ME / Long COVID diagnosed May 2024
Specific demands highlighted are:
1. Recognition for PAIS patients
2. Strucutural investment in medical research
3. Better care
4. Appropriate long-term policy
PAIS = post-acute infection syndromes, incl LC, ME, Q-fever, Lyme, Post Sepsis, ...
Specific demands highlighted are:
1. Recognition for PAIS patients
2. Strucutural investment in medical research
3. Better care
4. Appropriate long-term policy
PAIS = post-acute infection syndromes, incl LC, ME, Q-fever, Lyme, Post Sepsis, ...
Looks like a nice crowd has gathered.
Touches on many salient points, including the long-standing injustice of those with ME/CFS, Q-Fever, etc. with no care for decades.
Touches on many salient points, including the long-standing injustice of those with ME/CFS, Q-Fever, etc. with no care for decades.