Vivli
@vivli.bsky.social
We are an independent non-profit whose mission is to advance human health through global clinical research data sharing. Visit us at vivli.org for more information.
On Friday, the NIH Office of Data Science Strategy is hosting a data sharing & reuse seminar focused on clinical data standardization. The session will be of interest to data scientists, clinical researchers, & others working on data infrastructure challenges. Register here ➡️ bit.ly/4rRO3xG.
December 10, 2025 at 4:01 PM
On Friday, the NIH Office of Data Science Strategy is hosting a data sharing & reuse seminar focused on clinical data standardization. The session will be of interest to data scientists, clinical researchers, & others working on data infrastructure challenges. Register here ➡️ bit.ly/4rRO3xG.
Congrats to João Pedro Ferreira of Porto University on your public disclosure, “Sodium–glucose co‐transporter 2 inhibitors in severe estimated glomerular filtration rate deterioration across cardiovascular‐kidney‐ metabolic conditions.” We’re proud to facilitate your access to data.
Sodium–glucose co‐transporter 2 inhibitors in severe estimated glomerular filtration rate deterioration across cardiovascular‐kidney‐ metabolic conditions: A pooled analysis of randomized trials
Aims The efficacy of sodium–glucose co-transporter 2 inhibitors (SGLT2i) among patients with cardiovascular-kidney-metabolic (CKM) conditions who experience severe estimated glomerular filtration…
onlinelibrary.wiley.com
December 9, 2025 at 7:00 PM
Congrats to João Pedro Ferreira of Porto University on your public disclosure, “Sodium–glucose co‐transporter 2 inhibitors in severe estimated glomerular filtration rate deterioration across cardiovascular‐kidney‐ metabolic conditions.” We’re proud to facilitate your access to data.
People who have a stroke are at risk for a second one. Using Vivli, Dr. James Brorson (University of Chicago) found that stroke recurrence is best described by a 2-state kinetic model, which could impact clinical treatments for stroke prevention. Read our newest case study. vivli.org/case-studies/
December 9, 2025 at 5:03 PM
People who have a stroke are at risk for a second one. Using Vivli, Dr. James Brorson (University of Chicago) found that stroke recurrence is best described by a 2-state kinetic model, which could impact clinical treatments for stroke prevention. Read our newest case study. vivli.org/case-studies/
Congratulations to Aryelly Rodriguez of @edinburgh-uni.bsky.social on your public disclosure, “Are anonymised datasets from clinical trials truly anonymous?” We’re proud to facilitate your access to data. #ClinicalResearch
Are anonymised datasets from clinical trials truly anonymous?
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doi.org
December 8, 2025 at 7:00 PM
Congratulations to Aryelly Rodriguez of @edinburgh-uni.bsky.social on your public disclosure, “Are anonymised datasets from clinical trials truly anonymous?” We’re proud to facilitate your access to data. #ClinicalResearch
On Wednesday, the National Cancer Institute will be hosting a webinar about cancer data sharing at 1 p.m. ET. Vivli Senior Program Manager Amanda Skarlupka will be presenting briefly as part of her work with the NIH Generalist Repository Ecosystem Initiative. Register today: bit.ly/4pUO0PA.
December 8, 2025 at 4:38 PM
On Wednesday, the National Cancer Institute will be hosting a webinar about cancer data sharing at 1 p.m. ET. Vivli Senior Program Manager Amanda Skarlupka will be presenting briefly as part of her work with the NIH Generalist Repository Ecosystem Initiative. Register today: bit.ly/4pUO0PA.
Congrats to Frank Doyle of Royal College of Surgeons Ireland on “An exploratory graphical analysis of the Montgomery-Åsberg Depression Rating Scale pre- and post-treatment using pooled antidepressant trial secondary data.” We’re proud to facilitate your access to data.
An exploratory graphical analysis of the Montgomery-Åsberg Depression Rating Scale pre- and post-treatment using pooled antidepressant trial secondary data
The 10-item Montgomery-Åsberg Depression Rating Scale (MADRS) is a commonly used measure of depression in antidepressant clinical trials. Numerous stu…
doi.org
December 5, 2025 at 7:02 PM
Congrats to Frank Doyle of Royal College of Surgeons Ireland on “An exploratory graphical analysis of the Montgomery-Åsberg Depression Rating Scale pre- and post-treatment using pooled antidepressant trial secondary data.” We’re proud to facilitate your access to data.
