GC
@thepotspostman.bsky.social
Just a mailman with #POTS
Here to spread awareness and advocate for those with #dysautonomia and #chronicillness
Here to spread awareness and advocate for those with #dysautonomia and #chronicillness
Imagine reading multiple peer-reviewed medical journals, seeing clear evidence of a condition, then looking someone dead in the eyes and saying, ‘This isn’t true.’
As if science only counts when it’s convenient and fits your narrative.
This is the current healthcare system.
#chronicillness #POTS
As if science only counts when it’s convenient and fits your narrative.
This is the current healthcare system.
#chronicillness #POTS
February 3, 2025 at 2:38 AM
Imagine reading multiple peer-reviewed medical journals, seeing clear evidence of a condition, then looking someone dead in the eyes and saying, ‘This isn’t true.’
As if science only counts when it’s convenient and fits your narrative.
This is the current healthcare system.
#chronicillness #POTS
As if science only counts when it’s convenient and fits your narrative.
This is the current healthcare system.
#chronicillness #POTS
Chronic illness folk often times hear“I’m tired too” when talking to others about fatigue.
Yes, you had a long day and are drained from work, that is completely understandable and we sympathize.
The difference is you’ll go to bed and wake up refreshed, We won’t.
#chronicillness #POTS
Yes, you had a long day and are drained from work, that is completely understandable and we sympathize.
The difference is you’ll go to bed and wake up refreshed, We won’t.
#chronicillness #POTS
January 27, 2025 at 1:38 AM
Chronic illness folk often times hear“I’m tired too” when talking to others about fatigue.
Yes, you had a long day and are drained from work, that is completely understandable and we sympathize.
The difference is you’ll go to bed and wake up refreshed, We won’t.
#chronicillness #POTS
Yes, you had a long day and are drained from work, that is completely understandable and we sympathize.
The difference is you’ll go to bed and wake up refreshed, We won’t.
#chronicillness #POTS
Living with a #chronicillness turns everyday tasks into hurdles.
Folding laundry? Exhausted after one load.
Making dinner? Pain kicks in halfway through.
Chat with a friend? Brain fog steals your words.
Grocery shopping? Need a day to recover.
Quick shower? Feels like you ran a marathon.
Folding laundry? Exhausted after one load.
Making dinner? Pain kicks in halfway through.
Chat with a friend? Brain fog steals your words.
Grocery shopping? Need a day to recover.
Quick shower? Feels like you ran a marathon.
December 11, 2024 at 2:44 AM
Living with a #chronicillness turns everyday tasks into hurdles.
Folding laundry? Exhausted after one load.
Making dinner? Pain kicks in halfway through.
Chat with a friend? Brain fog steals your words.
Grocery shopping? Need a day to recover.
Quick shower? Feels like you ran a marathon.
Folding laundry? Exhausted after one load.
Making dinner? Pain kicks in halfway through.
Chat with a friend? Brain fog steals your words.
Grocery shopping? Need a day to recover.
Quick shower? Feels like you ran a marathon.
Living with an invisible #disability means fighting battles others can’t see. In relationships, this can lead to misunderstandings that leave us feeling isolated and misunderstood. Let’s talk about why. 👇
December 3, 2024 at 1:36 AM
Living with an invisible #disability means fighting battles others can’t see. In relationships, this can lead to misunderstandings that leave us feeling isolated and misunderstood. Let’s talk about why. 👇
November 28, 2024 at 2:34 AM
I think most "healthy" people who don't have a chronic illness, think doctors can cure every ailment.
That it can't ever be that bad, they can just go to the doctors to get whatever it is fixed.
The illusion is definitely shattered when you have an illness that can’t be cured.
#POTS
That it can't ever be that bad, they can just go to the doctors to get whatever it is fixed.
The illusion is definitely shattered when you have an illness that can’t be cured.
#POTS
November 26, 2024 at 11:29 PM
I think most "healthy" people who don't have a chronic illness, think doctors can cure every ailment.
That it can't ever be that bad, they can just go to the doctors to get whatever it is fixed.
The illusion is definitely shattered when you have an illness that can’t be cured.
#POTS
That it can't ever be that bad, they can just go to the doctors to get whatever it is fixed.
The illusion is definitely shattered when you have an illness that can’t be cured.
