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ThereForME @thereforme.bsky.social · 1d

Read here 👇

www.thereforme.uk/p/campaign-u...

Campaign Update #26

We’re hitting your inbox today from a moment of reflection.

www.thereforme.uk

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ThereForME @thereforme.bsky.social · 1d

From Lib Dem conference to Washington DC - today's #ThereForME campaign update shares an update from advocacy in the UK and overseas.

Read on to find out more 👇

(Link in next post)

Campaign update 26. This week: What's happening in Westminster? Long Covid advocacy overseas. New #ThereForME Substack post.

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ThereForME @thereforme.bsky.social · 15d

Minutes are up from the latest meeting of the APPG on ME 👇

Action for ME @actionforme.bsky.social · 15d

📢 APPG on ME

The minutes from the 10 September APPG meeting are now available on the APPG’s website 👇

appgme.co.uk/meetings/app...

Thank you to those with lived experience who used their valuable time and energy to provide evidence as part of the Severe ME Inquiry 🧡

#pwME #MECFS #MyalgicE

Graphic showing Big Ben and the Palace of Westminster with logos for Action for ME, the ME Association, and APPG on ME. An icon of documents is centred. Text reads: “APPG on ME - 10 September 2025 meeting minutes now available."

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Reposted by ThereForME

Didier @medidier.bsky.social · 15d

Want to understand the #GreatestMEdicalScandal in one sentence?

"Most said they would be unsure about accessing a specialist service due to the risk of inappropriate care causing harm to their loved one"

Read it in the latest @thereforme.bsky.social update --> www.thereforme.uk/p/commission...

Commissioning an NHS service for very severe ME

Perspectives from carers and clinicians

www.thereforme.uk

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ThereForME @thereforme.bsky.social · 15d

www.thereforme.uk/p/commission...

Commissioning an NHS service for very severe ME

Perspectives from carers and clinicians

www.thereforme.uk

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ThereForME @thereforme.bsky.social · 15d

Today's #ThereForME blog shares findings from a mini survey.

We asked carers and clinicians with experience supporting people with v severe ME whether the Health Secretary should commission a service for v severe ME - and if so, what it should look like.

Link in next post 👇

Speech bubble with “What would an NHS service for very severe ME look like?” At the bottom of the image: “Perspectives from carers & clinicians. #ThereForME”

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ThereForME @thereforme.bsky.social · 29d

For any eagle eyed #ThereForME supporters looking out for our weekly blog, we just wanted to let you know that our posts will be a bit less regular this month!

We’re slowly picking up again after our break. We’ll be back on a more regular basis as content and capacity allows 💙

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ThereForME @thereforme.bsky.social · Sep 2

📢 APPG on ME

The APPG is opening an enquiry into Severe ME next Wednesday.

📆 Wed 10 Sept | ⏰ 4pm

Template to ask your MP to attend 👇

appgme.co.uk/contact-your...

Contact your MP - All-Party Parliamentary Group on ME

The APPG is the ME community’s voice in Parliament. Make that voice louder. Write to your MP today. We reached out to all Members of Parliament to encourage them to join the APPG, but nothing is as po...

appgme.co.uk

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Reposted by ThereForME

Fliss Alc @flissaki.bsky.social · Sep 2

ThereForME campaign update

#pwME #pwLC @thereforme.bsky.social

open.substack.com/pub/therefor...

Campaign Update #25: #ThereForME is back!

Dear readers, we’re happy to let you know that #ThereForME is back in action!

open.substack.com

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ThereForME @thereforme.bsky.social · Sep 2

www.thereforme.uk/p/campaign-u...

Campaign Update #25: #ThereForME is back!

Dear readers, we’re happy to let you know that #ThereForME is back in action!

www.thereforme.uk

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ThereForME @thereforme.bsky.social · Sep 2

Our #ThereForMe blog is back!

Our team took a month off in August but we’re back in action. Today we’re sharing three burning questions on our mind as we look to the months ahead.

Link in next post 👇

Campaign Update 25. #ThereForME is back!

This week: the three questions we're asking as we look to the months ahead.

New #ThereForME blog post

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Reposted by ThereForME

Didier @medidier.bsky.social · Sep 2

They are BACK! 🙂💪

www.thereforme.uk/p/campaign-u...

Campaign Update #25: #ThereForME is back!

Dear readers, we’re happy to let you know that #ThereForME is back in action!

www.thereforme.uk

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ThereForME @thereforme.bsky.social · Jul 29

www.thereforme.uk/p/campaign-u...

