There's lots to remember during the festive season ✨ Add in living with #AddisonsDisease & #AdrenalInsufficiency & you have even more to add to your 'To Do' list!
To help here are some of our Addison’s admin reminders🎄 For more tips please visit🔗 www.addisonsdisease.org.uk/newly-diagnosed-get-ready
To help here are some of our Addison’s admin reminders🎄 For more tips please visit🔗 www.addisonsdisease.org.uk/newly-diagnosed-get-ready
December 9, 2024 at 4:43 PM
There's lots to remember during the festive season ✨ Add in living with #AddisonsDisease & #AdrenalInsufficiency & you have even more to add to your 'To Do' list!
To help here are some of our Addison’s admin reminders🎄 For more tips please visit🔗 www.addisonsdisease.org.uk/newly-diagnosed-get-ready
To help here are some of our Addison’s admin reminders🎄 For more tips please visit🔗 www.addisonsdisease.org.uk/newly-diagnosed-get-ready
@allyann.bsky.social please add #addisonsdisease
November 29, 2024 at 9:27 PM
@allyann.bsky.social please add #addisonsdisease
A question on #AddisonsDisease #HealthServices tabled by Michael Payne on 10-01-2025 has been answered by Andrew Gwynne. https://questions-statements.parliament.uk/written-questions/detail/2025-01-10/23199
January 16, 2025 at 12:10 PM
A question on #AddisonsDisease #HealthServices tabled by Michael Payne on 10-01-2025 has been answered by Andrew Gwynne. https://questions-statements.parliament.uk/written-questions/detail/2025-01-10/23199
#CerebralPalsy, #hydrocephalus, #graves, #LichenSclerosus, #StiffPersonsSyndrome, #SpinalCFSLeak, #addisons, #AddisonsDisease, #endometriosis, #endo, #myositis, #FunctionalNeurologicDisorder, #FND, #coccygectomy, #epilepsy
6/6
6/6
December 2, 2024 at 5:10 AM
Addison’s disease has its own agenda. This crisis was precipitated by stress. It happened so fast this time. This is why I advocate for rare diseases. I have an invisible disease that is life threatening and try to spread awareness so others can also advocate. #Addisonsdisease 🧵
December 29, 2024 at 5:50 PM
Addison’s disease has its own agenda. This crisis was precipitated by stress. It happened so fast this time. This is why I advocate for rare diseases. I have an invisible disease that is life threatening and try to spread awareness so others can also advocate. #Addisonsdisease 🧵
Feeling lucky to have a good endocrinologist. #AddisonsDisease
June 5, 2025 at 10:24 AM
Feeling lucky to have a good endocrinologist. #AddisonsDisease
All You Need to Know About Addison’s Disease (Adrenal Insufficiency) #AddisonsDisease #AdrenalInsufficiency #HealthAwareness #WellnessJourney #RareDiseases #AdrenalHealth #HormoneBalance #LivingWithAddisons #HealthyLiving #FatigueRelief
ultimatehealingsolutions.com/2025/04/27/a...
ultimatehealingsolutions.com/2025/04/27/a...
Understanding Addison’s Disease: Signs, Causes, and Treatment
Discover the signs, causes, and best management strategies for Addison's Disease. Live vibrantly while navigating this rare condition!
ultimatehealingsolutions.com
April 27, 2025 at 8:33 PM
All You Need to Know About Addison’s Disease (Adrenal Insufficiency) #AddisonsDisease #AdrenalInsufficiency #HealthAwareness #WellnessJourney #RareDiseases #AdrenalHealth #HormoneBalance #LivingWithAddisons #HealthyLiving #FatigueRelief
ultimatehealingsolutions.com/2025/04/27/a...
ultimatehealingsolutions.com/2025/04/27/a...
28 Feb is #rarediseaseday In UK, pop ~6.34M, I’m one of ~8,400 with #AddisonsDisease No cure. Manageable with lifelong treatment but can, & has been life threatening. I’m also an artist, this bookart was 1st of what has become a growing body of sci-art. Funny where a strange diagnosis can lead.
February 28, 2025 at 2:58 PM
28 Feb is #rarediseaseday In UK, pop ~6.34M, I’m one of ~8,400 with #AddisonsDisease No cure. Manageable with lifelong treatment but can, & has been life threatening. I’m also an artist, this bookart was 1st of what has become a growing body of sci-art. Funny where a strange diagnosis can lead.
This is the first clock change since switching from four hydrocortisone doses to a single prednisolone dose, so I'm looking forward to not being a mess all day 🎉
#AddisonsDisease
#AddisonsDisease
Tonight in the UK the #ClocksGoBack! Here are some reminders for those with Addison's and adrenal insufficiency:
🌙 Change your clocks before bed so your morning dose matches the new time.
💊 On Sunday, make sure the clocks in your house are correct.
