Ja, alleen als het glad is draag ik andere schoenen.
Buiten lopen op blote voeten is niet te doen. Ik heb hele moeilijke voeten: met neuropathie én ledderhose-bulten én reumabulten.
Dus vooral buiten heb ik ondersteuning nodig.
Buiten lopen op blote voeten is niet te doen. Ik heb hele moeilijke voeten: met neuropathie én ledderhose-bulten én reumabulten.
Dus vooral buiten heb ik ondersteuning nodig.
August 27, 2025 at 11:48 AM
Ja, alleen als het glad is draag ik andere schoenen.
Buiten lopen op blote voeten is niet te doen. Ik heb hele moeilijke voeten: met neuropathie én ledderhose-bulten én reumabulten.
Dus vooral buiten heb ik ondersteuning nodig.
Buiten lopen op blote voeten is niet te doen. Ik heb hele moeilijke voeten: met neuropathie én ledderhose-bulten én reumabulten.
Dus vooral buiten heb ik ondersteuning nodig.
Bumping this PSA about radiation treatment for Dupuytren's/Ledderhose because someone asked me about it just now and I realized it had been a while! If you are diagnosed with either, the doctor who diagnoses you WILL NOT KNOW THIS.
I don't think I've done this PSA on BlueSky yet: so: if you are diagnosed with Dupuytren's (hands) or Ledderhose (feet) disease, your orthopedist will probably tell you there's nothing they can do until you reach stage 4 and you have lost motion in your fingers/have lumps immobilizing your feet.
June 2, 2024 at 3:26 AM
Bumping this PSA about radiation treatment for Dupuytren's/Ledderhose because someone asked me about it just now and I realized it had been a while! If you are diagnosed with either, the doctor who diagnoses you WILL NOT KNOW THIS.
this is half the reason my feet are in, like, ballet dancer shape (the other reason is the damn Ledderhose
June 5, 2023 at 8:01 AM
this is half the reason my feet are in, like, ballet dancer shape (the other reason is the damn Ledderhose
I dunno! I've never used the foot thing because of the fucking Ledderhose disease
January 12, 2025 at 3:19 AM
I dunno! I've never used the foot thing because of the fucking Ledderhose disease
Ich habe Schnupfen, das hat manchmal schon seine Vorteile.😷 😅
Aber sie sahen gepflegt aus, daher geh ich davon aus, dass die Füße nicht gemüffelt haben.
Morbus Ledderhose riecht entgegen der Erwartung, nicht nach Leder oder Neuwagen. 🤷
Aber sie sahen gepflegt aus, daher geh ich davon aus, dass die Füße nicht gemüffelt haben.
Morbus Ledderhose riecht entgegen der Erwartung, nicht nach Leder oder Neuwagen. 🤷
January 24, 2025 at 11:05 PM
Ich habe Schnupfen, das hat manchmal schon seine Vorteile.😷 😅
Aber sie sahen gepflegt aus, daher geh ich davon aus, dass die Füße nicht gemüffelt haben.
Morbus Ledderhose riecht entgegen der Erwartung, nicht nach Leder oder Neuwagen. 🤷
Aber sie sahen gepflegt aus, daher geh ich davon aus, dass die Füße nicht gemüffelt haben.
Morbus Ledderhose riecht entgegen der Erwartung, nicht nach Leder oder Neuwagen. 🤷
Oh, in my case it's that I have Ledderhose disease (en.m.wikipedia.org/wiki/Plantar...) and the radiation did not work on it :(
Plantar fibromatosis - Wikipedia
en.m.wikipedia.org
January 2, 2025 at 12:07 PM
Oh, in my case it's that I have Ledderhose disease (en.m.wikipedia.org/wiki/Plantar...) and the radiation did not work on it :(
Depending on how far your brother's Ledderhose has progressed, the RT might still be able to help him; it can slow progression and soften the cords/nodules even in later stages for a lot of people. My oncologist told me to get my mother (stage 4 in hands + feet) down to see him too--
July 20, 2025 at 1:49 AM
Depending on how far your brother's Ledderhose has progressed, the RT might still be able to help him; it can slow progression and soften the cords/nodules even in later stages for a lot of people. My oncologist told me to get my mother (stage 4 in hands + feet) down to see him too--
You can make a difference!
I have spoken to Dr K Madhavan today. He is an oncologist in Mid and South Essex NHS (UK) and treats Dupuytren and Ledderhose.
He would like to set up a group of patient advocates who live in the region. (1)
I have spoken to Dr K Madhavan today. He is an oncologist in Mid and South Essex NHS (UK) and treats Dupuytren and Ledderhose.
He would like to set up a group of patient advocates who live in the region. (1)
July 2, 2025 at 1:29 PM
You can make a difference!
I have spoken to Dr K Madhavan today. He is an oncologist in Mid and South Essex NHS (UK) and treats Dupuytren and Ledderhose.
He would like to set up a group of patient advocates who live in the region. (1)
I have spoken to Dr K Madhavan today. He is an oncologist in Mid and South Essex NHS (UK) and treats Dupuytren and Ledderhose.
