🗣️Day 2 at #EAHAD2026! In the Women and Girls with #BleedingDisorders session, Roseline d'Oiron sharing insights on pregnancy-related challenges for women with #GlanzmannThrombasthenia. Important perspectives on maternal care. 🩸

#GlanzmannsThrombasthenia #GlanzmannThrombasthenia #ExtremelyRare #BleedingDisorders #ERIN

🩸#ExtremelyRare Bleeding Disorder of the Month: #GlanzmannThrombasthenia (GT) —a rare platelet disorder affecting daily life. 🔎 Learn more about GT & support better care access: community.ehc.eu/focus-area/e...

Being heard and understood? Getting advice and support? Meeting people like you? If you live with a bleeding disorder, what does community mean to you?

#bleedingdisorders #community #livedexperience #research #haemophilia #vonWillebrandDisease #GlanzmannThrombasthenia

#HemeSky #BloodSky

Seaside staycation or going global? Peak summer holiday time is coming, but we're looking forward to a busy schedule of projects and planning. What are your summer plans?

#GlanzmannThrombasthenia #haemophilia #vonWillebrandDisease #FactorDeficiencies #Haemcast #bleedingdisorders #research
@HemeSky

When it comes to really understanding what it's like to have a bleeding disorder, individual stories are powerful. Why not get in touch to find out how your story can help our lived experience research: loom.ly/vkd8zoE

#HemeSky #BloodSky #haemophilia #vonWillebrandDisease #GlanzmannThrombasthenia

#RareDiseaseDay supports equity in social opportunities, healthcare, & access to diagnosis & therapies for all people with a rare disease, including rare #BleedingDisorders.

Don't forget to check out our #RDD #GlanzmannThrombasthenia story: loom.ly/jLuea0c

#HemeSky #MedSky #BloodSky

For many with a rare disease, accessing diagnosis, treatment & care remains out of reach. For #RareDiseaseDay 2025, and Glanzmann's Awareness Day on 1 March, we share the story of the only person in Nigeria diagnosed with #GlanzmannThrombasthenia: loom.ly/vxqxPHA

#HemeSky #MedSky #BloodSky

We're presenting results from our GT360 study on the lived experience of #GlanzmannThrombasthenia at #EAHAD2025 AHP Day today. @katekhair.bsky.social is joining the line-up in the Nurses session on managing rare bleeding disorders, 17.30 local time. Hope to see you there!
#HemeSky #MedSky #BloodSky

Will you be at #EAHAD2025 Allied Health Professionals Day tomorrow? @katekhair.bsky.social will present results from our GT360 and VWD360 studies.

#EAHADCongress #GlanzmannThrombasthenia #vonWillebrandDisease
#HemeSky #MedSky #BloodSky

#GlanzmannThrombasthenia affects men and women, but findings in our Glanzmann’s 360 study indicate women experience more bleeds. Find out more about what women told us about living with Glanzmann’s in our blog: loom.ly/uJ7V4IU

#HemeSky #MedSky #BleedingDisorders #Haemnet

Significant & frequent bleeding & bruising reported in the largest #GlanzmannThrombasthenia cohort study, affecting capacity to participate in social activities & impacting in mental health. #raredisease #bleedingdisorders
www.rpthjournal.org/article/S247...

A new paper on our GT360 study is now published in Haemophilia journal: loom.ly/WXSU0ZU

Our blog and animated video summarise the findings, based on in-depth interviews with people who live with Glanzmann's Thrombasthenia: loom.ly/KsAddKU

#HemeSky #GlanzmannThrombasthenia #BleedingDisorders

Proud to share two new @Haemnet papers on #GlanzmannThrombasthenia that I coauthored:
Bleeding & Quality of Life: Insights into bleeding patterns & challenges in GT (DOI: 10.1016/j.rpth.2024.102586)
One Day at a Time: Daily Experiences of Living with GT (DOI: 10.1111/hae.15126)
#RareDisease