Raymond A. Wood Foundation
@rawoodfoundation.bsky.social
The mission of the Raymond A. Wood Foundation is to drive research and advocate for treatment outcomes to improve quality of life for hypothalamic-pituitary brain tumor survivors.
Registration is now open for Rare Disease Week 2026 on Capitol Hill. This free multi-day event, hosted by the Rare Disease Legislative Advocates, brings together rare disease advocates from across the country to make their voices heard.
Register for #RareDC2026 zurl.co/rLFj5
Register for #RareDC2026 zurl.co/rLFj5
January 8, 2026 at 5:04 PM
Registration is now open for Rare Disease Week 2026 on Capitol Hill. This free multi-day event, hosted by the Rare Disease Legislative Advocates, brings together rare disease advocates from across the country to make their voices heard.
Register for #RareDC2026 zurl.co/rLFj5
Register for #RareDC2026 zurl.co/rLFj5
After a holiday hiatus, our monthly support groups are back!
January 13th 8pm - Caregiver Support Group, hosted by caregiver and RAWF board member Eugenie Hsu
January 20th 7pm EST - Survivor Support group, hosted by brain tumor survivor Jason Burris
Email [email protected] to join.
January 13th 8pm - Caregiver Support Group, hosted by caregiver and RAWF board member Eugenie Hsu
January 20th 7pm EST - Survivor Support group, hosted by brain tumor survivor Jason Burris
Email [email protected] to join.
January 7, 2026 at 5:49 PM
After a holiday hiatus, our monthly support groups are back!
January 13th 8pm - Caregiver Support Group, hosted by caregiver and RAWF board member Eugenie Hsu
January 20th 7pm EST - Survivor Support group, hosted by brain tumor survivor Jason Burris
Email [email protected] to join.
January 13th 8pm - Caregiver Support Group, hosted by caregiver and RAWF board member Eugenie Hsu
January 20th 7pm EST - Survivor Support group, hosted by brain tumor survivor Jason Burris
Email [email protected] to join.
TODAY IS THE LAST DAY!
👉 Take the survey before midnight tonight: zurl.co/BVBuC
Share your experience with acquired hypothalamic obesity and help our Canadian community!
You do not need to live in Canada to take part!
👉 Take the survey before midnight tonight: zurl.co/BVBuC
Share your experience with acquired hypothalamic obesity and help our Canadian community!
You do not need to live in Canada to take part!
January 4, 2026 at 3:35 PM
TODAY IS THE LAST DAY!
👉 Take the survey before midnight tonight: zurl.co/BVBuC
Share your experience with acquired hypothalamic obesity and help our Canadian community!
You do not need to live in Canada to take part!
👉 Take the survey before midnight tonight: zurl.co/BVBuC
Share your experience with acquired hypothalamic obesity and help our Canadian community!
You do not need to live in Canada to take part!
Happy New Year! The Raymond A. Wood foundation is off to a busy start. Here are just a few things to look forward to in January!
Email [email protected] for more info about these exciting initiatives!
Email [email protected] for more info about these exciting initiatives!
January 1, 2026 at 5:31 PM
Happy New Year! The Raymond A. Wood foundation is off to a busy start. Here are just a few things to look forward to in January!
Email [email protected] for more info about these exciting initiatives!
Email [email protected] for more info about these exciting initiatives!
“Never give up. Just keep looking forward.”
This is what one survivor shared when asked what helps most.
As we close out the year, we are grateful for this community and for the hope you help make possible.
Happy New Year, from the Raymond A. Wood Foundation!
This is what one survivor shared when asked what helps most.
As we close out the year, we are grateful for this community and for the hope you help make possible.
Happy New Year, from the Raymond A. Wood Foundation!
December 31, 2025 at 5:03 PM
“Never give up. Just keep looking forward.”
This is what one survivor shared when asked what helps most.
As we close out the year, we are grateful for this community and for the hope you help make possible.
Happy New Year, from the Raymond A. Wood Foundation!
This is what one survivor shared when asked what helps most.
As we close out the year, we are grateful for this community and for the hope you help make possible.
Happy New Year, from the Raymond A. Wood Foundation!
Don't forget to take the survey to share your experience with acquired hypothalamic obesity!
You do not need to live in Canada to take part.
Deadline: Sunday, January 4 (11:59 PM ET)
Take the survey now: Don't for zurl.co/BgGqn
You do not need to live in Canada to take part.
Deadline: Sunday, January 4 (11:59 PM ET)
Take the survey now: Don't for zurl.co/BgGqn
December 26, 2025 at 3:28 PM
Don't forget to take the survey to share your experience with acquired hypothalamic obesity!
