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toneba.bsky.social
@toneba.bsky.social
13 followers 48 following 31 posts
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toneba.bsky.social
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June 8, 2025 at 12:50 PM
toneba.bsky.social
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Kronisk syke Kamilla bor hjemme og mener hun får for lite hjelp
Oslo-politikerne har vedtatt at unge kronisk syke ikke skal plasseres på sykehjem mot sin vilje. Hva kan være et alternativ?
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May 30, 2025 at 7:07 AM
toneba.bsky.social
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Sissel Sunde 🇳🇴 on X: "Når vårt eget land ikke beskytter pasientene, er det godt å se at andre tar til motmæle. @helse_og_omsorg @jcvestre https://t.co/Qy0sZAwxVK" / X
Når vårt eget land ikke beskytter pasientene, er det godt å se at andre tar til motmæle. @helse_og_omsorg @jcvestre https://t.co/Qy0sZAwxVK
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May 29, 2025 at 7:27 PM
toneba.bsky.social
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May 26, 2025 at 10:14 AM
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Dr Rae Duncan on X: "@bmj_latest @PaulGarnerWoof 1/Response to Miller et al from 115 international experts: After decades of medical gaslighting, hope for ME/CFS must come from biomedical research, funded treatment trials, and better medical education—not unproven belief reframing. A 🧵 https://t.co/dwoHgIcCMu" / X
@bmj_latest @PaulGarnerWoof 1/Response to Miller et al from 115 international experts: After decades of medical gaslighting, hope for ME/CFS must come from biomedical research, funded treatment trials, and better medical education—not unproven belief reframing. A 🧵 https://t.co/dwoHgIcCMu
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May 23, 2025 at 7:47 AM
toneba.bsky.social
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Life pre C19 on X: ""Forskare vid Karolinska Institutet har hittat markörer i blodet som kan kopplas till symtom hos personer med postcovid. Upptäckten kan hjälpa till att ställa diagnos och utveckla behandlingar." https://t.co/Yh4OMPMSUv" / X
"Forskare vid Karolinska Institutet har hittat markörer i blodet som kan kopplas till symtom hos personer med postcovid. Upptäckten kan hjälpa till att ställa diagnos och utveckla behandlingar." https://t.co/Yh4OMPMSUv
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May 8, 2025 at 7:52 AM
toneba.bsky.social
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May 7, 2025 at 3:33 PM
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May 6, 2025 at 8:34 AM
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Whitney Dafoe on X: "And I'm sadly not being dramatic. Here is a post I wrote about the true horror of ME/CFS. This is real. Happening right now. https://t.co/ykmGJjqYP9" / X
And I'm sadly not being dramatic. Here is a post I wrote about the true horror of ME/CFS. This is real. Happening right now. https://t.co/ykmGJjqYP9
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May 5, 2025 at 7:54 AM
toneba.bsky.social
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A J on X: "KI, Karolinska universitetssjh, Uppsala universitet, England, USA, Schweiz. Skiftande, ihållande symptomatologi. Immundysreglering, pågående inflammation, vävnadsskada, viral persistens. Reaktiveringen av latenta herpesvirus kan bidra till långcovid. https://t.co/kse4p6zokR https://t.co/sDm4T3BTmo" / X
KI, Karolinska universitetssjh, Uppsala universitet, England, USA, Schweiz. Skiftande, ihållande symptomatologi. Immundysreglering, pågående inflammation, vävnadsskada, viral persistens. Reaktiveringen av latenta herpesvirus kan bidra till långcovid. https://t.co/kse4p6zokR https://t.co/sDm4T3BTmo
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May 2, 2025 at 9:58 AM
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May 2, 2025 at 7:17 AM
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May 2, 2025 at 6:55 AM
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Anil van der Zee © on X: "1) OMG we did it‼️‼️ In this film for #MEawarenessmonth, five medical doctors open up about living with #PAIS/#IACC conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before, not just in the Netherlands https://t.co/XxPQ9bQxI3" / X
1) OMG we did it‼️‼️ In this film for #MEawarenessmonth, five medical doctors open up about living with #PAIS/#IACC conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before, not just in the Netherlands https://t.co/XxPQ9bQxI3
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May 1, 2025 at 5:10 PM
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April 27, 2025 at 6:44 AM
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Oonagh Cousins on X: "The Lightning Process offers false hope to people desperate for answers. Good to see Con or Cure on the BBC shining a light on it. 👇 Wouldn’t be complete without the usual wistful river shots of course." / X
The Lightning Process offers false hope to people desperate for answers. Good to see Con or Cure on the BBC shining a light on it. 👇 Wouldn’t be complete without the usual wistful river shots of course.
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April 16, 2025 at 7:13 PM
toneba.bsky.social
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Long COVID is Real in Kids Too!
YouTube video by Protect_BC
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April 15, 2025 at 3:21 PM
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April 10, 2025 at 7:00 AM
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April 3, 2025 at 7:00 AM
toneba.bsky.social
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Life pre C19 on X: "https://t.co/1BeTluowvB" / X
https://t.co/1BeTluowvB
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March 16, 2025 at 8:09 AM
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March 12, 2025 at 10:11 PM
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Todd Davenport on X: "@LCAIreland @LongCOVIDPhysio Thank you so much for sharing, friends. Link to the full resource is here. @4workwell @JOSPT https://t.co/qNXkr9Lmy6" / X
@LCAIreland @LongCOVIDPhysio Thank you so much for sharing, friends. Link to the full resource is here. @4workwell @JOSPT https://t.co/qNXkr9Lmy6
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March 12, 2025 at 8:54 AM
toneba.bsky.social
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(PDF) Patient-Reported Treatment Outcomes in ME/CFS and Long COVID
PDF | Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and Long COVID are persistent multi-system illnesses affecting many patients. With no... | Find, read and cite all the research you ne...
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March 10, 2025 at 11:13 AM
Reposted
tomkindlon.bsky.social
Transcriptional reprogramming primes CD8+ T cells toward exhaustion in Myalgic encephalomyelitis/chronic fatigue syndrome

