Sue
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sueb228.bsky.social
Sue
@sueb228.bsky.social
Long Covid, ME/CFS, Lyme.
Hey Marc. I’m just calling it that, because it seems like the best description. Muscles burned, developed cataracts fairly quickly. My blood was acidic. Is there a better term?
November 23, 2025 at 8:43 PM
There was intense inflammation, oxidative stress; my head hurt from sound and light, so I didn’t see the point of testing more. You have to calm that down. Further testing would be like having your house on fire, and sending in people to search for more matches. So I never did Igenex testing. Thx.
November 23, 2025 at 7:40 PM
This is a great study. I’m glad there’s something that seems to really help.
November 23, 2025 at 7:36 PM
Cool
November 20, 2025 at 1:05 AM
My blood went to a research scientist. But sure.
November 19, 2025 at 9:57 PM
I did actually do one very thorough set of tests about a year after Covid, when similar symptoms came back. The only thing found was “fibrin amyloid proteins” in my blood, and “a problem with apoptosis”. What’s that fit?
November 19, 2025 at 9:53 PM
Great. Thanks for the advice. Whatever it was, it was a huge success.
November 19, 2025 at 9:49 PM
I was really sick. I was a competitive runner when I got sicker and sicker. It takes your life away. You can believe whatever you want. The evidence is pretty blatant. Millions of people aren’t making this up.
November 19, 2025 at 9:44 PM
Mitochondrial issue was diagnosed by an early doctor who didn’t end up treating the Lyme disease. It wasn’t part of a hippie bippie clinic. Symptoms fit, but I didn’t know at the time what that meant.
November 19, 2025 at 9:34 PM
They didn’t diagnose the thick blood, and didn’t bring it up. I just noticed when they do a blood draw that it was almost black. The nurse commented, but it wasn’t brought up by the Dr. It improved over time.
November 19, 2025 at 9:31 PM
No, I didn’t do multiple tests. Just the routine. I wanted to do a neuro Quant, but I skipped it due to cost.
November 19, 2025 at 9:29 PM
I figured out that I had B vitamin deficiencies from the headaches. I took b complex and thiamine. Magnesium was awesome. My MD recommended NAD, which was night and day difference. Niacin also helped.
November 19, 2025 at 9:28 PM
K
November 19, 2025 at 9:25 PM
Where did I go exactly?
November 19, 2025 at 9:25 PM
So you’re saying gram-negative bacteria are easy to treat with antibiotics? Ok. I didn’t know that.
November 19, 2025 at 9:19 PM
Why did my blood turn very dark, thick, sticky? Why mitochondrial damage? What caused chronic inflammation?
November 19, 2025 at 9:18 PM
PTLDS assumes the Lyme was treated after infection, and persisted. I was never diagnosed or treated. “Post-treatment” infers it got diagnosed and antibiotics given after the tick bite.
November 19, 2025 at 9:16 PM
There it is. Ok. Yes, I did have Lyme antibodies, yes they did not show up on later testing, after treatments, and no, you don’t have to believe me. Aren’t gram negative bacteria difficult to treat?
November 19, 2025 at 9:12 PM
You two are the experts. I just lived it.
November 19, 2025 at 9:10 PM
You seem to be schooling me on..what? Chronic Lyme didn’t exist? I never had it? What’s your point?
November 19, 2025 at 9:08 PM
Right. I understand.
November 19, 2025 at 9:07 PM
Ok. Just trying to heal. The illness was awful. You can call it whatever you want.
November 19, 2025 at 9:07 PM
Ok. Well I’m also going by symptoms, which improved massively. I get that you don’t believe untreated Lyme can be awful. That’s okay with me. You’re the expert. I just got really sick after a tick bite. I don’t need to defend myself.
November 19, 2025 at 9:05 PM
Caused by..?
November 19, 2025 at 8:56 PM