You do not need to live in Canada to take part.
Deadline: Sunday, January 4 (11:59 PM ET)
Take the survey now: Don't for zurl.co/BgGqn
You do not need to live in Canada to take part.
Deadline: Sunday, January 4 (11:59 PM ET)
Take the survey now: Don't for zurl.co/BgGqn
Merry Christmas from the Raymond A. Wood Foundation team!
December 25, 2025 at 2:42 PM
Merry Christmas from the Raymond A. Wood Foundation team!
Ten years later, the challenges haven’t stopped. But neither has our fight.
This year has been one of our hardest. And it is exactly why this work matters more than ever.
Thank you for standing with families navigating the long-term realities of brain tumors and survivorship.
This year has been one of our hardest. And it is exactly why this work matters more than ever.
Thank you for standing with families navigating the long-term realities of brain tumors and survivorship.
December 24, 2025 at 4:56 PM
Ten years later, the challenges haven’t stopped. But neither has our fight.
This year has been one of our hardest. And it is exactly why this work matters more than ever.
Thank you for standing with families navigating the long-term realities of brain tumors and survivorship.
This year has been one of our hardest. And it is exactly why this work matters more than ever.
Thank you for standing with families navigating the long-term realities of brain tumors and survivorship.
There is still time to share your experience with acquired hypothalamic obesity and help our Canadian community! Take the survey today – you do not need to live in Canada to participate!!
zurl.co/WIeE0
zurl.co/WIeE0
December 20, 2025 at 3:05 PM
There is still time to share your experience with acquired hypothalamic obesity and help our Canadian community! Take the survey today – you do not need to live in Canada to participate!!
zurl.co/WIeE0
zurl.co/WIeE0
The holiday season is often portrayed as a joyful time filled with perfect celebrations. But in reality, many caregivers are simply struggling to get through the day.
Read our latest blog post for helpful tips on Navigating Grief During the Holidays
zurl.co/Vf277
Read our latest blog post for helpful tips on Navigating Grief During the Holidays
zurl.co/Vf277
Navigating Grief During the Holidays: Support, Compassion, and Care for Those Caring for Others - Raymond A. Wood Foundation
The holiday season is often portrayed as a joyful time filled with perfect celebrations, family ... Read more
zurl.co
December 18, 2025 at 7:17 PM
The holiday season is often portrayed as a joyful time filled with perfect celebrations. But in reality, many caregivers are simply struggling to get through the day.
Read our latest blog post for helpful tips on Navigating Grief During the Holidays
zurl.co/Vf277
Read our latest blog post for helpful tips on Navigating Grief During the Holidays
zurl.co/Vf277
📣 Have you or someone you love been diagnosed with acquired hypothalamic obesity? We want to hear from you! We are conducting a survey to understand the real-life impact of aHO on patients and caregivers.
✅ Take the survey today – zurl.co/ddwmv
✅ Take the survey today – zurl.co/ddwmv
December 16, 2025 at 2:00 PM
📣 Have you or someone you love been diagnosed with acquired hypothalamic obesity? We want to hear from you! We are conducting a survey to understand the real-life impact of aHO on patients and caregivers.
✅ Take the survey today – zurl.co/ddwmv
✅ Take the survey today – zurl.co/ddwmv
We're reflecting on our many accomplishments for 2025, and gearing up for an even stronger 2026! Watch this highlight reel for a quick glimpse of the impact we’ve made together, and check out the full blog post to see how we’re paving the way for a brighter 2025!
zurl.co/OBHNy
zurl.co/OBHNy
December 12, 2025 at 3:45 PM
We're reflecting on our many accomplishments for 2025, and gearing up for an even stronger 2026! Watch this highlight reel for a quick glimpse of the impact we’ve made together, and check out the full blog post to see how we’re paving the way for a brighter 2025!
zurl.co/OBHNy
zurl.co/OBHNy
We're so proud to have raised $116,000 at the DC's Dancing Stars Gala! Special thanks to our dancers Mike Brown and Adriana Fonseca for their dedication and amazing dance moves!
Their contributions will help take us next level in leading research and supporting patients and families.
Their contributions will help take us next level in leading research and supporting patients and families.
December 11, 2025 at 3:33 PM
We're so proud to have raised $116,000 at the DC's Dancing Stars Gala! Special thanks to our dancers Mike Brown and Adriana Fonseca for their dedication and amazing dance moves!
Their contributions will help take us next level in leading research and supporting patients and families.
Their contributions will help take us next level in leading research and supporting patients and families.
