Sue Poncin
@sueponcin.com
After Jan 2021: #Disabled by Long COVID & #BookSky author #LongCOVID memoir
Before Jan 2021: overachiever, #MathSky Calculus teacher, Mom Uber driver
www.sueponcin.com
In The Space Between: https://a.co/d/0fkSZMd
Before Jan 2021: overachiever, #MathSky Calculus teacher, Mom Uber driver
www.sueponcin.com
In The Space Between: https://a.co/d/0fkSZMd
Reverse-LC trial at Univ. Of Minnesota four month visit ☑️
Happy to report as of today there are 110 Long Covid participants over four sites. The goal is 550.
The trial coordinator I met with said there is talk of adding 13 more sites for accessibility.
Hope 🌈🌈🌈
Happy to report as of today there are 110 Long Covid participants over four sites. The goal is 550.
The trial coordinator I met with said there is talk of adding 13 more sites for accessibility.
Hope 🌈🌈🌈
November 11, 2025 at 8:56 PM
Reverse-LC trial at Univ. Of Minnesota four month visit ☑️
Happy to report as of today there are 110 Long Covid participants over four sites. The goal is 550.
The trial coordinator I met with said there is talk of adding 13 more sites for accessibility.
Hope 🌈🌈🌈
Happy to report as of today there are 110 Long Covid participants over four sites. The goal is 550.
The trial coordinator I met with said there is talk of adding 13 more sites for accessibility.
Hope 🌈🌈🌈
“This is the book that no one wants to read, right? This is the time no one wants to read about. This is the thing we were all warned against.
And Sally said ‘Sometimes someone has to come along and put a wreath on the tomb of the time.’”
@tricialockwood.bsky.social
Thank you!
And Sally said ‘Sometimes someone has to come along and put a wreath on the tomb of the time.’”
@tricialockwood.bsky.social
Thank you!
November 9, 2025 at 9:47 PM
“This is the book that no one wants to read, right? This is the time no one wants to read about. This is the thing we were all warned against.
And Sally said ‘Sometimes someone has to come along and put a wreath on the tomb of the time.’”
@tricialockwood.bsky.social
Thank you!
And Sally said ‘Sometimes someone has to come along and put a wreath on the tomb of the time.’”
@tricialockwood.bsky.social
Thank you!
Nothing better than randomly picking up @bridgetcrocker.bsky.social book
@milkweededitions.bsky.social while visiting Univ of Minn for a Long Covid study and reading our lives intersected in CA.
Hubby & I saw the same sign when we rafted here with his buddies while at Edwards AFB.
#BookSky
@milkweededitions.bsky.social while visiting Univ of Minn for a Long Covid study and reading our lives intersected in CA.
Hubby & I saw the same sign when we rafted here with his buddies while at Edwards AFB.
#BookSky
November 3, 2025 at 1:20 PM
Nothing better than randomly picking up @bridgetcrocker.bsky.social book
@milkweededitions.bsky.social while visiting Univ of Minn for a Long Covid study and reading our lives intersected in CA.
Hubby & I saw the same sign when we rafted here with his buddies while at Edwards AFB.
#BookSky
@milkweededitions.bsky.social while visiting Univ of Minn for a Long Covid study and reading our lives intersected in CA.
Hubby & I saw the same sign when we rafted here with his buddies while at Edwards AFB.
#BookSky
Long Covid and Infection Associate Chronic Conditions hope looks like the expert panel at today’s case competition at University of Michigan 🌈🌈🌈
Exciting to hear the great minds committed to researching diagnosis, identification, and treatments
Exciting to hear the great minds committed to researching diagnosis, identification, and treatments
October 31, 2025 at 2:02 PM
Long Covid and Infection Associate Chronic Conditions hope looks like the expert panel at today’s case competition at University of Michigan 🌈🌈🌈
Exciting to hear the great minds committed to researching diagnosis, identification, and treatments
Exciting to hear the great minds committed to researching diagnosis, identification, and treatments
Start Here: If you think your child may have Long Covid
From @longcovidfam.bsky.social
This is where to begin. Our Start Here guide walks you through what to look for, what questions to ask, and how to talk with your child’s clinician or school.
hubs.ly/Q03P6mLp0
From @longcovidfam.bsky.social
This is where to begin. Our Start Here guide walks you through what to look for, what questions to ask, and how to talk with your child’s clinician or school.
hubs.ly/Q03P6mLp0
October 18, 2025 at 1:30 AM
Start Here: If you think your child may have Long Covid
From @longcovidfam.bsky.social
This is where to begin. Our Start Here guide walks you through what to look for, what questions to ask, and how to talk with your child’s clinician or school.
hubs.ly/Q03P6mLp0
From @longcovidfam.bsky.social
This is where to begin. Our Start Here guide walks you through what to look for, what questions to ask, and how to talk with your child’s clinician or school.
hubs.ly/Q03P6mLp0
I’m grateful chronic illness is included by @drdoylesays.bsky.social when speaking of living with and healing from trauma.