Campaign Update #24: Responding to the Final Delivery Plan for ME

After a long delay, the UK Government's Final Delivery Plan for ME/CFS was finally published last Tuesday.

www.thereforme.uk

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ThereForME @thereforme.bsky.social · Jul 29

Today’s #ThereForME blog is our last update before a short pause (we’ll be back in September 😎).

We unpack the Delivery Plan, the media coverage and why it matters.

Link in next post 👇

Update 24. Responding to the Final Delivery Plan. A closer look at the plan, Final Delivery Plan in the media, why the Delivery Plan matters. New #ThereForME Substack post

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Reposted by ThereForME

Helen Hughes @helenh49.bsky.social · Jul 23

Great to be able to collaborate and support this important #patientsafety issue

Patient Safety Learning @patientsafetylearning.org · Jul 23

(5/5) You can find out more about the work of @thereforme.bsky.social over the past year, and their plans for the future, in the blog below⬇️
www.thereforme.uk/p/thereforme...

#ThereForME’s first birthday

We had a busy day yesterday at #ThereForME HQ responding to the Delivery Plan publication.

www.thereforme.uk

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Reposted by ThereForME

Patient Safety Learning @patientsafetylearning.org · Jul 23

(1/5) It has been great to collaborate with @thereforme.bsky.social this year on their campaign to create an NHS that's there for people with ME and Long Covid.

ThereForME @thereforme.bsky.social · Jul 23

Today we’re celebrating a year to the day since @karenlhargrave.bsky.social & @emmagl.bsky.social launched #ThereForME!

We had a busy day yesterday responding to the Delivery Plan release. It’s clear how much more our campaign has left to do - but today we’re reflecting on what we’ve done so far

One year ago we launched #ThereForME, calling for an NHS that’s there for people with ME & Long Covid. What have we done so far?

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Reposted by ThereForME

Didier @medidier.bsky.social · Jul 23

Since becoming a severe #pwME in early 2022 only a handful of things have made me feel some sense of dignity, belief in positive change & group belonging. At the top, is the work done by this association in just under 1 year.

THANK YOU.

@thereforme.bsky.social

www.thereforme.uk/p/thereforme...

#ThereForME’s first birthday

We had a busy day yesterday at #ThereForME HQ responding to the Delivery Plan publication.

www.thereforme.uk

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ThereForME @thereforme.bsky.social · Jul 23

You can read more on our #ThereForME blog 👇

www.thereforme.uk/p/thereforme...

#ThereForME’s first birthday

We had a busy day yesterday at #ThereForME HQ responding to the Delivery Plan publication.

www.thereforme.uk

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ThereForME @thereforme.bsky.social · Jul 23

So that is Year 1 of #ThereForME Wrapped!

A huge thank you to everyone who has helped along the way. From support and encouragement on social media, to our gang of helpful volunteers - we couldn’t have done it without you 💙

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ThereForME @thereforme.bsky.social · Jul 23

We’ve also been working to bring lived experience to the heart of policymaking.

We believe it’s essential to get lived experience in front of people with the power to influence policy and practice.

👇

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ThereForME @thereforme.bsky.social · Jul 23

We’ve been working to change narratives around ME and Long Covid.

Narratives can be notoriously difficult to shift but we’ve been chipping away at them over the past year. Part of this has been getting our team out in the media. We’ve also supported others to tell their stories 📣

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ThereForME @thereforme.bsky.social · Jul 23

A lot of work (and support from volunteers!) has gone into some of our bigger campaigns.

From our #ThereForME advent calendar to #FundThePlan the past year has kept us busy 👇

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ThereForME @thereforme.bsky.social · Jul 23

We’re a small team and we can’t do it all. That’s why building a coalition is part of our strategy.

We think change for people with ME and Long Covid will be the result of a diverse coalition calling for action from many directions.

Some of our allies so far 👇

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ThereForME @thereforme.bsky.social · Jul 23

Today we’re celebrating a year to the day since @karenlhargrave.bsky.social & @emmagl.bsky.social launched #ThereForME!

We had a busy day yesterday responding to the Delivery Plan release. It’s clear how much more our campaign has left to do - but today we’re reflecting on what we’ve done so far

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ThereForME @thereforme.bsky.social · Jul 22

You can read more about Nick’s experiences here 👇

www.thereforme.uk/p/stuck-at-t...

Stuck at the bottom of a well

Me, very severe ME and the NHS

www.thereforme.uk

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