Steve Chrzanowski
@stevechrz.bsky.social
Assistant Professor at UMassChan’s Duchenne Program via UofCincy → UFMedicine → TheBCRP → BCHNeuroRes → @arvardneuromds • Messages my own • Messages ≠endorsement
Grateful for the privilege to join our @umasschan.bsky.social team at today’s @cureduchenne.bsky.social meeting. Inspiring conversations, motivated families, and a community deeply committed to improving the lives of everyone affected by Duchenne. Honored to be part of this work.
November 15, 2025 at 4:24 PM
Grateful for the privilege to join our @umasschan.bsky.social team at today’s @cureduchenne.bsky.social meeting. Inspiring conversations, motivated families, and a community deeply committed to improving the lives of everyone affected by Duchenne. Honored to be part of this work.
Happy (belated) halloween from the @umasschan.bsky.social Duchenne Program!
November 3, 2025 at 1:07 PM
Happy (belated) halloween from the @umasschan.bsky.social Duchenne Program!
Duchenne affects more than muscles—it impacts learning, mood, and behavior too.
Prioritizing mental health is essential to whole-person care. 💙
#Duchenne #PPMD #MentalHealth
Prioritizing mental health is essential to whole-person care. 💙
#Duchenne #PPMD #MentalHealth
October 24, 2025 at 3:02 PM
Duchenne affects more than muscles—it impacts learning, mood, and behavior too.
Prioritizing mental health is essential to whole-person care. 💙
#Duchenne #PPMD #MentalHealth
Prioritizing mental health is essential to whole-person care. 💙
#Duchenne #PPMD #MentalHealth
What an incredible week at the @worldmusclesociety.org meeting in beautiful Vienna! Grateful to the hosts for such a thoughtfully organized and inspiring conference. Excited to rekindle old collaborations and spark new ones—science and friendship at their best. 🇦🇹💪🧠
October 14, 2025 at 9:43 AM
What an incredible week at the @worldmusclesociety.org meeting in beautiful Vienna! Grateful to the hosts for such a thoughtfully organized and inspiring conference. Excited to rekindle old collaborations and spark new ones—science and friendship at their best. 🇦🇹💪🧠
Behind every scientist and clinician is a family that makes it possible. Thank you @worldmusclesociety.org for valuing wellbeing and creating space for families at #WMS2025
October 8, 2025 at 12:52 PM
Behind every scientist and clinician is a family that makes it possible. Thank you @worldmusclesociety.org for valuing wellbeing and creating space for families at #WMS2025
Grateful to @repmcgovern.bsky.social for his acknowledgment and advocacy for science at @umasschan.bsky.social. Science is the future for kids — their health, their opportunities, their lives. 🔬👦👧 #ScienceNotSilence #FundOurFuture
October 3, 2025 at 2:39 PM
Grateful to @repmcgovern.bsky.social for his acknowledgment and advocacy for science at @umasschan.bsky.social. Science is the future for kids — their health, their opportunities, their lives. 🔬👦👧 #ScienceNotSilence #FundOurFuture
We’re excited to be hiring a Research Physical Therapist in our program @umasschan.bsky.social !
This role supports people with neuromuscular disorders, blending hands-on care, research trials, and interdisciplinary teamwork.
Apply here: www.ummsjobs.com/job/11149/
This role supports people with neuromuscular disorders, blending hands-on care, research trials, and interdisciplinary teamwork.
Apply here: www.ummsjobs.com/job/11149/
UMass Chan Medical School | ITM
www.ummsjobs.com
September 16, 2025 at 11:34 AM
We’re excited to be hiring a Research Physical Therapist in our program @umasschan.bsky.social !
This role supports people with neuromuscular disorders, blending hands-on care, research trials, and interdisciplinary teamwork.
Apply here: www.ummsjobs.com/job/11149/
This role supports people with neuromuscular disorders, blending hands-on care, research trials, and interdisciplinary teamwork.
