consider the covid longhaulers subreddit and r/cfs plus discord servers you can find linked from there.
September 10, 2023 at 6:44 PM
consider the covid longhaulers subreddit and r/cfs plus discord servers you can find linked from there.
yeah for real! i feel like bluesky is the future. i was so sad at first to see it was a competing with the activitypub federation protocol but now it’s pretty clear that they made the right decision starting from scratch
August 14, 2023 at 12:12 AM
yeah for real! i feel like bluesky is the future. i was so sad at first to see it was a competing with the activitypub federation protocol but now it’s pretty clear that they made the right decision starting from scratch
ah yeah i can see the difference! i like the extra stuff in Kolt’s
August 13, 2023 at 10:56 PM
ah yeah i can see the difference! i like the extra stuff in Kolt’s
do you know about the intersection between EDS and being trans? a truly fascinating one.
August 13, 2023 at 10:53 PM
do you know about the intersection between EDS and being trans? a truly fascinating one.
There's already a feed like this! https://bsky.app/profile/did:plc:3sn6bogankaicebzdb7liro3/feed/aaahqnwsf2z4m
i wonder what differences there are between them
i wonder what differences there are between them
August 13, 2023 at 4:23 PM
There's already a feed like this! https://bsky.app/profile/did:plc:3sn6bogankaicebzdb7liro3/feed/aaahqnwsf2z4m
i wonder what differences there are between them
i wonder what differences there are between them
i feel this. has been the exact same issue for me. took a combo of me stretching the truth and finding the right doctor to get around it.
August 11, 2023 at 12:42 AM
i feel this. has been the exact same issue for me. took a combo of me stretching the truth and finding the right doctor to get around it.
i’m getting a temporary one from a charity shop tomorrow! i’m excited to hopefully get out of the house.
but i never considered there might be one that reclines. that would be really useful for me.
but i never considered there might be one that reclines. that would be really useful for me.
August 10, 2023 at 12:38 AM
i’m getting a temporary one from a charity shop tomorrow! i’m excited to hopefully get out of the house.
but i never considered there might be one that reclines. that would be really useful for me.
but i never considered there might be one that reclines. that would be really useful for me.
that like, the way sexism affects ME diagnosis is a two way street. women constantly told its in our heads while men are told to man up
August 10, 2023 at 12:14 AM
that like, the way sexism affects ME diagnosis is a two way street. women constantly told its in our heads while men are told to man up
i read something recently theorizing the same
August 10, 2023 at 12:13 AM
i read something recently theorizing the same
thanks for sharing all this. it’s very useful for me to read about other experiences as i’m navigating all this right now.
August 10, 2023 at 12:12 AM
thanks for sharing all this. it’s very useful for me to read about other experiences as i’m navigating all this right now.
ah cool. how do you handle the energy expense of pushing yourself? is it still easier than walking?
August 9, 2023 at 11:06 PM
ah cool. how do you handle the energy expense of pushing yourself? is it still easier than walking?
i’ve had it about 2 years, it’s doing just fine so far!
August 9, 2023 at 11:06 PM
i’ve had it about 2 years, it’s doing just fine so far!
lol yeah i picked a couple things off the floor and immediately regretted it. like, oh shit, not actually there yet. back to bed. i’m in a severe crash rn too, also worst i’ve had in 10 years 🙃 hoping i’ll bounce back
August 9, 2023 at 11:01 PM
lol yeah i picked a couple things off the floor and immediately regretted it. like, oh shit, not actually there yet. back to bed. i’m in a severe crash rn too, also worst i’ve had in 10 years 🙃 hoping i’ll bounce back
i have the GhostBed Luxe. expensive but has been good for my FM/ME. Sees heavy use.
August 9, 2023 at 10:34 PM
i have the GhostBed Luxe. expensive but has been good for my FM/ME. Sees heavy use.
cool chair. does it have a motor? how do you engage it? love that it leans back. i’m shopping around for one rn.
August 9, 2023 at 10:30 PM
cool chair. does it have a motor? how do you engage it? love that it leans back. i’m shopping around for one rn.