Our online 'Chat Together' peer support group offers a safe space for people living with #PelvicRadiationDisease to connect💙
📆 1st Wednesday each month at 7pm
For more information visit 👉prda.org.uk/chat-together/
#RTLateEffects #CancerQualityOfLife #LivingWithAndBeyondCancer
📆 1st Wednesday each month at 7pm
For more information visit 👉prda.org.uk/chat-together/
#RTLateEffects #CancerQualityOfLife #LivingWithAndBeyondCancer
Chat Together
Join our safe and supportive chat together group sessions.
prda.org.uk
October 29, 2025 at 5:00 PM
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Very much looking forward to today’s Pan London Cancer Alliances’ AHP and Psychological Therapies conference - brilliant packed programme and loads of great stuff happening on #LivingWithAndBeyondCancer 😀👏 #SuppOnc
October 16, 2025 at 8:29 AM
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Great talk from Helen McNamara on managing insomnia. So many health benefits can arise by improving people’s sleep, including those with obstructive sleep apnoea #SupportiveOncology
#LivingWithAndBeyondCancer
#UKASCC25
#LivingWithAndBeyondCancer
#UKASCC25
October 9, 2025 at 11:32 AM
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On 🚂 to Manchester for the UK Assoctn of Supportive Care in Cancer’s 2025 conference ukascc.org
Looking fwd to learning loads & meeting new and familiar faces in the world of #LivingWithAndBeyondCancer
Plus the bonus of talking about @prda.org.uk #PelvicRadiationDisease to anyone that’ll listen!
Looking fwd to learning loads & meeting new and familiar faces in the world of #LivingWithAndBeyondCancer
Plus the bonus of talking about @prda.org.uk #PelvicRadiationDisease to anyone that’ll listen!
October 7, 2025 at 3:03 PM
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Delighted to be in Sussex today for the @surreyandsussexca.bsky.social annual event on Personalised Care in Cancer and Why It Matters.
Brilliant that the Alliance is able to bring folks together to celebrate the progress on #LivingWithAndBeyondCancer as well as inspire further improvements 🙌👏
Brilliant that the Alliance is able to bring folks together to celebrate the progress on #LivingWithAndBeyondCancer as well as inspire further improvements 🙌👏
September 16, 2025 at 8:08 AM
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Fantastic to be in Chester-le-Street for the Macmillan Regional Study Day on Pelvic Radiotherapy late effects. Amazing venue @durhamcricket.bsky.social with Lumley Castle in the background. Looking forward to a superb day
@prda.org.uk #PelvicRadiationDisease #LivingWithAndBeyondCancer
@prda.org.uk #PelvicRadiationDisease #LivingWithAndBeyondCancer
September 12, 2025 at 8:37 AM
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Honoured to be speaking about #LivingWithAndBeyondCancer at Oral Oncology QoL meeting #IAOO2025
Amazing programme - am learning loads!
#CancerQualityOfLife
Amazing programme - am learning loads!
#CancerQualityOfLife
July 16, 2025 at 10:51 AM
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Sometimes the best support comes from connecting with others who truly understand🌻
Explore our support services to see how we can help people living with #PelvicRadiationDisease: prda.org.uk/support/
#LivingWithAndBeyondCancer #RTLateEffects
Explore our support services to see how we can help people living with #PelvicRadiationDisease: prda.org.uk/support/
#LivingWithAndBeyondCancer #RTLateEffects
Pelvic Radiation Disease Association Support
Support is available from the PRDA for people affected by Pelvic Radiation disease. We have a number of support services available that are free to access for people living with symptoms of PRD.
prda.org.uk
April 28, 2025 at 9:45 AM
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A wonderful day in the company of the excellent Cancer Alliances’ leadership group for #LivingWithAndBeyondCancer 🙌
Great discussions around the new cancer plan 👏😀
(Also did one of my better cheesey yolks IYKYK 🐣😬🫠)
Great discussions around the new cancer plan 👏😀
(Also did one of my better cheesey yolks IYKYK 🐣😬🫠)
April 7, 2025 at 4:19 PM
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“…surgical treatment was associated with improved survival, but also more symptom interference in general activities and work. These results may be useful in palliative surgical decision-making and informing patients during consultation for malignant bowel obstruction.”
