VoiceForIBD
@voiceforibd.bsky.social
160 followers 110 following 100 posts
IBD Patient Advocate💜🧬 Hispanic/Latina🇵🇪🇺🇸 Crohn’s & Colitis Foundation National Board of Trustees #CrohnsDisease & #UlcerativeColitis🦠 Committed To Finding A Cure🔬🧬
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voiceforibd.bsky.social
Did you know #IBD doesn't just affect your gut? #Fatigue #Anemia & eye inflammation #Uveitis are extraintestinal manifestations or #ElMs that often go unnoticed. Early recognition can make a difference.

Watch my latest reel 👇🏼 & join the #EIM webinar Tues, 10/7! bit.ly/CommunityHou...
voiceforibd.bsky.social
Supporting & celebrating all ostomates today on World Ostomy Day🥳Apoyando y celebrando a todos los ostomizados hoy en el Día Mundial de la Ostomía 🥳 #WorldOstomyDay2025
#WorldOstomyDay #OstomyLife

@uoaa-ostomy.bsky.social
@crohnscolitisfdn.bsky.social
voiceforibd.bsky.social
Oct. 1 is National Latino Physician Day! While Latinos make up 19% of the 🇺🇸 population, only 6% of physicians identify as Latino/a 🤔Today, I share a heartfelt letter to all Latino physicians on behalf of the American Board of Internal Medicine(ABIM) @abimcert.bsky.social

Read 🗒️ 👉🏼 bit.ly/3Y9oc7C
voiceforibd.bsky.social
Honored to join @amergastroassn.bsky.social for #AGAAdvocacyDay on Capitol Hill 🏛️

100+ GIs 🥼➕ 20 patient advocates = 100+ meetings in 30 states!

Our message ⬇️

✂️Cut prior auth burdens
🛡️Protect NIH research
💪🏼Strengthen Medicare reimbursement

Patient voices matter more than ever 👊🏼
voiceforibd.bsky.social
During Hispanic Heritage Month, join the @crohnscolitisfdn.bsky.social for a 🆓 webinar re: IBD Extra-Intestinal Manifestations or EIMs in #Hispanic #Latino #IBD patients

📅 Tues, 10/7
⏰ 4 PT · 6 CT · 7 ET
💻 In English w/ Spanish captions
🔗 Register: bit.ly/CommunityHou...
voiceforibd.bsky.social
My first in-person Day On The Hill with the @crohnscolitisfdn.bsky.social was powerful💙

60 advocates, 22 states, 75 meetings 🤯

All to make sure #IBD voices are impossible to ignore. Grateful, empowered & more determined than ever to keep raising my voice🗣️

#IBDinDC #IBDDayOnTheHill
voiceforibd.bsky.social
Still inspired by the inaugural @cedarssinai.bsky.social #IBD & Women’s Health Conf.💜Honored to share my #Crohns patient journey & learn from sessions on #fertility #pregnancy #genetics #nutrition #microbiome etc. Grateful to Cedars-Sinai, Dr. Abreu, Dr. Khanna & all presenters 🙏🏼
voiceforibd.bsky.social
#HispanicHeritageMonth is here 🌎💜 #IBD affects more than digestion. It impacts #nutrition #culture & #family. This month I’ll be sharing new content Más Allá del Intestino: Salud y Resiliencia Latina or Beyond the Intestine: Latino Health & Resilience 👀 Watch and learn…
voiceforibd.bsky.social
Protein is power, but which ones are recommended for #IBD patients? In this new video from the @crohnscolitisfdn.bsky.social , I asked a gastroenterologist & a registered dietitian for their guidance on proteins for #Crohns & #UC patients. Watch the full video on YouTube 🎥
bit.ly/IBDandProtein
voiceforibd.bsky.social
In this new video from the @crohnscolitisfdn.bsky.social I join a gastroenterologist & a registered dietitian to discuss practical tips for dining out while living with IBD 🍽️

