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vivli.bsky.social
Vivli
@vivli.bsky.social
We are an independent non-profit whose mission is to advance human health through global clinical research data sharing. Visit us at vivli.org for more information.
Congrats to Kazuki Takada on “Probiotic supplement exposure & outcomes of patients w/ non-small cell lung cancer treated w/ first-line atezolizumab therapy: Pooled analysis of individual patient data from 5 randomized control trials.” We’re proud to facilitate your access to data. buff.ly/jDdzcZQ
December 2, 2025 at 7:00 PM
We're delighted to be part of the Data Transparency (DT) Pavilion at PHUSE US Connect 2026 taking place March 22 through 26 in Austin, TX. See you there!
December 2, 2025 at 4:35 PM
Congrats to João Pedro Ferreira of Faculty of Medicine of Porto University on your public disclosure, “Serum Magnesium and the Effect of Empagliflozin in Heart Failure With Reduced Ejection Fraction: Findings From EMPEROR-Reduced.” We’re proud to facilitate your access to data.
Serum Magnesium and the Effect of Empagliflozin in Heart Failure With Reduced Ejection Fraction: Findings From EMPEROR-Reduced
Magnesium plays a central role in maintaining cellular homeostasis. Limited data exist on the clinical implications of magnesium derangements in heart…
doi.org
December 1, 2025 at 7:00 PM
Missed the Vivli Annual Meeting? You can watch the sessions on YouTube. In this session, Dan Boisvert (Biogen) discusses how a Vivli partnership with Boehringer Ingelheim, Biogen, Pfizer, & Sanofi is taking on the challenges of anonymizing and sharing #ImagingData. buff.ly/KQtrLmV #DataSharing
Unlocking Imaging Data Sharing – A Collaboration on Imaging Anonymization
Unlocking Imaging Data Sharing – A Collaboration on Imaging Anonymization - Dan Boisvert, Biogen
buff.ly
December 1, 2025 at 5:03 PM
Congratulations to Ashley Hopkins of @flindersuniversity.bsky.social on your public disclosure, “Associations of Commonly Used Concomitant Medications With Survival and Adverse Event Outcomes in Breast Cancer.” We’re proud to facilitate your access to data. #ClinicalResearch doi.org/10.1002/cam4...
November 28, 2025 at 7:01 PM
You may have seen a few public disclosure posts recently. What's a public disclosure? Any time that research teams use the Vivli platform and produce a research result, such as a publication, they let us know. You can view all public disclosures here: buff.ly/HSo1ai1. #DataSharing #DataReuse
Public Disclosures - Vivli
Vivli aims to advance human health through clinical research data sharing. One of the key ways we support this is through the Vivli platform, which ...
buff.ly
November 28, 2025 at 5:05 PM
Congratulations to Eva Hoster of LMU Munich, on your recent publication in Statistics in Biopharmaceutical Research (@tandfresearch.bsky.social). We’re proud to facilitate your access to data.
Evaluating new methods for estimating the hypothetical estimand on overall survival in the presence of different effective subsequent therapies - a simulation study with application to a clinical trial
Hypothetical strategy allows to define an estimand for the pure treatment effect subjected to the original randomized treatments on overall survival (OS) without impact from effective subsequent th...
doi.org
November 27, 2025 at 7:04 PM
Have you checked out Vivli's YouTube channel? There are new videos from the 2025 Vivli Annual Meeting, including an #AMR Fireside Chat. Explore our video library:
Vivli Org
Vivli is an independent, non-profit organization that has developed a global data-sharing and analytics platform. Our focus is on sharing individual participant-level data from completed clinical…
www.youtube.com
November 27, 2025 at 3:04 PM
Congrats to João Pedro Ferreira of Porto University on your public disclosure, “Effects of SGLT2 inhibitors across the spectrum of albuminuria in cardiovascular–kidney–metabolic conditions: A pooled analysis of randomised trials.” We’re proud to facilitate your access to data. buff.ly/J7wuwIx
November 26, 2025 at 7:02 PM
Next year, the NIH GREI is hosting a free, 3-part webinar series showcasing tools & examples that make it easier to plan, share, and submit data under the NIH Data Management & Sharing (DMS) Policy. Each session will pair practical advice with real-world examples. Register at bit.ly/GREIWebinars....
