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Diary of a Disabled Person

@wheelerdax.bsky.social

1.1K followers 780 following 210 posts

Queer, enby (they/them), wheelchair using scientist ♿🌈 M.E/CFS, endometriosis, autism, mental health issues (and more!). Gamer 🎲🎮 Pagan. Work in cancer research. 🧬 Yorkshire. @WheelerDax on X.

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Diary of a Disabled Person @wheelerdax.bsky.social · Jul 5

Happy Disability Pride Month.

Black and white mirror selfie. I'm a white person with short hair, sat on a sofa with one leg crossed over the other. I'm wearing a long black dress with a thigh high slit, fishnet tights, and chunky black sandals. I have a tattoo choker and sword earrings, and black lipstick. Most of my tattoos are visible.

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Diary of a Disabled Person @wheelerdax.bsky.social · 12d

Insurance salesman would not leave me alone 🙄

A meerkat stood upright on lookout duty in a sandy enclosure.

Diary of a Disabled Person @wheelerdax.bsky.social · 21d

Wore my keffiyeh into work this morning, and while in the lift a hijabi lass said she liked it because she could tell I was one of the safe ones.
I hate that marginalised communities feel unsafe, but if something so simple helps, I'm wearing this every time I go outside.

Diary of a Disabled Person @wheelerdax.bsky.social · Sep 6

The risk of not being able to get on the train, not being able to get in the wheelchair space, not being able to get off the train, and being blamed by staff for any issues while paying through the nose for the privelege was simply not worth it.

Diary of a Disabled Person @wheelerdax.bsky.social · Sep 6

Was supposed to be going somewhere this weekend, but lack of investment in the north means there's no bus between 2 places an hour apart.
No biggie, right?
Except, the prospect of having to navigate trains as a disabled person at short notice put me off going altogether.

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Diary of a Disabled Person @wheelerdax.bsky.social · Aug 23

My favourite genre of man is the ones that get visibly confused when I don't automatically move out of their way.

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Diary of a Disabled Person @wheelerdax.bsky.social · Aug 17

I will always have at least one spoon of energy left while wearing this necklace.
#spoonie

A silver necklace with a spoon charm, resting in my hand.

Diary of a Disabled Person @wheelerdax.bsky.social · Aug 16

Can't believe we've had Bramble a whole year!

Bramble, a calico cat, lies on her hammock looking up at the camera, sporting a fetching pride bandana around her neck.

Bramble ferociously bunny kicks a catnip pillow, with her ears back.

Bramble lies belly up in the sun on my wheelchair, asleep.

Selfie in my powered wheelchair, with Bramble on the back bar behind my shoulder.

Diary of a Disabled Person @wheelerdax.bsky.social · Aug 14

Gee thanks, weather app

Screenshot of my weather app showing a bright and sunny day, with white text reading "fair weather for running right now"

Diary of a Disabled Person @wheelerdax.bsky.social · Aug 13

Not to sound like a Boomer but...
Finally "upgraded" to wireless earbuds and now I have to charge a case to charge my headphones that then need updating to be able to listen to music.
HOW IS THIS AN IMPROVEMENT?!?

kermit the frog is dancing in front of a red curtain on a stage .

Alt: Kermit the frog flailing his arms around frantically and yelling, in front of a red curtain.

media.tenor.com

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Diary of a Disabled Person @wheelerdax.bsky.social · Aug 8

This is huge!
8 genetic markers identified in ME/CFS patients, in genes controlling the immune and nervous systems.
It was NEVER in our heads.
www.decodeme.org.uk/initial-dna-...

Initial DecodeME DNA Results - DecodeME

06 August 2025 The DecodeME team is delighted to announce that the initial analysis of 15,579 DNA samples is complete, and we have important news to share. Main findings from our analysis Your genes ...

www.decodeme.org.uk

Diary of a Disabled Person @wheelerdax.bsky.social · Aug 7

Can it be angled? The bar to hook it to is diagonal

Diary of a Disabled Person @wheelerdax.bsky.social · Aug 7

Advice needed:
I need a cup holder for my new wheelchair.
However, I cant attach anything to the base that would impact it folding up. It would need to be easy to remove.
The arm bars are also not circular, so anything clipped to them tends to fall off.
Recommendations?

