Simon McGrath
Simon McGrath
@simonmcg.bsky.social
I occasionally try to explain and comment on ME researchh, or even contribute to it. And I advocate for more and better research.
It's been cited 34 times. And I think it made it impossible for the Pace authors to continue with claims that CBT and grade exercise led to recovery.
December 14, 2025 at 8:34 PM
Similarly, those scientists less concerned with a rigourous standards and with more flexibility about ethics are more likely to produce studies with eye-catching results that get published. " our painstaking, rigourous study found nothing " is no way to career success
December 13, 2025 at 10:08 PM
This is so shocking, and deeply disappointing. In his writings, he comes across as someone who great integrity, as well as compassion and empathy.

Maybe it's something that he at least expressed remorse in his private journal.
December 13, 2025 at 9:49 PM
I read a paper about that and wasn't convinced – given the severity of damage to the body caused by Ebola.
December 10, 2025 at 10:19 AM
Any idea if that was that the same as the disease in the Oliver Sacks story/film Awakenings?
December 10, 2025 at 10:18 AM
Yes – on an overall severity scale. MS can be terrible. But does it really look like ME/CFS ?
December 10, 2025 at 8:51 AM
Curious to know why people say MS – it's widely quoted as a good comparison. I've spent quite a lot of time living alongside/spending time in places with people with MS. I see so many differences vs ME, though I know fatigue is often quoted by people with the ill illness as the most troubling.
December 9, 2025 at 8:58 PM
Early in my illness, I had terrible problems with pain and belonged to a chronic pain organisation in the late 1990s and early 2000s. Interestingly, CBT was being pushed hard for chronic pain as well, and was met with similar scepticism by peoplehood experienced it.
December 9, 2025 at 8:54 PM
A good question. I've not heard anyone mention this before, but I would suggest chronic pain has similarities – not least what sounds exactly like PEM, and having relapse is pretty easily.

1
December 9, 2025 at 8:54 PM
It's probably includes people who self-reported at it at the baseline interview (where they had to name any illnesses they had on prompted), and the pain questionnaire, where they chose from a prompted list. A majority of both probably do not have.ME/CFS, which costs doubts on the study's results
December 7, 2025 at 2:00 PM
Haha!
December 7, 2025 at 10:38 AM