What are some unique challenges and opportunities for patient engagement in research in different parts of the world?
👀Watch back this session from day 1 of #PxP25
youtu.be/xJwAKSoHGNs
#PPI #PatientEngagement #ConsumerInvolvement
👀Watch back this session from day 1 of #PxP25
youtu.be/xJwAKSoHGNs
#PPI #PatientEngagement #ConsumerInvolvement
Global voices, local impact: Patient Engagement in research around the world
YouTube video by PxP For Patients, By Patients
youtu.be
October 29, 2025 at 5:43 PM
What are some unique challenges and opportunities for patient engagement in research in different parts of the world?
👀Watch back this session from day 1 of #PxP25
youtu.be/xJwAKSoHGNs
#PPI #PatientEngagement #ConsumerInvolvement
👀Watch back this session from day 1 of #PxP25
youtu.be/xJwAKSoHGNs
#PPI #PatientEngagement #ConsumerInvolvement
Looking for a case study on co-design? PxP Australia featured an insightful presentation by Joan Carlini and Letisha Living, facilitated by Janelle Bowden.
Their #ConsumerInvolvement project used Lego!
Intrigued?
Watch the session back here: www.youtube.com/watch?si=UQV...
Their #ConsumerInvolvement project used Lego!
Intrigued?
Watch the session back here: www.youtube.com/watch?si=UQV...
PxP Australia 2025
YouTube video by PxP For Patients, By Patients
www.youtube.com
October 22, 2025 at 5:54 PM
Looking for a case study on co-design? PxP Australia featured an insightful presentation by Joan Carlini and Letisha Living, facilitated by Janelle Bowden.
Their #ConsumerInvolvement project used Lego!
Intrigued?
Watch the session back here: www.youtube.com/watch?si=UQV...
Their #ConsumerInvolvement project used Lego!
Intrigued?
Watch the session back here: www.youtube.com/watch?si=UQV...
🤩We are so grateful to these incredible people who will be speaking during the virtual conference in September (9th-12th). Check out their speaker biographies here: pxphub.org/event/speake...
#PxP25 #PatientEngagement #PPI #ConsumerInvolvement
#PxP25 #PatientEngagement #PPI #ConsumerInvolvement
August 29, 2025 at 3:43 AM
🤩We are so grateful to these incredible people who will be speaking during the virtual conference in September (9th-12th). Check out their speaker biographies here: pxphub.org/event/speake...
#PxP25 #PatientEngagement #PPI #ConsumerInvolvement
#PxP25 #PatientEngagement #PPI #ConsumerInvolvement
📢Introducing PxP Australia! - a regional PxP webinar, led by Janelle Bowden and Letisha Living (2025 PXP Steering Cttee members).
Learn about “working well together" with Janelle, Letisha and Dr. Joan Carlini - pxphub.org/event/pxp-au...
#ForPatientsByPatients #PxP25 #PPI #ConsumerInvolvement
Learn about “working well together" with Janelle, Letisha and Dr. Joan Carlini - pxphub.org/event/pxp-au...
#ForPatientsByPatients #PxP25 #PPI #ConsumerInvolvement
August 1, 2025 at 11:21 PM
📢Introducing PxP Australia! - a regional PxP webinar, led by Janelle Bowden and Letisha Living (2025 PXP Steering Cttee members).
Learn about “working well together" with Janelle, Letisha and Dr. Joan Carlini - pxphub.org/event/pxp-au...
#ForPatientsByPatients #PxP25 #PPI #ConsumerInvolvement
Learn about “working well together" with Janelle, Letisha and Dr. Joan Carlini - pxphub.org/event/pxp-au...
#ForPatientsByPatients #PxP25 #PPI #ConsumerInvolvement
How can we ensure that virtual conferences like #PxP25 are rooted in accessibility?
Some ideas here:
pxphub.org/accessibilit...
#PPI #PatientEngagement #ConsumerInvolvement @coffeeandresearch.bsky.social @dawnrichards.bsky.social
Some ideas here:
pxphub.org/accessibilit...
#PPI #PatientEngagement #ConsumerInvolvement @coffeeandresearch.bsky.social @dawnrichards.bsky.social
An accessibility checklist for virtual conference - by and for patients - PxP
Checklist Developed by: Oluwafemi Ajayi, Rebecca Esparza, Rae Martens, and Shyamsundar Muthuramalingan Illustration by: Candace Ramjohn Blog by: Rebecca Esparza and […]
pxphub.org
July 3, 2025 at 8:11 PM
How can we ensure that virtual conferences like #PxP25 are rooted in accessibility?