Apply here: www.ummsjobs.com/job/11149/
As a @ufmedicine.bsky.social grad, I stand with Florida families: vaccines save lives and protect kids. Preventable diseases like Hib, pneumococcus, and meningitis shouldn’t return. I support vaccines and am glad to answer any questions about safety and efficacy #VaccinesWork #ProtectKids
September 4, 2025 at 12:05 PM
As a @ufmedicine.bsky.social grad, I stand with Florida families: vaccines save lives and protect kids. Preventable diseases like Hib, pneumococcus, and meningitis shouldn’t return. I support vaccines and am glad to answer any questions about safety and efficacy #VaccinesWork #ProtectKids
FDA has asked Sarepta to halt all Elevidys gene therapy shipments due to safety issues. It opened the door to rival DMD gene therapy trials, but did we move too fast?
As doctors, our first duty is to do no harm, especially to children.
www.reuters.com/business/hea...
As doctors, our first duty is to do no harm, especially to children.
www.reuters.com/business/hea...
Exclusive: US FDA to request Sarepta to stop all shipments of gene therapy Elevidys, source says
The U.S. Food and Drug Administration will request Sarepta Therapeutics to voluntarily stop all shipments of its gene therapy, Elevidys, a source familiar with the matter told Reuters on Friday.
www.reuters.com
July 18, 2025 at 5:41 PM
FDA has asked Sarepta to halt all Elevidys gene therapy shipments due to safety issues. It opened the door to rival DMD gene therapy trials, but did we move too fast?
As doctors, our first duty is to do no harm, especially to children.
www.reuters.com/business/hea...
As doctors, our first duty is to do no harm, especially to children.
www.reuters.com/business/hea...
As a physician-scientist leading DMD research at @umasschan.bsky.social, this freeze hits home. Hirings are halted, trials are delayed, and work is slowed for our patients and families that depend on us. My team, and our patients, deserve better. #FundScience #DMD www.wbur.org/news/2025/07...
UMass Chan Medical School faces shortfall of tens of millions of dollars in NIH funding
The medical school's chancellor, Dr. Michael Collins, said nearly $42 million in grants expected by the institution's scientists for research and related expenses did not come through for the fiscal y...
www.wbur.org
July 11, 2025 at 8:33 PM
As a physician-scientist leading DMD research at @umasschan.bsky.social, this freeze hits home. Hirings are halted, trials are delayed, and work is slowed for our patients and families that depend on us. My team, and our patients, deserve better. #FundScience #DMD www.wbur.org/news/2025/07...
Medicaid is under attack. Cuts like these threaten care for millions of families, children, and people with disabilities.
My latest in Pediatric Neurology explains why Medicaid is essential and must be protected:
www.sciencedirect.com/science/arti...
My latest in Pediatric Neurology explains why Medicaid is essential and must be protected:
www.sciencedirect.com/science/arti...
The Essential Role of Medicaid in Duchenne Muscular Dystrophy Care: A Call to Protect Vulnerable Populations
Duchenne muscular dystrophy (DMD) is the most common fatal pediatric neuromuscular disorder, resulting in premature morbidity and mortality. Multidisc…
www.sciencedirect.com
July 6, 2025 at 10:23 AM
Medicaid is under attack. Cuts like these threaten care for millions of families, children, and people with disabilities.
My latest in Pediatric Neurology explains why Medicaid is essential and must be protected:
www.sciencedirect.com/science/arti...
My latest in Pediatric Neurology explains why Medicaid is essential and must be protected:
www.sciencedirect.com/science/arti...
Our new piece in @pedneurojournal.bsky.social calls out the current administration’s efforts to weaken Medicaid.
This move will harm kids with medical complexities, including those with #DMD.
We must protect vulnerable lives. #SaveMedicaid
sciencedirect.com/science/arti...
This move will harm kids with medical complexities, including those with #DMD.