Unlock the full potential of your #HealthData by sharing it! Learn how you can accelerate scientific research by sharing your data on Vivli’s secure, user-friendly platform. #DataSharing #DataReuse
About Vivli
Vivli is a global clinical research data sharing platform. Learn more about our organization.
youtu.be
December 5, 2025 at 5:05 PM
Unlock the full potential of your #HealthData by sharing it! Learn how you can accelerate scientific research by sharing your data on Vivli’s secure, user-friendly platform. #DataSharing #DataReuse
Congratulations to Hwanhee Hong of Duke University on your public disclosure, “The challenges of integrating diverse data sources: A case study in major depression.” We’re proud to facilitate your access to data. doi.org/10.1007/s107... #ClinicalResearch
The challenges of integrating diverse data sources: A case study in major depression - Health Services and Outcomes Research Methodology
Combining data from diverse sources including randomized controlled trials (RCTs) and observational datasets holds the potential to increase sample size, improve external validity, and gain a…
doi.org
December 4, 2025 at 7:00 PM
Congratulations to Hwanhee Hong of Duke University on your public disclosure, “The challenges of integrating diverse data sources: A case study in major depression.” We’re proud to facilitate your access to data. doi.org/10.1007/s107... #ClinicalResearch
On Dec. 11, our colleagues at @cpathinstitute.bsky.social are hosting a webinar recognizing six years of success in rare disease #DataSharing with the Rare Disease Cures Accelerator-Data and Analytics Platform (RDCA-DAP). Register today at: c-path-org.zoom.us/webinar/regi... #RareDiseaseResearch
December 4, 2025 at 4:00 PM
On Dec. 11, our colleagues at @cpathinstitute.bsky.social are hosting a webinar recognizing six years of success in rare disease #DataSharing with the Rare Disease Cures Accelerator-Data and Analytics Platform (RDCA-DAP). Register today at: c-path-org.zoom.us/webinar/regi... #RareDiseaseResearch
Congratulations to Aryelly Rodriguez of @edinburgh-uni.bsky.social on your public disclosure, “Evaluating re-identification risks scores in publicly available clinical trial datasets: Insights and implications.” We’re proud to facilitate your access to data. #ClinicalResearch doi.org/10.1177/1740...
December 3, 2025 at 7:00 PM
Congratulations to Aryelly Rodriguez of @edinburgh-uni.bsky.social on your public disclosure, “Evaluating re-identification risks scores in publicly available clinical trial datasets: Insights and implications.” We’re proud to facilitate your access to data. #ClinicalResearch doi.org/10.1177/1740...
Have you heard about the Gates Foundation initiative to develop an AI-enabled low-cost ultrasound device? The project aims to improve care for mothers and babies in low-resource settings. Watch this Vivli Annual Meeting session that dives into the development process.
Gates Foundation Initiative to Improve Maternal and Infant Health by Sharing Ultrasound Image Data
Gates Foundation Initiative to Improve Maternal and Infant Health by Sharing Ultrasound Image Data:
- Tim Kinkead, Preva Group
youtu.be
December 3, 2025 at 5:03 PM
Have you heard about the Gates Foundation initiative to develop an AI-enabled low-cost ultrasound device? The project aims to improve care for mothers and babies in low-resource settings. Watch this Vivli Annual Meeting session that dives into the development process.
Congrats to Kazuki Takada on “Probiotic supplement exposure & outcomes of patients w/ non-small cell lung cancer treated w/ first-line atezolizumab therapy: Pooled analysis of individual patient data from 5 randomized control trials.” We’re proud to facilitate your access to data. buff.ly/jDdzcZQ
December 2, 2025 at 7:00 PM
Congrats to Kazuki Takada on “Probiotic supplement exposure & outcomes of patients w/ non-small cell lung cancer treated w/ first-line atezolizumab therapy: Pooled analysis of individual patient data from 5 randomized control trials.” We’re proud to facilitate your access to data. buff.ly/jDdzcZQ
We're delighted to be part of the Data Transparency (DT) Pavilion at PHUSE US Connect 2026 taking place March 22 through 26 in Austin, TX. See you there!