#POTS
If you’re healthy and you really want to know what it’s like living with chronic illness, try not eating or sleeping for three days.
Then go and try to function in the outside world.
#chronicillness #disability #POTS #invisibleillness
Then go and try to function in the outside world.
#chronicillness #disability #POTS #invisibleillness
November 24, 2024 at 9:26 PM
If you’re healthy and you really want to know what it’s like living with chronic illness, try not eating or sleeping for three days.
Then go and try to function in the outside world.
#chronicillness #disability #POTS #invisibleillness
Then go and try to function in the outside world.
#chronicillness #disability #POTS #invisibleillness
I’m not ready for snow or winter. Yes I’m happy the worst of the heat from the summer is over but I don’t do well in extreme cold either.
Everyone thinks of heat intolerance when it comes to Dysautonomia but cold intolerance is a thing as well.
I’m lucky enough to have both.
#chronicillness
Everyone thinks of heat intolerance when it comes to Dysautonomia but cold intolerance is a thing as well.
I’m lucky enough to have both.
#chronicillness
November 22, 2024 at 4:27 PM
I’m not ready for snow or winter. Yes I’m happy the worst of the heat from the summer is over but I don’t do well in extreme cold either.
Everyone thinks of heat intolerance when it comes to Dysautonomia but cold intolerance is a thing as well.
I’m lucky enough to have both.
#chronicillness
Everyone thinks of heat intolerance when it comes to Dysautonomia but cold intolerance is a thing as well.
I’m lucky enough to have both.
#chronicillness
What are your #chronicillness essentials when leaving the house?
For me it’s
1. Water
2. Electrolytes
4. Compression socks
For me it’s
1. Water
2. Electrolytes
4. Compression socks
November 20, 2024 at 9:03 PM
What are your #chronicillness essentials when leaving the house?
For me it’s
1. Water
2. Electrolytes
4. Compression socks
For me it’s
1. Water
2. Electrolytes
4. Compression socks
Me everyday with a chronic illness:
I don't feel well. Is it my chronic illness? Is it a cold? Is it the weather? Is it because I'm stressed? Is it because I did to much yesterday? Is it because I slept bad? Is it a new illness? Is it a flare? Do I need electrolytes?
#POTS #chronicillness
I don't feel well. Is it my chronic illness? Is it a cold? Is it the weather? Is it because I'm stressed? Is it because I did to much yesterday? Is it because I slept bad? Is it a new illness? Is it a flare? Do I need electrolytes?
#POTS #chronicillness
November 19, 2024 at 8:59 PM
Me everyday with a chronic illness:
I don't feel well. Is it my chronic illness? Is it a cold? Is it the weather? Is it because I'm stressed? Is it because I did to much yesterday? Is it because I slept bad? Is it a new illness? Is it a flare? Do I need electrolytes?
#POTS #chronicillness
I don't feel well. Is it my chronic illness? Is it a cold? Is it the weather? Is it because I'm stressed? Is it because I did to much yesterday? Is it because I slept bad? Is it a new illness? Is it a flare? Do I need electrolytes?
#POTS #chronicillness
Reposted by GC
Penalizing patients for not canceling appointments 24+ hours in advance seems a bit unfair to me.
Life is unpredictable, especially when you suffer from a chronic illness.
We can’t predict how we will feel 24 hours in advance or even an hour in advance.
#disability #chronicillness #POTS
Life is unpredictable, especially when you suffer from a chronic illness.
We can’t predict how we will feel 24 hours in advance or even an hour in advance.
#disability #chronicillness #POTS
November 19, 2024 at 12:06 AM
Penalizing patients for not canceling appointments 24+ hours in advance seems a bit unfair to me.
Life is unpredictable, especially when you suffer from a chronic illness.
We can’t predict how we will feel 24 hours in advance or even an hour in advance.
#disability #chronicillness #POTS
Life is unpredictable, especially when you suffer from a chronic illness.
We can’t predict how we will feel 24 hours in advance or even an hour in advance.
#disability #chronicillness #POTS
Penalizing patients for not canceling appointments 24+ hours in advance seems a bit unfair to me.
Life is unpredictable, especially when you suffer from a chronic illness.
We can’t predict how we will feel 24 hours in advance or even an hour in advance.
