#APPM
Exactly! And then there's this too:
bsky.app/profile/appm...
Shutdown only because negotiation would require the House to return, which would mean a vote to release the files.

We all know what's in them, but release means no longer pretending we don't.

So families will go broke, children will suffer, and some will die.

So some can keep pretending.
October 1, 2025 at 12:14 PM Everybody can reply
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With large volume liver disease, capsule pain can be very challenging

High risk of bleeding and varices

Varices can be banded/ablated/sclerosed - this can really reduce distressing symptoms

#APPM
November 22, 2024 at 4:09 PM Everybody can reply
Next workshop:
Collaboration between PICU and palliative care in children's hospices

Facilitated by Dr Sarah Mahoney, chaired by Lesley Fellows

#APPM
a cartoon cat with a unicorn horn and a rainbow mane
ALT: a cartoon cat with a unicorn horn and a rainbow mane
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November 22, 2024 at 1:52 PM Everybody can reply
Questions for all above talks:

Q. Do you use a Universal Care Plan as well as an Advance Care Plan?

A. Yes. We use it as a different document.

cypacp.uk

#APPM
CYPACP – Child & Young Persons Advance Care Plan
cypacp.uk
November 22, 2024 at 12:13 PM Everybody can reply
Medical complexity is increasing.

Most live at home, and only some are eligible for continuing care through other agencies

Families don't have much choice or control over this

#APPM
November 21, 2024 at 4:54 PM Everybody can reply
Six families participated in semi-structured interviews

This focused on relationships, information, parental roles and resolutions

#APPM
November 21, 2024 at 12:10 PM Everybody can reply
PL 89

Appelle a une RÉPONSE immédiate et totale des SYNDIQUÉS et SYNDICATS du Québec en ENTIER et DU Canada si il veulent suivrre

@alexandreleduc.bsky.social Tu as ma permission comme APPM a Faire un Appelle Publique de GRÈVE Général !

cc: @solzanetti.bsky.social , @etiennegrandmont.bsky.social
May 22, 2025 at 6:52 PM Everybody can reply
Bladder stimulation seems to have gone out of vogue in favour of intermittent catheterisation

We're having a grand old time with words in this talk.

Use of the words "cheese grater" and "penile clamp" have definitely focused minds

#APPM
a baby in a black shirt is walking through a hallway .
ALT: a baby in a black shirt is walking through a hallway .
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November 22, 2024 at 1:17 PM Everybody can reply
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This was a tough listen for the paeds crowd, I think.

#APPM
November 22, 2024 at 10:35 AM Everybody can reply
New drugs eg for SMA/DMD opens the door for respiratory intervention where we previously would not have tried it

#APPM
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ALT: a colorful sign that says new new new
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November 22, 2024 at 10:15 AM Everybody can reply
There's going to be a themed report about children with life limiting conditions coming up this year

#APPM
November 21, 2024 at 4:16 PM Everybody can reply
The CoPPAR Network needs funding to survive, and this is not assured.

Sustainability is a challenge

Collaboration is key, but money also matters...

#APPM
a cat laying on a pile of money with a 2000 bill
ALT: a cat laying on a pile of money with a 2000 bill
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November 21, 2024 at 10:34 AM Everybody can reply
Your ability to process painkillers or to benefit from them may depend on your type of liver failure

The SmPC for the drug will often be helpful

#APPM
November 22, 2024 at 4:16 PM Everybody can reply
Next up:

Prof Ulrika Kreicbergs talking about parent and staff experiences of new treatments for Spinal Muscular Atrophy #SMA

#APPM
November 21, 2024 at 12:37 PM Everybody can reply
SVC obstruction may develop suddenly

Cough, breathlessness, agitation, dizziness, swelling and vein dilation occurs

Dexamethasone, morphine, midazolam may be useful

Progression may be very rapid.

Having a symptom management plan in place is very helpful

#APPM
November 22, 2024 at 12:03 PM Everybody can reply
What is the state of complex communication in UK medical schools?

They contacted 42 medical schools and had 17 responses.

They used NVIVO thematic analysis

#APPM
a man with long hair and a beard is asking so many good questions
ALT: a man with long hair and a beard is asking so many good questions
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November 21, 2024 at 2:06 PM Everybody can reply
CSNAT-I (Paediatric) - sounds like a satellite, is actually Carer Support Needs Assessment Tool

Identifying what people actually NEED is crucial, rather than what we think they ought to want

#APPM
a satellite is flying over the earth in a dark space
ALT: a satellite is flying over the earth in a dark space
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November 21, 2024 at 10:30 AM Everybody can reply
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Lastly, MY TEAM!

Dr Yifan Liang (PPM), Dr Jane Hartley (paeds hepatology) and Rhian Isaac (Paeds pharmacist) talking about liver dysfunction and symptom management

#APPM
a man with a mustache is sitting at a table with his hands folded and says `` team work make the dream work '' .
ALT: a man with a mustache is sitting at a table with his hands folded and says `` team work make the dream work '' .
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November 22, 2024 at 3:28 PM Everybody can reply
@etiennegrandmont.bsky.social écris sur Meta 👇

Dimanche dernier, j'ai annoncé ma candidature au poste de porte-parole de Québec solidaire. 🧡

Je vous invite à lire ma lettre pour connaître davantage ma vision : linktr.ee/e.grandmont

www.facebook.com/share/p/1Bjh...

#polqc #QS #APPM
@etgrandmont | Instagram, Facebook | Linktree
Député de Taschereau à l'Assemblée nationale. Candidat au poste de porte-parole de Québec solidaire.
linktr.ee
May 27, 2025 at 3:47 PM Everybody can reply