🔔 Check alarms you have for remembering doses.
🌙 Change your clocks before bed so your morning dose matches the new time.
💊 On Sunday, make sure the clocks in your house are correct.
🔔 Check alarms you have for remembering doses.
October 26, 2025 at 8:55 AM
This is the first clock change since switching from four hydrocortisone doses to a single prednisolone dose, so I'm looking forward to not being a mess all day 🎉
#AddisonsDisease
#AddisonsDisease
Meet Rachel, a resident doctor who also has #AddisonsDisease. Known online as The Friendly Shark due to her love of open water swimming, Rachel has begun sharing her journey on her social media through her series: ‘Face to Face with The Friendly Shark’ 🦈
www.addisonsdisease.org.uk/blog/rachels...
www.addisonsdisease.org.uk/blog/rachels...
Rachel’s Story: The Friendly Doctor
Meet Rachel, a newly qualified resident doctor, who also has Addison's. Known as the Friendly Shark due to her love of open water swimming, Rachel has begun sharing her journey online.
www.addisonsdisease.org.uk
November 27, 2024 at 8:16 AM
Meet Rachel, a resident doctor who also has #AddisonsDisease. Known online as The Friendly Shark due to her love of open water swimming, Rachel has begun sharing her journey on her social media through her series: ‘Face to Face with The Friendly Shark’ 🦈
www.addisonsdisease.org.uk/blog/rachels...
www.addisonsdisease.org.uk/blog/rachels...
Always exciting to see #addisonsdisease in pop culture! #adrenaldiseaseawareness
In last week’s @bbcdoctorwhom.bsky.social, millions watched an Addisonian Crisis (adrenal crisis) unfold on screen.
Belinda is called to help with an unusual case: low blood pressure, nausea & hyperpigmentation. She says the life-saving words: "Without steroids, she could die..." (🧵1/3)
Belinda is called to help with an unusual case: low blood pressure, nausea & hyperpigmentation. She says the life-saving words: "Without steroids, she could die..." (🧵1/3)
May 20, 2025 at 3:59 PM
Always exciting to see #addisonsdisease in pop culture! #adrenaldiseaseawareness
All jokes aside living w Chronic Illness and Chronic Pain is impossible somedays. I may “look fine “ on the outside … but the reality is I’m trying suffering on the inside. #chronicpain #chronicillness #addisonsdisease #heds #kellyrowland #fyp #tredingsong
July 29, 2025 at 12:07 AM
All jokes aside living w Chronic Illness and Chronic Pain is impossible somedays. I may “look fine “ on the outside … but the reality is I’m trying suffering on the inside. #chronicpain #chronicillness #addisonsdisease #heds #kellyrowland #fyp #tredingsong
#Disability pays peanuts. Ya'll on that #lowcortisollifestyle are #batshit #cortisol being #tolow is #seriouslydangerous it's actually #moredangerous than having #highcortisol Fuck up your #adrenalglands and you'll end up like me, on #steriodsforlife #addisonsdisease #isntfun
October 21, 2025 at 6:19 PM
#Disability pays peanuts. Ya'll on that #lowcortisollifestyle are #batshit #cortisol being #tolow is #seriouslydangerous it's actually #moredangerous than having #highcortisol Fuck up your #adrenalglands and you'll end up like me, on #steriodsforlife #addisonsdisease #isntfun
I am dealing with possible #addisonsdisease - low aldosterone doesn't just affects your hormones. It dictates your mood. I'm back to being unpredictably moody, anxious, and depressed.
This means everyone will be back to hating me and blaming me.
This means everyone will be back to hating me and blaming me.
May 17, 2025 at 1:50 PM
I am dealing with possible #addisonsdisease - low aldosterone doesn't just affects your hormones. It dictates your mood. I'm back to being unpredictably moody, anxious, and depressed.
This means everyone will be back to hating me and blaming me.
This means everyone will be back to hating me and blaming me.
Comparing pill organisers at work earlier, as you do. #AddisonsDisease
November 6, 2023 at 7:07 PM
Comparing pill organisers at work earlier, as you do. #AddisonsDisease
Today I will mostly be staying at home weeing in a bucket. TMI? #AddisonsDisease
May 27, 2025 at 7:49 AM
Today I will mostly be staying at home weeing in a bucket. TMI? #AddisonsDisease
I never did manage to successfully get red flagged, due to a combination of a broken process and getting anything out of a GP, so this change makes a lot of sense. #AddisonsDisease
The ambulance service has moved away from red flagging addresses of people at risk of adrenal crisis (Addison's or adrenal insufficiency).
AACE (Association of Ambulance Chief Executives),
@addisonsdisease.bsky.social & Pituitary Foundation explain more⤵️ www.addisonsdisease.org.uk/news/ambulan...