He would like to set up a group of patient advocates who live in the region. (1)
Because I referenced it while whining this morning, a repeat of the regular PSA: if you're diagnosed with Dupuytren's or Ledderhose, there IS a treatment that has an 85% chance of completely stopping the irreversible degeneration. Almost no doctors know about it.
I don't think I've done this PSA on BlueSky yet: so: if you are diagnosed with Dupuytren's (hands) or Ledderhose (feet) disease, your orthopedist will probably tell you there's nothing they can do until you reach stage 4 and you have lost motion in your fingers/have lumps immobilizing your feet.
October 30, 2023 at 1:24 AM
Because I referenced it while whining this morning, a repeat of the regular PSA: if you're diagnosed with Dupuytren's or Ledderhose, there IS a treatment that has an 85% chance of completely stopping the irreversible degeneration. Almost no doctors know about it.
Yeah, I have the POTS/MCAS/EDS trifecta and count that as one, but I also have Dupuytren's/Ledderhose! Entirely separate disorder, mechanism contradicts EDS, but also is a collagen based rare disease. The oncologist who treats my Dupuytren's says I'm the only person he's ever heard of with both.
January 10, 2024 at 9:18 PM
Yeah, I have the POTS/MCAS/EDS trifecta and count that as one, but I also have Dupuytren's/Ledderhose! Entirely separate disorder, mechanism contradicts EDS, but also is a collagen based rare disease. The oncologist who treats my Dupuytren's says I'm the only person he's ever heard of with both.
Where is the bump? If it is along your plantar fascia, it could be Ledderhose Disease/ Plantar Fibromatosis.
December 28, 2024 at 2:28 AM
Where is the bump? If it is along your plantar fascia, it could be Ledderhose Disease/ Plantar Fibromatosis.
@rahaeli.bsky.social hey, I have a relative who has fibromyalgia, probably ehlers-dunlos, probably MCAS. She's had long term severe pain in her heels and have just found out there's some kind of ganglion. You've mentioned ledderhose disease before and this feels like that, but don't know what...
March 4, 2024 at 10:52 AM
@rahaeli.bsky.social hey, I have a relative who has fibromyalgia, probably ehlers-dunlos, probably MCAS. She's had long term severe pain in her heels and have just found out there's some kind of ganglion. You've mentioned ledderhose disease before and this feels like that, but don't know what...
#SchwurbelDesTages
Auch vier Jahre nach Impfstart stirbt nur eines nicht:
Panikmache vor #Turbokrebs!
In einer parallelen Realität werden hier täglich Millionen von den über sechs Milliarden Geimpften hingerafft!
Auch vier Jahre nach Impfstart stirbt nur eines nicht:
Panikmache vor #Turbokrebs!
In einer parallelen Realität werden hier täglich Millionen von den über sechs Milliarden Geimpften hingerafft!
April 17, 2025 at 10:04 AM
#SchwurbelDesTages
Auch vier Jahre nach Impfstart stirbt nur eines nicht:
Panikmache vor #Turbokrebs!
In einer parallelen Realität werden hier täglich Millionen von den über sechs Milliarden Geimpften hingerafft!
Auch vier Jahre nach Impfstart stirbt nur eines nicht:
Panikmache vor #Turbokrebs!
In einer parallelen Realität werden hier täglich Millionen von den über sechs Milliarden Geimpften hingerafft!
Good news! The videos of the 2025 Conference presentations are now online. Check them out!
#Dupuytren #Ledderhose #Peyronie
dupuytrensymposium.org/scientific-p...
#Dupuytren #Ledderhose #Peyronie
dupuytrensymposium.org/scientific-p...
Scientific Program | International Dupuytren Symposium
dupuytrensymposium.org
July 22, 2025 at 4:03 PM
Good news! The videos of the 2025 Conference presentations are now online. Check them out!
#Dupuytren #Ledderhose #Peyronie
dupuytrensymposium.org/scientific-p...
#Dupuytren #Ledderhose #Peyronie
dupuytrensymposium.org/scientific-p...
Last review of the literature literature I did says it has a mild pain-relieving effect in early stage Ledderhose but doesn't slow progression and doesn't do anything at all for Dupuytren's -- basically it's palliative only. The RT has a much better chance of stopping it.
July 20, 2025 at 3:08 AM
Last review of the literature literature I did says it has a mild pain-relieving effect in early stage Ledderhose but doesn't slow progression and doesn't do anything at all for Dupuytren's -- basically it's palliative only. The RT has a much better chance of stopping it.
Grateful you’re spreading the word. It’s a horrifying diagnosis (I have both Ledderhose and Dupuytren’s). Meeting an RO soon and hoping RT stops this in its tracks.
January 3, 2025 at 12:38 PM
Grateful you’re spreading the word. It’s a horrifying diagnosis (I have both Ledderhose and Dupuytren’s). Meeting an RO soon and hoping RT stops this in its tracks.
