Sad but unfortunately not surprising from the @bmj.com . They have at least been consistent.

Good luck Cleo, I hope it’s not too bad.

Thanks Steve, I think perhaps I was a bit naive in my assessment.

The Nurse who assessed me dropped into the conversation that would I be able to make toast. I said theoretically on a good day it would be possible. That meant I could make hot meals apparently. Never mind that good days can be counted on one hand in a year!

Just going by the scores I got in my last PIP assessment. They didn’t seem to take account of any fluctuations. Anything I said I could do on my very best days were written up as my abilities. Total nonsense of course but 🤷‍♂️

Thanks, I’m glad you found an answer, that must be very validating at the very least.

Great stuff David, looking forward to seeing it.

So clear and informative, you guys give me a glimmer of hope in dark times . Thanks for your tireless ( although tiring I’m sure!) advocacy.

I really hope Scotland continues to stand up for the disabled. So far their track record is good - I’m just the other side of the border, or as I know think of it the wrong side of the border.

Thank you I appreciate that. I’m sure I’m far from unique here, there must be thousands more out there in similar situations.

Im unable to sit up for more than a minute.
I completely rely on my wife to cook and prepare food for me.
I am able to shower any more than an average of once every 2 weeks.
Dark room, in bed every day.

I will not qualify for PIP.
I will be expected to look for work.

I am unable to have any lights on.
Conversations have to be short and quiet or I become much worse.
I have been unable to leave the house for 2 years and counting.
I am in pain all my waking hours.
I sleep between 14-16 hours every day.
I’m unable to stand for more than 1 minute.

No, I should have realised that your intention wasn’t what I jumped to. It’s just a difficult place to be, I’ll try to make 2025 a year I don’t jump to conclusions!

Thanks Todd, appreciated and acknowledged

And it’s way worse when those people do it.

That’s great, I really hope it’s achievable for you. I live right on the Scottish border so Edinburgh is somewhere I know quite well, it’s a really excellent place to explore. Watch out for all the hills though!

Thank you, I’ll take a look.