Fighting the stigma of “You’re faking to game the system” and “Because it would never happen to me, you must be making it up” takes energy we don’t have.
Fighting the stigma of “You’re faking to game the system” and “Because it would never happen to me, you must be making it up” takes energy we don’t have.
October 16, 2025 at 9:34 PM
I’m grateful chronic illness is included by @drdoylesays.bsky.social when speaking of living with and healing from trauma.
Fighting the stigma of “You’re faking to game the system” and “Because it would never happen to me, you must be making it up” takes energy we don’t have.
Fighting the stigma of “You’re faking to game the system” and “Because it would never happen to me, you must be making it up” takes energy we don’t have.
I love the depiction of brain fog in Long Covid.
Although I wish Bright Bytes didn’t use an old person.
And does anyone know what Bright Bytes is? It popped up in my FB feed and says it’s a “digital creator”.
Although I wish Bright Bytes didn’t use an old person.
And does anyone know what Bright Bytes is? It popped up in my FB feed and says it’s a “digital creator”.
October 15, 2025 at 10:14 PM
I love the depiction of brain fog in Long Covid.
Although I wish Bright Bytes didn’t use an old person.
And does anyone know what Bright Bytes is? It popped up in my FB feed and says it’s a “digital creator”.
Although I wish Bright Bytes didn’t use an old person.
And does anyone know what Bright Bytes is? It popped up in my FB feed and says it’s a “digital creator”.
I will happily share my story and be the poster person for “You don’t want Long Covid” if it could save others from suffering this awful disabling virus.
My story: www.sueponcin.com
My story: www.sueponcin.com
October 9, 2025 at 12:35 PM
I will happily share my story and be the poster person for “You don’t want Long Covid” if it could save others from suffering this awful disabling virus.
My story: www.sueponcin.com
My story: www.sueponcin.com
Long Covid has caused me to be compared to Parkinson’s patients by my physical therapist. An excerpt from In The Space Between where I describe my devastation here:
a.co/d/6ycWKsi
a.co/d/6ycWKsi
September 9, 2025 at 12:08 AM
Long Covid has caused me to be compared to Parkinson’s patients by my physical therapist. An excerpt from In The Space Between where I describe my devastation here:
a.co/d/6ycWKsi
a.co/d/6ycWKsi
The message RFK sent to those of us battling Long Covid for years:
F**k you. Go ahead and get the virus that caused your disability again. Your hard work battling to regain mobility and cognition don’t matter.
My children thank the senators who confirmed RFK. They love having a disabled mom.
F**k you. Go ahead and get the virus that caused your disability again. Your hard work battling to regain mobility and cognition don’t matter.
My children thank the senators who confirmed RFK. They love having a disabled mom.
August 28, 2025 at 5:33 PM
The message RFK sent to those of us battling Long Covid for years:
F**k you. Go ahead and get the virus that caused your disability again. Your hard work battling to regain mobility and cognition don’t matter.
My children thank the senators who confirmed RFK. They love having a disabled mom.
F**k you. Go ahead and get the virus that caused your disability again. Your hard work battling to regain mobility and cognition don’t matter.
My children thank the senators who confirmed RFK. They love having a disabled mom.
Diane Sawyer’s interview with Dr. Miller at UCSF about Bruce Willis & FTD.
Dr: This will be the most exciting 10 years in the history of FTD
DS: You think in 10 years there could be a breakthrough?
Dr: Absolutely. I’m convinced.
My dr predicts the same about Long Covid.
Sharing stories ➡️ research
Dr: This will be the most exciting 10 years in the history of FTD
DS: You think in 10 years there could be a breakthrough?
Dr: Absolutely. I’m convinced.
My dr predicts the same about Long Covid.
Sharing stories ➡️ research
August 28, 2025 at 12:52 AM
Diane Sawyer’s interview with Dr. Miller at UCSF about Bruce Willis & FTD.
Dr: This will be the most exciting 10 years in the history of FTD
DS: You think in 10 years there could be a breakthrough?
Dr: Absolutely. I’m convinced.
My dr predicts the same about Long Covid.
Sharing stories ➡️ research
Dr: This will be the most exciting 10 years in the history of FTD
DS: You think in 10 years there could be a breakthrough?
Dr: Absolutely. I’m convinced.
My dr predicts the same about Long Covid.