#disability #chronicillness #POTS
Life is unpredictable, especially when you suffer from a chronic illness.
We can’t predict how we will feel 24 hours in advance or even an hour in advance.
#disability #chronicillness #POTS
November 19, 2024 at 12:06 AM
Penalizing patients for not canceling appointments 24+ hours in advance seems a bit unfair to me.
Life is unpredictable, especially when you suffer from a chronic illness.
We can’t predict how we will feel 24 hours in advance or even an hour in advance.
#disability #chronicillness #POTS
Life is unpredictable, especially when you suffer from a chronic illness.
We can’t predict how we will feel 24 hours in advance or even an hour in advance.
#disability #chronicillness #POTS
Does anyone else find themselves caring less about the small stuff after developing a #chronicillness?
November 17, 2024 at 3:33 PM
Does anyone else find themselves caring less about the small stuff after developing a #chronicillness?
Reposted by GC
What Are Adrenaline Dumps?
Adrenaline dumps, also called surges or rushes, are intense bursts of the hormone adrenaline that flood your system, usually in response to stress or perceived danger. This is a natural fight-or-flight response, where your body prepares to either face a threat or escape.
Adrenaline dumps, also called surges or rushes, are intense bursts of the hormone adrenaline that flood your system, usually in response to stress or perceived danger. This is a natural fight-or-flight response, where your body prepares to either face a threat or escape.
November 14, 2024 at 2:28 PM
What Are Adrenaline Dumps?
Adrenaline dumps, also called surges or rushes, are intense bursts of the hormone adrenaline that flood your system, usually in response to stress or perceived danger. This is a natural fight-or-flight response, where your body prepares to either face a threat or escape.
Adrenaline dumps, also called surges or rushes, are intense bursts of the hormone adrenaline that flood your system, usually in response to stress or perceived danger. This is a natural fight-or-flight response, where your body prepares to either face a threat or escape.
Hello all, my name is GC. I am a mailman who suffers from #POTS #hEDS and possibly #sjogrens.
This is account is mainly to spread awareness for #chronicillness and to connect with others on a similar journey.
Can’t wait to get to know everyone!
This is account is mainly to spread awareness for #chronicillness and to connect with others on a similar journey.
Can’t wait to get to know everyone!
November 15, 2024 at 2:45 PM
Hello all, my name is GC. I am a mailman who suffers from #POTS #hEDS and possibly #sjogrens.
This is account is mainly to spread awareness for #chronicillness and to connect with others on a similar journey.
Can’t wait to get to know everyone!
This is account is mainly to spread awareness for #chronicillness and to connect with others on a similar journey.
Can’t wait to get to know everyone!
Reposted by GC
It still amazes me that one of my chronic illnesses is triggered simply by standing.
And we live In a world where 90% of daily tasks revolve around that exact trigger.
#POTS #chronicillness #disability #dysautonomia
And we live In a world where 90% of daily tasks revolve around that exact trigger.
#POTS #chronicillness #disability #dysautonomia
November 14, 2024 at 11:24 PM
It still amazes me that one of my chronic illnesses is triggered simply by standing.
And we live In a world where 90% of daily tasks revolve around that exact trigger.
#POTS #chronicillness #disability #dysautonomia
And we live In a world where 90% of daily tasks revolve around that exact trigger.
#POTS #chronicillness #disability #dysautonomia
Still trying to find everyone over here from X
November 15, 2024 at 2:58 AM
Still trying to find everyone over here from X
It still amazes me that one of my chronic illnesses is triggered simply by standing.
And we live In a world where 90% of daily tasks revolve around that exact trigger.
#POTS #chronicillness #disability #dysautonomia
And we live In a world where 90% of daily tasks revolve around that exact trigger.
#POTS #chronicillness #disability #dysautonomia
November 14, 2024 at 11:24 PM
It still amazes me that one of my chronic illnesses is triggered simply by standing.
And we live In a world where 90% of daily tasks revolve around that exact trigger.
#POTS #chronicillness #disability #dysautonomia
And we live In a world where 90% of daily tasks revolve around that exact trigger.
#POTS #chronicillness #disability #dysautonomia
What Are Adrenaline Dumps?
