Tania J. Spencer
@taniaspencer.bsky.social
4.6K followers 4.2K following 4.8K posts
🇨🇦🇿🇦 • writer • photographer • Long COVID first waver • vaxxer • masker • maker of Corsi-Rosenthals • Yukoner
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taniaspencer.bsky.social
This is what #LongCOVID looks like.

Post-it notes everywhere.
Reposted by Tania J. Spencer
brownecfm.bsky.social
5. And remember, if you believe that Covid is 'gone', you will, by definition, never, ever consider that you may have Long Covid.

/end
taniaspencer.bsky.social
"By making it all searchable in one place, we can finally see the patterns popping out in towns and cities across 🇨🇦 Canada" -
nationalobserver.com
We're going public today with a powerful new tool for researching, following and reporting on local governments across Canada.

It’s dragging cities and towns into the 21st century by making 550 municipalities’ public meetings easy to search, all in one place, for the first time.
Canada’s National Observer unveils a powerful tool for fighting disinformation
Civic Searchlight brings together municipal meeting transcripts from across Canada into a searchable database for the first time. It has already been used to fight disinformation, report on impact, di...
www.nationalobserver.com
taniaspencer.bsky.social
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As for this, "The burden of [ #LongCOVID] symptoms can decrease or even pass" - there are plenty of children living with this condition who still haven't recovered after 5+ years.

Hold the platitudes, & on with the research.
taniaspencer.bsky.social
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“Will I have this sickness for the rest of my life?”

#Paediatric #LongCOVID

Via @atranscendedman.bsky.social

bmcpediatr.biomedcentral.com/articles/10....
Experiences of living with long COVID during childhood and adolescence: a qualitative study from the child’s perspective - BMC Pediatrics
Background In February 2023, the World Health Organization (WHO) defined long COVID in children, highlighting limited knowledge about its psychosocial impact. Studies show it as a complex, long-lasting condition affecting multiple systems. WHO and researchers emphasise the need for more understanding, particularly its effect on daily life. The aim of this study was to explore how life is experienced and how it changed whilst living with long COVID during childhood. Methods We present a qualitative study with an inductive and exploratory approach. Between October 2022 and March 2024, 16 children between 9 and 18 years old diagnosed with long COVID were interviewed face-to-face using a semi-structured interview guide. The results were analysed using reflexive thematic analysis by Braun and Clarke. Results The results present the subjective reality of children suffering from long COVID and their struggle in daily life. The findings are presented through three themes: Losing my foothold, Fatigue decides my path, and My way forward, illustrating a temporal and emotional journey, reflecting how children make sense of their experiences, adapt to the persistent impact of long COVID, and gradually move toward acceptance. Conclusions This study addresses the lack of knowledge of long COVID in the society, how it affects children in their struggle to find a new path in life. It also shows that, with knowledge and support, the symptoms and the burden of the condition can decrease or even pass. It is important that people around these children, including health care, school and family, use this knowledge to promote health and avoid educational, health and social problems at a vulnerable time in life.
bmcpediatr.biomedcentral.com
Reposted by Tania J. Spencer
atranscendedman.bsky.social
More and more big names are coming forward with their chronic health stories.

Then today, Nobel Prize for T regs and FOXP3, the science of immune balance.

The inertia is impossible to ignore. Hope isn’t a plan, but for millions, it is.
Reposted by Tania J. Spencer
atranscendedman.bsky.social
At Toronto Metropolitan University, students living with long COVID face lasting fatigue, pain and brain fog that make school life hard to manage.

With few medical answers, they’re finding support through peers and groups.

theeyeopener.com/2025/10/how-...
How to be a student when you have long COVID
Long COVID can upend the lives of those who have it—when you’re a student, it can be even harder
theeyeopener.com
taniaspencer.bsky.social
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We already have nearly 20,000 published studies on #LongCOVID. Imagine if we cast the net wider, collaborated internationally, & translated research into various languages, to make it more accessible to clinicians & scientists -

www.ncbi.nlm.nih.gov/research/cor...
LitCovid
LitCovid is a curated literature hub for tracking up-to-date scientific information about the 2019 novel Coronavirus.
www.ncbi.nlm.nih.gov
taniaspencer.bsky.social
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▶️ Notable gaps included limited studies on #Paediatric #LongCOVID, scarce long-term outcome data from diverse populations & settings, & few rigorous evaluations of interventions & service models.
taniaspencer.bsky.social
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▶️ Prominent institutions & key authors played a central role in knowledge production & collaboration networks.
taniaspencer.bsky.social
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▶️ Thematic mapping revealed three dominant clusters:

1️⃣ clinical research on manifestations & diagnostics;
2️⃣ psychological research on mental health & cognitive sequelae;
3️⃣ & social and rehabilitation research addressing disability, return to work, and service delivery.
taniaspencer.bsky.social
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This bibliometric analysis, not yet peer reviewed, found that -

▶️ Publications on #LongCOVID grew at an annual rate of 19.81%, peaking in 2024, reflecting intensified global attention.

▶️ The 🇺🇸 United States, 🇨🇳 China, & the 🇬🇧 United Kingdom were the largest contributors.
taniaspencer.bsky.social
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...prioritise funding for underexplored populations & intervention trials, & accelerate translation of findings into clinical guidelines & integrated care models. Continued bibliometric monitoring will help target research investments and policy responses".
taniaspencer.bsky.social
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"The #LongCOVID research landscape from 2020 to 2025 is dynamic & increasingly collaborative, yet exhibits geographic & topical imbalances. To advance understanding & improve patient outcomes, stakeholders should support inclusive international collaborations,
taniaspencer.bsky.social
Glad to hear it!

And because of the potential harms of reinfections, please consider wearing an N95 mask as well. Unfortunately, as #LongCOVID researcher, @putrinolab.bsky.social observed -

"There is no such thing as a COVID infection without consequence".
taniaspencer.bsky.social
It won't save #Facebook. People hate it. The tide has turned. You have only to look at the scathing comments in several subreddits, to gauge public opinion. Same goes for #Meta's #Instagram, utterly laid waste with myriad ads & suggested accounts.
taniaspencer.bsky.social
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And if governments continue to downplay the risks of #Reinfections, tell the public the pandemic is over (it isn't) - this could cause decreased vaccination (which slightly reduces the risk of Long COVID) & result in increased cases of Long COVID.
taniaspencer.bsky.social
* Unfortunately, I don't know the name of the artist to credit for this pithy cartoon.