#LongCOVIDAwarenessWeek
LightNews LightNews
c19lap.bsky.social
Your story matters!

After completing our action, send a personalized letter about your #LongCOVID experience, needs, and policy demands.

Instructions: docs.google.com/document/d/1...

#LongCOVIDAwareness2025 #ResearchFunding #LongCOVIDPolicy #LongCOVIDAwareness #LongCOVIDAwarenessWeek⬇️
Background image of a person holding a smartphone near a laptop, appearing to type. White text overlay: "Post about how recent government actions have impacted you & why Long COVID programs & initiatives matter." Bottom section features a teal and black banner with a Long COVID Awareness ribbon, and the date "Tuesday, March 11th." Small caption: "A Day for Recognizing the Failures or Successes of Government Response."
March 11, 2025 at 1:26 PM
longcovidmommy.bsky.social
Thank you to anyone who participated in the #longcovidawarenessweek moment of silence 💙💙.

With this post, I will add the remainder of today's #LongCovid hourly facts. I am exhausted and in a lot of pain. In the #chronicillness world, we say, "I have no more spoons 🥄🥄."

#LivingMyLongCovidLife
March 15, 2025 at 7:44 PM
covid.aktion.network
No plan for COVID = no plan for long COVID survivors.
Do more to stop the spread.
Do more to end the pandemic.

#COVIDisntOver #longcovidawarenessday #longcovidawareness #longcovidawarenessweek #ILCAD2025 #stopthespread #covidisnotover #cdnhealth
Large bold text. Gothic sans-serif font. NO PLAN FOR COVID. (further down, smaller text, a list with heading). No Plan for: economic growth. ER closures. service industry. workers' rights. hospital staff shortages. small businesses. mental health. teacher shortages. family doctors. healthcare privatization. long-term care. public safety. long COVID survivors. healthcare access. entertainment sector. hospital wait times. education. rural healthcare. events industry. homelessness. health. anything. (further down large bold text) FIX COVID. (blue right arrow emoji square) (smaller) FIX CONNECTED "PROBLEMS". (then in handwritten script font) #COVIDisntOVER #STOPtheSPREAD #NotMILD #SafeCOMMUNITY (bottom small) circle with line thru it and inverse colored letters for covid.aktion.network: cAn.
March 12, 2025 at 2:32 PM
k-a-kunst.bsky.social
passend zur gerade laufenden #LongCovidAwarenessWeek
March 11, 2025 at 12:27 PM
hollychessman.bsky.social
Today is the first day of #LongCovidAwarenessWeek. Take a look at the resources from Julie below for a complete schedule and links.

#LongCovidAwareness2025 #CovidIsNotOver #StopLongCovid #FundLongCovidResearch #LongCovid
curelongcovid.bsky.social Julie Sullivan @curelongcovid.bsky.social · Mar 4
We are thrilled to share our calendar of events leading up to #LongCOVIDAwarenessDay. This is a collaboration between Brigham and Women's COVID Recovery Center and Beth Israel Deaconess Medical Center's Covid & Critical Illness Recovery Program.
Folder of events:
drive.google.com/drive/folder...
1/
March 10, 2025 at 6:28 PM
lastcovidwave.bsky.social
Fix COVID. Survivors need support. But not by sending them back into danger. #covidisnotover

We're not talking about rebuilding Ukraine before ending the war.
#covidisntover #LongCovidAwarenessDay #LongCovidAwarenessWeek #ILCAD2025 #longcovid #cdnhealth covid.aktion.network/%F0%9F%92%AF/
💯
STOP SENDING SURVIVORS BACK INTO DANGER
covid.aktion.network
March 12, 2025 at 12:42 AM
covid.aktion.network
We need governments and officials to make Covid a priority. Let’s make Covid so visible the immense and wide-ranging impacts of Covid cannot be ignored. #COVIDisntOver #longcovidawarenessday #longcovidawareness #longcovidawarenessweek #ILCAD2025 #stopthespread #longcovid #covidisnotover
Large bold red text on white. Gothic sans-serif font. 100% OF NEW LONG COVID CASES ARE CAUSED BY COVID INFECTIONS (smaller) DO MORE TO STOP THE SPREAD. (then in script font) #COVIDisntOVER #STOPtheSPREAD #NotMILD #SafeCOMMUNITY (bottom small in black) circle with line thru it and inverse colored letters for covid.aktion.network: cAn.
March 11, 2025 at 10:33 PM
longcovidmommy.bsky.social
TODAY IS #LongCOVIDAwarenessWeek

Fact #5

Here's my lovely post #Covid medical list...

