Just found out about #LongCOVIDAwareness2025 and #LongCOVIDMassFollow, hello lol
March 6, 2025 at 11:56 PM
Just found out about #LongCOVIDAwareness2025 and #LongCOVIDMassFollow, hello lol
Your story matters!
After completing our action, send a personalized letter about your #LongCOVID experience, needs, and policy demands.
Instructions: docs.google.com/document/d/1...
#LongCOVIDAwareness2025 #ResearchFunding #LongCOVIDPolicy #LongCOVIDAwareness #LongCOVIDAwarenessWeek⬇️
After completing our action, send a personalized letter about your #LongCOVID experience, needs, and policy demands.
Instructions: docs.google.com/document/d/1...
#LongCOVIDAwareness2025 #ResearchFunding #LongCOVIDPolicy #LongCOVIDAwareness #LongCOVIDAwarenessWeek⬇️
March 11, 2025 at 1:26 PM
Your story matters!
After completing our action, send a personalized letter about your #LongCOVID experience, needs, and policy demands.
Instructions: docs.google.com/document/d/1...
#LongCOVIDAwareness2025 #ResearchFunding #LongCOVIDPolicy #LongCOVIDAwareness #LongCOVIDAwarenessWeek⬇️
After completing our action, send a personalized letter about your #LongCOVID experience, needs, and policy demands.
Instructions: docs.google.com/document/d/1...
#LongCOVIDAwareness2025 #ResearchFunding #LongCOVIDPolicy #LongCOVIDAwareness #LongCOVIDAwarenessWeek⬇️
@nytimes.com provides a very solid overview of the current scientific understanding of #LongCOVID. Special thanks to @zalaly.bsky.social .
#LongCOVIDAwareness2025
www.nytimes.com/2025/03/10/w...
#LongCOVIDAwareness2025
www.nytimes.com/2025/03/10/w...
Covid’s Long-Term Effects on the Lungs, Gut, Brain and More (Gift Article)
Five years on, scientists are starting to understand how the virus can lead to long-term, sometimes invisible changes.
www.nytimes.com
March 10, 2025 at 11:47 AM
@nytimes.com provides a very solid overview of the current scientific understanding of #LongCOVID. Special thanks to @zalaly.bsky.social .
#LongCOVIDAwareness2025
www.nytimes.com/2025/03/10/w...
#LongCOVIDAwareness2025
www.nytimes.com/2025/03/10/w...
🚨 We made headlines! 🚨
LCC cofounder Rachel Madison was published in today’s Austin American-Statesman with a powerful OpEd on the reality of Long COVID.
Awareness matters.
#LongCOVIDAwareness2025
#MyLongCOVIDStory
#LongCOVIDMassFollow
#ClinicianEducation
@austin-statesman.com
LCC cofounder Rachel Madison was published in today’s Austin American-Statesman with a powerful OpEd on the reality of Long COVID.
Awareness matters.
#LongCOVIDAwareness2025
#MyLongCOVIDStory
#LongCOVIDMassFollow
#ClinicianEducation
@austin-statesman.com
Yes, Long COVID survivors are still out here. And we need your compassion | Opinion
“When I had cancer, I was called a fighter and a survivor," Cindy Kohler said. "But with Long COVID, suddenly I’m met with skepticism or dismissal.”
www.statesman.com
March 14, 2025 at 11:18 AM
🚨 We made headlines! 🚨
LCC cofounder Rachel Madison was published in today’s Austin American-Statesman with a powerful OpEd on the reality of Long COVID.
Awareness matters.
#LongCOVIDAwareness2025
#MyLongCOVIDStory
#LongCOVIDMassFollow
#ClinicianEducation
@austin-statesman.com
LCC cofounder Rachel Madison was published in today’s Austin American-Statesman with a powerful OpEd on the reality of Long COVID.
Awareness matters.
#LongCOVIDAwareness2025
#MyLongCOVIDStory
#LongCOVIDMassFollow
#ClinicianEducation
@austin-statesman.com
As of April 2024, 62 million U.S. adults have experienced Long COVID with 15.6 million facing severe daily impairment.
#LongCOVIDAwarenessDay #LongCOVID #LongCOVIDAwareness #FiveYearsLater #LongCOVIDAwareness2025
#LongCOVIDAwarenessDay #LongCOVID #LongCOVIDAwareness #FiveYearsLater #LongCOVIDAwareness2025
March 15, 2025 at 1:55 PM
As of April 2024, 62 million U.S. adults have experienced Long COVID with 15.6 million facing severe daily impairment.
