Rare Disease Clinical Trial Network
@rarediseasectn.bsky.social
HRB-funded clinical trial network aiming to increase the quantity and quality of rare disease clinical trials in Ireland, keeping the patient voice at our core.
@hrci.bsky.social @hrbireland.bsky.social @ppi-ignite-net.bsky.social @diverseppi.bsky.social @erdera.bsky.social @eurordis.bsky.social
January 21, 2026 at 2:45 PM
@svuh.bsky.social @eurordis.bsky.social @erdera.bsky.social @ucdresearch.bsky.social @rareireland.bsky.social
January 2, 2026 at 10:32 AM
“My goal is to enhance a holistic, patient-centred approach by supporting education & awareness, ensuring the highest quality of care, and contributing to the development of national care pathways that support early diagnosis & access to the most effective treatments.”
January 2, 2026 at 10:31 AM
“My goal is to enhance a holistic, patient-centred approach by supporting education & awareness, ensuring the highest quality of care, and contributing to the development of national care pathways that support early diagnosis & access to the most effective treatments.”
A Clinical Nurse Manager & Nurse Practice Development professional, Anila has experience in clinical leadership, policy & SOP development, and education & training of healthcare staff. She understands the challenges faced by patients & families navigating a rare bone diagnosis.
January 2, 2026 at 10:31 AM
A Clinical Nurse Manager & Nurse Practice Development professional, Anila has experience in clinical leadership, policy & SOP development, and education & training of healthcare staff. She understands the challenges faced by patients & families navigating a rare bone diagnosis.