#LivingWithAndBeyondCancer
#LivingWithAndBeyondCancer
April 3, 2025 at 7:27 AM
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Congratulations on what I’m sure has been a fabulous day! 👏👏
Will undoubtedly help further advance @nhs-wca.bsky.social great work on #LivingWithAndBeyondCancer 🙌
Will undoubtedly help further advance @nhs-wca.bsky.social great work on #LivingWithAndBeyondCancer 🙌
We are thrilled to have members of the Wessex cancer workforce joining us today for our Celebrating Personalised Care Conference! Thanks to those who submitted projects for our poster presentation - the displays look great! 🙌 😊 #PersonalisedCare #Cancer
March 6, 2025 at 6:49 PM
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📣 Don’t forget! The sooner you respond to the Govt call for evidence for the new England national cancer plan, the better, especially on #LivingWithAndBeyondCancer (my favourite subject 😀).
You get 500 words on LWBC, so please use them!
Deadline 29 April 2025
www.gov.uk/government/c...
You get 500 words on LWBC, so please use them!
Deadline 29 April 2025
www.gov.uk/government/c...
Shaping the national cancer plan
Call for evidence seeking views from individuals, professionals and organisations to inform the development of the government’s national cancer plan for England.
www.gov.uk
March 2, 2025 at 3:54 PM
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“Advancements in cancer treatment have led to a growing population of cancer survivors worldwide, who often experience premature onset of age-related conditions”
#LivingWithAndBeyondCancer
#LivingWithAndBeyondCancer
February 27, 2025 at 11:53 AM
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I had a great time at this inspirational event - see my profile for various posts I did during the day.
#CancerQualityOfLife
#LivingWithAndBeyondCancer
Many thanks to @yclared.bsky.social and all the Northern Cancer Alliance collaborations! 👏
#CancerQualityOfLife
#LivingWithAndBeyondCancer
Many thanks to @yclared.bsky.social and all the Northern Cancer Alliance collaborations! 👏
About to get underway at the Northern Cancer Alliance #CancerQualityOfLife event, with an excellent programme 👍👏
Have got 2 talks to do, with my 2 hats 🎩 🧢 (day job with NHS England and as trustee of @prda.org.uk)
Have got 2 talks to do, with my 2 hats 🎩 🧢 (day job with NHS England and as trustee of @prda.org.uk)
February 17, 2025 at 2:29 PM
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Chloe McMurray (dietitian) and Hannah Whittle (physio) giving a really informative talk about supporting patients to self-manage cancer-related fatigue
#LivingWithAndBeyondCancer
#LivingWithAndBeyondCancer
February 14, 2025 at 1:50 PM
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@lesleysmith.bsky.social presenting the national context for #LivingWithAndBeyondCancer as part of cancer alliance work here at The Northern Cancer Alliance Share and Learn event in Durham
February 14, 2025 at 9:40 AM
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The analysis is “unique in that we evaluated participants who began their treatment with robust functional status, demonstrating the association of treatment toxicities with functional decline is not limited to those already experiencing deficits.”
#LivingWithAndBeyondCancer
#LivingWithAndBeyondCancer
Relationships between patient-reported and clinician-rated toxicities and daily functioning in older adults with advanced #cancer undergoing systemic therapy.
acsjournals.onlinelibrary.wiley.com/doi/full/10....
@acscan.bsky.social
#GeriOnc #PallOnc #SuppOnc
@mycarg.bsky.social
acsjournals.onlinelibrary.wiley.com/doi/full/10....
@acscan.bsky.social
#GeriOnc #PallOnc #SuppOnc
@mycarg.bsky.social
February 14, 2025 at 6:47 AM
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📣 Please respond to the Govt call for evidence for the new England national cancer plan, especially on #LivingWithAndBeyondCancer (my favourite subject 😀).
You get 500 words on LWBC, so please use them!
Deadline 29 April 2025
www.gov.uk/government/c...
You get 500 words on LWBC, so please use them!
Deadline 29 April 2025
www.gov.uk/government/c...