We must protect vulnerable lives. #SaveMedicaid
sciencedirect.com/science/arti...
The Essential Role of Medicaid in Duchenne Muscular Dystrophy Care: A Call to Protect Vulnerable Populations
Duchenne muscular dystrophy (DMD) is the most common fatal pediatric neuromuscular disorder, resulting in premature morbidity and mortality. Multidisc…
sciencedirect.com
June 4, 2025 at 8:17 PM
Our new piece in @pedneurojournal.bsky.social calls out the current administration’s efforts to weaken Medicaid.
This move will harm kids with medical complexities, including those with #DMD.
We must protect vulnerable lives. #SaveMedicaid
sciencedirect.com/science/arti...
This move will harm kids with medical complexities, including those with #DMD.
We must protect vulnerable lives. #SaveMedicaid
sciencedirect.com/science/arti...
Had a great time at my first @cureduchenne.bsky.social Futures meeting. I especially enjoyed our panels about transitioning to adulthood, and addressing some of the oft-neglected mental health components of DMD.
May 25, 2025 at 7:45 PM
Had a great time at my first @cureduchenne.bsky.social Futures meeting. I especially enjoyed our panels about transitioning to adulthood, and addressing some of the oft-neglected mental health components of DMD.
Fantastic work from @umasschan.bsky.social Neurology at the Annual Research Celebration.
May 21, 2025 at 11:06 PM
Fantastic work from @umasschan.bsky.social Neurology at the Annual Research Celebration.
Love the @umasschan.bsky.social #Duchenne Program team. Grateful to work with such amazing and dedicated people.
May 13, 2025 at 3:05 PM
Love the @umasschan.bsky.social #Duchenne Program team. Grateful to work with such amazing and dedicated people.
One of the most thoughtful and sharp-witted voices I know just launched a blog sharing life, wheels, and wisdom from his perspective. Highly recommend checking it out! www.charleyseckler.com/wheelingandd... #DisabilityAwareness #Accessibility #PatientVoice
The Wheel Deal | Charley Seckler Blog | Join The Adventure! — Charley Seckler
Discover Charley Seckler's journey with humor and honesty on The Wheel Deal blog. Dive into life's chaos with a laugh and a fresh perspective.
www.charleyseckler.com
May 6, 2025 at 12:25 PM
One of the most thoughtful and sharp-witted voices I know just launched a blog sharing life, wheels, and wisdom from his perspective. Highly recommend checking it out! www.charleyseckler.com/wheelingandd... #DisabilityAwareness #Accessibility #PatientVoice
Cutting the newborn screening committee is a mistake and hurts kids with Duchenne.
Without it, adding DMD to state screens could stall—delaying diagnosis and early care when it matters most.
This move puts vulnerable babies at risk.
🔗 www.nbcnews.com/health/healt...
Without it, adding DMD to state screens could stall—delaying diagnosis and early care when it matters most.
This move puts vulnerable babies at risk.
🔗 www.nbcnews.com/health/healt...
HHS eliminates advisory committee on newborn screening ahead of vote on rare disorders
The committee’s central role was to recommend which conditions should be included on a universal screening panel for infants.
www.nbcnews.com
April 18, 2025 at 4:31 PM
Cutting the newborn screening committee is a mistake and hurts kids with Duchenne.
Without it, adding DMD to state screens could stall—delaying diagnosis and early care when it matters most.
This move puts vulnerable babies at risk.
🔗 www.nbcnews.com/health/healt...
Without it, adding DMD to state screens could stall—delaying diagnosis and early care when it matters most.
This move puts vulnerable babies at risk.
🔗 www.nbcnews.com/health/healt...
Very excited for my dear friend and colleague Ron to be joining Dyne! A great hire wirth a bright future and promise ahead in the #DMD and #DM1 worlds. www.globenewswire.com/news-release...
