CRID - Unique Patient ID for rare disease clinical research
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Theresa Whitlock-Wild
Theresa Whitlock-Wild
@wild1979.bsky.social
Crystal M Williams
Crystal M Williams
@cmdclear.bsky.social
Renegade Research
Renegade Research
@renegaderesearch.bsky.social
The WEATHER Project is funded by the NIHR
The WEATHER Project is funded by the NIHR
@weatherprojectnihr.bsky.social
Open Research and Public Engagement Roadmap
Open Research and Public Engagement Roadmap
@engagedroadmap.bsky.social
myHealth@myHands Project
myHealth@myHands Project
@myhealthmyhands.bsky.social
Lars Münter
Lars Münter
@larsmuenter.bsky.social
Nordic Wellbeing Academy
Nordic Wellbeing Academy
@wellbeingacademy.bsky.social
European Health Futures Forum
European Health Futures Forum
@ehff.bsky.social
Philandra Costello
Philandra Costello
@philandra.bsky.social
Jijer
Jijer
@jijer.bsky.social
Neckel Lab
Neckel Lab
@neckellab.bsky.social
Mary Morlino
Mary Morlino
@marymorlino.bsky.social
Yong Li
Yong Li
@precisionmedicine.bsky.social
Sparwasser Lab
Sparwasser Lab
@timsparwasser.bsky.social
Medics for Rare Disease
Medics for Rare Disease
@medicsforrare.bsky.social
Parc de Recerca Biomèdica de Barcelona
Parc de Recerca Biomèdica de Barcelona
@prbb.org
Rosa HP Sca
Rosa HP Sca
@rosca26.bsky.social
Lorestry
Lorestry
@lorestry.bsky.social
Kabuki Syndrome Foundation
Kabuki Syndrome Foundation
@kabukisyndrome.bsky.social
ARRE Foundation
ARRE Foundation
@arrefoundation.bsky.social
Melissa Kinch
Melissa Kinch
@melissa-kinch.bsky.social
John Seavitt
John Seavitt
@toriawase.bsky.social
Gabi Stands With Ukraine
Gabi Stands With Ukraine
@madgabmd.bsky.social
Barbara Rachelson
Barbara Rachelson
@barbararvt.bsky.social
Junior Einsteins Science Club®
Junior Einsteins Science Club®
@junioreinsteins.bsky.social
Activity Uplift
Activity Uplift
@activityuplift.bsky.social
Razz-Ma-Tazz
Razz-Ma-Tazz
@women-r-smarter.bsky.social
Cambridge Rare Disease Network
Cambridge Rare Disease Network
@camrare.bsky.social
Rare Disease Research Network_RDRN
Rare Disease Research Network_RDRN
@rd-rn.bsky.social
Cambridge Clinical Mitochondrial Research Group
Cambridge Clinical Mitochondrial Research Group
@mitocamb.bsky.social
Nersey Rastan
Nersey Rastan
@nerseyrastan.bsky.social
wsf-uk.bsky.social
wsf-uk.bsky.social
@wsf-uk.bsky.social
American Society of Human Genetics (ASHG)
American Society of Human Genetics (ASHG)
@geneticssociety.bsky.social
Unique
Unique
@uniquecharity.bsky.social
Centre de Regulació Genòmica (CRG)
Centre de Regulació Genòmica (CRG)
@crg.eu
rarediseases.bsky.social
rarediseases.bsky.social
@rarediseases.bsky.social
Rare Diseases International (RDI)
Rare Diseases International (RDI)
@rarediseasesint.bsky.social
International FOXP1 Foundation
International FOXP1 Foundation
@foxp1foundation.bsky.social
CGD Society
CGD Society
@cgdsociety.bsky.social
KCNQ2 Cure Alliance
KCNQ2 Cure Alliance
@kcnq2.bsky.social
Avril Kennan
Avril Kennan
@avrilkennan.bsky.social
John Greally
John Greally
@greally.bsky.social
John F. Cryan
John F. Cryan
@jfcryan.bsky.social
Darren Dahly
Darren Dahly
@statsepi.bsky.social
Marita Hennessy
Marita Hennessy
@maritahennessy.bsky.social
Éidín Ní Shé
Éidín Ní Shé
@eidin.bsky.social
Shane McKee
Shane McKee
@shaneir.bsky.social
Eithne Sexton
Eithne Sexton
@eithnesexton.bsky.social
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