A tired human
@saffronandsky.bsky.social
disability justice💜 Mod chronic illness 4 decades. long covid in '22 = very severe MCAS, ME&POTs= bedbound. Parent, mixed race, writer, gardener ♿ 🏳️🌈☸️
For me, the hardest things abt being very severe are: 1) the isolation, only being able to have minimal interaxn w/ caregivers. Most of all missing my children(they were 2 and 8 when i got sick, they are 5 and 11 now). I've spent as much time with them in the last 2 yrs as I used to in a single day.
February 18, 2025 at 10:47 PM
For me, the hardest things abt being very severe are: 1) the isolation, only being able to have minimal interaxn w/ caregivers. Most of all missing my children(they were 2 and 8 when i got sick, they are 5 and 11 now). I've spent as much time with them in the last 2 yrs as I used to in a single day.
I have thus far not figured out how to balance physical and mental health while very severe. Any small thing I do for my mental health destroys my physical health which in turn destroys my mental health. It feels like a trap. I need help, but it seems nothing and no one can help.
January 14, 2025 at 11:46 PM
I have thus far not figured out how to balance physical and mental health while very severe. Any small thing I do for my mental health destroys my physical health which in turn destroys my mental health. It feels like a trap. I need help, but it seems nothing and no one can help.
I haven't been well because of severe #mecfs from #longcovid, Lyme disease and mold. That means I can't be online more than every week or two, or sometimes every month. But I hear this is where all the cool kids are hanging out, away from evil Elon.
December 28, 2024 at 7:17 PM
I haven't been well because of severe #mecfs from #longcovid, Lyme disease and mold. That means I can't be online more than every week or two, or sometimes every month. But I hear this is where all the cool kids are hanging out, away from evil Elon.