Some ideas here:
pxphub.org/accessibilit...
#PPI #PatientEngagement #ConsumerInvolvement @coffeeandresearch.bsky.social @dawnrichards.bsky.social
Some ideas here:
pxphub.org/accessibilit...
#PPI #PatientEngagement #ConsumerInvolvement @coffeeandresearch.bsky.social @dawnrichards.bsky.social
At the Family Engagement in Research (FER) Course, our work is grounded in four core values:
💛Authenticity
🌍Inclusivity
👥Collaboration
🙌🏽Mutual Respect
Do these resonate with you? Come join us! /1
#PatientEngagement #ConsumerInvolvement
💛Authenticity
🌍Inclusivity
👥Collaboration
🙌🏽Mutual Respect
Do these resonate with you? Come join us! /1
#PatientEngagement #ConsumerInvolvement
June 16, 2025 at 4:38 PM
At the Family Engagement in Research (FER) Course, our work is grounded in four core values:
💛Authenticity
🌍Inclusivity
👥Collaboration
🙌🏽Mutual Respect
Do these resonate with you? Come join us! /1
#PatientEngagement #ConsumerInvolvement
💛Authenticity
🌍Inclusivity
👥Collaboration
🙌🏽Mutual Respect
Do these resonate with you? Come join us! /1
#PatientEngagement #ConsumerInvolvement
You are up next!
🎉 Applications are OPEN for the Family Engagement in Research Course!
🗓️ Fall 2025: Sept 15 – Nov 23
🗓️ Winter 2026: Jan 19 – Mar 29
💻 All online.
👉Link in bio for more information
#familyengagenent
#FERCourse
#consumerinvolvement
#PPI
@canchild.bsky.social
/2
🎉 Applications are OPEN for the Family Engagement in Research Course!
🗓️ Fall 2025: Sept 15 – Nov 23
🗓️ Winter 2026: Jan 19 – Mar 29
💻 All online.
👉Link in bio for more information
#familyengagenent
#FERCourse
#consumerinvolvement
#PPI
@canchild.bsky.social
/2
June 11, 2025 at 3:06 PM
You are up next!
🎉 Applications are OPEN for the Family Engagement in Research Course!
🗓️ Fall 2025: Sept 15 – Nov 23
🗓️ Winter 2026: Jan 19 – Mar 29
💻 All online.
👉Link in bio for more information
#familyengagenent
#FERCourse
#consumerinvolvement
#PPI
@canchild.bsky.social
/2
🎉 Applications are OPEN for the Family Engagement in Research Course!
🗓️ Fall 2025: Sept 15 – Nov 23
🗓️ Winter 2026: Jan 19 – Mar 29
💻 All online.
👉Link in bio for more information
#familyengagenent
#FERCourse
#consumerinvolvement
#PPI
@canchild.bsky.social
/2
Last week Kristina McGuire and I shared a presentation on facilitating patient and family engagement in research.
Missed it? Check out the recording!
yuja.ucalgary.ca/V/Video?v=12...
#patientengagement #consumerinvolvement #PPI
Missed it? Check out the recording!
yuja.ucalgary.ca/V/Video?v=12...
#patientengagement #consumerinvolvement #PPI
04 Jun, 2025 Facilitating Patient and Family Engagement in Research
Speakers: Rae Martens & Kristina McGuire
yuja.ucalgary.ca
June 9, 2025 at 10:03 PM
Last week Kristina McGuire and I shared a presentation on facilitating patient and family engagement in research.
Missed it? Check out the recording!
yuja.ucalgary.ca/V/Video?v=12...
#patientengagement #consumerinvolvement #PPI
Missed it? Check out the recording!
yuja.ucalgary.ca/V/Video?v=12...
#patientengagement #consumerinvolvement #PPI
📢Sign up now for #PxP25!
September 9-12, depending where you are based in the world. Our conference is virtual and free to attend.
bit.ly/3HwYxQg
#PPI #ConsumerInvolvement #ForPatientsByPatients
September 9-12, depending where you are based in the world. Our conference is virtual and free to attend.
bit.ly/3HwYxQg
#PPI #ConsumerInvolvement #ForPatientsByPatients
June 9, 2025 at 7:35 PM
📢Sign up now for #PxP25!