www.pnas.org/doi/10.1073/...

"Our findings are consistent with the hypothesis chronic viral infection is a factor in ME"

Image from AMMES March 2025 e-newsletter

#MEcfs #CFS
Image of a type of cell with the following text Transcriptional reprogramming primes CD8+ T cells toward exhaustion in Myalgic encephalomyelitis/chronic fatigue syndrome We show that T cells in ME cases are epigenetically predisposed toward terminal exhaustion and that exhaustion markers are upregulated following exercise challenge. Using single-cell genomics, we provide important information about the role of CD8+ T cell exhaustion development and progression. Our findings are consistent with the hypothesis that chronic viral infection is a factor in ME; by dissecting the molecular basis of T cell dysfunction in ME, we offer potential avenues for treatment. Read more here>>
March 9, 2025 at 2:36 AM
toneba.bsky.social
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Lite vekker mer forakt enn utmatta kvinner
DEBATT: Myalgisk encefalomyelitt (ME) er den mest misforståtte sykdommene i moderne medisin. Til tross for tusenvis av studier som dokumenterer alvorlige patologiske avvik er det fortsatt en kamp å bl...
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March 8, 2025 at 11:48 AM
toneba.bsky.social
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Tone Bakkevold on X: "Jeg kjenner en ung person med ME som er i gruppa psykisk uhelse/rus i NAV, men som er helt psykisk oppegående og aldri brukt rusmidler. Hvor mange med LC og ME blir plassert her? Ikke rart man tror at det er så mange unge som sliter psykisk når statistikken viser dette?!" / X
Jeg kjenner en ung person med ME som er i gruppa psykisk uhelse/rus i NAV, men som er helt psykisk oppegående og aldri brukt rusmidler. Hvor mange med LC og ME blir plassert her? Ikke rart man tror at det er så mange unge som sliter psykisk når statistikken viser dette?!
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March 8, 2025 at 9:42 AM