#LongCOVIDAwarenessDay #LongCOVID #LongCOVIDAwareness #FiveYearsLater #LongCOVIDAwareness2025
#LongCOVIDAwarenessDay #LongCOVID #LongCOVIDAwareness #FiveYearsLater #LongCOVIDAwareness2025
Ignoring Long COVID has lead to increased chronic disease prevalence, financial and medical hardship, and further workforce disruption.
#LongCOVIDAwarenessDay #LongCOVID #LongCOVIDAwareness #FiveYearsLater #LongCOVIDAwareness2025
#LongCOVIDAwarenessDay #LongCOVID #LongCOVIDAwareness #FiveYearsLater #LongCOVIDAwareness2025
March 15, 2025 at 1:55 PM
Ignoring Long COVID has lead to increased chronic disease prevalence, financial and medical hardship, and further workforce disruption.
#LongCOVIDAwarenessDay #LongCOVID #LongCOVIDAwareness #FiveYearsLater #LongCOVIDAwareness2025
#LongCOVIDAwarenessDay #LongCOVID #LongCOVIDAwareness #FiveYearsLater #LongCOVIDAwareness2025
What have you or are you doing this week to support Long COVID Awareness? Post your participation or support for actions and events in pictures, videos, posters, or sharing other peoples actions and events and more. Let's show the world how strong our community is! #LongCOVIDAwareness2025
March 16, 2025 at 12:35 AM
What have you or are you doing this week to support Long COVID Awareness? Post your participation or support for actions and events in pictures, videos, posters, or sharing other peoples actions and events and more. Let's show the world how strong our community is! #LongCOVIDAwareness2025
Gearing up for Long Covid Awareness Day on March 15th, not to be overshadowed by everyone’s favorite math celebration on Pi Day.
#longcovidawareness2025
#C19LAP
#longcovid
#longcovidawareness2025
#C19LAP
#longcovid
March 10, 2025 at 10:02 PM
Gearing up for Long Covid Awareness Day on March 15th, not to be overshadowed by everyone’s favorite math celebration on Pi Day.
#longcovidawareness2025
#C19LAP
#longcovid
#longcovidawareness2025
#C19LAP
#longcovid
Això és dimarts
📢18 de març 2025
a la llibreria @LibreriaALIBRI amb l'autora #TeresaAlverez @cristinarasob.bsky.social #CIPAIS i modera @oscaroscar-m.bsky.social
#LongCOVIDAwareness2025
#LongCovidMakeUsOne
#5anys
📢18 de març 2025
a la llibreria @LibreriaALIBRI amb l'autora #TeresaAlverez @cristinarasob.bsky.social #CIPAIS i modera @oscaroscar-m.bsky.social
#LongCOVIDAwareness2025
#LongCovidMakeUsOne
#5anys
March 11, 2025 at 8:41 PM
Això és dimarts
📢18 de març 2025
a la llibreria @LibreriaALIBRI amb l'autora #TeresaAlverez @cristinarasob.bsky.social #CIPAIS i modera @oscaroscar-m.bsky.social
#LongCOVIDAwareness2025
#LongCovidMakeUsOne
#5anys
📢18 de març 2025
a la llibreria @LibreriaALIBRI amb l'autora #TeresaAlverez @cristinarasob.bsky.social #CIPAIS i modera @oscaroscar-m.bsky.social
#LongCOVIDAwareness2025
#LongCovidMakeUsOne
#5anys
🙌 Thank an advocate!
#LongCOVID organizations, groups, and advocates work tirelessly for change. Show your appreciation by tagging them and letting them know their work matters!
#LongCOVIDAwareness2025 #ThankYouAdvocates #LongCOVIDSupport ⬇️
#LongCOVID organizations, groups, and advocates work tirelessly for change. Show your appreciation by tagging them and letting them know their work matters!
#LongCOVIDAwareness2025 #ThankYouAdvocates #LongCOVIDSupport ⬇️
March 10, 2025 at 1:27 PM
🙌 Thank an advocate!
#LongCOVID organizations, groups, and advocates work tirelessly for change. Show your appreciation by tagging them and letting them know their work matters!
#LongCOVIDAwareness2025 #ThankYouAdvocates #LongCOVIDSupport ⬇️
#LongCOVID organizations, groups, and advocates work tirelessly for change. Show your appreciation by tagging them and letting them know their work matters!
#LongCOVIDAwareness2025 #ThankYouAdvocates #LongCOVIDSupport ⬇️
🩺 Contribute to the #LongCOVID Providers List!