Watch the full video on YouTube 🎥 bit.ly/EatingOutWit...
voiceforibd.bsky.social
🧠 GI Psychology is enrolling for an 8-week virtual #IBD #psychotherapy group for adults living w/ #Crohns or #ulcerativecolitis - combining #CBT & gut-directed #hypnotherapy Offered in partnership with @amcollegegastro.bsky.social
& @crohnscolitisfdn.bsky.social

Learn more👇🏼
🔗 bit.ly/IBDGIPsych
voiceforibd.bsky.social
What does professionalism in #healthcare mean today? At the ABIM Foundation. Forum, I represented #patients in conversations about #professionalism #advocacy #equity & the future of medicine. 🔑 Professionalism must begin with the patient.✨ #PatientsFirst #PatientVoicesMatter
voiceforibd.bsky.social
GI Psychology is enrolling for an 8-wk virtual #IBD #psychotherapy group for adults living w/ #Crohns or #ulcerativecolitis - combining #CBT & gut-directed #hypnotherapy It’s being offered in partnership w/the @amcollegegastro.bsky.social & @crohnscolitisfdn.bsky.social

🔗 bit.ly/IBDGIPsych
voiceforibd.bsky.social
To register for the conference:
🔗 bit.ly/IBDWomensHea...
voiceforibd.bsky.social
The 2025 @cedarssinai.bsky.social #IBD & #WomensHealth Conference is tackling what others haven’t👇🏼
📈 #hormones
🤰🏼 #fertility
🧠 #mentalhealth
🍽️ #nutrition

Created by Dr. Puja Khanna &Dr. Maria Abreu this inaugural #CME conference offers✌🏼tracks for both #patients & #clinicians Registration link👇🏼
voiceforibd.bsky.social
Living w/ #IBD means #hydration isn’t just important. It’s essential for all patients. In this month’s Live for 5, join Dr. Megan Riehl & @voiceforibd.bsky.social over on Instagram as we discuss the challenges of staying hydrated w/IBD. Join us Fri, 7/25 at 8 AM PT/10 am CT/ 11 AM ET on Instagram
voiceforibd.bsky.social
Have you wondered what happens during the @abimcert.bsky.social Specialty Board meetings? Learn more about the recent spring 2025 #Gastroenterology Board where I spoke about the impact of federal #research funding cuts on the #IBD community😔

Read the full summary 👀
bit.ly/44OvPSY
voiceforibd.bsky.social
To access the @crohnscolitisfdn.bsky.social #IBD patient financial assistance programs, click here: bit.ly/IBDFinancial...
voiceforibd.bsky.social
Absolutely gutted for #IBD patients AND the millions of people who will be affected by cuts to #Medicaid & #ACA 😢 Every single person deserves #healthcare Below is info from the @crohnscolitisfdn.bsky.social
re: support for #Crohns & #UlcerativeColitis patients 👇🏼
voiceforibd.bsky.social
🔬Join us to hear about the latest advances in #IBD research - from #genetics to #biosensors - in the Spanish virtual support group! The group is 💯 in Spanish 👀
voiceforibd.bsky.social
📣 Este mes, nuestro #grupodeapoyo en #español recibe al Dr. Andrés Hurtado-Lorenzo del @crohnscolitisfdn.bsky.social
para hablar sobre las últimas #investigaciones en la #EII

📆Lunes 21 de julio (por Zoom)
🇪🇸 100% en español
🙋🏻‍♀️ Ven con tus preguntas
🧠 Sal con conocimiento
voiceforibd.bsky.social
In this new video from the @crohnscolitisfdn.bsky.social I join a gastroenterologist & a registered dietitian to explore the role of grains & starches in an IBD-friendly diet🍽️

Watch the full video on YouTube 🎥
bit.ly/IBDandGrains
voiceforibd.bsky.social
¿La #EII se puede heredar? El #grupodeapoyo en #español del @CrohnsColitisFn da la bienvenida a la Dra. Olave-Pichon para hablar sobre factores #genéticos y familiares de la EII, el riesgo de transmitirla a tus hijos y qué señales observar en niños con antecedentes familiares👇🏼