

Dr Anna Volkmer @annavolkmer.bsky.social · Apr 4

What an amazing day!

Webinars in UK, USA, France, Greece, Italy & Canada to celebrate the 1st PPA awareness day

Thank u to all contributors!

@mayalhenry.bsky.social @jgallee.bsky.social @smgrasso.bsky.social @sharonmantonucci.bsky.social

@ppaphasiaawareness.bsky.social

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Dr Anna Volkmer @annavolkmer.bsky.social · Apr 4

Onwards and upwards!

The work is not over- if you are a researcher working in the field of PPA we have started a PPA journal club with @dementiaresearcher.bsky.social

Sign up & enhance your PPA research network!

www.dementiaresearcher.nihr.ac.uk/primary-prog...

@ppaphasiaawareness.bsky.social

New Primary Progressive Aphasia Online Journal Club

Join our new Primary Progressive Aphasia Journal Club—connecting researchers & clinicians to explore diagnostics, clinical management & patient-focused advances

www.dementiaresearcher.nihr.ac.uk

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Reposted by Primary Progressive Aphasia Awareness

Rosemary Townsend @rosemary-townsend.bsky.social · Apr 4

#PPAawareness day is here! 🙌🏻 motivated,inspired & shaped by people living with #PrimaryProgressiveAphasia & driven by a community of international #SLT #SLP s who believe in better access to therapy support & resources. Huge thx to the amazing @[email protected] & @dyscoveraphasia

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Reposted by Primary Progressive Aphasia Awareness

St James's Hospital, Dublin @sjhdublin.bsky.social · Apr 4

Meet Jessica Molloy, Clinical Specialist Speech and Language Therapists. Jessica is marking Primary Progressive Aphasia Awareness Day 🗣

“SLT can help people with PPA to find their voice again, even when the words are gone, people with PPA still have a lot to say”

@ppaphasiaawareness.bsky.social

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Primary Progressive Aphasia Awareness @ppaphasiaawareness.bsky.social · Apr 4

Our PPA awareness day work has also made it to the UK 🇬🇧 headlines too!

@rosemary-townsend.bsky.social
@annavolkmer.bsky.social

northeastbylines.co.uk/news/health/...

MPs invited to PPA House of Commons event

The house of Commons has invited MPs in advance of the world’s first PPA awareness day

northeastbylines.co.uk

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Primary Progressive Aphasia Awareness @ppaphasiaawareness.bsky.social · Apr 4

PPA awareness day has made international headlines!

With articles in 🇮🇹 Italy

www.lasaluteinpuglia.it/2025/04/02/a...

@rosemary-townsend.bsky.social @annavolkmer.bsky.social

Afasia Primaria Progressiva: il Maugeri di Bari in prima linea nella ricerca, diagnosi e riabilitazione | la salute in puglia

www.lasaluteinpuglia.it

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Primary Progressive Aphasia Awareness @ppaphasiaawareness.bsky.social · Apr 4

PPA awareness day has made international headlines!

With articles in 🇳🇿 New Zealand: www.scoop.co.nz/stories/GE25...

@rosemary-townsend.bsky.social @annavolkmer.bsky.social

www.scoop.co.nz

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Primary Progressive Aphasia Awareness @ppaphasiaawareness.bsky.social · Apr 4

PPA awareness day has made international headlines!

With articles in 🇳🇴 Norway: www.logopedtidsskriftet.no/aktuelt/ppa-...

@rosemary-townsend.bsky.social @annavolkmer.bsky.social @ingvildw.bsky.social @monicanor.bsky.social

PPA awareness day 2025

Med mål om å øke bevisstheten rundt primær progressiv afasi

www.logopedtidsskriftet.no

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Reposted by Primary Progressive Aphasia Awareness

Dr Anna Volkmer @annavolkmer.bsky.social · Apr 4

Interest in the PPA awareness day event has exceeded our expectations!

If you are coming to our webinar - come along early 2 guarantee a place!

speechtherapyppa.com/ppa-awarenes...

We will record the event & pop it on our website

@rosemary-townsend.bsky.social
@ppaphasiaawareness.bsky.social

Primary Progressive Aphasia (PPA) Awareness Day | 4th April 2025

Primary Progressive Aphasia (PPA) Awareness Day is an event to raise awareness of the condition and the work of the International Speech and Language Therapy / Pathology Primary Progressive Aphasia Ne...

speechtherapyppa.com

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Primary Progressive Aphasia Awareness @ppaphasiaawareness.bsky.social · Apr 4

Today, 4 April 2025, is the 1st ever Primary Progressive Aphasia (PPA) awareness day!

Free UK webinar today: speechtherapyppa.com/ppa-awarenes...

Missed it? A recording will be on our website: speechtherapyppa.com/ppa-awarenes...

@annavolkmer.bsky.social
@rosemary-townsend.bsky.social

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Reposted by Primary Progressive Aphasia Awareness

Maya Henry @mayalhenry.bsky.social · Mar 31

The inaugural International PPA Awareness Day is this Friday April 4th! Join a webinar hosted by the National Aphasia Association.
aphasia.org/event/intern...
@ppaphasiaawareness.bsky.social

International PPA Awareness Day - The National Aphasia Association

The NAA is hosting the first annual International PPA Awareness Day! Join the one-hour webinar to see people with PPA share their experience through photos, art, poetry and more! The … Continued

aphasia.org

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Primary Progressive Aphasia Awareness @ppaphasiaawareness.bsky.social · Mar 28

1-week till PPA awareness day 4 April!

Webinar: speechtherapyppa.com/ppa-awarenes...

