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Rehabilitation Science Research Network for COVID @uoftcovidrehab.bsky.social · 15h

New Event: Join us for the Fireside Chat: Deep dive into activity, movement, PESE and PEM in the context of Long COVID and Infection-Associated Chronic Conditions. Visit our website for more information and to register! tinyurl.com/33hd3r2a
@drjillcameron.bsky.social @kellyobrien25.bsky.social

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Rehabilitation Science Research Network for COVID @uoftcovidrehab.bsky.social · 28d

Dr. Kelly O'Brien (@kellyobrien25.bsky.social) and Dr. Jill Cameron (@drjillcameron.bsky.social) will be presenting and chairing at the 2025 @longcovidweb.bsky.social Canadian Symposium on Long COVID.

More details on the event below:
www.longcovidweb.ca/events/3rd-c...

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Rehabilitation Science Research Network for COVID @uoftcovidrehab.bsky.social · Sep 2

New publication: Establishing a framework of measurement for use in Long COVID research and practice: protocol for a scoping review involving evidence review and consultation
@longcovidweb.bsky.social

Read it below:

bmjopen.bmj.com/content/15/9...

Establishing a framework of measurement for use in Long COVID research and practice: protocol for a scoping review involving evidence review and consultation

Introduction Our aim is to develop a Framework of Measurement for people living with Long COVID and their caregivers for use in Long COVID research and clinical practice. Specifically, we will charact...

bmjopen.bmj.com

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Rehabilitation Science Research Network for COVID @uoftcovidrehab.bsky.social · Aug 19

Congratulations to Dr. Euson Yeung, 2025-2026 Catalyst Grant recipient for the project 'Defining Entry-Level Competencies for Safe Rehabilitation of Individuals with Post-Exertional Malaise: A Delphi Study’. @drjillcameron.bsky.social @kellyobrien25.bsky.social

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Rehabilitation Science Research Network for COVID @uoftcovidrehab.bsky.social · Aug 19

Congratulations to Dr. Chavon Niles, 2025-2026 Catalyst Grant recipient for the project ‘Untold Stories of Long COVID: A Photovoice and Narrative Study Among Black and Racialized Communities in Ontario’.
@drjillcameron.bsky.social @kellyobrien25.bsky.social

Rehabilitation Science Research Network for COVID

rehabcovidnetwork.med.utoronto.ca

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Rehabilitation Science Research Network for COVID @uoftcovidrehab.bsky.social · Aug 11

@longcovidgroup.bsky.social @kellyobrien25.bsky.social @lisamccorkell.bsky.social @darrenabrown.bsky.social @cathythomsonpt.bsky.social @kerlandsonmd.bsky.social

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Rehabilitation Science Research Network for COVID @uoftcovidrehab.bsky.social · Aug 11

New publication: Experiences of pacing to reduce symptoms among adults living with Long COVID in Canada, Ireland, the United Kingdom and the United States
doi.org/10.1186/s129...
@longcovidsupport.bsky.social
@lcaireland.bsky.social
@patientled.bsky.social
@longcovidphysio.bsky.social

Experiences of pacing to reduce symptoms among adults living with Long COVID in Canada, Ireland, the United Kingdom and the United States - Discover Public Health

Background Long COVID is a multisystem condition that negatively impacts daily function. Pacing is a self-management strategy to mitigate symptoms. Our aim was to describe experiences of pacing from t...

doi.org

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Rehabilitation Science Research Network for COVID @uoftcovidrehab.bsky.social · Aug 11

@longcovidgroup.bsky.social @kellyobrien25.bsky.social @lisamccorkell.bsky.social @darrenabrown.bsky.social @cathythomsonpt.bsky.social @kerlandsonmd.bsky.social

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Rehabilitation Science Research Network for COVID @uoftcovidrehab.bsky.social · Aug 11

New publication: Community Engagement in Long Covid Research: Process, Evaluation and Recommendations From the Long COVID and Episodic Disability Study

doi.org/10.1111/hex....

@longcovidsupport.bsky.social @lcaireland.bsky.social @longcovidphysio.bsky.social @patientled.bsky.social

Community Engagement in Long Covid Research: Process, Evaluation and Recommendations From the Long COVID and Episodic Disability Study

Introduction Long Covid and other infection-associated chronic condition communities have been integral in advocating for patient engagement in all stages of research, from design and conduct, and i...

doi.org

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Rehabilitation Science Research Network for COVID @uoftcovidrehab.bsky.social · Jul 4

Recordings and the Report from the 2025 International Forum on COVID Rehabilitation Research are now available, including the keynote session by @julialmv.bsky.social
www.youtube.com/watch?v=6wPH...
Check out all the recordings and report below:
rehabcovidnetwork.med.utoronto.ca/2025-interna...