Dyne Therapeutics Announces Chief Business Officer and Chief Scientific Officer Appointments
- Vikram Ranade, PhD, appointed as chief business officer - - Ranjan Batra, PhD, appointed as chief scientific officer - - Oxana Beskrovnaya, PhD,...
www.globenewswire.com
April 15, 2025 at 12:47 PM
Very excited for my dear friend and colleague Ron to be joining Dyne! A great hire wirth a bright future and promise ahead in the #DMD and #DM1 worlds. www.globenewswire.com/news-release...
I am grateful to my mentors for guiding me through my first chapter: General Evaluation of Strength, Tone, and Sensation in Rudolph’s Pediatrics. Excited to contribute to this invaluable resource! 👶🧠💪🔍 accesspediatrics.mhmedical.com/content.aspx...
General Evaluation of Strength, Tone, and Sensation
Read chapter 560 of Rudolph's Pediatrics, 24<sup>th</sup> Edition online now, exclusively on AccessPediatrics. AccessPediatrics is a subscription-based resource from McGraw Hill that features trusted ...
accesspediatrics.mhmedical.com
March 8, 2025 at 12:09 PM
I am grateful to my mentors for guiding me through my first chapter: General Evaluation of Strength, Tone, and Sensation in Rudolph’s Pediatrics. Excited to contribute to this invaluable resource! 👶🧠💪🔍 accesspediatrics.mhmedical.com/content.aspx...
Reposted by Steve Chrzanowski
UMass Chan researchers, community partners, biotech businesses and families directly impacted by NIH-funded research joined U.S. Rep. James P. McGovern for a roundtable Thursday on proposed cuts to NIH funding and Medicaid: direc.to/mP68
#NIH #ResearchFunding
#NIH #ResearchFunding
February 21, 2025 at 3:26 PM
UMass Chan researchers, community partners, biotech businesses and families directly impacted by NIH-funded research joined U.S. Rep. James P. McGovern for a roundtable Thursday on proposed cuts to NIH funding and Medicaid: direc.to/mP68
#NIH #ResearchFunding
#NIH #ResearchFunding
What an incredible privilege to work with incredible patients, families, providers, scientists, and community partners. #ChildrensLivesMatter
U.S. Rep. Jim McGovern is hosting a roundtable discussion with UMass Chan Medical School faculty, community partners and families who have benefited from NIH-funded gene therapy treatments and research at the Medical School for the media.
#GeneTherapy
#GeneTherapy
February 21, 2025 at 3:24 PM
What an incredible privilege to work with incredible patients, families, providers, scientists, and community partners. #ChildrensLivesMatter
I wrote this in 2017 as a graduate student. Now as junior faculty, it is so frustrating how it again rings true today.
www.gainesville.com/story/opinio...
www.gainesville.com/story/opinio...
NIH cuts are danger to science
Recently, President Donald Trump proposed to cut the National Institutes of Health’s budget by approximately 20 percent in his first budget proposal. It is impossible to succinctly state the successe…
www.gainesville.com
January 30, 2025 at 1:23 PM
I wrote this in 2017 as a graduate student. Now as junior faculty, it is so frustrating how it again rings true today.
www.gainesville.com/story/opinio...
www.gainesville.com/story/opinio...
Per tradition, here are my top five books from 2024, for anyone looking for good reads in 2025. With finishing fellowship and starting a new job, my list seems shorter, but I still found some enjoyable books.
December 21, 2024 at 6:25 PM
Per tradition, here are my top five books from 2024, for anyone looking for good reads in 2025. With finishing fellowship and starting a new job, my list seems shorter, but I still found some enjoyable books.
Happy holidays from the @umasschan.bsky.social Duchenne Program team. Sending love, joy, and cheer from our family to yours.
December 21, 2024 at 12:34 PM
Happy holidays from the @umasschan.bsky.social Duchenne Program team. Sending love, joy, and cheer from our family to yours.