Schuyler Thorpe (HUMIRA Recipient.)
@skywriter33.bsky.social
Former writer/indie author.
Anime buff.
Generation Zero junkie on the PlayStation 4. (Level 166. 1928 hours of gameplay.)
Anime buff.
Generation Zero junkie on the PlayStation 4. (Level 166. 1928 hours of gameplay.)
All the minerals and vitamins are dumped out of my body for 8 hours.
Every 4 hours, I have to eat something salty (or take a sodium chloride pill to keep me balanced?
Every 4 hours, I have to eat something salty (or take a sodium chloride pill to keep me balanced?
December 3, 2025 at 6:23 PM
All the minerals and vitamins are dumped out of my body for 8 hours.
Every 4 hours, I have to eat something salty (or take a sodium chloride pill to keep me balanced?
Every 4 hours, I have to eat something salty (or take a sodium chloride pill to keep me balanced?
I’m on water pills and chlorthalidone.
One makes me pee for 8 hours, the other dries out all the fluids in my body?
(Leaving me with permanent dry mouth and permanently dehydrated.
Reason why I drink 20+ bottle of water a day?)
One makes me pee for 8 hours, the other dries out all the fluids in my body?
(Leaving me with permanent dry mouth and permanently dehydrated.
Reason why I drink 20+ bottle of water a day?)
December 3, 2025 at 5:39 PM
I’m on water pills and chlorthalidone.
One makes me pee for 8 hours, the other dries out all the fluids in my body?
(Leaving me with permanent dry mouth and permanently dehydrated.
Reason why I drink 20+ bottle of water a day?)
One makes me pee for 8 hours, the other dries out all the fluids in my body?
(Leaving me with permanent dry mouth and permanently dehydrated.
Reason why I drink 20+ bottle of water a day?)
Yesterday while out shopping?
Yup.
Yup.
December 3, 2025 at 4:22 PM
Yesterday while out shopping?
Yup.
Yup.
Pickles are a weakness of mine. 🤓
December 3, 2025 at 4:18 PM
Pickles are a weakness of mine. 🤓
$149 for this.
December 3, 2025 at 4:17 PM
$149 for this.
I bought myself a really nice Christmas present. First one in 4 years?
December 3, 2025 at 4:31 AM
I bought myself a really nice Christmas present. First one in 4 years?
Eating slightly better. But not by much.
December 3, 2025 at 4:29 AM
Eating slightly better. But not by much.
Under the weather a bit.
December 3, 2025 at 4:29 AM
Under the weather a bit.
Sore and tired.
November 28, 2025 at 11:23 PM
Sore and tired.
So I scrubbed everything down in both bathrooms. Vaccumed, did some more dishes, stripped the bedding, and a few other things.
5 hours and I'm sore and exhausted. lol
5 hours and I'm sore and exhausted. lol
November 27, 2025 at 1:51 AM
So I scrubbed everything down in both bathrooms. Vaccumed, did some more dishes, stripped the bedding, and a few other things.
5 hours and I'm sore and exhausted. lol
5 hours and I'm sore and exhausted. lol
I slept 10 hours this morning, 7 more hours yesterday (on top of the 3 hours before that), then did 5 hours of housecleaning:
Both the main and secondary bathrooms? (I had a plugged toilet in the main one this past Saturday.)
Monday afternoon, Andy came over and cleared it in less than 2 minutes?
Both the main and secondary bathrooms? (I had a plugged toilet in the main one this past Saturday.)
Monday afternoon, Andy came over and cleared it in less than 2 minutes?
November 27, 2025 at 1:48 AM
I slept 10 hours this morning, 7 more hours yesterday (on top of the 3 hours before that), then did 5 hours of housecleaning:
Both the main and secondary bathrooms? (I had a plugged toilet in the main one this past Saturday.)
Monday afternoon, Andy came over and cleared it in less than 2 minutes?
Both the main and secondary bathrooms? (I had a plugged toilet in the main one this past Saturday.)
Monday afternoon, Andy came over and cleared it in less than 2 minutes?
I'm just a mess right now. lol
November 24, 2025 at 3:59 PM
I'm just a mess right now. lol
Trying to get something in my stomach has been so challenging and next to frustrating (and vexing)...?
Now I'm having to pace out my PT exercises because I'm in constant back pain?
Ugh.
Now I'm having to pace out my PT exercises because I'm in constant back pain?
Ugh.
November 22, 2025 at 12:10 AM
Trying to get something in my stomach has been so challenging and next to frustrating (and vexing)...?