2025 International Forum on COVID Rehabilitation Research

rehabcovidnetwork.med.utoronto.ca

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Reposted by Rehabilitation Science Research Network for COVID

Patient-Led Research Collaborative @patientled.bsky.social · Jun 24

We're hosting a Patient-Led Research Fund (PLRF) webinar on July 9, 1–4:30PM ET!

Hear results from 10 PLRF-funded biomedical studies (on microclots, T cell exhaustion, trials, & more), all selected by a panel of patient-researchers.

🗓️ Register: us02web.zoom.us/webinar/regi...

#LongCOVID

infographic on the PLRF with an address to register at bit.ly/PLRF-2025

list of researchers presenting, including on T cell responses, foraminal stenosis in ME/CFS patients, and more

list of researchers presenting, including on microclots, PEM pathophysiology, clinical trial results, and more

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Rehabilitation Science Research Network for COVID @uoftcovidrehab.bsky.social · Jul 3

@patientled.bsky.social is hosting a free webinar next week, where the results and latest progress from biomedical studies funded by the Patient-Led Research Fund (PLRF) will be presented!

When: Thursday July 9th, 2025 | 1PM - 5PM ET
Where: Register on Zoom us02web.zoom.us/webinar/regi...

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Rehabilitation Science Research Network for COVID @uoftcovidrehab.bsky.social · Apr 25

Thank you to everyone who attended the #COVIDrehab forum in-person and online. It was a great day of knowledge exchange and collaboration!

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Rehabilitation Science Research Network for COVID @uoftcovidrehab.bsky.social · Apr 25

Sue Birch shares tips to accommodate return to work:
💡noise cancelling earphones
💡printer beside desk
💡blue light filter on computer

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Rehabilitation Science Research Network for COVID @uoftcovidrehab.bsky.social · Apr 25

Fran Wolfe speaks about importance of peer support for people with Long COVID. "The family members and caregivers don't understand. Peer support gives them a community."

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Rehabilitation Science Research Network for COVID @uoftcovidrehab.bsky.social · Apr 25

"Just because we don't know something doesn't mean it's not real"

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Rehabilitation Science Research Network for COVID @uoftcovidrehab.bsky.social · Apr 25

Cara Kaup speaks about lived experience with Long COVID. "Support and education is so vital."

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Rehabilitation Science Research Network for COVID @uoftcovidrehab.bsky.social · Apr 25

Michelle shares some self management resources for patients, caregivers and family members

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Rehabilitation Science Research Network for COVID @uoftcovidrehab.bsky.social · Apr 25

Now for our second panel discussion, Navigating the Maze of the Continuum of Care for Rehabilitation Living with Long COVID, with Sue Birch, Elizabeth Racz, Michelle DiLauro, Fran Wolfe and Cara Kaup at #COVIDRehab forum

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Rehabilitation Science Research Network for COVID @uoftcovidrehab.bsky.social · Apr 25

Simon Décary’s #KeyMessages from the #COVIDRehab forum:

📌 Quebec implemented a 15-site integrated care model, delivering care to thousands of Long COVID patients from 2020-2025

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Rehabilitation Science Research Network for COVID @uoftcovidrehab.bsky.social · Apr 25

Samantha Hancock’s #KeyMessages from the #COVIDRehab forum:

📌 The return-to-work process for people with Long COVID is non-linear and individualized

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Rehabilitation Science Research Network for COVID @uoftcovidrehab.bsky.social · Apr 25

Samantha Hancock presents research on Long COVID and One’s Ability to Work at #COVIDRehab forum

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Rehabilitation Science Research Network for COVID @uoftcovidrehab.bsky.social · Apr 25

Angela Cheung gives an update on CANCOV, RECLAIM and Long COVID web at #COVIDrehab forum.

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Rehabilitation Science Research Network for COVID @uoftcovidrehab.bsky.social · Apr 25

Tania Janaudis-Ferreira starts Research Session 2.

Understanding the Impacts of Post-Exertional Malaise in Individuals with Long COVID Participating in a Physical Rehabilitation Trial.

Key finding:
📌 Identifying complexities involved in effective, safe physical rehabilitation for Long COVID

Video of someone trying to access safe rehab, but along the path, there are hurdles in the way.

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Rehabilitation Science Research Network for COVID @uoftcovidrehab.bsky.social · Apr 25

Kiera McDuff & Julia Nathanson’s discuss Establishing a Framework of Measurement for Long COVID Research and Practice: Updates from a Scoping Study Involving Evidence Review and Consultation.

📌The selection, utility and interpretation of outcome measures for Long COVID must be advanced

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