September 9-12, depending where you are based in the world. Our conference is virtual and free to attend.
bit.ly/3HwYxQg
#PPI #ConsumerInvolvement #ForPatientsByPatients
September 9-12, depending where you are based in the world. Our conference is virtual and free to attend.
bit.ly/3HwYxQg
#PPI #ConsumerInvolvement #ForPatientsByPatients
🌟 At FER, our vision is to transform the culture and practice of family engagement in health research and health care.
Sounds like something you believe in too?
🎉 Applications are OPEN for the Family Engagement in Research Course! /1
#consumerinvolvement #patientengagement
Sounds like something you believe in too?
🎉 Applications are OPEN for the Family Engagement in Research Course! /1
#consumerinvolvement #patientengagement
June 9, 2025 at 4:25 PM
🌟 At FER, our vision is to transform the culture and practice of family engagement in health research and health care.
Sounds like something you believe in too?
🎉 Applications are OPEN for the Family Engagement in Research Course! /1
#consumerinvolvement #patientengagement
Sounds like something you believe in too?
🎉 Applications are OPEN for the Family Engagement in Research Course! /1
#consumerinvolvement #patientengagement
Applications are OPEN for the Family Engagement in Research Course!
💬 Whether you’re new to family engagement research or looking to deepen your perspective, this course will offer the tools and mentorship to help you!
/1 @canchild.bsky.social
#consumerinvolvement
#patientengagement
💬 Whether you’re new to family engagement research or looking to deepen your perspective, this course will offer the tools and mentorship to help you!
/1 @canchild.bsky.social
#consumerinvolvement
#patientengagement
June 6, 2025 at 9:24 PM
Applications are OPEN for the Family Engagement in Research Course!
💬 Whether you’re new to family engagement research or looking to deepen your perspective, this course will offer the tools and mentorship to help you!
/1 @canchild.bsky.social
#consumerinvolvement
#patientengagement
💬 Whether you’re new to family engagement research or looking to deepen your perspective, this course will offer the tools and mentorship to help you!
/1 @canchild.bsky.social
#consumerinvolvement
#patientengagement
Lived experience is a powerful tool and it belongs in health research too. The FER Course supports #parents in learning how to work with researchers as partners.
Apply today: bit.ly/43vXrvy
Learn more: bit.ly/43g8zxK
#patientengagement
#consumerinvolvement
Apply today: bit.ly/43vXrvy
Learn more: bit.ly/43g8zxK
#patientengagement
#consumerinvolvement
June 5, 2025 at 6:29 PM
Lived experience is a powerful tool and it belongs in health research too. The FER Course supports #parents in learning how to work with researchers as partners.
Apply today: bit.ly/43vXrvy
Learn more: bit.ly/43g8zxK
#patientengagement
#consumerinvolvement
Apply today: bit.ly/43vXrvy
Learn more: bit.ly/43g8zxK
#patientengagement
#consumerinvolvement
💬 Learn how to build meaningful partnerships between families and researchers.
🗓️ Fall 2025: Sept 15 – Nov 23
🗓️ Winter 2026: Jan 19 – Mar 29
💻 All online.
👉 Learn more: bit.ly/43g8zxK
✅ Apply now: bit.ly/43vXrvy
📩 Questions? [email protected]
#FamilyEngagement #FERCourse #ConsumerInvolvement /2
🗓️ Fall 2025: Sept 15 – Nov 23
🗓️ Winter 2026: Jan 19 – Mar 29
💻 All online.
👉 Learn more: bit.ly/43g8zxK
✅ Apply now: bit.ly/43vXrvy
📩 Questions? [email protected]
#FamilyEngagement #FERCourse #ConsumerInvolvement /2
Amazingly Simple Graphic Design Software – Canva
Amazingly Simple Graphic Design Software – Canva
bit.ly
June 4, 2025 at 9:54 PM
💬 Learn how to build meaningful partnerships between families and researchers.
🗓️ Fall 2025: Sept 15 – Nov 23
🗓️ Winter 2026: Jan 19 – Mar 29
💻 All online.
