~Somehow~
@somehowso.bsky.social
Disability justice. Chronic illness.
Tags: EDS, HSD, MCAS, POTS, ME, ND, Migraine, Encephalitis, Short Bowel Syndrome, Endometriosis, Autoimmunity
Tags: EDS, HSD, MCAS, POTS, ME, ND, Migraine, Encephalitis, Short Bowel Syndrome, Endometriosis, Autoimmunity
Same here. Horizontal ridges after every surgery or other hospital stay. After every negative change in health. Also after antibiothics.
Some months later, they're grown out and fine again
Some months later, they're grown out and fine again
October 13, 2023 at 3:49 PM
Same here. Horizontal ridges after every surgery or other hospital stay. After every negative change in health. Also after antibiothics.
Some months later, they're grown out and fine again
Some months later, they're grown out and fine again
Very sorry to heare that. This must be so hard for you.
Most ppl/we are not told how post-viral conditions can effect us, whether it is from covid or other viruses. I really hope for some change and more knowledge, better medicine. At least there are more studies now.
May you benefite from those🧡
Most ppl/we are not told how post-viral conditions can effect us, whether it is from covid or other viruses. I really hope for some change and more knowledge, better medicine. At least there are more studies now.
May you benefite from those🧡
October 13, 2023 at 3:24 PM
Very sorry to heare that. This must be so hard for you.
Most ppl/we are not told how post-viral conditions can effect us, whether it is from covid or other viruses. I really hope for some change and more knowledge, better medicine. At least there are more studies now.
May you benefite from those🧡
Most ppl/we are not told how post-viral conditions can effect us, whether it is from covid or other viruses. I really hope for some change and more knowledge, better medicine. At least there are more studies now.
May you benefite from those🧡
Agree about the consequences of Covid-19. Other viruses are also known to be able to trigger reactive or autoimmune conditions, inflammation. Also encephalitis, one of the biggest problems for us.
" Most forms of arthritis result from an inappropriate autoimmune attack by our own immune system."
" Most forms of arthritis result from an inappropriate autoimmune attack by our own immune system."
October 11, 2023 at 11:23 AM
Agree about the consequences of Covid-19. Other viruses are also known to be able to trigger reactive or autoimmune conditions, inflammation. Also encephalitis, one of the biggest problems for us.
" Most forms of arthritis result from an inappropriate autoimmune attack by our own immune system."
" Most forms of arthritis result from an inappropriate autoimmune attack by our own immune system."
So sorry to hear that. I developed arthritis post-viral in 1985. Encephalitis as well. I would not whish that for anyone to get. Still 2 of my children got it (pre-covid, post-viral). And that's the worst. When it happens to our children.
I feel your pain, and may your days be better 🌸
I feel your pain, and may your days be better 🌸
October 11, 2023 at 4:00 AM
So sorry to hear that. I developed arthritis post-viral in 1985. Encephalitis as well. I would not whish that for anyone to get. Still 2 of my children got it (pre-covid, post-viral). And that's the worst. When it happens to our children.
I feel your pain, and may your days be better 🌸
I feel your pain, and may your days be better 🌸
Would really appreciate if someone out there, with medical experience or not, could offer some advice here.
Regarding constantly worsening physical sequelae (e.g. parkinsonism).
But also in terms of wrong treatment in the other one, because there were also psychological symptoms present there.
Regarding constantly worsening physical sequelae (e.g. parkinsonism).
But also in terms of wrong treatment in the other one, because there were also psychological symptoms present there.
October 11, 2023 at 2:53 AM
Would really appreciate if someone out there, with medical experience or not, could offer some advice here.
Regarding constantly worsening physical sequelae (e.g. parkinsonism).
But also in terms of wrong treatment in the other one, because there were also psychological symptoms present there.
Regarding constantly worsening physical sequelae (e.g. parkinsonism).
But also in terms of wrong treatment in the other one, because there were also psychological symptoms present there.
I have so much I want and need to say about this, but I have to take it a little at a time.
One of my children got their dx & treatment 1 year too late, and has serious physical sequelae.
Another is still getting wrong treatment and it breaks my heart.
Autoimmune reactions run in families.
One of my children got their dx & treatment 1 year too late, and has serious physical sequelae.
Another is still getting wrong treatment and it breaks my heart.
Autoimmune reactions run in families.
October 11, 2023 at 2:32 AM
I have so much I want and need to say about this, but I have to take it a little at a time.
One of my children got their dx & treatment 1 year too late, and has serious physical sequelae.
Another is still getting wrong treatment and it breaks my heart.
Autoimmune reactions run in families.
One of my children got their dx & treatment 1 year too late, and has serious physical sequelae.
Another is still getting wrong treatment and it breaks my heart.
Autoimmune reactions run in families.
Dette var barn som hadde gått i alt for lang tid med store mageproblemer og utfordringer. Og foreldrene hadde fortvilet lett etter hjelp. Mange blir ikke trodd eller tatt på alvor. Eller får beskjed om å prøve tiltak som ikke hjelper.
Psykisk helse er viktig.
Hvis det er fysisk, må det adresseres!
Psykisk helse er viktig.
Hvis det er fysisk, må det adresseres!
October 6, 2023 at 9:30 PM
Dette var barn som hadde gått i alt for lang tid med store mageproblemer og utfordringer. Og foreldrene hadde fortvilet lett etter hjelp. Mange blir ikke trodd eller tatt på alvor. Eller får beskjed om å prøve tiltak som ikke hjelper.
Psykisk helse er viktig.
Hvis det er fysisk, må det adresseres!
Psykisk helse er viktig.
Hvis det er fysisk, må det adresseres!