Help expedite the location of quality care for others suffering. View providers or recommend addition or removal from the list here: bit.ly/C19LAPLCPROV...
#LongCOVIDAwareness2025 #LongCOVIDCare #LongCOVIDProvidersList ⬇️
Help expedite the location of quality care for others suffering. View providers or recommend addition or removal from the list here: bit.ly/C19LAPLCPROV...
#LongCOVIDAwareness2025 #LongCOVIDCare #LongCOVIDProvidersList ⬇️
March 10, 2025 at 1:27 PM
🩺 Contribute to the #LongCOVID Providers List!
Help expedite the location of quality care for others suffering. View providers or recommend addition or removal from the list here: bit.ly/C19LAPLCPROV...
#LongCOVIDAwareness2025 #LongCOVIDCare #LongCOVIDProvidersList ⬇️
Help expedite the location of quality care for others suffering. View providers or recommend addition or removal from the list here: bit.ly/C19LAPLCPROV...
#LongCOVIDAwareness2025 #LongCOVIDCare #LongCOVIDProvidersList ⬇️
Covid and the heart:
👉Increases risk of heart attacks, strokes, damage to the heart muscle and irregular heart beat (arrhythmia)
👉A large study found having Covid doubled the risk of a major cardiovascular event for up to 3 years
#LongCOVIDAwareness2025 #CovidIsNotOver #LongCovid
👉Increases risk of heart attacks, strokes, damage to the heart muscle and irregular heart beat (arrhythmia)
👉A large study found having Covid doubled the risk of a major cardiovascular event for up to 3 years
#LongCOVIDAwareness2025 #CovidIsNotOver #LongCovid
March 14, 2025 at 2:18 PM
Covid and the heart:
👉Increases risk of heart attacks, strokes, damage to the heart muscle and irregular heart beat (arrhythmia)
👉A large study found having Covid doubled the risk of a major cardiovascular event for up to 3 years
#LongCOVIDAwareness2025 #CovidIsNotOver #LongCovid
👉Increases risk of heart attacks, strokes, damage to the heart muscle and irregular heart beat (arrhythmia)
👉A large study found having Covid doubled the risk of a major cardiovascular event for up to 3 years
#LongCOVIDAwareness2025 #CovidIsNotOver #LongCovid
At least 6 Million children in the US have #longcovid.
Cases are severely under-reported, with many facing chronic absenteeism and academic punishment.
Many of feel isolated. They may be harmed for life.
This breaks my heart. 💔
#LongCOVIDAwareness2025
#chronicillness
#LongCOVIDAwarenessDay
Cases are severely under-reported, with many facing chronic absenteeism and academic punishment.
Many of feel isolated. They may be harmed for life.
This breaks my heart. 💔
#LongCOVIDAwareness2025
#chronicillness
#LongCOVIDAwarenessDay
March 15, 2025 at 3:20 PM
At least 6 Million children in the US have #longcovid.
Cases are severely under-reported, with many facing chronic absenteeism and academic punishment.
Many of feel isolated. They may be harmed for life.
This breaks my heart. 💔
#LongCOVIDAwareness2025
#chronicillness
#LongCOVIDAwarenessDay
Cases are severely under-reported, with many facing chronic absenteeism and academic punishment.
Many of feel isolated. They may be harmed for life.
This breaks my heart. 💔
#LongCOVIDAwareness2025
#chronicillness
#LongCOVIDAwarenessDay
"Today is #LongCOVIDAwarenessDay & I'm wearing teal to raise awareness for #LongCOVID & its impact on millions! Awareness leads to change. Join me and wear teal to show your support! #LongCOVIDAwareness2025 #WearTealForLongCOVID #PublicHealth
March 15, 2025 at 11:25 PM
"Today is #LongCOVIDAwarenessDay & I'm wearing teal to raise awareness for #LongCOVID & its impact on millions! Awareness leads to change. Join me and wear teal to show your support! #LongCOVIDAwareness2025 #WearTealForLongCOVID #PublicHealth
I also want to thank all researchers working to prevent, treat & cure #longcovid. 💖
A big thank you, too, to all patients who provide input, funds, time or their bodies to improve Long Covid knowledge and research. 💕
And to our caretakers, we are forever indebted. 🥰
#LongCOVIDAwareness2025
A big thank you, too, to all patients who provide input, funds, time or their bodies to improve Long Covid knowledge and research. 💕
And to our caretakers, we are forever indebted. 🥰
#LongCOVIDAwareness2025
March 14, 2025 at 8:17 PM
I also want to thank all researchers working to prevent, treat & cure #longcovid. 💖
A big thank you, too, to all patients who provide input, funds, time or their bodies to improve Long Covid knowledge and research. 💕
And to our caretakers, we are forever indebted. 🥰
#LongCOVIDAwareness2025
A big thank you, too, to all patients who provide input, funds, time or their bodies to improve Long Covid knowledge and research. 💕
And to our caretakers, we are forever indebted. 🥰
#LongCOVIDAwareness2025
Today is the first day of #LongCovidAwarenessWeek. Take a look at the resources from Julie below for a complete schedule and links.
