Lightnews — Scholar-powered news

Vivli @vivli.bsky.social · 12h

If you’re attending #SciDataCon2025, check out the “Stronger together: Advancing the data repository ecosystem through strategic coopetition” panel featuring our colleagues from the Generalist Repository Ecosystem Initiative on Oct. 13 at 2:30 p.m. (Australia).

SciDataCon 2025

SciDataCon 2025 Programme Daily programme schedules for SciDataCon 2025 have been published. IDW 2025 full programme can be consulted at: https://idw2025.org/program-at-a-glance/ About SciDataCon…

scidatacon.org

Vivli @vivli.bsky.social · 1d

The 2025 Vivli Annual Meeting includes sessions about #DataSharing and #DataReuse related to particular research areas. Tune in to this panel to learn how you can use #ClinicalTrialData shared through Vivli to advance #CancerResearch. Register for the Oct. 23 event at bit.ly/Vivli2025Mee....

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Vivli @vivli.bsky.social · 2d

Thank you to everyone who contributed to the success of the data challenge, including the participating teams, funders, judging panel, Scientific Advisory Board, Steering Committee and data contributors.

Vivli @vivli.bsky.social · 2d

Vivli is pleased to announce the 2025 Vivli #AMR Surveillance Data Challenge winners. We were delighted to receive 58 entries from teams in 22 different countries. In the coming weeks, we'll highlight each of the seven award winners here. #AntimicrobialResistance

amr.vivli.org/winners-anno...

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Vivli @vivli.bsky.social · 3d

We're looking forward to the Vivli Annual Meeting in person in Cambridge, MA, and online. Register for the Oct. 23 meeting to hear from experts on #AMR #AntimicrobialResistance and other #DataSharing topics. Learn more and register at bit.ly/Vivli2025Mee....

Decorative image for the AMR Data Challenge panel

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Vivli @vivli.bsky.social · 4d

Vivli is working to support effective #DataSharing and unlock the full potential of #HIV #AIDS research data. Find out more about how you can accelerate the progress of research by sharing & reusing data with Vivli: vivli.org/hiv-aids-tri...

Vivli @vivli.bsky.social · 7d

Are you wondering how your research could benefit from #DataSharing or #DataReuse? Our case studies demonstrate some of the innovative ways researchers are using the Vivli data repository to accelerate their projects.

Read them at vivli.org/case-studies/.

Vivli @vivli.bsky.social · 8d

The 2025 Vivli Annual Meeting is in just a few weeks! You can attend this free, virtual event on Oct. 23 (9 a.m.-3:30 p.m. ET), to hear about #DataSharing and #DataReuse, including this session about the Helmsley Type 1 Diabetes Challenge. Register today at bit.ly/Vivli2025Mee.... #Diabetes

Vivli @vivli.bsky.social · 9d

You can unlock the full potential of your #HealthData by sharing it! Find out how you can accelerate the progress of research by sharing your data on Vivli’s secure, user-friendly platform: youtu.be/NVqK8VCnk9Y.

#DataSharing #DataReuse

About Vivli

Vivli is a global clinical research data sharing platform. Learn more about our organization.

youtu.be

Vivli @vivli.bsky.social · 10d

Congratulations to Günter Höglinger of University Hospital, LMU Munich, on your public disclosure, “Brain Atrophy Does Not Predict Clinical Progression in Progressive Supranuclear Palsy.” We’re proud to facilitate your access to data. #ClinicalResearch

Brain Atrophy Does Not Predict Clinical Progression in Progressive Supranuclear Palsy

Background Clinical progression rate is the typical primary endpoint measure in progressive supranuclear palsy (PSP) clinical trials. Objectives This longitudinal multicohort study investigated wh...

doi.org

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Vivli @vivli.bsky.social · 10d

Have you registered for the 2025 Vivli Annual Meeting yet? To be held Oct. 23, 9 a.m.-3:30 p.m. ET, the event will feature 8 sessions, such as this panel focusing on the applications of #ClinicalTrialData. Learn more and register at bit.ly/Vivli2025Mee.... #DataSharing

Vivli @vivli.bsky.social · 11d

Congratulations to Sinbad Xia of Zhejiang University on, “Association of Immune-Related Adverse Events with Efficacy in Patients With Small Cell Lung Cancer: a Second Analysis of Phase 3 IMpower133 Randomized Clinical Trials.” We’re proud to facilitate your access to data.

Association of Immune-Related Adverse Events with Efficacy in Patients With Small Cell Lung Cancer: a Second Analysis of Phase 3 IMpower133 Randomized Clinical Trials

Introduction While immune-related adverse events (irAEs) are associated with improved outcomes for patients with non-small cell lung cancer (NSCLC), this relationship is unelucidated in small cell…

doi.org

Vivli @vivli.bsky.social · 11d

Research teams use the Vivli platform to access shared data on a wide range of topics. You can access our full archive of research proposals, including published results, on our Public Disclosures page:

Public Disclosures - Vivli

Vivli aims to advance human health through clinical research data sharing. One of the key ways we support this is through the Vivli platform, which ...

vivli.org

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Vivli @vivli.bsky.social · 14d

Congrats to Kelley Kidwell of University of Michigan on, “Evaluating longitudinal treatment effects for Duchenne muscular dystrophy using dynamically enriched Bayesian small sample, sequential, multiple assignment randomized trial.” We’re proud to facilitate your data access.