December 2, 2025 at 4:35 PM
We're delighted to be part of the Data Transparency (DT) Pavilion at PHUSE US Connect 2026 taking place March 22 through 26 in Austin, TX. See you there!
Congrats to João Pedro Ferreira of Faculty of Medicine of Porto University on your public disclosure, “Serum Magnesium and the Effect of Empagliflozin in Heart Failure With Reduced Ejection Fraction: Findings From EMPEROR-Reduced.” We’re proud to facilitate your access to data.
Serum Magnesium and the Effect of Empagliflozin in Heart Failure With Reduced Ejection Fraction: Findings From EMPEROR-Reduced
Magnesium plays a central role in maintaining cellular homeostasis. Limited data exist on the clinical implications of magnesium derangements in heart…
doi.org
December 1, 2025 at 7:00 PM
Congrats to João Pedro Ferreira of Faculty of Medicine of Porto University on your public disclosure, “Serum Magnesium and the Effect of Empagliflozin in Heart Failure With Reduced Ejection Fraction: Findings From EMPEROR-Reduced.” We’re proud to facilitate your access to data.
Missed the Vivli Annual Meeting? You can watch the sessions on YouTube. In this session, Dan Boisvert (Biogen) discusses how a Vivli partnership with Boehringer Ingelheim, Biogen, Pfizer, & Sanofi is taking on the challenges of anonymizing and sharing #ImagingData. buff.ly/KQtrLmV #DataSharing
Unlocking Imaging Data Sharing – A Collaboration on Imaging Anonymization
Unlocking Imaging Data Sharing – A Collaboration on Imaging Anonymization
- Dan Boisvert, Biogen
buff.ly
December 1, 2025 at 5:03 PM
Missed the Vivli Annual Meeting? You can watch the sessions on YouTube. In this session, Dan Boisvert (Biogen) discusses how a Vivli partnership with Boehringer Ingelheim, Biogen, Pfizer, & Sanofi is taking on the challenges of anonymizing and sharing #ImagingData. buff.ly/KQtrLmV #DataSharing
Congratulations to Ashley Hopkins of @flindersuniversity.bsky.social on your public disclosure, “Associations of Commonly Used Concomitant Medications With Survival and Adverse Event Outcomes in Breast Cancer.” We’re proud to facilitate your access to data. #ClinicalResearch doi.org/10.1002/cam4...
November 28, 2025 at 7:01 PM
Congratulations to Ashley Hopkins of @flindersuniversity.bsky.social on your public disclosure, “Associations of Commonly Used Concomitant Medications With Survival and Adverse Event Outcomes in Breast Cancer.” We’re proud to facilitate your access to data. #ClinicalResearch doi.org/10.1002/cam4...
You may have seen a few public disclosure posts recently. What's a public disclosure? Any time that research teams use the Vivli platform and produce a research result, such as a publication, they let us know. You can view all public disclosures here: buff.ly/HSo1ai1. #DataSharing #DataReuse
Public Disclosures - Vivli
Vivli aims to advance human health through clinical research data sharing. One of the key ways we support this is through the Vivli platform, which ...
buff.ly
November 28, 2025 at 5:05 PM
You may have seen a few public disclosure posts recently. What's a public disclosure? Any time that research teams use the Vivli platform and produce a research result, such as a publication, they let us know. You can view all public disclosures here: buff.ly/HSo1ai1. #DataSharing #DataReuse
Congratulations to Eva Hoster of LMU Munich, on your recent publication in Statistics in Biopharmaceutical Research (@tandfresearch.bsky.social). We’re proud to facilitate your access to data.
Evaluating new methods for estimating the hypothetical estimand on overall survival in the presence of different effective subsequent therapies - a simulation study with application to a clinical trial
Hypothetical strategy allows to define an estimand for the pure treatment effect subjected to the original randomized treatments on overall survival (OS) without impact from effective subsequent th...
doi.org
November 27, 2025 at 7:04 PM
Congratulations to Eva Hoster of LMU Munich, on your recent publication in Statistics in Biopharmaceutical Research (@tandfresearch.bsky.social). We’re proud to facilitate your access to data.
