ZoiAn
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zoian.bsky.social
ZoiAn
@zoian.bsky.social
Living with vasculitis. Patient advocate, passionate about the patient voice.
I love animals, books, nature, good food, traveling and baking!
Vasculitis UK is in Prague, attending the Vasculitis International's Patient Summit.
Yesterday we heard about innovative treatments and the role of AI. Today we focus on holistic patient care.
@ukivas.bsky.social @eurordis.bsky.social @robsonjc.bsky.social #vasculitis #raredisease
November 15, 2025 at 11:29 AM
Reposted by ZoiAn
Treatment of ANCA-Associated Glomerulonephritis Complicated by Bacteremia and Vertebral Osteomyelitis: A Challenging Medical Situation
Treatment of ANCA-Associated Glomerulonephritis Complicated by Bacteremia and Vertebral Osteomyelitis: A Challenging Medical Situation - PubMed
Although the prognosis for patients with ANCA-associated vasculitis (AAV) has improved with modern immunosuppressive drugs, treatment-related complications continue to contribute significantly to morbidity and mortality. Infections, in particular, pose a major risk. Older age, high disease activity …
pubmed.ncbi.nlm.nih.gov
October 26, 2025 at 9:15 PM
Support Vasculitis UKby purchasing their Christmas cards: vasculitisuk.myshopify.com
#vasculitis #raredisease #Christmas #Christmascards
October 7, 2025 at 12:11 PM
Vasculitis UK are pleased to announce the launch of their 2025 call for research proposals. Apply between 1st September and 15th October.
For more information and to apply to the 2025 call please visit: www.vasculitis.org.uk/research/gra...

@ukivas.bsky.social #vasculitis #research
Grant Call - Application & Guidance - Vasculitis UK
Vasculitis UK aims to spend at least 50% of annual income on supporting research. As a small charity depending entirely on donations, we are able to support 3 projects of ...
www.vasculitis.org.uk
September 1, 2025 at 8:27 AM
Thank you @BrixSilke for organising the 2nd Patient Awareness Day in Manchester.
Well attended, good pace through the day and very patient centered!
#vasculitis #patienteducation #raredisease
@ukivas
July 20, 2025 at 7:28 PM
Today is International Vasculitis Awareness Day!
Getting diagnosed with a severe chronic disease that is both life changing and life threatening is challenging physically, emotionally and mentally.

If you can spare a penny, please donate to help VUK.
#vasculitis #raredisease #visualisingvasculitis
May 15, 2025 at 9:34 AM
Vasculitis Awareness Month!
One common initial symptom of vasculitis is joint pain, many times so severe it makes moving impossible.
Follow me through the month to find out more about how it is to live with vasculitis!
#vasculitis #vasculitisawareness #visualisevasculitis
May 2, 2025 at 8:45 AM
May is Vasculitis Awareness Month
#vasculitis is rare, can be severe and present in different ways, depending on the type and the organs affected.
#raredisease #visualisingvasculitis
May 1, 2025 at 5:39 PM
Vasculitis UK will be at the #BSR25
Come to our stand to learn more about what we do and if you can,attend our short presentation about patient education on Tuesday at 3.40pm.
#vasculitis #raredisease
April 27, 2025 at 9:11 PM
Join us at #Vasculitis UK's AGM
Please, don't forget to register!
April 3, 2025 at 7:12 PM