Probably Genetic
@probablygenetic.bsky.social
We offer accessible, clinical-grade genetic sequencing for undiagnosed #chronicillness & #raredisease patients. Let’s end the diagnostic odyssey.
Why aren't patients getting genetic testing? We want to hear from you!
Provider won't order? Can't get a specialist appointment? Genetic counseling appointment delays? Lack of insurance coverage?
DM us what issues you've faced in accessing genetic testing. We want to find new ways to help.
Provider won't order? Can't get a specialist appointment? Genetic counseling appointment delays? Lack of insurance coverage?
DM us what issues you've faced in accessing genetic testing. We want to find new ways to help.
October 16, 2025 at 4:03 PM
Why aren't patients getting genetic testing? We want to hear from you!
Provider won't order? Can't get a specialist appointment? Genetic counseling appointment delays? Lack of insurance coverage?
DM us what issues you've faced in accessing genetic testing. We want to find new ways to help.
Provider won't order? Can't get a specialist appointment? Genetic counseling appointment delays? Lack of insurance coverage?
DM us what issues you've faced in accessing genetic testing. We want to find new ways to help.
Getting answers shouldn't be expensive or complicated. Our simple at-home kit tests for 4,000+ rare diseases - completely free for individuals who qualify.
If you or a loved one are dealing with unexplained symptoms you may qualify for free testing.
Visit: probablygenetic.com
If you or a loved one are dealing with unexplained symptoms you may qualify for free testing.
Visit: probablygenetic.com
August 15, 2025 at 9:26 PM
Getting answers shouldn't be expensive or complicated. Our simple at-home kit tests for 4,000+ rare diseases - completely free for individuals who qualify.
If you or a loved one are dealing with unexplained symptoms you may qualify for free testing.
Visit: probablygenetic.com
If you or a loved one are dealing with unexplained symptoms you may qualify for free testing.
Visit: probablygenetic.com
Chaz Lucius - a first-round NHL draft pick - made the decision to retire from hockey after being diagnosed with Ehlers-Danlos syndrome. His story is a powerful reminder of the impact rare genetic conditions can have and the importance of getting diagnosed.
#ChazLucius #DiagnosisMatters #RareButReal
#ChazLucius #DiagnosisMatters #RareButReal
April 10, 2025 at 7:32 PM
Chaz Lucius - a first-round NHL draft pick - made the decision to retire from hockey after being diagnosed with Ehlers-Danlos syndrome. His story is a powerful reminder of the impact rare genetic conditions can have and the importance of getting diagnosed.
#ChazLucius #DiagnosisMatters #RareButReal
#ChazLucius #DiagnosisMatters #RareButReal
Let’s talk about something important: genetic testing for kids with an autism diagnosis.
1. Autism is often the first diagnosis rare disease families receive
2. Rare diseases can hide behind other labels
3. Early diagnosis = better care & more support
Apply for free testing: chat.probablygenetic.com
1. Autism is often the first diagnosis rare disease families receive
2. Rare diseases can hide behind other labels
3. Early diagnosis = better care & more support
Apply for free testing: chat.probablygenetic.com
March 26, 2025 at 2:57 PM
Let’s talk about something important: genetic testing for kids with an autism diagnosis.
1. Autism is often the first diagnosis rare disease families receive
2. Rare diseases can hide behind other labels
3. Early diagnosis = better care & more support
Apply for free testing: chat.probablygenetic.com
1. Autism is often the first diagnosis rare disease families receive
2. Rare diseases can hide behind other labels
3. Early diagnosis = better care & more support
Apply for free testing: chat.probablygenetic.com
Rare disease book club: Fourth Wing 📚
The novel features Violet Sorrengail, a character depicted with Ehlers-Danlos Syndrome (EDS).
Representation matters. Join us in celebrating stories highlighting the strength of those living with rare conditions.
The novel features Violet Sorrengail, a character depicted with Ehlers-Danlos Syndrome (EDS).
Representation matters. Join us in celebrating stories highlighting the strength of those living with rare conditions.
March 21, 2025 at 6:11 PM
Rare disease book club: Fourth Wing 📚
The novel features Violet Sorrengail, a character depicted with Ehlers-Danlos Syndrome (EDS).
Representation matters. Join us in celebrating stories highlighting the strength of those living with rare conditions.
The novel features Violet Sorrengail, a character depicted with Ehlers-Danlos Syndrome (EDS).
Representation matters. Join us in celebrating stories highlighting the strength of those living with rare conditions.
FTD is a form of dementia that can cause memory loss, behavior changes, speech difficulties, and other symptoms. Age of onset can range from 45-65.
If you or a loved one has been diagnosed with FTD, apply for free genetic testing at chat.probablygenetic.com.
If you or a loved one has been diagnosed with FTD, apply for free genetic testing at chat.probablygenetic.com.
March 3, 2025 at 6:24 PM
FTD is a form of dementia that can cause memory loss, behavior changes, speech difficulties, and other symptoms. Age of onset can range from 45-65.
If you or a loved one has been diagnosed with FTD, apply for free genetic testing at chat.probablygenetic.com.
If you or a loved one has been diagnosed with FTD, apply for free genetic testing at chat.probablygenetic.com.
It's #rarediseaseweek.
Did you know 72% of rare diseases are genetic? Yet, genetic testing is often overlooked, delayed, or not recommended for patients with unexplained symptoms. At Probably Genetic, we aim to educate, raise awareness, and improve access to genetic testing.
Did you know 72% of rare diseases are genetic? Yet, genetic testing is often overlooked, delayed, or not recommended for patients with unexplained symptoms. At Probably Genetic, we aim to educate, raise awareness, and improve access to genetic testing.
February 25, 2025 at 2:52 PM
It's #rarediseaseweek.
Did you know 72% of rare diseases are genetic? Yet, genetic testing is often overlooked, delayed, or not recommended for patients with unexplained symptoms. At Probably Genetic, we aim to educate, raise awareness, and improve access to genetic testing.
Did you know 72% of rare diseases are genetic? Yet, genetic testing is often overlooked, delayed, or not recommended for patients with unexplained symptoms. At Probably Genetic, we aim to educate, raise awareness, and improve access to genetic testing.