Have you checked out Vivli's YouTube channel? There are new videos from the 2025 Vivli Annual Meeting, including an #AMR Fireside Chat. Explore our video library:
Vivli Org
Vivli is an independent, non-profit organization that has developed a global data-sharing and analytics platform. Our focus is on sharing individual participant-level data from completed clinical…
www.youtube.com
November 27, 2025 at 3:04 PM
Have you checked out Vivli's YouTube channel? There are new videos from the 2025 Vivli Annual Meeting, including an #AMR Fireside Chat. Explore our video library:
Congrats to João Pedro Ferreira of Porto University on your public disclosure, “Effects of SGLT2 inhibitors across the spectrum of albuminuria in cardiovascular–kidney–metabolic conditions: A pooled analysis of randomised trials.” We’re proud to facilitate your access to data. buff.ly/J7wuwIx
November 26, 2025 at 7:02 PM
Congrats to João Pedro Ferreira of Porto University on your public disclosure, “Effects of SGLT2 inhibitors across the spectrum of albuminuria in cardiovascular–kidney–metabolic conditions: A pooled analysis of randomised trials.” We’re proud to facilitate your access to data. buff.ly/J7wuwIx
Next year, the NIH GREI is hosting a free, 3-part webinar series showcasing tools & examples that make it easier to plan, share, and submit data under the NIH Data Management & Sharing (DMS) Policy. Each session will pair practical advice with real-world examples. Register at bit.ly/GREIWebinars....
November 26, 2025 at 3:01 PM
Next year, the NIH GREI is hosting a free, 3-part webinar series showcasing tools & examples that make it easier to plan, share, and submit data under the NIH Data Management & Sharing (DMS) Policy. Each session will pair practical advice with real-world examples. Register at bit.ly/GREIWebinars....
Congratulations to Sumayyah Patel of University of Leeds on your public disclosure, “Treatment-related cognitive changes in multiple myeloma: A systematic review and meta-analysis.” We’re proud to facilitate your access to data. #ClinicalResearch
November 25, 2025 at 7:03 PM
Congratulations to Sumayyah Patel of University of Leeds on your public disclosure, “Treatment-related cognitive changes in multiple myeloma: A systematic review and meta-analysis.” We’re proud to facilitate your access to data. #ClinicalResearch
In April, a new rule from the U.S. Department of Justice took effect that establishes when and how data can be shared with countries of concern. At the Vivli Annual Meeting in October, David Peloquin (Ropes & Gray) & Vivli COO Julie Wood gave an overview of this rule. buff.ly/429GI25 #DataSharing
DOJ Countries of Concern – Final Ruling and Practical Implementation for Data Sharing
DOJ Countries of Concern – Final Ruling and Practical Implementation for Data Sharing:
- David Peloquin, Ropes & Gray
- Julie Wood, Vivli
buff.ly
November 25, 2025 at 5:05 PM
In April, a new rule from the U.S. Department of Justice took effect that establishes when and how data can be shared with countries of concern. At the Vivli Annual Meeting in October, David Peloquin (Ropes & Gray) & Vivli COO Julie Wood gave an overview of this rule. buff.ly/429GI25 #DataSharing
Congratulations to Neeraj Narula on your public disclosure, “Impact of concomitant corticosteroid use on adverse events in ulcerative colitis clinical trials.” We’re proud to facilitate your access to data. #ClinicalResearch
Impact of concomitant corticosteroid use on adverse events in ulcerative colitis clinical trials
AbstractBackground and Aims. Adverse events (AEs) are frequently reported in clinical trials of advanced therapies for ulcerative colitis (UC). It remains
doi.org
November 24, 2025 at 7:00 PM
Congratulations to Neeraj Narula on your public disclosure, “Impact of concomitant corticosteroid use on adverse events in ulcerative colitis clinical trials.” We’re proud to facilitate your access to data. #ClinicalResearch
Investing in surveillance systems that track #AMR should be a global priority, according to @who.int. Sharing surveillance data through the Vivli AMR Register can help make this data accessible and useful for researchers worldwide. Learn more: amr.vivli.org/about/why-sh.... #WAAW #WAAW2025
November 24, 2025 at 5:04 PM
Investing in surveillance systems that track #AMR should be a global priority, according to @who.int. Sharing surveillance data through the Vivli AMR Register can help make this data accessible and useful for researchers worldwide. Learn more: amr.vivli.org/about/why-sh.... #WAAW #WAAW2025