Adrenaline dumps, also called surges or rushes, are intense bursts of the hormone adrenaline that flood your system, usually in response to stress or perceived danger. This is a natural fight-or-flight response, where your body prepares to either face a threat or escape.
Adrenaline dumps, also called surges or rushes, are intense bursts of the hormone adrenaline that flood your system, usually in response to stress or perceived danger. This is a natural fight-or-flight response, where your body prepares to either face a threat or escape.
November 14, 2024 at 2:28 PM
What Are Adrenaline Dumps?
Adrenaline dumps, also called surges or rushes, are intense bursts of the hormone adrenaline that flood your system, usually in response to stress or perceived danger. This is a natural fight-or-flight response, where your body prepares to either face a threat or escape.
Adrenaline dumps, also called surges or rushes, are intense bursts of the hormone adrenaline that flood your system, usually in response to stress or perceived danger. This is a natural fight-or-flight response, where your body prepares to either face a threat or escape.
Reposted by GC
Overstimulation hits hard for those with POTS because our autonomic nervous system is out of sync. Loud sounds, bright lights, and busy environments kick our “fight-or-flight” into overdrive, spiking symptoms like dizziness, heart rate, and fatigue.
But why?
Let’s break it down.
But why?
Let’s break it down.
November 9, 2024 at 8:05 PM
Overstimulation hits hard for those with POTS because our autonomic nervous system is out of sync. Loud sounds, bright lights, and busy environments kick our “fight-or-flight” into overdrive, spiking symptoms like dizziness, heart rate, and fatigue.
But why?
Let’s break it down.
But why?
Let’s break it down.
Before I became sick my phone was always blowing up with friends texting me.
Now, I can count on my hands the number of friends I have that actually text me to check in on me.
You really find out who your true friends are when you become sick.
#chronicillness #disbaility #POTS #invisibleillness
Now, I can count on my hands the number of friends I have that actually text me to check in on me.
You really find out who your true friends are when you become sick.
#chronicillness #disbaility #POTS #invisibleillness
November 13, 2024 at 3:15 PM
Before I became sick my phone was always blowing up with friends texting me.
Now, I can count on my hands the number of friends I have that actually text me to check in on me.
You really find out who your true friends are when you become sick.
#chronicillness #disbaility #POTS #invisibleillness
Now, I can count on my hands the number of friends I have that actually text me to check in on me.
You really find out who your true friends are when you become sick.
#chronicillness #disbaility #POTS #invisibleillness
I hate that when I don’t sleep well, my chronic illness flares dramatically.
November 13, 2024 at 1:46 PM
I hate that when I don’t sleep well, my chronic illness flares dramatically.
POTS/dysautonomia symptoms that rarely get spoken about:
Sensory overload
Night sweats
Adrenaline dumps
Tremors
Delayed or rapid gastric emptying
Mood swings
Urinary urgency
#POTS #chronicillness
Sensory overload
Night sweats
Adrenaline dumps
Tremors
Delayed or rapid gastric emptying
Mood swings
Urinary urgency
#POTS #chronicillness
November 12, 2024 at 7:14 PM
POTS/dysautonomia symptoms that rarely get spoken about:
Sensory overload
Night sweats
Adrenaline dumps
Tremors
Delayed or rapid gastric emptying
Mood swings
Urinary urgency
#POTS #chronicillness
Sensory overload
Night sweats
Adrenaline dumps
Tremors
Delayed or rapid gastric emptying
Mood swings
Urinary urgency
#POTS #chronicillness
No one is really prepared for chronic illness.
They are raised to believe that illness is temporary, something that can be fixed with the right treatment.
Unfortunately for many, they don’t find out how wrong this is until they themselves become #chronicallyill.
#POTS #Disability
They are raised to believe that illness is temporary, something that can be fixed with the right treatment.
Unfortunately for many, they don’t find out how wrong this is until they themselves become #chronicallyill.
#POTS #Disability
November 11, 2024 at 6:06 PM
No one is really prepared for chronic illness.
They are raised to believe that illness is temporary, something that can be fixed with the right treatment.
Unfortunately for many, they don’t find out how wrong this is until they themselves become #chronicallyill.
#POTS #Disability
They are raised to believe that illness is temporary, something that can be fixed with the right treatment.
Unfortunately for many, they don’t find out how wrong this is until they themselves become #chronicallyill.
#POTS #Disability