AACE (Association of Ambulance Chief Executives),
@addisonsdisease.bsky.social & Pituitary Foundation explain more⤵️ www.addisonsdisease.org.uk/news/ambulan...
Ambulance care – moving away from ‘Red Flagging’
Ambulance trusts have now moved away from 'red flagging', when people with steroid dependency could have their address 'flagged' to show they were at risk of adrenal crisis. Read on to learn more abou...
www.addisonsdisease.org.uk
September 20, 2024 at 7:39 AM
I never did manage to successfully get red flagged, due to a combination of a broken process and getting anything out of a GP, so this change makes a lot of sense. #AddisonsDisease
Excellent #AddisonsDisease event in Birmingham yesterday. There was even a merch table!
April 27, 2025 at 9:18 AM
Excellent #AddisonsDisease event in Birmingham yesterday. There was even a merch table!
💁🏻♀️ Primary since 1996 💪🏼🦋
Thanks for thinking of us, JAMA.
#AddisonsDisease
jamanetwork.com/journals/jam...
Thanks for thinking of us, JAMA.
#AddisonsDisease
jamanetwork.com/journals/jam...
Adrenal Insufficiency in Adults: A Review
This Review summarizes the pathophysiology of adrenal insufficiency and approaches to diagnosis, treatment, and prevention of adrenal crisis.
jamanetwork.com
September 3, 2025 at 8:27 PM
💁🏻♀️ Primary since 1996 💪🏼🦋
Thanks for thinking of us, JAMA.
#AddisonsDisease
jamanetwork.com/journals/jam...
Thanks for thinking of us, JAMA.
#AddisonsDisease
jamanetwork.com/journals/jam...
Understanding your pet’s hormonal health is key to support and better care. Learn the signs, causes, and treatment options for these two often-confused conditions. 💚
🔗 Read more: www.nhvnaturalpetproducts.com/natural-reme...
#cushingsdisease #addisonsdisease #pethealth
🔗 Read more: www.nhvnaturalpetproducts.com/natural-reme...
#cushingsdisease #addisonsdisease #pethealth
April 16, 2025 at 10:06 PM
Understanding your pet’s hormonal health is key to support and better care. Learn the signs, causes, and treatment options for these two often-confused conditions. 💚
🔗 Read more: www.nhvnaturalpetproducts.com/natural-reme...
#cushingsdisease #addisonsdisease #pethealth
🔗 Read more: www.nhvnaturalpetproducts.com/natural-reme...
#cushingsdisease #addisonsdisease #pethealth
PSA for people with #AddisonsDisease: If you have cold symptoms, it's worth doing a combo COVID/Flu/RSV RAT test.
I've tested positive for RSV. I'd never heard of it before. It can cause pneumonia, fever, dehydration 🚩.
I'm Sick Dosing, upping fluids, monitoring vitals, resting.
I've tested positive for RSV. I'd never heard of it before. It can cause pneumonia, fever, dehydration 🚩.
I'm Sick Dosing, upping fluids, monitoring vitals, resting.
July 8, 2025 at 7:14 AM
PSA for people with #AddisonsDisease: If you have cold symptoms, it's worth doing a combo COVID/Flu/RSV RAT test.
I've tested positive for RSV. I'd never heard of it before. It can cause pneumonia, fever, dehydration 🚩.
I'm Sick Dosing, upping fluids, monitoring vitals, resting.
I've tested positive for RSV. I'd never heard of it before. It can cause pneumonia, fever, dehydration 🚩.
I'm Sick Dosing, upping fluids, monitoring vitals, resting.
When diagnosed many of us learn that without pacing our energies & rest, we would only be making our situation worse. This means every rest, nap, "Addy" or "Spoonie" day you have is productive, caring & important.
📸credit: @thisthingblog.bsky.social | #NationalNappingDay #AddisonsDisease
📸credit: @thisthingblog.bsky.social | #NationalNappingDay #AddisonsDisease
March 10, 2025 at 4:12 PM
When diagnosed many of us learn that without pacing our energies & rest, we would only be making our situation worse. This means every rest, nap, "Addy" or "Spoonie" day you have is productive, caring & important.
📸credit: @thisthingblog.bsky.social | #NationalNappingDay #AddisonsDisease
📸credit: @thisthingblog.bsky.social | #NationalNappingDay #AddisonsDisease
I can haz new medical exemption certificate. NHS FTW! #AddisonsDisease
September 16, 2024 at 6:34 PM
I can haz new medical exemption certificate. NHS FTW! #AddisonsDisease
Leaving the country for the first time since being diagnosed with #AddisonsDisease tomorrow. Stashing steroids *everywhere*!
August 28, 2025 at 9:29 PM
Leaving the country for the first time since being diagnosed with #AddisonsDisease tomorrow. Stashing steroids *everywhere*!