Rich Collins
@richcollins.bsky.social
CEO of Inflammatory Neuropathies UK. Loves a bit of data. Has a beard (he/him)
The couple opposite me on the train are watching Adventure Time, and I couldn’t be more delighted
a cartoon character from adventure time is tied up with a rope and says love you buddy .
ALT: a cartoon character from adventure time is tied up with a rope and says love you buddy .
media.tenor.com
November 19, 2025 at 10:03 PM
The couple opposite me on the train are watching Adventure Time, and I couldn’t be more delighted
Great place for a meeting in town.
November 19, 2025 at 9:55 PM
Great place for a meeting in town.
So proud to be supported by these wonderful women in Berlin yesterday
October 10, 2025 at 8:08 AM
So proud to be supported by these wonderful women in Berlin yesterday
I got to do some proper showing off on Saturday as it was the @inflamneurouk.bsky.social AGM and Big Get Together in Manchester. An incredible day with the Inflammatory Neuropathies community, our amazing Trustees and Founder, and a whole group of friends of the charity. 1/2
October 6, 2025 at 9:01 AM
I got to do some proper showing off on Saturday as it was the @inflamneurouk.bsky.social AGM and Big Get Together in Manchester. An incredible day with the Inflammatory Neuropathies community, our amazing Trustees and Founder, and a whole group of friends of the charity. 1/2
Would this apply to violent protests outside hotels in Epping as well as peaceful protests in London? - www.bbc.co.uk/news/article...
Police to get broader powers to crack down on repeated protests
Officers will be able to tell organisers to move demonstrations if protests have caused
www.bbc.co.uk
October 5, 2025 at 7:30 AM
Would this apply to violent protests outside hotels in Epping as well as peaceful protests in London? - www.bbc.co.uk/news/article...
Science is good www.bbc.co.uk/news/article...
Huntington's disease successfully treated for first time
One of the most devastating diseases finally has a treatment that can slow its progression and transform lives, tearful doctors tell BBC.
www.bbc.co.uk
September 24, 2025 at 8:21 PM
Science is good www.bbc.co.uk/news/article...
This story has been circulating around for a while, but this story in the Independent is the most mainstream source. The World Health Organisation are reporting multiple cases including deaths in Gaza caused by Guillain-Barré Syndrome. Short 🧵 www.independent.co.uk/news/world/m...
Israel destroyed Gaza’s sanitation plants. Now a rare disease is spreading unchecked
As hospitals in the strip struggle to cope with a stream of injured people, doctors are also battling the rise of a rare disease that has left children paralysed. Alex Croft speaks to medics on the fr...
www.independent.co.uk
September 16, 2025 at 11:50 PM
This story has been circulating around for a while, but this story in the Independent is the most mainstream source. The World Health Organisation are reporting multiple cases including deaths in Gaza caused by Guillain-Barré Syndrome. Short 🧵 www.independent.co.uk/news/world/m...
A 10km run in Denver and a walk around downtown in heat which wasn’t suitable for either running or walking
September 11, 2025 at 1:04 AM
A 10km run in Denver and a walk around downtown in heat which wasn’t suitable for either running or walking
Off to America for the GBS/CIDP Foundation International Symposium in Denver. Two first for me. USA and a Symposium
September 9, 2025 at 12:21 PM
Off to America for the GBS/CIDP Foundation International Symposium in Denver. Two first for me. USA and a Symposium
Interesting thing to announce in #Lincolnshire. I put in the #CareAct for the council in 2014 and it was always supposed to be strength based. It was at its heart. So what changed? Service creep, or is this really a way to make savings. Will watch with interest www.bbc.co.uk/news/article...
Lincolnshire social care services moving away from 'over-reliance'
People will be encouraged to delay using services and to
www.bbc.co.uk
September 6, 2025 at 6:53 AM
Interesting thing to announce in #Lincolnshire. I put in the #CareAct for the council in 2014 and it was always supposed to be strength based. It was at its heart. So what changed? Service creep, or is this really a way to make savings. Will watch with interest www.bbc.co.uk/news/article...
A thing I write with. Focus on why we shouldn’t use the word ‘should’ in a contract
#NHSEngland has published its new Adult #Neurology Services specification. Our CEO contributed feedback on behalf of the #InflammatoryNeuropathies community earlier this year, here's his view on the spec:
www.inflammatoryneuropathies.uk/post/new-spe...
www.inflammatoryneuropathies.uk/post/new-spe...
August 16, 2025 at 7:59 AM
A thing I write with. Focus on why we shouldn’t use the word ‘should’ in a contract
This is one of the things that people who have had #GuillainBarreSyndrome talk about most. It’s also one of the things that we need to look into and research. While it unlikely to come back, the #fear of #GBS returning is all to real for many people in the #InflammatoryNeuropathies community.
With so much physical damage from #GuillainBarreSyndrome, it can be easy to overlook the emotional impact of #GBS. It helps to talk:
Get Together inflammatoryneuropathies.uk/get-togethers
Emotional Support inflammatoryneuropathies.uk/health
Peer Support inflammatoryneuropathies.uk/peer-support
Get Together inflammatoryneuropathies.uk/get-togethers
Emotional Support inflammatoryneuropathies.uk/health
Peer Support inflammatoryneuropathies.uk/peer-support
August 8, 2025 at 7:37 AM
This is one of the things that people who have had #GuillainBarreSyndrome talk about most. It’s also one of the things that we need to look into and research. While it unlikely to come back, the #fear of #GBS returning is all to real for many people in the #InflammatoryNeuropathies community.
Reposted by Rich Collins
Oh captain, my captain.