Sharing stories ➡️ research
Long Covid has caused me to be compared to Parkinson’s patients by my physical therapist. An excerpt from In The Space Between where I describe my devastation here:
a.co/d/6ycWKsi
a.co/d/6ycWKsi
August 26, 2025 at 12:52 AM
Long Covid has caused me to be compared to Parkinson’s patients by my physical therapist. An excerpt from In The Space Between where I describe my devastation here:
a.co/d/6ycWKsi
a.co/d/6ycWKsi
Long Covid has caused me to be compared to Parkinson’s patients and stroke victims by my speech therapist. An excerpt from In The Space Between where I describe my devastation here:
a.co/d/6ycWKsi
a.co/d/6ycWKsi
August 26, 2025 at 12:49 AM
Long Covid has caused me to be compared to Parkinson’s patients and stroke victims by my speech therapist. An excerpt from In The Space Between where I describe my devastation here:
a.co/d/6ycWKsi
a.co/d/6ycWKsi
I am proud to be among the Long Covid fighters who are beacons of light by continuing to push for answers and advocate for treatments. We are what hope looks like to our fellow sufferers.
August 21, 2025 at 12:35 PM
I am proud to be among the Long Covid fighters who are beacons of light by continuing to push for answers and advocate for treatments. We are what hope looks like to our fellow sufferers.
Long Covid looks like…..
flowers and storm clouds.
My symptoms are the storm, every supportive chronic illness person here are the flowers.
My daughter painted the flower box:
Without rain, nothing grows.
Embrace the storms of your life.
In a suburban of Chicago tonight….
flowers and storm clouds.
My symptoms are the storm, every supportive chronic illness person here are the flowers.
My daughter painted the flower box:
Without rain, nothing grows.
Embrace the storms of your life.
In a suburban of Chicago tonight….
August 18, 2025 at 11:56 PM
Long Covid looks like…..
flowers and storm clouds.
My symptoms are the storm, every supportive chronic illness person here are the flowers.
My daughter painted the flower box:
Without rain, nothing grows.
Embrace the storms of your life.
In a suburban of Chicago tonight….
flowers and storm clouds.
My symptoms are the storm, every supportive chronic illness person here are the flowers.
My daughter painted the flower box:
Without rain, nothing grows.
Embrace the storms of your life.
In a suburban of Chicago tonight….
A bonus #booksky stop at @milkweededitions.bsky.social in Minneapolis! I happened to walk by on my way to U of M for a Long Covid study and recognized the name from my own memoir submission.
Sad my book wasn’t picked but excited to find these gems and many more I couldn’t carry.
a.co/d/iPLUlii
Sad my book wasn’t picked but excited to find these gems and many more I couldn’t carry.
a.co/d/iPLUlii
August 15, 2025 at 4:00 PM
A bonus #booksky stop at @milkweededitions.bsky.social in Minneapolis! I happened to walk by on my way to U of M for a Long Covid study and recognized the name from my own memoir submission.
Sad my book wasn’t picked but excited to find these gems and many more I couldn’t carry.
a.co/d/iPLUlii
Sad my book wasn’t picked but excited to find these gems and many more I couldn’t carry.
a.co/d/iPLUlii
This is what Long Covid concert going looks like…..
Oh how I miss twirling and spinning to the music of Dead and Company.
Oh how I miss twirling and spinning to the music of Dead and Company.
August 2, 2025 at 1:50 AM
This is what Long Covid concert going looks like…..
Oh how I miss twirling and spinning to the music of Dead and Company.
Oh how I miss twirling and spinning to the music of Dead and Company.
When you finally yank the book out, it’s worth the tearful and scary journey through land, plains, and mountains, especially when you are hoping to help others who suffer.
a.co/d/0IoccrX
a.co/d/0IoccrX
August 1, 2025 at 7:03 PM
When you finally yank the book out, it’s worth the tearful and scary journey through land, plains, and mountains, especially when you are hoping to help others who suffer.
a.co/d/0IoccrX
a.co/d/0IoccrX
Absolutely @drdoylesays.bsky.social
I would not have made it through the darkest days without books, podcasts, and music.
If you are looking for recommendations, here are mine:
www.sueponcin.com/reference-bo...
I hope to pay it forward by sharing my own story.
I would not have made it through the darkest days without books, podcasts, and music.
If you are looking for recommendations, here are mine:
www.sueponcin.com/reference-bo...
I hope to pay it forward by sharing my own story.
August 1, 2025 at 6:16 PM
Absolutely @drdoylesays.bsky.social
I would not have made it through the darkest days without books, podcasts, and music.
If you are looking for recommendations, here are mine:
www.sueponcin.com/reference-bo...
I hope to pay it forward by sharing my own story.
I would not have made it through the darkest days without books, podcasts, and music.
If you are looking for recommendations, here are mine:
www.sueponcin.com/reference-bo...