👉 Learn more: bit.ly/43g8zxK
✅ Apply now: bit.ly/43vXrvy
📩 Questions? [email protected]
#FamilyEngagement #FERCourse #ConsumerInvolvement /2
🗓️ Fall 2025: Sept 15 – Nov 23
🗓️ Winter 2026: Jan 19 – Mar 29
💻 All online.
👉 Learn more: bit.ly/43g8zxK
✅ Apply now: bit.ly/43vXrvy
📩 Questions? [email protected]
#FamilyEngagement #FERCourse #ConsumerInvolvement /2
🎉 Applications are OPEN for the Family Engagement in Research Course!
💪 Our mission is simple yet powerful: to train, mentor and mobilize the next generation of advocates, champions, and leaders in family engagement.
@canchild.bsky.social #PatientEngagement #ConsumerInvolvement /1
💪 Our mission is simple yet powerful: to train, mentor and mobilize the next generation of advocates, champions, and leaders in family engagement.
@canchild.bsky.social #PatientEngagement #ConsumerInvolvement /1
June 4, 2025 at 9:54 PM
🎉 Applications are OPEN for the Family Engagement in Research Course!
💪 Our mission is simple yet powerful: to train, mentor and mobilize the next generation of advocates, champions, and leaders in family engagement.
@canchild.bsky.social #PatientEngagement #ConsumerInvolvement /1
💪 Our mission is simple yet powerful: to train, mentor and mobilize the next generation of advocates, champions, and leaders in family engagement.
@canchild.bsky.social #PatientEngagement #ConsumerInvolvement /1
“Finding Our Way: Navigating Supports and Resources in Family Engagement” is a series born out of the influence of many of our learners who expressed interest in getting to know “what’s out there” in the world of family engagement. #patientengagement #consumerinvolvement /1
Pull Up a Chair at the PxP Hub: Where Lived Experience Leads
Finding Our Way: Navigating Supports and Resources in Family Engagement – Part 1
open.substack.com
May 31, 2025 at 9:54 PM
“Finding Our Way: Navigating Supports and Resources in Family Engagement” is a series born out of the influence of many of our learners who expressed interest in getting to know “what’s out there” in the world of family engagement. #patientengagement #consumerinvolvement /1
Starting at 12 pm today. A great opportunity to see #PatientEngagementInResearch in action. It is free, no registration required (just click on the Zoom link). #PER #PPI #ConsumerInvolvement #cardiovascular #rehab
📣 There is still time to join us today from 12:00 - 1:00 pm to learn from @gabrielamghisi.bsky.social and Gayl McKinley about engaging women with lived experience in tailoring educational resources for cardiovascular rehabilitation!
Zoom Link: lnkd.in/eiuE82FR
Zoom Link: lnkd.in/eiuE82FR
May 28, 2025 at 3:48 PM
Starting at 12 pm today. A great opportunity to see #PatientEngagementInResearch in action. It is free, no registration required (just click on the Zoom link). #PER #PPI #ConsumerInvolvement #cardiovascular #rehab
5 Tips for Sharing Feedback in Youth-Researcher Partnerships
This new co-written blog post helps make feedback clear, kind, and collaborative — so youth partners feel heard and supported. #patientengagement #consumerinvolvement
familyengagementinresearch.substack.com/p/5-tips-for...
This new co-written blog post helps make feedback clear, kind, and collaborative — so youth partners feel heard and supported. #patientengagement #consumerinvolvement
familyengagementinresearch.substack.com/p/5-tips-for...
5 Tips for Sharing Feedback in Youth-Researcher Partnerships
By: Brooke Allemang, Amanda St. Dennis, Linda Nguyen, Logan Wong, Sunny Yimeng Dong
familyengagementinresearch.substack.com
May 27, 2025 at 9:27 PM
5 Tips for Sharing Feedback in Youth-Researcher Partnerships
This new co-written blog post helps make feedback clear, kind, and collaborative — so youth partners feel heard and supported. #patientengagement #consumerinvolvement
familyengagementinresearch.substack.com/p/5-tips-for...
This new co-written blog post helps make feedback clear, kind, and collaborative — so youth partners feel heard and supported. #patientengagement #consumerinvolvement
familyengagementinresearch.substack.com/p/5-tips-for...