July 27, 2025 at 7:14 PM
Oh captain, my captain.
The NHS ten year plan was released today so I grabbed some time in my hotel room here in Vienna and had a read through. Felt it might be useful to share my thoughts, so if you are interested the have a read through- www.inflammatoryneuropathies.uk/post/the-10-...
The 10 year plan | our thoughts
So, after much consultation, feedback, and discussion, the government today released its new 10 year plan. Here at Inflammatory Neuropathies UK, I have taken some time to have a look through the propo...
www.inflammatoryneuropathies.uk
July 3, 2025 at 9:04 PM
The NHS ten year plan was released today so I grabbed some time in my hotel room here in Vienna and had a read through. Felt it might be useful to share my thoughts, so if you are interested the have a read through- www.inflammatoryneuropathies.uk/post/the-10-...
People I work with are really scared about what’s happening with #PIP and #WelfareReforms. There’s a thread about it over T @inflamneurouk.bsky.social
We are keeping an eye on the ongoing discussions in parliament this afternoon and tomorrow. Our CEO, Rich, has read through the statement released by government earlier on this afternoon, and here are his initial thoughts.
#PIP #WelfareReforms
#PIP #WelfareReforms
June 30, 2025 at 4:55 PM
People I work with are really scared about what’s happening with #PIP and #WelfareReforms. There’s a thread about it over T @inflamneurouk.bsky.social
Additional investment into #EmploymentSupport announced as part of the statement on #WelfareReform. No details (apart from numbers) and it will need to be incredibly high quality, knowledgable, and specialist (which it isn’t at the moment). Said all this in the consultation but guess no one read it
June 30, 2025 at 3:18 PM
Additional investment into #EmploymentSupport announced as part of the statement on #WelfareReform. No details (apart from numbers) and it will need to be incredibly high quality, knowledgable, and specialist (which it isn’t at the moment). Said all this in the consultation but guess no one read it
Just read through the government’s statement on #WelfareReform. Nothing new in there, and the changes proposed are really just of bit of gloss. People will still be pushed into poverty by this and the amount of stress and heartache its causing to people is horrific
June 30, 2025 at 3:15 PM
Just read through the government’s statement on #WelfareReform. Nothing new in there, and the changes proposed are really just of bit of gloss. People will still be pushed into poverty by this and the amount of stress and heartache its causing to people is horrific
30 years ago I finished my Psychology degree at University of Hertfordshire and headed off into the big world with high hopes of becoming a Psychologist. Well for a number of reasons (mainly financial) that never happened
June 16, 2025 at 4:38 PM
30 years ago I finished my Psychology degree at University of Hertfordshire and headed off into the big world with high hopes of becoming a Psychologist. Well for a number of reasons (mainly financial) that never happened
We all know that birds are nesting at this time of year, so why on earth are people cutting back trees. This is the only bit of wild greenery we have really close by. If you need it cut back, wait until autumn. So annoying #Environment #UrbanWildlife
May 22, 2025 at 9:21 AM
We all know that birds are nesting at this time of year, so why on earth are people cutting back trees. This is the only bit of wild greenery we have really close by. If you need it cut back, wait until autumn. So annoying #Environment #UrbanWildlife
Reposted by Rich Collins
A huge thanks to everyone who joined our #GetTogether in #Edinburgh!
Connecting with others who’ve experienced #GBS, #CIDP, #MMN & other #InflammatoryNeuropathies is both powerful for our community, and incredibly useful to steer our campaigns and work. Thank you ❤️
Connecting with others who’ve experienced #GBS, #CIDP, #MMN & other #InflammatoryNeuropathies is both powerful for our community, and incredibly useful to steer our campaigns and work. Thank you ❤️
May 18, 2025 at 10:38 AM
A huge thanks to everyone who joined our #GetTogether in #Edinburgh!
Connecting with others who’ve experienced #GBS, #CIDP, #MMN & other #InflammatoryNeuropathies is both powerful for our community, and incredibly useful to steer our campaigns and work. Thank you ❤️
Connecting with others who’ve experienced #GBS, #CIDP, #MMN & other #InflammatoryNeuropathies is both powerful for our community, and incredibly useful to steer our campaigns and work. Thank you ❤️
Well the last few days have been a whirlwind up in Edinburgh at #PNS2025. Back to some proper work today. Miss seeing this everyday though on my walk in
May 22, 2025 at 7:54 AM
Well the last few days have been a whirlwind up in Edinburgh at #PNS2025. Back to some proper work today. Miss seeing this everyday though on my walk in
I’m up in Edinburgh for a few days. Mainly for a conference but most importantly a @inflamneurouk.bsky.social Get Together. Looking forward to catching up with folk tomorrow
May 16, 2025 at 6:32 PM
I’m up in Edinburgh for a few days. Mainly for a conference but most importantly a @inflamneurouk.bsky.social Get Together. Looking forward to catching up with folk tomorrow
Who is actually going to make up out under resources, under paid, care workforce then. Unbelievable thing to announce - www.bbc.co.uk/news/article...
Time to end care worker recruitment from abroad, Home Secretary Yvette Cooper says
Up to 50,000 fewer lower-skilled workers will come to the UK under new measures aimed at tackling net migration, the home secretary says.
www.bbc.co.uk
May 11, 2025 at 12:26 PM
Who is actually going to make up out under resources, under paid, care workforce then. Unbelievable thing to announce - www.bbc.co.uk/news/article...
If this is an accurate translation (which I hope it is) then there is hope for us all
Oh yeah nice one kid hook that hope for humanity right into my veins
May 10, 2025 at 8:46 AM
If this is an accurate translation (which I hope it is) then there is hope for us all