Yeah, it took me an extra six months or so to notice the Ledderhose in my feet when it started than it did to notice the Dupuytren's in my hands when *it* started (different times) because my feet just always hurt, lol
February 7, 2024 at 10:14 PM
Yeah, it took me an extra six months or so to notice the Ledderhose in my feet when it started than it did to notice the Dupuytren's in my hands when *it* started (different times) because my feet just always hurt, lol
Ich sag nur Fibromatose der Plantarfaszie (Ledderhose-Kontraktur).
Hat mein exHA über Jahre für kassiert, hab ich nur nie gehabt.
Genauso wie den Kieferbruch, den mein exZA 2017 bei mir behandelt haben will.
Von der Flut an F-Diagnosen fang ich besser gar nicht erst an... 😡
Hat mein exHA über Jahre für kassiert, hab ich nur nie gehabt.
Genauso wie den Kieferbruch, den mein exZA 2017 bei mir behandelt haben will.
Von der Flut an F-Diagnosen fang ich besser gar nicht erst an... 😡
October 11, 2024 at 2:38 PM
Ich sag nur Fibromatose der Plantarfaszie (Ledderhose-Kontraktur).
Hat mein exHA über Jahre für kassiert, hab ich nur nie gehabt.
Genauso wie den Kieferbruch, den mein exZA 2017 bei mir behandelt haben will.
Von der Flut an F-Diagnosen fang ich besser gar nicht erst an... 😡
Hat mein exHA über Jahre für kassiert, hab ich nur nie gehabt.
Genauso wie den Kieferbruch, den mein exZA 2017 bei mir behandelt haben will.
Von der Flut an F-Diagnosen fang ich besser gar nicht erst an... 😡
Patientin läuft seit über einem Jahr von einem Therapieverfahren zum Nächsten (mehrheitlich sinnvolle Maßnahmen zur Diagnose).
Plantarfasziopathie / Ledderhose.
Ist aber entweder zusätzlich oder ursächlich wieder eine Baxter Neuropathie. Ich würde soweit gehen zu sagen isoliert,
Plantarfasziopathie / Ledderhose.
Ist aber entweder zusätzlich oder ursächlich wieder eine Baxter Neuropathie. Ich würde soweit gehen zu sagen isoliert,
Fußsohlen-Schmerz
Plantaraponeurose, Plantarapopathie bzw Plantarfaszitis sind "beliebte" Diagnosen. Aber, lieber Kollegen, wenn die Vorgeschichte in der Anamnese und Symptom-Schwere nicht stimmig ist, die Provokation nicht lehrbuchmäßig offensichtlich ist,
Plantaraponeurose, Plantarapopathie bzw Plantarfaszitis sind "beliebte" Diagnosen. Aber, lieber Kollegen, wenn die Vorgeschichte in der Anamnese und Symptom-Schwere nicht stimmig ist, die Provokation nicht lehrbuchmäßig offensichtlich ist,
November 22, 2024 at 5:09 PM
Patientin läuft seit über einem Jahr von einem Therapieverfahren zum Nächsten (mehrheitlich sinnvolle Maßnahmen zur Diagnose).
Plantarfasziopathie / Ledderhose.
Ist aber entweder zusätzlich oder ursächlich wieder eine Baxter Neuropathie. Ich würde soweit gehen zu sagen isoliert,
Plantarfasziopathie / Ledderhose.
Ist aber entweder zusätzlich oder ursächlich wieder eine Baxter Neuropathie. Ich würde soweit gehen zu sagen isoliert,
I also have Dupuytren's/Ledderhose Disorder and that one is definitely genetically unrelated to EDS (yes, I got TWO rare collagen-based mutations, I am a fucking medical weirdo) and if I didn't have a family history of severe cases I would have ignored it until my fingers started folding over
September 12, 2024 at 6:34 PM
I also have Dupuytren's/Ledderhose Disorder and that one is definitely genetically unrelated to EDS (yes, I got TWO rare collagen-based mutations, I am a fucking medical weirdo) and if I didn't have a family history of severe cases I would have ignored it until my fingers started folding over
Dear Dupuytren, Ledderhose or Peyronie doctor or researcher.
Did you miss our deadline? We have opened an opportunity to send in last minute abstracts for a poster presentation.
For details and how to enter, visit this page: dupuytrensymposium.org/submit-abstr...
March 24, 2025 at 1:26 PM
Dear Dupuytren, Ledderhose or Peyronie doctor or researcher.
Did you miss our deadline? We have opened an opportunity to send in last minute abstracts for a poster presentation.
For details and how to enter, visit this page: dupuytrensymposium.org/submit-abstr...
So far no double blind research. But there has been a good study for Ledderhose in the Netherlands so we hope attitudes will change slowly.
January 26, 2025 at 4:26 PM
So far no double blind research. But there has been a good study for Ledderhose in the Netherlands so we hope attitudes will change slowly.
Morbus Ledderhose...
January 28, 2025 at 4:53 PM
Morbus Ledderhose...