#LongCovidAwareness2025 #CovidIsNotOver #StopLongCovid #FundLongCovidResearch #LongCovid
#LongCovidAwareness2025 #CovidIsNotOver #StopLongCovid #FundLongCovidResearch #LongCovid
We are thrilled to share our calendar of events leading up to #LongCOVIDAwarenessDay. This is a collaboration between Brigham and Women's COVID Recovery Center and Beth Israel Deaconess Medical Center's Covid & Critical Illness Recovery Program.
Folder of events:
drive.google.com/drive/folder...
1/
Folder of events:
drive.google.com/drive/folder...
1/
March 10, 2025 at 6:28 PM
Today is the first day of #LongCovidAwarenessWeek. Take a look at the resources from Julie below for a complete schedule and links.
#LongCovidAwareness2025 #CovidIsNotOver #StopLongCovid #FundLongCovidResearch #LongCovid
#LongCovidAwareness2025 #CovidIsNotOver #StopLongCovid #FundLongCovidResearch #LongCovid
I talk to a lot of people about #longcovid and they say things like they have slowed processing speed, memory loss, more GI issues, potential POTS issues, etc. Covid is going to be affecting us for years to come.
#CovidIsNotOver #LongCOVIDAwareness2025
#CovidIsNotOver #LongCOVIDAwareness2025
March 14, 2025 at 4:54 PM
I talk to a lot of people about #longcovid and they say things like they have slowed processing speed, memory loss, more GI issues, potential POTS issues, etc. Covid is going to be affecting us for years to come.
#CovidIsNotOver #LongCOVIDAwareness2025
#CovidIsNotOver #LongCOVIDAwareness2025
I have had #LongCOVID for:
1839 days
or
5 years, 13 days
or
60 months, 13 days
or
44,136 hours
or
2,648,160 minutes
or
158,889,600 seconds
Live in Switzerland
#LongCOVIDAwareness2025
#CureLongCovidNow
#UnitedForLongCovid
#ILCAD2025
#LongCovidAwarenessDay
1839 days
or
5 years, 13 days
or
60 months, 13 days
or
44,136 hours
or
2,648,160 minutes
or
158,889,600 seconds
Live in Switzerland
#LongCOVIDAwareness2025
#CureLongCovidNow
#UnitedForLongCovid
#ILCAD2025
#LongCovidAwarenessDay
March 15, 2025 at 1:00 PM
I have had #LongCOVID for:
1839 days
or
5 years, 13 days
or
60 months, 13 days
or
44,136 hours
or
2,648,160 minutes
or
158,889,600 seconds
Live in Switzerland
#LongCOVIDAwareness2025
#CureLongCovidNow
#UnitedForLongCovid
#ILCAD2025
#LongCovidAwarenessDay
1839 days
or
5 years, 13 days
or
60 months, 13 days
or
44,136 hours
or
2,648,160 minutes
or
158,889,600 seconds
Live in Switzerland
#LongCOVIDAwareness2025
#CureLongCovidNow
#UnitedForLongCovid
#ILCAD2025
#LongCovidAwarenessDay
Today #LongCOVID patient advocates were removed from the AHRQ #LongCOVIDCareNetwork at the direction of @HHSGov due to a contract being terminated by #ExecutiveOrder.
The initiative remains, but the #patients do not. #NothingAboutUsWithoutUs
#LongCOVIDAwareness2025 IS A MUST!
The initiative remains, but the #patients do not. #NothingAboutUsWithoutUs
#LongCOVIDAwareness2025 IS A MUST!
March 7, 2025 at 2:55 AM
Today #LongCOVID patient advocates were removed from the AHRQ #LongCOVIDCareNetwork at the direction of @HHSGov due to a contract being terminated by #ExecutiveOrder.
The initiative remains, but the #patients do not. #NothingAboutUsWithoutUs
#LongCOVIDAwareness2025 IS A MUST!
The initiative remains, but the #patients do not. #NothingAboutUsWithoutUs
#LongCOVIDAwareness2025 IS A MUST!