A blue powered wheelchair with black cushion. The non-circular arm bars and folding frame are visible.

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Diary of a Disabled Person @wheelerdax.bsky.social · Aug 1

Happy Yorkshire Day

a man is giving a presentation in front of a group of people in a room .

Alt: Skit from a comedy show. A man is delivering a work presentation yelling "do it for Yorkshire"

media.tenor.com

Diary of a Disabled Person @wheelerdax.bsky.social · Jul 30

New wheelchair arrived today (and passed inspection).

A powered wheelchair with a black seat and blue frame.

Bramble, a calico cat, lounges on the seat of my wheelchair.

Diary of a Disabled Person @wheelerdax.bsky.social · Jul 26

Saw a Disability Pride sign in the wild for the first time ever today! #DisabilityPrideMonth

Screen displayed pink text reading Disability Pride, surrounded by smaller blocks of text and emojis.

Diary of a Disabled Person @wheelerdax.bsky.social · Jul 20

Happy Leeds Pride!
Theres been a lot of biphobia this year, so here's your reminder that perhaps the biggest queer influence on mainstream pop culture was, in fact, bisexual.
#pride #LeedsPride #queen #FreddieMercury #bisexual

I am dressed as Freddie Mercury in the music video to I Want To Break Free. I am wearing a pink vest, black leather mini skirt, and fishnet tights. My bag has a picture of a hoover taped to it with the text "we will break free".

Holding Bramble, my calico cat, while dressed up.

A close up of my makeup including badly drawn on moustache

Diary of a Disabled Person @wheelerdax.bsky.social · Jul 18

Spontaneously got my eyebrow pierced.
Side note: it's damn near impossible to be spontaneous with a disability.

Selfie. I'm a white person with short hair and a super cool eyebrow piercing. I'm wearing a red vest with a black net overlay with skulls on.

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Diary of a Disabled Person @wheelerdax.bsky.social · Jul 17

Update: the other queer group I'm involved in is marching this year - at the head of the parade!

Diary of a Disabled Person @wheelerdax.bsky.social · Jul 17

Between John Wick and Superman, I think we have now firmly established that the key to a successful movie is to have the leading man crash out over a dog.

Diary of a Disabled Person @wheelerdax.bsky.social · Jul 5

Happy Disability Pride Month.

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Diary of a Disabled Person @wheelerdax.bsky.social · Jul 4

Just found out that Leeds Pride are now charging groups to march in the parade, essentially meaning only corporations and big charities can march.
The group I was going with can no longer march.
Gutted and honestly kinda angry too.

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Diary of a Disabled Person @wheelerdax.bsky.social · Jul 2

Every single labour MP who voted in favour of the bill, thinking the 'concessions' make it OK, should do some serious self-reflection.
I don't care that my benefits are safer, it's not fair & it's not right.
And to vote it in during Disability Pride Month is especially vile.

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Diary of a Disabled Person @wheelerdax.bsky.social · Jun 29

It may have mostly worked out for me this time, but I'll still really against the cruelty of this government towards disabled people.
And once my own needs are met, with slightly deeper pockets, I'll try to give more back to my community too.

a woman with long green nails is holding a sticker that says resist

Alt: a woman with long green nails is holding an enamel pin that says resist

media.tenor.com

Diary of a Disabled Person @wheelerdax.bsky.social · Jun 29

The system is also super unfair. My success is purely down to luck - who read my application, did my interview, saw my report.
People with the same needs as me won't get the same level of support.
And with the current parliamentary debates, who knows how long I'll keep this?

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Diary of a Disabled Person @wheelerdax.bsky.social · Jun 29

The system is still needlessly cruel; I went through hell to get here.
Even in my success, the report breaking down my eligibility for PIP states I can independently do several things I stated I couldn't in the written application and the interview.

a man without a shirt is standing in front of a sign that says `` the rock '' .

Alt: The Rock exaggeratedly rolls his eyes.

media.tenor.com

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