I hope to pay it forward by sharing my own story.
Hope looks like medical trials for Long Covid 🌈
“Despite the challenges and disappointments of the trial, participant Jakob said he “would do it again,” because taking part “is the only way we can defeat this disease”
LC drug trial I enrolled in last week:
www.reversinglongcovid.org
“Despite the challenges and disappointments of the trial, participant Jakob said he “would do it again,” because taking part “is the only way we can defeat this disease”
LC drug trial I enrolled in last week:
www.reversinglongcovid.org
July 23, 2025 at 3:40 AM
Hope looks like medical trials for Long Covid 🌈
“Despite the challenges and disappointments of the trial, participant Jakob said he “would do it again,” because taking part “is the only way we can defeat this disease”
LC drug trial I enrolled in last week:
www.reversinglongcovid.org
“Despite the challenges and disappointments of the trial, participant Jakob said he “would do it again,” because taking part “is the only way we can defeat this disease”
LC drug trial I enrolled in last week:
www.reversinglongcovid.org
Sharing our stories raises Long Covid awareness, bringing funding for studies like Reverse LC @ Univ Of Minn.
Taking my first 💊 hopefully leading to eventually limiting the burdens inflicted by LC.
Because the burdens suck! And go WAY beyond just health and economics.
www.reversinglongcovid.org
Taking my first 💊 hopefully leading to eventually limiting the burdens inflicted by LC.
Because the burdens suck! And go WAY beyond just health and economics.
www.reversinglongcovid.org
July 19, 2025 at 12:19 AM
Sharing our stories raises Long Covid awareness, bringing funding for studies like Reverse LC @ Univ Of Minn.
Taking my first 💊 hopefully leading to eventually limiting the burdens inflicted by LC.
Because the burdens suck! And go WAY beyond just health and economics.
www.reversinglongcovid.org
Taking my first 💊 hopefully leading to eventually limiting the burdens inflicted by LC.
Because the burdens suck! And go WAY beyond just health and economics.
www.reversinglongcovid.org
Long Covid study at the Univ. Of Minnesota. Day 1.
Beyond excited researchers are looking for answers and hopeful for treatments.
No surprise the stress of travel, testing, talking, and walking results in Long Covid hair loss. (better than a PEM crash)
Study link: www.reversinglongcovid.org
Beyond excited researchers are looking for answers and hopeful for treatments.
No surprise the stress of travel, testing, talking, and walking results in Long Covid hair loss. (better than a PEM crash)
Study link: www.reversinglongcovid.org
July 18, 2025 at 1:29 AM
Long Covid study at the Univ. Of Minnesota. Day 1.
Beyond excited researchers are looking for answers and hopeful for treatments.
No surprise the stress of travel, testing, talking, and walking results in Long Covid hair loss. (better than a PEM crash)
Study link: www.reversinglongcovid.org
Beyond excited researchers are looking for answers and hopeful for treatments.
No surprise the stress of travel, testing, talking, and walking results in Long Covid hair loss. (better than a PEM crash)
Study link: www.reversinglongcovid.org
Neurofeedback helps my noise and crowd sensitivity from #LongCovid. It slowed the world down for me.
I’ve been doing it weekly since November and while I’m nowhere near cured, I can see a difference.
I don’t really know how it works but the best description of it is in The Body Keeps the Score.
I’ve been doing it weekly since November and while I’m nowhere near cured, I can see a difference.
I don’t really know how it works but the best description of it is in The Body Keeps the Score.
July 12, 2025 at 9:48 PM
Neurofeedback helps my noise and crowd sensitivity from #LongCovid. It slowed the world down for me.
I’ve been doing it weekly since November and while I’m nowhere near cured, I can see a difference.
I don’t really know how it works but the best description of it is in The Body Keeps the Score.
I’ve been doing it weekly since November and while I’m nowhere near cured, I can see a difference.
I don’t really know how it works but the best description of it is in The Body Keeps the Score.
When I tried to “push through” #LongCovid, I ended up looking like this…..
June 23, 2025 at 7:37 PM
When I tried to “push through” #LongCovid, I ended up looking like this…..
“Neuroinflammation can also trigger long-term disruptions in neuronal signaling and neurotransmitter metabolism.”
Validation that #LongCovid impacted messaging in my brain. It improves but it takes a longggggggg time.
Validation that #LongCovid impacted messaging in my brain. It improves but it takes a longggggggg time.
June 19, 2025 at 10:25 PM
“Neuroinflammation can also trigger long-term disruptions in neuronal signaling and neurotransmitter metabolism.”
Validation that #LongCovid impacted messaging in my brain. It improves but it takes a longggggggg time.
Validation that #LongCovid impacted messaging in my brain. It improves but it takes a longggggggg time.