@twindadct.bsky.social
I am 1 of 4 in the world...according to pmc.ncbi.nlm.nih.gov/articles/PMC.... I have HAE-HS3OST6. Only 3 others in the world have documented cases. #HAEAwareness #rareDisease
pmc.ncbi.nlm.nih.gov
March 16, 2025 at 9:47 PM
I am 1 of 4 in the world...according to pmc.ncbi.nlm.nih.gov/articles/PMC.... I have HAE-HS3OST6. Only 3 others in the world have documented cases. #HAEAwareness #rareDisease