This wk we were raising awareness at the highest level asking MPs for their support at Westminster with Dyscover & the Royal College of Speech & Language Therapists

#PPAawareness
@ppaphasiaawareness.bsky.social

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Primary Progressive Aphasia Awareness @ppaphasiaawareness.bsky.social · Mar 21

2-weeks till PPA awareness day 4 April!

Webinar link: speechtherapyppa.com/ppa-awarenes...

This wk we are sharing another podcast, this time created with student speech & language therapists abt the UCL PPA clinic: podcasts.apple.com/gb/podcast/e...

#PPAawareness
@ppaphasiaawareness.bsky.social

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Reposted by Primary Progressive Aphasia Awareness

Dr Anna Volkmer @annavolkmer.bsky.social · Mar 14

3-weeks till PPA Awareness day 4 April!

Webinar link: speechtherapyppa.com/ppa-awarenes...

Living with PPA can be difficult. Rory's beautiful poetry captures this

youtu.be/8K363W-XzWI?...

Book sale proceeds to Rare Dementia Support - available soon: shop.nationalbrainappeal.org?gad_source=1...

Rory Barnes poetry for PPA awareness

YouTube video by BetterConversations

youtu.be

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Reposted by Primary Progressive Aphasia Awareness

Dr Anna Volkmer @annavolkmer.bsky.social · Mar 7

4-weeks till PPA awareness day 4 April!

Webinar link: speechtherapyppa.com/ppa-awarenes...

Why is speech and language therapy important for people living with PPA?

We asked people with PPA, families and professionals. Watch our video abt it!

#PPAawareness
@ppaphasiaawareness.bsky.social

PPA awareness

YouTube video by BetterConversations

youtu.be

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Primary Progressive Aphasia Awareness @ppaphasiaawareness.bsky.social · Feb 28

5-weeks till PPA awareness day 4 April!

Webinar link: speechtherapyppa.com/ppa-awarenes...

Book launch at UCL for the 2nd Ed of our book - 16 international co-authors writing about PPA!

15% off J&R Press NOW at: www.jr-press.co.uk/product/asse...

#PPAawareness
@ppaphasiaawareness.bsky.social

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Primary Progressive Aphasia Awareness @ppaphasiaawareness.bsky.social · Feb 21

6-weeks till PPA awareness day 4 April!

Webinar link: speechtherapyppa.com/ppa-awarenes...

Listen in 2 @rosemary-townsend.bsky.social chatting to Helen from The Brainy Speech Therapy Podcast about PPA early next wk: open.spotify.com/show/7FY6mec...

#PPAawareness
@ppaphasiaawareness.bsky.social

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Primary Progressive Aphasia Awareness @ppaphasiaawareness.bsky.social · Feb 14

7-weeks till PPA awareness day 4 April!

Webinar link: speechtherapyppa.com/ppa-awarenes...

💕 Valentines Day is all about relationships.

We did a @dementiaresearcher.bsky.social podcast on PPA, relationships & speech therapy that helps

Get a sneak peek here: youtu.be/t2k2-UhJjbU

#PPAawareness

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Primary Progressive Aphasia Awareness @ppaphasiaawareness.bsky.social · Feb 7

8-weeks to go till PPA awareness day: 4th April 2025!

Speech & language therapy can help join up ppl with PPA. Rare Dementia Support also connects people with PPA like Helen.

Sign up for PPA awareness day webinar: speechtherapyppa.com/ppa-awarenes...
#PPAawareness

Primary progressive aphasia support group webinar - 27th October 2020

YouTube video by Rare Dementia Support

youtu.be

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Reposted by Primary Progressive Aphasia Awareness

Dementia Researcher @dementiaresearcher.bsky.social · Feb 4

We’re pleased to help spread the word about the official launch of the first-ever Primary Progressive Aphasia (PPA) Awareness Day - 4th April 2025! #PPAawareness @ppaphasiaawareness.bsky.social

www.dementiaresearcher.nihr.ac.uk/primary-prog...

Primary Progressive Aphasia awareness day – 4th April 2025 - DEMENTIA RESEARCHER

We’re pleased to help spread the word about the official launch of the first-ever Primary Progressive Aphasia (PPA) Awareness Day - 4th April 2025!

www.dementiaresearcher.nihr.ac.uk

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Reposted by Primary Progressive Aphasia Awareness

Jeanne Gallée, PhD CCC-SLP @jgallee.bsky.social · Jan 31

A tremendous endeavor: sign up today! I am very much looking forward to being in the virtual audience!

Primary Progressive Aphasia Awareness @ppaphasiaawareness.bsky.social · Jan 31

Announcing the launch of the 1st ever Primary Progressive Aphasia (PPA) awareness day 4th April 2025!

Webinar sign up: speechtherapyppa.com/ppa-awarenes...

Follow for updates:
@ppaphasiaawareness.bsky.social
@annavolkmer.bsky.social
@rosemary-townsend.bsky.social

#PPAawareness

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Reposted by Primary Progressive Aphasia Awareness

Rosemary Townsend @rosemary-townsend.bsky.social · Jan 31

It’s been a busy time, planning #PPAawareness together with @annavolkmer.bsky.social & all our collaborators! 9 weeks of content coming in the lead up to 4 April ! Please share

Primary Progressive Aphasia Awareness @ppaphasiaawareness.bsky.social · Jan 31

Announcing the launch of the 1st ever Primary Progressive Aphasia (PPA) awareness day 4th April 2025!

Webinar sign up: speechtherapyppa.com/ppa-awarenes...

Follow for updates:
@ppaphasiaawareness.bsky.social
@annavolkmer.bsky.social
@rosemary-townsend.bsky.social

#PPAawareness

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