Validate User

doi.org

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Vivli @vivli.bsky.social · 14d

The 2025 Vivli Annual Meeting, co-hosted with the MRCT Center of Brigham and Women’s Hospital and Harvard, will explore “Data in Action: From Contribution to Impact.” Join us on October 23 at the Loeb House, Harvard University, or virtually. Register at bit.ly/Vivli2025Mee....

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Vivli @vivli.bsky.social · 15d

In a special session of Rethinking Clinical Trials Grand Rounds tomorrow, Greg Simon, Susan Huang, and Liz Turner will present “Significance in Pragmatic Clinical Trials: P Values vs Decision-Maker Perspectives.” Join the virtual meeting at 1 p.m. ET.

September 8, 2025: P Values vs Decision-Maker Perspectives, in a Special Grand Rounds Session on September 26 - Rethinking Clinical Trials

In a special session of Rethinking Clinical Trials Grand Rounds on September 26, longtime leaders from the NIH Pragmatic Trials Collaboratory will present “Significance in Pragmatic Clinical Trials:…

rethinkingclinicaltrials.org

Vivli @vivli.bsky.social · 16d

Digital health tools, such as Fitbit devices or Apple Watches, can generate large amounts of health data. Secure #DataSharing is essential to unlocking clinically actionable benefits. A new article from @springernature.com digs into one possible consent model.

Enabling secure and self determined health data sharing and consent management - npj Digital Medicine

npj Digital Medicine - Enabling secure and self determined health data sharing and consent management

www.nature.com

Vivli @vivli.bsky.social · 16d

For anyone in the DC area, NCI will also be hosting an in-person data jamboree on September 29 and 30 to promote the access and reuse of pediatric, adolescent, and young adult cancer datasets. Separate registration is required: events.cancer.gov/nci/ods-data....

NCI Office of Data Sharing (ODS) Data Jamboree (Overview) | Events Registration

OverviewThe National Cancer Institute (NCI)'s Office of Data Sharing (ODS) is pleased to announce its inaugural data jamboree to promote the sharing, access and reuse of pediatric and adolescents and ...

events.cancer.gov

Vivli @vivli.bsky.social · 17d

Congrats to Ashley Hopkins of @flindersuniversity.bsky.social on your public disclosure, “Sex-based differences in clinical outcomes for solid tumours: A pooled IPD meta-analysis of contemporary anticancer drug trials.” We’re proud to facilitate your access to data.

Sex-based differences in clinical outcomes for solid tumours: A pooled IPD meta-analysis of contemporary anticancer drug trials.

11042Background: Sex-based differences in outcomes with contemporary oncology treatments remain underexplored, creating a gap in the evidence required for personalised care. To address this, our…

doi.org

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Vivli @vivli.bsky.social · 17d

#ICYMI The U.S. National Cancer Institute's 3rd annual data sharing symposium will be held virtually on Sept 30 & Oct 1. Themed, “How Data Advances the Impact of Cancer Research,” the event will focus on #DataSharing & #DataReuse in cancer research. Register today.

NCI's Office of Data Sharing Annual Symposium (Registration) | Events Registration

Registration Registration for the NCI Office of Data Sharing (ODS) Third Annual Data Sharing Symposium is below. In conjunction with this event, ODS is pleased to announce its inaugural data jamboree…

events.cancer.gov

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Vivli @vivli.bsky.social · 18d

Congrats to Hongmei Zheng of Hubei Cancer Hospital on your public disclosure, “The difference of clinical and molecular characteristics between HR-positive/HER2-positive and HR-negative/HER2-positive early breast cancer.” We’re proud to facilitate your access to data.

The difference of clinical and molecular characteristics between HR-positive/HER2-positive and HR-negative/HER2-positive early breast cancer: A secondary analysis of 11 clinical trials.

533Background: HER2+ early breast cancer (EBC) are treated as an identical cluster of patients in clinical practice. However, the various status of hormone receptor (HR) leads to different outcomes.…

doi.org

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Vivli @vivli.bsky.social · 18d

At the recent #ESCCongress meeting, many pharma & med tech companies shared insights from clinical trials. In this GlobalData Healthcare podcast episode, the guests dive into some of the trends at the event, including findings related to GLP-1s. #GLP1

Key trials and trends from ESC Congress 2025

GlobalData Healthcare · Episode

open.spotify.com

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Vivli @vivli.bsky.social · 21d

Congrats to Grace Lu-Yao of Thomas Jefferson University on, “The Safety of Abiraterone Acetate in Patients with Metastatic Castration-Resistant Prostate Cancer.” We’re proud to facilitate your access to data. #ClinicalResearch

doi.org

Vivli @vivli.bsky.social · 21d

Learn more about how to share your clinical trial data with Vivli: vivli.org/resources/sh... #ClinicalTrialData #DataSharing

Vivli @vivli.bsky.social · 21d

A new article in BMC Medicine found that only 45% of #ClinicalTrial studies published from 2021-2023 in 6 high-profile journals indicated plans to share data, despite recommendations that trial authors specify data sharing plans. #DataSharing bmcmedicine.biomedcentral.com/articles/10....

Practice of data sharing plans in clinical trial registrations and concordance between registered and published data sharing plans: a cross-sectional study - BMC Medicine

Background The International Committee of Medical Journal Editors (ICMJE) recommends that trial authors must specify data sharing plans when trials are registered and published, yet this uptake remain...

bmcmedicine.biomedcentral.com

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