Anxiety
Inflammatory arthritis
Muscle tension dysphonia
Inappropriate sinus tachycardia
High risk medication use
Osteoarthritis
S/P carpal tunnel release
Post-acute sequelae of SARS-CoV-2 infection (Long Covid)
March 15, 2025 at 5:13 PM
c19lap.bsky.social
Complete our 30-second action to contact the President, VP, Congress, Governors, & state legislators.

Demand action for #LongCOVID NOW! 🔗https://bit.ly/LCA25AN

#LongCOVIDAwareness2025 #LongCOVIDAwareness #LongCOVIDAwarenessWeek #ContactNationalLeadership #LongCOVIDPolicy ⬇️
Background image of the U.S. Capitol dome. White text overlay: "Send a personalized letter about your Long COVID experience/needs/requests to the president, VP, congress, governors, and U.S. state legislators." Bottom section has a teal and black banner with the Long COVID Awareness ribbon, and the date "Tuesday, March 11th." Small caption: "A Day for Recognizing the Failures or Successes of Government Response."
March 11, 2025 at 1:26 PM
longcovidmommy.bsky.social
TODAY IS #LongCOVIDAwarenessWeek

Fact#3
March 15, 2025 at 3:07 PM
longcovidland.bsky.social
"You Don't Want This"
#LongCovidAwarenessWeek #CureLongCovidNow
longcovidland.com/you-dont-wan...
You Don’t Want This
@DebHolloway Remember the hundreds of times I told you “You don’t want this. Not for you, your kids, your grandkids, your colleagues, your community?” I & many others warned you that the decline was t...
longcovidland.com
March 13, 2025 at 11:43 AM
k-a-kunst.bsky.social
Tag 3 - #LongCovidAwarenessWeek

#LongCovidAwereness #CovidIsNotOver #MaskUp #CleanAir
mit rotem Kugelschreiber geschrieben: "long covid - das risiko steigt mit jeder covid-infektion - es kann jede*n treffen - #maskup - #cleanair"
March 12, 2025 at 6:48 AM
mdueck.bsky.social
Is there any connection between Long COVID and foot neuropathy? #LongCOVIDAwarenessWeek
March 15, 2025 at 5:23 AM
lcaireland.bsky.social
Before #LongCovidAwarenessDay kicks off, a reminder of the findings of the FADA study; the largest #Irish study to date on #LongCovid prevalence (published Dec 24).
(Data from 18+ only)

#LongCovid #LongCOVIDAwarenessWeek #March #Covid #Ireland #LongCovidKids #LongCovidAwareness
Screenshot of LCAI FB post about HSE FADA study results Screenshot of LCAI FB post about HSE FADA study results Screenshot of LCAI FB post about HSE FADA study results
March 15, 2025 at 7:26 AM
communitycatalyst.org
Important to note, specially during #LongCOVIDAwarenessWeek!
dancingrainorshine.bsky.social dancingrainorshine.bsky.social @dancingrainorshine.bsky.social · Mar 12
I’d like to add as a woman experiencing long covid which can impact multiple symptoms within the body leading to disability and impacts women at higher rates than men. COVID is still active and women can develop long covid even with a mild infection or even with an asymptomatic infection.
March 13, 2025 at 1:45 PM
elisaperego78.bsky.social
This is #LongCOVIDAwarenessWeek. People living with Long Covid and allies across the world are coming together to raise awareness about Long Covid. Advocacy efforts will culminate on 15 March, the Awareness Day. There are so many advocacy initiatives I spotted online 🔥 Thanks!
March 14, 2025 at 12:13 PM
toolongcovid.bsky.social
As we head for five years in #longcovidawarenessweek and five years for me, personally