Now I'm having to pace out my PT exercises because I'm in constant back pain?
Ugh.
Now I'm having to pace out my PT exercises because I'm in constant back pain?
Ugh.
I got some stuff that I *can* eat, but because of my metabolic imbalance, it's torpedoed 90% of everything which would be a serious weight gainer and so on?
So--in essence--I can count the 8 things I can eat (for the rest of my days), the other 700M are off the Sky Menu. lol
So--in essence--I can count the 8 things I can eat (for the rest of my days), the other 700M are off the Sky Menu. lol
November 18, 2025 at 1:07 AM
I got some stuff that I *can* eat, but because of my metabolic imbalance, it's torpedoed 90% of everything which would be a serious weight gainer and so on?
So--in essence--I can count the 8 things I can eat (for the rest of my days), the other 700M are off the Sky Menu. lol
So--in essence--I can count the 8 things I can eat (for the rest of my days), the other 700M are off the Sky Menu. lol
This will knock millions off SNAP (intentionally) because of some kind of PER percentage ratio which states have to meet (to get SNAP), or pay the difference:
If they go over a certain number?
Thing is, it will wipe out all the SNAP benefits from red states entirely--due to no extra money?
If they go over a certain number?
Thing is, it will wipe out all the SNAP benefits from red states entirely--due to no extra money?
November 17, 2025 at 10:47 PM
This will knock millions off SNAP (intentionally) because of some kind of PER percentage ratio which states have to meet (to get SNAP), or pay the difference:
If they go over a certain number?
Thing is, it will wipe out all the SNAP benefits from red states entirely--due to no extra money?
If they go over a certain number?
Thing is, it will wipe out all the SNAP benefits from red states entirely--due to no extra money?
I took what I couldn't eat (in two cart loads) to a neighbor whom runs a day care--out of her apartment.
She's a naturalized citizen, but Trump's cruel SNAP reforms banned people like her from having SNAP at all?
And most states will also be impacted by the reforms as well.
She's a naturalized citizen, but Trump's cruel SNAP reforms banned people like her from having SNAP at all?
And most states will also be impacted by the reforms as well.
November 17, 2025 at 10:45 PM
I took what I couldn't eat (in two cart loads) to a neighbor whom runs a day care--out of her apartment.
She's a naturalized citizen, but Trump's cruel SNAP reforms banned people like her from having SNAP at all?
And most states will also be impacted by the reforms as well.
She's a naturalized citizen, but Trump's cruel SNAP reforms banned people like her from having SNAP at all?
And most states will also be impacted by the reforms as well.
I did get some things which will help me--in terms of food which I can process. That ham--which I bought with the gift card--I went back and got a second with my food stamps today?
Food bank run to Marysville netted some things that I can eat.
Food bank run to Marysville netted some things that I can eat.
November 17, 2025 at 10:43 PM
I did get some things which will help me--in terms of food which I can process. That ham--which I bought with the gift card--I went back and got a second with my food stamps today?
Food bank run to Marysville netted some things that I can eat.
Food bank run to Marysville netted some things that I can eat.
I get mine from the food bank.
November 13, 2025 at 11:35 PM
I get mine from the food bank.
Pasta is 50-50.
Rice? The same.
Beans?
Hell no! 😳
Rice? The same.
Beans?
Hell no! 😳
November 13, 2025 at 11:31 PM
Pasta is 50-50.
Rice? The same.
Beans?
Hell no! 😳
Rice? The same.
Beans?
Hell no! 😳
I have 5 canisters just in case.
November 13, 2025 at 11:30 PM
I have 5 canisters just in case.
Can’t.
I start percolating 20 minutes later and….
🚽
I start percolating 20 minutes later and….
🚽
November 13, 2025 at 11:29 PM
Can’t.
I start percolating 20 minutes later and….
🚽
I start percolating 20 minutes later and….
🚽
Sabina was appalled by the fact that I can’t eat meat, pork, or chicken.
Turkey (for some odd reason) is something I have no issues with?
Turkey (for some odd reason) is something I have no issues with?
November 13, 2025 at 11:28 PM
Sabina was appalled by the fact that I can’t eat meat, pork, or chicken.
Turkey (for some odd reason) is something I have no issues with?
Turkey (for some odd reason) is something I have no issues with?
Can’t process soups. Which is a Greek tragedy unto itself?
November 13, 2025 at 11:24 PM
Can’t process soups. Which is a Greek tragedy unto itself?