The holidays can be a time of joy & celebration. But for caregivers & those impacted by health challenges, the season often brings additional stress. Check out the RAWF blog for tips on how you can navigate these challenges & find support along the way
zurl.co/kOVKf
zurl.co/kOVKf
December 10, 2025 at 2:23 PM
The holidays can be a time of joy & celebration. But for caregivers & those impacted by health challenges, the season often brings additional stress. Check out the RAWF blog for tips on how you can navigate these challenges & find support along the way
zurl.co/kOVKf
zurl.co/kOVKf
The RAWF Patient Registry is a secure, confidential platform designed to collect real-world data from survivors and caregivers. Join to contribute to vital research and shape the future of care for this community.
Learn more zurl.co/Co0y7
Learn more zurl.co/Co0y7
December 8, 2025 at 4:32 PM
The RAWF Patient Registry is a secure, confidential platform designed to collect real-world data from survivors and caregivers. Join to contribute to vital research and shape the future of care for this community.
Learn more zurl.co/Co0y7
Learn more zurl.co/Co0y7
Our merch makes the best stocking stuffers!
If you want to give the gift that gives back, check out our shop for t-shirts, sweatshirts, and hats for adults and kids!
Don't wait until the last minute to order since holiday shipping will take time! zurl.co/nsL00
If you want to give the gift that gives back, check out our shop for t-shirts, sweatshirts, and hats for adults and kids!
Don't wait until the last minute to order since holiday shipping will take time! zurl.co/nsL00
December 5, 2025 at 4:26 PM
Our merch makes the best stocking stuffers!
If you want to give the gift that gives back, check out our shop for t-shirts, sweatshirts, and hats for adults and kids!
Don't wait until the last minute to order since holiday shipping will take time! zurl.co/nsL00
If you want to give the gift that gives back, check out our shop for t-shirts, sweatshirts, and hats for adults and kids!
Don't wait until the last minute to order since holiday shipping will take time! zurl.co/nsL00
Thank you for standing with brain tumor survivors on #GivingTuesday.
Because of you and our generous $10,000 match, families have more tools, more support, and more hope.
Missed Giving Tuesday? You can still make a gift that supports our year-end goal: zurl.co/ZxNis
Because of you and our generous $10,000 match, families have more tools, more support, and more hope.
Missed Giving Tuesday? You can still make a gift that supports our year-end goal: zurl.co/ZxNis
December 3, 2025 at 2:13 PM
Thank you for standing with brain tumor survivors on #GivingTuesday.
Because of you and our generous $10,000 match, families have more tools, more support, and more hope.
Missed Giving Tuesday? You can still make a gift that supports our year-end goal: zurl.co/ZxNis
Because of you and our generous $10,000 match, families have more tools, more support, and more hope.
Missed Giving Tuesday? You can still make a gift that supports our year-end goal: zurl.co/ZxNis
#GivingTuesday starts NOW.
Thanks to a generous board member, every gift is matched up to $10,000 - your impact goes twice as far.
Help us start strong and give survivors the tools and support they need: zurl.co/LWVj6
Thanks to a generous board member, every gift is matched up to $10,000 - your impact goes twice as far.
Help us start strong and give survivors the tools and support they need: zurl.co/LWVj6
December 2, 2025 at 3:20 PM
#GivingTuesday starts NOW.
Thanks to a generous board member, every gift is matched up to $10,000 - your impact goes twice as far.
Help us start strong and give survivors the tools and support they need: zurl.co/LWVj6
Thanks to a generous board member, every gift is matched up to $10,000 - your impact goes twice as far.
Help us start strong and give survivors the tools and support they need: zurl.co/LWVj6
#GivingTuesday is just a few days away. ⏳💙
For survivors of hypothalamic pituitary brain tumors, everyday moments depend on careful planning and the right tools.
Your early matched gift means more stability, more safety, and more days of joy.
zurl.co/At9Is
For survivors of hypothalamic pituitary brain tumors, everyday moments depend on careful planning and the right tools.
Your early matched gift means more stability, more safety, and more days of joy.
zurl.co/At9Is
November 29, 2025 at 3:14 PM
#GivingTuesday is just a few days away. ⏳💙
For survivors of hypothalamic pituitary brain tumors, everyday moments depend on careful planning and the right tools.
Your early matched gift means more stability, more safety, and more days of joy.
zurl.co/At9Is
For survivors of hypothalamic pituitary brain tumors, everyday moments depend on careful planning and the right tools.
Your early matched gift means more stability, more safety, and more days of joy.
zurl.co/At9Is
"When my child was diagnosed, I just wanted someone who understood.” – Maria 💬💛
This #GivingTuesday, your gift goes twice as far thanks to a $10K match. Help parents find support, & hope when they feel most alone.