November 26, 2025 at 3:01 PM
Congratulations to Sumayyah Patel of University of Leeds on your public disclosure, “Treatment-related cognitive changes in multiple myeloma: A systematic review and meta-analysis.” We’re proud to facilitate your access to data. #ClinicalResearch
November 25, 2025 at 7:03 PM
In April, a new rule from the U.S. Department of Justice took effect that establishes when and how data can be shared with countries of concern. At the Vivli Annual Meeting in October, David Peloquin (Ropes & Gray) & Vivli COO Julie Wood gave an overview of this rule. buff.ly/429GI25 #DataSharing
DOJ Countries of Concern – Final Ruling and Practical Implementation for Data Sharing
DOJ Countries of Concern – Final Ruling and Practical Implementation for Data Sharing: - David Peloquin, Ropes & Gray - Julie Wood, Vivli
buff.ly
November 25, 2025 at 5:05 PM
Congratulations to Neeraj Narula on your public disclosure, “Impact of concomitant corticosteroid use on adverse events in ulcerative colitis clinical trials.” We’re proud to facilitate your access to data. #ClinicalResearch
Impact of concomitant corticosteroid use on adverse events in ulcerative colitis clinical trials
AbstractBackground and Aims. Adverse events (AEs) are frequently reported in clinical trials of advanced therapies for ulcerative colitis (UC). It remains
doi.org
November 24, 2025 at 7:00 PM
Investing in surveillance systems that track #AMR should be a global priority, according to @who.int. Sharing surveillance data through the Vivli AMR Register can help make this data accessible and useful for researchers worldwide. Learn more: amr.vivli.org/about/why-sh.... #WAAW #WAAW2025
November 24, 2025 at 5:04 PM
Congrats to Niklas Klümper of University Medical Center Bonn on your public disclosure, “On-treatment modified Glasgow Prognostic Score in hepatocellular carcinoma treated with atezolizumab & bevacizumab provides prognostic information.” We’re proud to facilitate your access to data.
Frontiers | On-treatment modified Glasgow Prognostic Score (mGPS) in hepatocellular carcinoma treated with atezolizumab and bevacizumab provides prognostic information
Background & aimsHepatocellular carcinoma (HCC) is associated with high cancer-specific mortality. While immune-checkpoint inhibitors (ICIs) improved overall...
doi.org
November 21, 2025 at 7:02 PM
The @who.int promotes a "One Health" approach that unites human, animal, and environmental health as a key part of the response to the global #AMR crisis. Vivli AMR Data Challenge Judge Ana Cristina Gales hopes to see projects grounded in that approach in next year's challenge. buff.ly/5hmqRi0 #WAAW
November 21, 2025 at 5:05 PM
Our NIH GREI colleagues have published a new blog post highlighting the GREI presentation at #SciDataCon2025, which emphasized the benefits of GREI’s coopetition model (a collaboration across 7 generalist repositories). Read all about it here: buff.ly/Wz6ukbJ. Thanks for the opportunity, #IDW2025!
Strategic Coopetition in Action at SciDataCon 2025
Highlighting data repository advancement through coopetition and making community connections at International Data Week 2025
medium.com
November 20, 2025 at 7:17 PM
This #WAAW, @who.int is calling us to "Act Now: Protect Our Present, Secure Our Future." The Vivli AMR Register can help. Learn more about how our 2025 AMR Visionary Award winners used the Vivli AMR Register to evaluate #AMR policies: amr.vivli.org/data-challen.... #WAAW2025 #AntimicrobialResistance
November 20, 2025 at 5:05 PM
Congratulations to Fabricio Garelli of National University of La Plata and CONICET on your public disclosure, “Model based analytical approach for physical activity quantification in people with type 1 diabetes.” We’re proud to facilitate your access to data. #ClinicalResearch
Model based analytical approach for physical activity quantification in people with type 1 diabetes - Medical & Biological Engineering & Computing
Abstract Physical activity (PA) represents a significant challenge in the management of type 1 diabetes (T1D), given its impact on glucose levels, which are influenced by various exercise…
doi.org
November 19, 2025 at 7:03 PM
Sharing #AMR surveillance data is an important part of the fight against #AntimicrobialResistance. The Vivli AMR Register includes 15 datasets with data collected in 87 countries. Learn more in our AMR progress report. amr.vivli.org/about/2025-p... #WAAW #WAAW2025
November 19, 2025 at 5:05 PM
Congratulations to Josep Vehi of @univgirona.bsky.social on your public disclosure, “Including Aerobic Exercise Into Data-Based Virtual Twins for Glycemic Simulation.” We’re proud to facilitate your access to data. #ClinicalResearch
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
doi.org
November 18, 2025 at 7:01 PM
This #WAAW, @who.int is calling us to "Act Now: Protect Our Present, Secure Our Future." The Vivli AMR Register can help researchers develop models that can protect future use of antimicrobials. Learn more. amr.vivli.org/about/overvi... #WAAW2025 #AntimicrobialResistance
November 18, 2025 at 5:04 PM
Congratulations to Cynthia Comella of Rush University Medical Center on your public disclosure, “Investigating Sleep Concerns in Cervical Dystonia.” We’re proud to facilitate your access to data. doi.org/10.1002/mdc3... #ClinicalResearch
doi.org
November 17, 2025 at 7:02 PM
Couldn't make it to the Vivli Annual Meeting last month? You can watch the sessions on YouTube, like this one tackling how clinical data sharing can impact routine care. youtu.be/NWe48KB0dMY?... #DataSharing #DataReuse #ClinicalTrialData #HealthResearch
From Contribution to Impact in Clinical Trial Applicability to Routine Care
Researcher and Data Contributor Panel – From Contribution to Impact in Clinical Trial Applicability to Routine Care: - Ida Sim, University of California, San Francisco, and Vivli (Moderator) -…
youtu.be
November 17, 2025 at 5:02 PM
Today, Vivli CEO Rebecca Li is speaking at the Nexus of Open Science symposium, hosted by Johns Hopkins University. Dr. Li is talking to Johns Hopkins faculty and students about how researchers can share and access clinical trial data securely via the Vivli platform. vivli.org/vivli-ceo-re...
November 14, 2025 at 8:11 PM