I joined #LongCOVIDAwareness2025 to fight for #LongCOVID recognition, treatments, cures, research, funding, and prevention. Join me & do not let the advocacy stop today!
March 15, 2025 at 11:48 PM
I joined #LongCOVIDAwareness2025 to fight for #LongCOVID recognition, treatments, cures, research, funding, and prevention. Join me & do not let the advocacy stop today!
Complete our 30-second action to contact the President, VP, Congress, Governors, & state legislators.
Demand action for #LongCOVID NOW! 🔗https://bit.ly/LCA25AN
#LongCOVIDAwareness2025 #LongCOVIDAwareness #LongCOVIDAwarenessWeek #ContactNationalLeadership #LongCOVIDPolicy ⬇️
Demand action for #LongCOVID NOW! 🔗https://bit.ly/LCA25AN
#LongCOVIDAwareness2025 #LongCOVIDAwareness #LongCOVIDAwarenessWeek #ContactNationalLeadership #LongCOVIDPolicy ⬇️
March 11, 2025 at 1:26 PM
Complete our 30-second action to contact the President, VP, Congress, Governors, & state legislators.
Demand action for #LongCOVID NOW! 🔗https://bit.ly/LCA25AN
#LongCOVIDAwareness2025 #LongCOVIDAwareness #LongCOVIDAwarenessWeek #ContactNationalLeadership #LongCOVIDPolicy ⬇️
Demand action for #LongCOVID NOW! 🔗https://bit.ly/LCA25AN
#LongCOVIDAwareness2025 #LongCOVIDAwareness #LongCOVIDAwarenessWeek #ContactNationalLeadership #LongCOVIDPolicy ⬇️
Did you know ~ 60 million people in the U.S. have a form of #LongCOVID, & the number keeps growing. Yet, there are no approved treatments or cures, or urgency from #policymakers. We deserve better! Share to spread #LongCOVIDAwareness2025 #PublicHealth #DisabilityRights
March 16, 2025 at 12:41 AM
Did you know ~ 60 million people in the U.S. have a form of #LongCOVID, & the number keeps growing. Yet, there are no approved treatments or cures, or urgency from #policymakers. We deserve better! Share to spread #LongCOVIDAwareness2025 #PublicHealth #DisabilityRights
Long COVID is not vaccine injury. Long COVID occurs after a COVID-19 infection. Both conditions deserve attention and support. Conflation harms both.
#LongCOVIDAwarenessDay #LongCOVID #LongCOVIDAwareness #FiveYearsLater #LongCOVIDAwareness2025
#LongCOVIDAwarenessDay #LongCOVID #LongCOVIDAwareness #FiveYearsLater #LongCOVIDAwareness2025
March 15, 2025 at 1:55 PM
Long COVID is not vaccine injury. Long COVID occurs after a COVID-19 infection. Both conditions deserve attention and support. Conflation harms both.
#LongCOVIDAwarenessDay #LongCOVID #LongCOVIDAwareness #FiveYearsLater #LongCOVIDAwareness2025
#LongCOVIDAwarenessDay #LongCOVID #LongCOVIDAwareness #FiveYearsLater #LongCOVIDAwareness2025
At least 6 million children in the U.S. have Long COVID. Cases are severely underreported w/ many facing chronic absenteeism & academic punishment.
#LongCOVIDAwarenessDay #LongCOVID #LongCOVIDAwareness #FiveYearsLater #LongCOVIDAwareness2025
#LongCOVIDAwarenessDay #LongCOVID #LongCOVIDAwareness #FiveYearsLater #LongCOVIDAwareness2025
March 15, 2025 at 1:55 PM
At least 6 million children in the U.S. have Long COVID. Cases are severely underreported w/ many facing chronic absenteeism & academic punishment.
#LongCOVIDAwarenessDay #LongCOVID #LongCOVIDAwareness #FiveYearsLater #LongCOVIDAwareness2025
#LongCOVIDAwarenessDay #LongCOVID #LongCOVIDAwareness #FiveYearsLater #LongCOVIDAwareness2025
I didn't realize how often I think about Long COVID's impact on life expectancy. Not until I saw someone else on my tl bring it up. It haunts me, especially when there's still so much I want to do. #LongCOVIDAwareness2025 #LongCOVIDMassFollow
March 16, 2025 at 6:00 AM
I didn't realize how often I think about Long COVID's impact on life expectancy. Not until I saw someone else on my tl bring it up. It haunts me, especially when there's still so much I want to do. #LongCOVIDAwareness2025 #LongCOVIDMassFollow