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Solve M.E. @solveme.bsky.social · 7h

ICYMI: Solve Ramsay Research Grant winner Dr. Jarred Younger explains the recent study by fellow Ramsay winner
Dr. Carmen Scheibenbogen
on the effect of #Mestinon (Pyridostigmine) on hand strength in #MECFS
ow.ly/YPzk50X8GYF

#MEAwarenessHour

074 - New study: Pyridostigmine may help ME/CFS muscle weakness

Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.

ow.ly

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Solve M.E. @solveme.bsky.social · 7h

📢Big thanks to advocate and caregiver Rebecca Groble (pictured right) and her friend for hosting a booth at their local Nurtured by Nature health fair. They handed out free educational literature to help raise awareness about #MECFS. 👏💙
#MEAwarenessHour

Two women sit outdoors at a table covered with a Solve M.E. banner.

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Solve M.E. @solveme.bsky.social · 5d

🎓 Solve is proud to sponsor the Oct 31 #IACC Case Competition at University of Michigan Ross School of Business! Patients, advocates, & experts come together to tackle challenges like #LongCovid #ME/CFS #POTS & more. Registration (in-person or virtual) is free!
ow.ly/XqgT50X6tQ5

Invitation to the IACC Case Competition at University of Michigan Ross, focusing on infection-associated chronic conditions like Long COVID and ME/CFS, held October 31st, hybrid format.

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Solve M.E. @solveme.bsky.social · 5d

The federal government has shut down, and the impacts are already being felt across systems and services our community depends on. Read our summary of the key areas of impact and tips on ways to stay connected:
solvecfs.org/government-s...

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Solve M.E. @solveme.bsky.social · 7d

Patient voices were heard! The ADDRESS-LC trial on Bezisterim is now open to those who have been living with #LongCovid for more than 2 years. We’re glad to see BioVie's trial continues to reflect patient + scientific input! Find a trial site near you:
addresslongcovid.com/sites

Person lying in bed with hand on forehead, illustrating fatigue and brain fog after COVID-19 illness.

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Solve M.E. @solveme.bsky.social · 14d

Thanks for tuning in! We can pass that question along.

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Solve M.E. @solveme.bsky.social · 15d

Patient voices were heard! The ADDRESS-LC trial on Bezisterim is now open to those who have been living with Long COVID for more than 2 years. We’re glad to see Biovie’s trial continues to reflect patient + scientific input!

Find a trial site near you: addresslongcovid.com/sites/

Study Sites | Address: Long COVID Clinical Study | BioVie Pharma

Study Sites near you! Learn more about participating in a clinical study of a Trial Drug to treat neurological symptoms of Long COVID.

addresslongcovid.com

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Solve M.E. @solveme.bsky.social · 28d

Check out this article on a London photo exhibition by Jeremy Jeff depicting life with #MECFS. The exhibition, presented by The ME Association, will be on display Sept. 24-28.

www.londonworld.com/community/th...

#MEAwarenessHour

Thought-provoking photography exhibition captures what it’s like to live with ME/CFS

‘Lives We Cannot Live’, a new and thought-provoking photographic exhibition by documentary film-maker and photographer Jeremy Jeffs, presented by The ME Association, will be on display at the iconic O...

www.londonworld.com

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Solve M.E. @solveme.bsky.social · 29d

Solve and partner organizations urge NIH leadership to include subgroup tracking and analysis for #MECFS (using IOM criteria), #POTS & other forms of #dysautonomia, and #MCAS in the RECOVER TLC trials.

Read our letter here:
ow.ly/CHME50WUcx1

#United4Me

photo of Emily Taylor (brown hair, glasses) with quote text: "Solve joined this call to NIH leadership because people with ME/CFS, Long Covid, and related illnesses like POTS and MCAS deserve research that truly reflects their realities. By ensuring clinical trials account for the differences among patients, we can accelerate discoveries that lead to real treatments and improved care. This is a moment of great responsibility, and we are committed to making sure science rises to meet the needs of millions still waiting for answers.”

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Solve M.E. @solveme.bsky.social · Sep 4

Solve is a proud sponsor of the virtual International #ChronicFatigueSyndrome / #MyalgicEncephalomyelitis (#IACFSME) 17th Research and Clinical Conference (Oct. 22-25), & will co-present a panel with our partners at Brain Inflammation Collaborative (BIC).

Register for IACFSME: ow.ly/mxz950WRARt

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Solve M.E. @solveme.bsky.social · Sep 4

Register for our free Oct. 14 webinar, “The Unified Platform: Advancing Research Across #MECFS, #LongCovid, & Other Chronic Conditions" w/ Christy Jagdfeld & Megan L. Fitzgerald PhD (BIC) & Chris Nowak to learn how you can get involved.
Sign up: ow.ly/luTT50WGMXV

Webinar promotional graphic titled “The Unified Platform: Advancing Research Across ME/CFS, Long Covid, and Other Chronic Conditions.” Event date: Tuesday, October 14, 2025, at 3 pm PT / 6 pm ET. Featured speakers with headshots: Megan L. Fitzgerald, PhD, Principal Investigator & Lived Experience Expert; Christy Jagdfeld, Co-founder and CEO of Brain Inflammation Collaborative; Chris Nowak, Platform Architect & Caregiver to a Person with ME/CFS, CareEvolution; and Emily Taylor, President of Solve M.E. Logos for Solve M.E., Unhide, Solve Together, and Brain Inflammation Collaborative are at the bottom.

