Silke Schlüter
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silkeschlueter.bsky.social
Silke Schlüter
@silkeschlueter.bsky.social
Patient mit Myositis & Patientenvertreter
Vorsitzende der Myositis-Gruppe
2. Vorsitzende der Deutsche Gesellschaft für Muskelkranke e.V.
Vorstandsmitglied bei iMyoS & MYOSITIS NETZ e.V.
ePAG bei ERN ReCONNET
Mitglied in der ERN EURO-NMD Muskelgruppe
Reposted by Silke Schlüter
Olga Drápalová is Chair of the Czech Myositis Working Group & brings lived experience as a myositis patient.💪
At the 6th GCOM in Lisbon, she is excited to see patient voices represented, shaping discussions & driving impact at the heart of progress.
gcom.imyos.org
#myositis #gcom #imyos #patients
December 28, 2025 at 4:10 PM
Reposted by Silke Schlüter
Meet Lorenzo Cavagna, Rheumatologist at IRCCS Policlinico S. Matteo Foundation of Pavia & Associate Prof. at the Univ. of Pavia! 🚀
He will share insights from the CLASS Project — Classification Criteria for Anti-Synthetase Syndrome — advancing research. Join us at GCOM26!

#Myositis #GCOM26 #iMyoS
December 27, 2025 at 7:05 PM
Reposted by Silke Schlüter
We’re excited to highlight Margherita Giannini, rheumatologist & researcher at the Univ. of Strasbourg! Together with her colleagues,she is advancing innovative research in myositis. Next March,she’ll join the GCOM to present new findings & connect with the global myositis community.
gcom.imyos.org
December 27, 2025 at 3:32 PM
Reposted by Silke Schlüter
Eleni Tiniakou is a rheumatologist & Associate Prof. of Medicine at UTHealth Houston & she co- leads the multidisciplinary program on IIM, with her colleague from Neurology, Suur Biliciler. She is looking forward to the insightful discussions & connections to be made at GCOM26
gcom.imyos.org

#gcom
December 26, 2025 at 4:13 PM
Reposted by Silke Schlüter
Alain Meyer is a rheumatologist & researcher at the University of Strasbourg. A leading expert in myositis, passionately dedicated to advancing knowledge & improving care for patients with IIM.
He is very much looking forward to the GCOM. gcom.imyos.org

#Myositis #GCOM #iMyoS #Lisbon2026
December 25, 2025 at 6:22 PM
Reposted by Silke Schlüter
Eduardo Dourado, rheumatologist in Portugal, is looking forward to welcoming the global myositis community to a truly special event: the 6th Global Conference on Myositis!

Take this special opportunity and join us in Lisbon‼️
23-26 March 2026
gcom.imyos.org

#Myositis #iMyoS #GCOM #Lisbon2026
December 24, 2025 at 3:32 PM
Reposted by Silke Schlüter
Anneli Dihkan is the Chair of the Myositis Working Group in Sweden.
She tells us, why it is so important for patients to attend the GCOM in Lisbon 23-26 March 2026.

Join the GCOM in Lisbon:
gcom.imyos.org

#Myositis #iMyoS #GCOM
December 24, 2025 at 10:42 AM
Reposted by Silke Schlüter
👉 Register by 7 January to benefit from Early Bird rates‼️
gcom.imyos.org

#imyos #gcom #myositis
December 23, 2025 at 5:43 PM
Reposted by Silke Schlüter
Prof. Olivier Boyer, Immunologist at Université de Rouen Normandie, France, tells us why the GCOM is the unique place to learn and network with people from all over the world who are involved in myositis.
Join the 6th GCOM and register now:
gcom.imyos.org

#Myositis #iMyoS #GCOM #Lisbon2026
December 22, 2025 at 6:11 PM
Reposted by Silke Schlüter
Prof. Jens Schmidt, former chair of iMyoS, shares why he's eagerly anticipating the Global Conference on Myositis (GCOM).
Join us in Lisbon in March 2026, when the global myositis community comes together.
gcom.imyos.org

#myositis #imyos #gcom
December 21, 2025 at 6:07 PM
JETZT noch anmelden! ✍️
Vom 8.-9. August 2025 findet die 2. Myositis Summer School des MYOSITIS NETZ e.V. statt.
Sichert Euch einen Platz!
Hier der Link zum finalen Programm & dem Anmeldeformular:
www.myositis-netz.de/wp-content/u...
#myositis #summerschool
#myositisnetz
July 3, 2025 at 10:28 AM
The new annual myositis issue of Clinical & Experimental Rheumatology is online! Read it now! 📖👍🤗
#imyos #InternationalMyositisSociety #myositis
www.clinexprheumatol.org/a.asp?IDArch...
February - Myositis 2025
2025 Vol.43, N°2 - Table of contents
www.clinexprheumatol.org
March 9, 2025 at 12:14 PM
Everyone agrees that myositis is a rare disease. But there's a little agreement on which terminoligy should be used. This article is intended to encourage the discussion of a standardized, global terminology.
#myositis #iMyoS #InternationalMyositisSociety
www.clinexprheumatol.org/abstract.asp...
The classification of myositis: setting the stage for a universal terminology
Editorial; Authors: M. Giannini, S. Bhai, O. Boyer, K. Cheng, M. Johari, P. Korsten, J.B. Lilleker, D. Saygin, S. Schlüter, A.J. Van Der Kooi, J. Schmidt<br><i>on behalf of the International Myositis ...
www.clinexprheumatol.org
February 25, 2025 at 4:11 PM
Bone health in neuromuscular diseases is an important topic.
This paper highlights the various aspects and is intended to sensitize patients and healthcare professionals to this subject.
www.jns-journal.com/article/S002...
#neuromusculardiseases #rarediseases
Awareness of bone strength in patients with neuromuscular disorders: ERN EURO-NMD clinician survey and European patient survey
Bone strength is reduced In various neuromuscular disorders (NMDs). We aimed to assess the awareness and practice of bone strength management in NDMs among clinicians and patients. We performed two on...
www.jns-journal.com
February 25, 2025 at 4:03 PM
Die Myositis-Gruppe & die Familienbildung im Heinrich Pesch Haus laden zur #Myositis Fachtagung ein. Alle Infos zum Programm & zur Anmeldung unter: www.dgm.org/news/6-fachs...

#Deutschegesellschaftfuermuskelkranke #Muskelschwund
#Neurologie #Rheumatologie
February 5, 2025 at 8:32 PM