Make your early matched gift✨: zurl.co/oHOdU
This #GivingTuesday, your gift goes twice as far thanks to a $10K match. Help parents find support, & hope when they feel most alone.
Make your early matched gift✨: zurl.co/oHOdU
November 27, 2025 at 5:41 PM
"When my child was diagnosed, I just wanted someone who understood.” – Maria 💬💛
This #GivingTuesday, your gift goes twice as far thanks to a $10K match. Help parents find support, & hope when they feel most alone.
Make your early matched gift✨: zurl.co/oHOdU
This #GivingTuesday, your gift goes twice as far thanks to a $10K match. Help parents find support, & hope when they feel most alone.
Make your early matched gift✨: zurl.co/oHOdU
Happy Thanksgiving from all of us at the Raymond A. Wood Foundation!
Today, we pause to reflect on the many things we are grateful for—and at the top of that list is YOU.
Wishing you and your families a day filled with love, joy, and gratitude.
Today, we pause to reflect on the many things we are grateful for—and at the top of that list is YOU.
Wishing you and your families a day filled with love, joy, and gratitude.
November 27, 2025 at 2:33 PM
Happy Thanksgiving from all of us at the Raymond A. Wood Foundation!
Today, we pause to reflect on the many things we are grateful for—and at the top of that list is YOU.
Wishing you and your families a day filled with love, joy, and gratitude.
Today, we pause to reflect on the many things we are grateful for—and at the top of that list is YOU.
Wishing you and your families a day filled with love, joy, and gratitude.
After the brain tumor, the hard part really begins. 💛
This Giving Tuesday, every dollar you give will be DOUBLED up to $10,000, thanks to a board-member match. Your early gift helps survivors face lifelong challenges with more safety and support.
Make your matched gift today: zurl.co/jT260 ✨
This Giving Tuesday, every dollar you give will be DOUBLED up to $10,000, thanks to a board-member match. Your early gift helps survivors face lifelong challenges with more safety and support.
Make your matched gift today: zurl.co/jT260 ✨
November 26, 2025 at 2:33 PM
After the brain tumor, the hard part really begins. 💛
This Giving Tuesday, every dollar you give will be DOUBLED up to $10,000, thanks to a board-member match. Your early gift helps survivors face lifelong challenges with more safety and support.
Make your matched gift today: zurl.co/jT260 ✨
This Giving Tuesday, every dollar you give will be DOUBLED up to $10,000, thanks to a board-member match. Your early gift helps survivors face lifelong challenges with more safety and support.
Make your matched gift today: zurl.co/jT260 ✨
More touching moments from last week's Pituitary Brain Tumor Family Conference in Philadelphia!
Thank you again to all the families that attended, our staff, board members and sponsors that made the incredible weekend possible.
We're hard at work at our next initiative, so stay tuned for more!
Thank you again to all the families that attended, our staff, board members and sponsors that made the incredible weekend possible.
We're hard at work at our next initiative, so stay tuned for more!
November 25, 2025 at 2:13 PM
More touching moments from last week's Pituitary Brain Tumor Family Conference in Philadelphia!
Thank you again to all the families that attended, our staff, board members and sponsors that made the incredible weekend possible.
We're hard at work at our next initiative, so stay tuned for more!
Thank you again to all the families that attended, our staff, board members and sponsors that made the incredible weekend possible.
We're hard at work at our next initiative, so stay tuned for more!
A new bipartisan bill—the Credit for Caring Act—could change the game for caregivers and families by granting up to $5,000 in annual tax credits to family members providing unpaid care.
If you want to show your support for this bill, contact your local representative! zurl.co/VhAkE
If you want to show your support for this bill, contact your local representative! zurl.co/VhAkE
November 20, 2025 at 2:52 PM
A new bipartisan bill—the Credit for Caring Act—could change the game for caregivers and families by granting up to $5,000 in annual tax credits to family members providing unpaid care.
If you want to show your support for this bill, contact your local representative! zurl.co/VhAkE
If you want to show your support for this bill, contact your local representative! zurl.co/VhAkE
Thank you to everyone who attended our 2025 Pituitary Brain Tumor Family Conference!
It was an incredible weekend of community, teamwork, and in-depth discussions from our amazing speakers. Until next time!
It was an incredible weekend of community, teamwork, and in-depth discussions from our amazing speakers. Until next time!
November 18, 2025 at 7:53 PM
Thank you to everyone who attended our 2025 Pituitary Brain Tumor Family Conference!
It was an incredible weekend of community, teamwork, and in-depth discussions from our amazing speakers. Until next time!
It was an incredible weekend of community, teamwork, and in-depth discussions from our amazing speakers. Until next time!