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Reposted by Solve M.E.

#MEAction Network @meactnet.bsky.social · Sep 4

You are invited to join #MEAction for our latest Pillow Writers’ Salon on Thursday, September 18th at 11am PT/2pm ET/7pm UK.

Register: us06web.zoom.us/meeting/regi...

More about Pillow Writers: pillowwriters.wordpress.com

#pwME #MECFS #spoonie #WritingCommunity #LongCovid #MyalgicE

Welcome! You are invited to join a meeting: Pillow Writers Salon 2025. After registering, you will receive a confirmation email about joining the meeting.

Join #MEAction for our exciting Pillow Writers’ Salon on Thursday, September 18th at 11am PT/2pm ET/7pm UK. This live Salon will feature readings by the authors of both comic and serious, stories, e...

us06web.zoom.us

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Solve M.E. @solveme.bsky.social · Sep 4

Happening today at 3pm PT / 6 pm ET.

You can still register at
ow.ly/ReIW50WApvO

Solve M.E. @solveme.bsky.social · Aug 5

Register for our Thurs. September 4 webinar on the Solve ME/CFS Catalyst Award-winning study from the team at bsky.app/profile/simm..., "Targeting Autophagy: A Clinical Trial of Low-Dose Rapamycin for #MECFS, #LongCOVID, and #IACCIs."
Sign up here: ow.ly/ReIW50WApvO

Announcement for a clinical trial webinar on low-dose rapamycin targeting autophagy for ME/CFS, Long Covid, and IACCIS on September 4 at 3 pm PT/6 pm ET. Includes photos of Dr. C. Gunnar Gottschalk, Dr. Avik Roy, Dr. Stephanie Gratch, and Emily Taylor.

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Solve M.E. @solveme.bsky.social · Aug 28

Solve & @batemanhornecenter.bsky.social co-hosted a webinar series on Severe ME. In this ep. dedicated to removing barriers to research for people with #SevereME, sabrinapoirier.bsky.social‬ & @putrinolab.bsky.social discuss how patients are reshaping research.
Watch: https://ow.ly/xcAE50WNhXP

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Solve M.E. @solveme.bsky.social · Aug 15

We also want to take a moment to acknowledge the recent shooting at the CDC and send our heartfelt support to our colleagues there as they process and heal from this tragedy. Our thoughts are with all those affected.

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Solve M.E. @solveme.bsky.social · Aug 15

Today, we join the #MECFS community in thanking Dr. Beth Unger for her years of dedication at the CDC. Her leadership helped protect the ME/CFS program, expand research, and elevate patient voices.
📄 Read our open letter of gratitude: ow.ly/Im0a50WGS3m

A teal blue graphic with white lettering adn orange and white decorative shapes reads, "Thank you message to Dr. Beth Unger for your years of service to the ME/CFS community. Your work at the CDC has helped protect vital programs, expand research, and keep patients' needs at the center. Read the open letter from our community -- link in bio."

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Solve M.E. @solveme.bsky.social · Aug 15

Pt. 2 of the Severe #MECFS Webinar Series co-hosted by
@batemanhornecenter.bsky.social + Solve. The session covers legal planning for those with severe ME & their caregivers. Topics include SSDI, SSI, POA, guardianship & more.
ow.ly/mGAP50WGMBf
#SevereMEAwareness #DisabilityRights

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Solve M.E. @solveme.bsky.social · Aug 14

The unhide® + Solve Together Unified Platform makes clinical research simple. Join from anywhere, pick the studies you want, track symptoms, and complete surveys—all on
your phone or computer. Your voice. Your platform. Let’s unhide, together.

www.unhidenow.org

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Reposted by Solve M.E.

Niko Suvisto @nikosuvisto.bsky.social · Aug 8

On this Severe ME Awareness Day, I present to you my newest exhibition: “In the Absence of Light”. 1/3

www.aquietstorm.me/in-the-absen...

#MECFS #SevereME #SevereMEday #pwME #Photography

A black and white photo of a hand resting on a pillow, lighted by a flash in an otherwise dark bedroom.

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Reposted by Solve M.E.

Open Medicine Foundation (OMF) @openmedf.bsky.social · Aug 8

by Bente Kubin

"Time feels weird when your life stands still. When you can hardly create new memories. You’re in some kind of strange time capsule, trapped and hidden away under unbearable conditions, while the world outside carries on as usual."

ow.ly/fIpL50WCg7y