It's shocking that there are no supports or clinics in place for #longcovid in New Zealand

It's shocking that Long Covid was completely excluded from both phases of the Covid inquiry

It's time for action
March 10, 2025 at 8:35 PM
kaisasaurio.bsky.social
Kuvassa minä vähän ennen kuin sain long covidin. Sairastumisen jälkeen pienestäkin rasituksesta seurasi PEM-oireita eli lamauttavaa uupumusta ja sekavuutta. Nyt yli vuosi myöhemmin kävely ja kevyt jooga on edelleen raskainta mitä voin tehdä.
#LongCovidAwarenessWeek
March 12, 2025 at 2:43 PM
docteure19.bsky.social
#LongCovidAwarenessWeek
#LetsMakeLongCovidVisible

@cancovsoc.bsky.social
March 14, 2025 at 11:19 AM
k-a-kunst.bsky.social
tag 5 - #LongCovidAwarenessWeek

#LongCovidAwereness #CovidIsNotOver #MaskUp #CleanAir
schwarzer bunstift auf Papier, Buchstaben als Auslassungen in schraffierten flächen: "long covid - wir werden immer mehr- es ist vermeidbar - #maskup - #cleanair"
March 14, 2025 at 7:32 AM
longcovidadvoc.com
The timing to release the details of horrendous cuts to #DisabilityBenefits during #LongCovidAwarenessWeek shows particular callousness.

5 yrs of the greatest mass disabling event in modern times, that is breaking society.

Shows an inhumane level of disconnect & state violence.
francesryan.bsky.social Frances Ryan @francesryan.bsky.social · Mar 11
“Every time you see a headline on “the cost of the benefits bill”, what you are really reading is “the cost of disabled people”. 

My col. on Labour’s reported benefit cuts and the toxic narrative of the “moral” virtue of work. www.theguardian.com/commentisfre...
There is a shameful tradition of demonising disabled people. Why is Labour reigniting it? | Frances Ryan
Ministers run away from a wealth tax and then concoct a punitive benefits system. They have made that choice and it’s immoral, says Guardian columnist Frances Ryan
www.theguardian.com
March 11, 2025 at 6:05 PM
elisaperego78.bsky.social
#LongCovidAwarenessWeek
#LongCovid

threadreaderapp.com/thread/19005...
Thread by @elisaperego78 on Thread Reader App
@elisaperego78: This is #LongCOVIDAwarenessWeek. People living with Long Covid and allies across the world are coming together to raise awareness about Long Covid. Advocacy efforts will culminate on 1...
threadreaderapp.com
March 14, 2025 at 2:06 PM
coupdegraz7.bsky.social
#auspol #LongCOVIDAwarenessWeek
emergeaustralia.bsky.social Emerge Australia @emergeaustralia.bsky.social · Feb 19
Save the date for Australia’s Long COVID Awareness Week! 📅 From 10-15 March 2025, join Emerge Australia and be part of the national & online movement to raise awareness about Long COVID. More details coming soon!
February 19, 2025 at 4:36 AM
lastcovidwave.bsky.social
#LongCovidAwarenessDay gathering? Just don't. Free masks & you-do-you aren't getting us out of this. Why this week co-opted? Long Covid isn't the pandemic. COVID is the pandemic. Stop focusing on the result. Fix the PROBLEM first. #COVIDisntOver #longcovidawarenessweek #ILCAD2025 #stayhome
March 14, 2025 at 3:07 AM
batemanhornecenter.bsky.social
Dr. Bateman discusses how Long COVID research is translating into better care for Long COVID, ME/CFS, & related conditions. From growing networks to global medical education—change is happening! 🩺📚
Read more: loom.ly/lgIzGrY
#LongCOVIDAwarenessWeek #LongCOVID #MECFS
Are Long COVID Research and Education Leading to Better Treatment and Care?
The answer is yes—though progress is painfully slow. Still, I see significant forward movement, and I remain hopeful. The number of scientists and clinicians engaged in Long COVID and comorbid…
loom.ly
March 14, 2025 at 6:58 PM