February 6, 2025 at 2:20 PM
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Great to see mention of cancer survivorship studies being an important part of the role of cancer registries.
As the piece says, we need to “understand the statistics of cancer in order to provide more equitable and inclusive care for all”.
#LivingWithAndBeyondCancer
As the piece says, we need to “understand the statistics of cancer in order to provide more equitable and inclusive care for all”.
#LivingWithAndBeyondCancer
Urgent action is needed to scale-up cancer prevention and care services.
Cancer registries can play a crucial role in this.
Ahead of #WorldCancerDay, our Editorial explores the benefits and challenges of cancer registries in global cancer care: tinyurl.com/ywpr6e37
Cancer registries can play a crucial role in this.
Ahead of #WorldCancerDay, our Editorial explores the benefits and challenges of cancer registries in global cancer care: tinyurl.com/ywpr6e37
January 31, 2025 at 3:49 PM
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Brilliant to see another new #radiotherapy #LateEffects service open. Very many thanks to Macmillan & all involved. This will be a huge help to people affected by #PelvicRadiationDisease and other long term side effects of radiotherapy 😀👏
#LivingWithAndBeyondCancer
www.ouh.nhs.uk/news/article...
#LivingWithAndBeyondCancer
www.ouh.nhs.uk/news/article...
January 31, 2025 at 9:19 AM
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People experiencing symptoms that start or continue three months or more, after the end of their pelvic radiotherapy, may have #PelvicRadiationDisease.
Information and support is available from the Pelvic Radiation Disease Association:
prda.org.uk/support/
#LivingWithAndBeyondCancer
Information and support is available from the Pelvic Radiation Disease Association:
prda.org.uk/support/
#LivingWithAndBeyondCancer
January 17, 2025 at 8:00 AM
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Hi there, I’m here all things #CancerQualityOfLife #LivingWithAndBeyondCancer #CancerSurvivorship #CancerRehab #LateEffects
#PersonalisedCare #SupportiveCare #PalliativeCare #LongTermConditions #Prehabilitation #PsychoOncology #ExerciseOncology #PelvicRadiationDisease #PROMS #HealthInequalities
#PersonalisedCare #SupportiveCare #PalliativeCare #LongTermConditions #Prehabilitation #PsychoOncology #ExerciseOncology #PelvicRadiationDisease #PROMS #HealthInequalities
January 14, 2025 at 8:36 PM
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“We have two lives, and the second begins when we realise we only have one” ~ Confucius
Food for thought on my train ride home from visiting St Christopher’s Hospice and The Royal Marsden #palliativecare #livingwithandbeyondcancer #rehabiliativepalliativecare
Food for thought on my train ride home from visiting St Christopher’s Hospice and The Royal Marsden #palliativecare #livingwithandbeyondcancer #rehabiliativepalliativecare
December 12, 2024 at 9:22 PM
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Today in the #LateEffectsClinic Radiation-induced:
carotid artery stenosis
osteonecrosis of jaw
nerve damage to peroneal nerve
breast cancer
hyperparathyroidism
#LivingWithAndBeyondCancer
#CancerSurviorship
#anticipatorycare #complexcasemanagement
#silentepidemic
carotid artery stenosis
osteonecrosis of jaw
nerve damage to peroneal nerve
breast cancer
hyperparathyroidism
#LivingWithAndBeyondCancer
#CancerSurviorship
#anticipatorycare #complexcasemanagement
#silentepidemic
November 27, 2024 at 9:06 PM
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Saying hello 👋
I'm interested in #LateEffects #LivingWithAndBeyondCancer #CancerSurvivorship
Also #ResearchCapacityBuilding #ClinicalAcademicPractice opportunities for #Nurses #Midwives & #AHPs - raising standards of care!
Interested to connect, engage and learn here
Say hi! 👋
I'm interested in #LateEffects #LivingWithAndBeyondCancer #CancerSurvivorship
Also #ResearchCapacityBuilding #ClinicalAcademicPractice opportunities for #Nurses #Midwives & #AHPs - raising standards of care!
Interested to connect, engage and learn here
Say hi! 👋
November 20, 2024 at 10:05 PM
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4 likes