rykener
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rykener.bsky.social
rykener
@rykener.bsky.social
⚧️☸️♿️🏴💅🏻✨🦊👻
consider the covid longhaulers subreddit and r/cfs plus discord servers you can find linked from there.
September 10, 2023 at 6:44 PM
yeah for real! i feel like bluesky is the future. i was so sad at first to see it was a competing with the activitypub federation protocol but now it’s pretty clear that they made the right decision starting from scratch
August 14, 2023 at 12:12 AM
ah yeah i can see the difference! i like the extra stuff in Kolt’s
August 13, 2023 at 10:56 PM
do you know about the intersection between EDS and being trans? a truly fascinating one.
August 13, 2023 at 10:53 PM
such a mood
August 13, 2023 at 10:49 PM
There's already a feed like this! https://bsky.app/profile/did:plc:3sn6bogankaicebzdb7liro3/feed/aaahqnwsf2z4m

i wonder what differences there are between them
August 13, 2023 at 4:23 PM
i feel this. has been the exact same issue for me. took a combo of me stretching the truth and finding the right doctor to get around it.
August 11, 2023 at 12:42 AM
wow that’s criminal.
August 10, 2023 at 12:40 AM
i’m getting a temporary one from a charity shop tomorrow! i’m excited to hopefully get out of the house.

but i never considered there might be one that reclines. that would be really useful for me.
August 10, 2023 at 12:38 AM
that like, the way sexism affects ME diagnosis is a two way street. women constantly told its in our heads while men are told to man up
August 10, 2023 at 12:14 AM
i read something recently theorizing the same
August 10, 2023 at 12:13 AM
thanks for sharing all this. it’s very useful for me to read about other experiences as i’m navigating all this right now.
August 10, 2023 at 12:12 AM
ah cool. how do you handle the energy expense of pushing yourself? is it still easier than walking?
August 9, 2023 at 11:06 PM
i’ve had it about 2 years, it’s doing just fine so far!
August 9, 2023 at 11:06 PM
lol yeah i picked a couple things off the floor and immediately regretted it. like, oh shit, not actually there yet. back to bed. i’m in a severe crash rn too, also worst i’ve had in 10 years 🙃 hoping i’ll bounce back
August 9, 2023 at 11:01 PM
i have the GhostBed Luxe. expensive but has been good for my FM/ME. Sees heavy use.
August 9, 2023 at 10:34 PM
cool chair. does it have a motor? how do you engage it? love that it leans back. i’m shopping around for one rn.
August 9, 2023 at 10:30 PM