#LewyBody
I’m mostly sad and pissed off about all the opportunities that Alzheimer’s/ Lewy Body took away from my husband, my daughter, myself, and our family unit.
#alzheimers #lewybody #dementia
September 22, 2025 at 12:29 AM Everybody can reply
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I absolutely dislike thinking about myself as a widow, and more knowing myself as a single parent 💔
#alzheimers #lewybody #dementia
September 19, 2025 at 2:29 PM Everybody can reply
Often times, the mornings are the hardest. I should not be alone in the house. We were supposed to maybe go away for a clay residency. Or just hand out together. Go out for dinner, go hiking. Alzheimer’s sucks.
#lewybody #dementia #alzheimers
September 17, 2025 at 2:28 PM Everybody can reply
So far Alzheimer’s took away my partner and my daughter’s father. We’ve got a puppy and a matching tattoo. Not a fair trade.
#dementia #alzheimers #lewybody
September 13, 2025 at 12:47 PM Everybody can reply
I’m on my way to visit my daughter in college. It’s family weekend. C & I should be going together, that was the plan.
Alzheimer’s got in the way, I’m pissed and heartbroken about it. But life goes on.

#dementia #alzheimers #lewybody
September 11, 2025 at 5:30 PM Everybody can reply
Friendly reminder that not everyone w #LewyBody dementia #DLB has hallucinations.
Not everyone has REM sleep behavior disorder.
Not everyone has Parkinsonism.

Resources:
LBDRC.org - website includes info in 10 languages, videos, & more
LBDA.org - website is a little more extensive, incl for MDs
Home - Lewy Body Dementia Resource Center
Lewy Body Dementia Resource Center Bringing awareness and supporting with love
LBDRC.org
September 10, 2025 at 1:19 AM Everybody can reply
2 likes
I do read primary literature in my own specialty #Geriatrics, and less than a week ago there was found to be a significant direct link between #airpollution and #Dementia ( #LewyBody and #Parkinsons)

"I want you to get #dementia" is a hell of a winning message for Republicans
September 9, 2025 at 7:55 PM Everybody can reply
2 reposts 8 likes
Choosing to move to an assisted living facility is the best horrible decision I’ve ever made.
#dementia #alzheimers #lewybody
September 9, 2025 at 2:51 PM Everybody can reply
My husband was formally diagnosed with Alzheimer’s in January 2022, and switch to Lewy Body in 2024.
He passed away on August 12, on the eve of my daughter’s departure to start her college journey.

#dementia #alzheimers #lewybody
September 7, 2025 at 5:51 PM Everybody can reply
1 likes
I am a dementia survivor. I have many thoughts about it. I hope I find a Spence here to dump those thoughts and hopefully help someone who is going through what my family went through and how we are doing in the way to recovery.
#dementia #alzheimers #lewybody
September 7, 2025 at 5:43 PM Everybody can reply
1 likes
New seminar series! Join us for a talk by Dr D Milovanovic from the German Center for Neurodegenerative Diseases (DZNE), Berlin on 05/09/2025 at noon @ipnp.bsky.social. HOT TOPIC:
Evidence for Lewy Body Pathology as Condensenopathy.
@inserm.fr @upcite.bsky.social #Parkinson #lewybody
August 27, 2025 at 9:57 AM Everybody can reply
1 reposts 3 likes
We are ready to go at #AAIC2025
Booth 1046 #Lewybody #AwarenessMatters 💙
July 27, 2025 at 1:43 PM Everybody can reply
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Understand how a person may navigate their world when living with #Dementia and know what to say and do #Alzheimersdisease
#frontotemporal dementia
#Lewybody dementia
#carers #caregivers
#NHS #socialcare #family #health
July 9, 2025 at 6:47 AM Everybody can reply
My father now has an imaginary black dog. When I petted it, he cracked up and said “You put your hand through my dog.” #LewyBody
July 5, 2025 at 7:43 PM Everybody can reply
#LewyBody Dementia information now available in 9 languages -- we just added Turkish! And more to come

And also a live helpline (English only for now)
And also 2.5 hours of videos about symptoms
And more
lewybodyresourcecenter.org
Home - Lewy Body Dementia Resource Center
Lewy Body Dementia Resource Center Bringing awareness and supporting with love
lewybodyresourcecenter.org
June 25, 2025 at 11:59 PM Everybody can reply
2 likes
June 24, 2025 at 6:22 PM Everybody can reply
1 reposts 3 likes
Lou
Researching #dementia and Best Interests Assessor/DoLS. #LewyBody dementia has robbed mum of her ability to coherently string thoughts and words together. She utters word salad - albeit convincingly. When asked “are you looked after” after a long pause she said “I supp…. maybe” and laughed.
May 5, 2025 at 12:24 PM Everybody can reply
Our Training for the #dementiareview 4 the QOF in #primarycare now available- staff feel more competent, knowledgeable & skilled in communicating with people living with #Alzheimers #vascular #Lewybody & ##frontotemporal #dementia & in completing the review
#NHS #nurses #care #generalpractitioners
May 2, 2025 at 6:27 AM Everybody can reply