#Coproduction #PPIE #LivedExperience #ExpertsByExperience #PatientEngagement #PPI #ConsumerInvolvement
Your regular reminder that people who are labeled 'patients' by various systems also have lives, friends, families, skills and expertise, and so on... #PatientEngagement #PPI #ConsumerInvolvement
April 18, 2025 at 6:12 PM
Your regular reminder that people who are labeled 'patients' by various systems also have lives, friends, families, skills and expertise, and so on... #PatientEngagement #PPI #ConsumerInvolvement
April 18, 2025 at 5:56 PM
Your regular reminder that people who are labeled 'patients' by various systems also have lives, friends, families, skills and expertise, and so on... #PatientEngagement #PPI #ConsumerInvolvement
"Patient and public involvement in research reporting" - and the case for why we need to do better www.bmj.com/content/389/.... Grateful to have been part of this editorial team with S. Staniszewska, S. Hopewell and R. Chidebe #PatientEngagement #PPI #ConsumerInvolvement
Patient and public involvement in research reporting
More focus needed to improve PPI reporting in research
Patient and public involvement (PPI) has become a key part of health and social care research in many countries with a focus on working with or ...
www.bmj.com
April 10, 2025 at 2:37 PM
"Patient and public involvement in research reporting" - and the case for why we need to do better www.bmj.com/content/389/.... Grateful to have been part of this editorial team with S. Staniszewska, S. Hopewell and R. Chidebe #PatientEngagement #PPI #ConsumerInvolvement
An opinion from @amyprice.bsky.social and me in @bmj.com on compensation of patient partners on research teams - pushing institutions to see how fair and transparent policies are part of their commitment to equity - www.bmj.com/content/388/.... #PatientEngagement #PPI #ConsumerInvolvement
Patient partner research has a compensation crisis
Institutions must value patient partners in research with fair and transparent compensation policies, or their commitments to equity will be hollow, write Amy Price and Dawn P Richards
A conflict ar...
www.bmj.com
February 27, 2025 at 8:50 PM
An opinion from @amyprice.bsky.social and me in @bmj.com on compensation of patient partners on research teams - pushing institutions to see how fair and transparent policies are part of their commitment to equity - www.bmj.com/content/388/.... #PatientEngagement #PPI #ConsumerInvolvement
Qs for patient partners or patients generally: is there any info or guidance that would be useful for you about reading scientific papers (in general, not a specific paper)? Any feedback is appreciated! #PPI #PatientEngagement #ConsumerInvolvement
February 23, 2025 at 8:02 PM
Qs for patient partners or patients generally: is there any info or guidance that would be useful for you about reading scientific papers (in general, not a specific paper)? Any feedback is appreciated! #PPI #PatientEngagement #ConsumerInvolvement
Hey research teams/orgs that engage #PatientPartners! Please build in a very large chunk of time at your 1st team or other type of mtg for intros. This is really key to starting to build your relationship and trust. #PatientEngagement #ConsumerInvolvement #PPI /1
December 12, 2024 at 7:01 PM
Hey research teams/orgs that engage #PatientPartners! Please build in a very large chunk of time at your 1st team or other type of mtg for intros. This is really key to starting to build your relationship and trust. #PatientEngagement #ConsumerInvolvement #PPI /1
📣To all you basic/preclinical researchers 🧪🦠 out there who are not sure how you can work with patients as partners in your research, Parkinson's UK has a fantastic, practical toolkit for you here: sites.google.com/parkinsons.o... #PPI #PatientEngagement #ConsumerInvolvement
Home
This website offers practical guidance about how to involve patients and the public in laboratory based research.
A lot of guidance has been written about how to actively involve patients and the publ...
sites.google.com
November 27, 2024 at 6:03 PM
📣To all you basic/preclinical researchers 🧪🦠 out there who are not sure how you can work with patients as partners in your research, Parkinson's UK has a fantastic, practical toolkit for you here: sites.google.com/parkinsons.o... #PPI #PatientEngagement #ConsumerInvolvement
An intro to me 👋. I post on #PatientEngagement (aka #PPI or #ConsumerInvolvement) in #Research or other science-y and research-y stuff. Among other things, I'm a chemist and live with #RheumatoidArthritis. I work with people/orgs in research to help bring patient/public perspectives to their work./1
November 14, 2024 at 9:54 PM
An intro to me 👋. I post on #PatientEngagement (aka #PPI or #ConsumerInvolvement) in #Research or other science-y and research-y stuff. Among other things, I'm a chemist and live with #RheumatoidArthritis. I work with people/orgs in research to help bring patient/public perspectives to their work./1