#PoTSAwarenessDay
Today is POTS Awareness Day.

We’re raising visibility for POTS and orthostatic intolerance (OI), common in ME/CFS and Long COVID.

Look back at this month’s posts & next week for more.

#POTSAwarenessDay #POTS #MECFS #LongCOVID #OI
October 25, 2025 at 3:57 PM
Today is #POTSAwarenessDay This is truly debilitating. Combined with #MECFS it's a recipe for chaos. Overreaction (or under-reaction) and paradoxical responses to normal life. It affects people differently. You lose trust in your body. There are some treatments but no cure.
October 25, 2025 at 1:09 PM
💜 It’s #PoTSAwarenessDay 2025
#Covid uncovered what many already knew — #PoTS changes everything.

Many with #LongCovid are now being diagnosed with #PoTS — causing dizziness, brain fog, racing heart, fatigue + more.

💬 Have you been diagnosed after Long Covid?
October 25, 2025 at 8:50 AM
Today is #PoTSAwarenessDay 💜

I have #PoTS as part of my #LongCovid — and it’s given me my most debilitating symptom: constant lightheadedness & presyncope.

For the last 5 years, I’ve felt like I’m going to pass out every time I move. It’s been hellish.

🧵👇
October 25, 2025 at 3:06 PM
October 25, 2024 at 10:10 AM
Heute ist #PoTSawarenessDay

#PoTS tritt auch im Sitzen auf❗

Zwangsweises Aufrichten kann den Tod nach sich ziehen❗

Es kann Training unmöglich machen❗

Es ist eine Disregulation des autonomen Nervensystems, das die Anpassung der Blutgefäße an Orthosstase nicht mehr schafft❗
What is PoTS?
YouTube video by PoTS UK
youtu.be
October 25, 2024 at 10:43 AM
💜Make a pledge to raise awareness of #PoTS throughout October #DysautonomiaAwarenessMonth
1) Share or take action with @UKPoTs daily posts/ideas.
2) Pledge an activity you enjoy and explain on your socials.
💜More details: potsuk.org/wp-content/u...
#PoTSAwarenessDay @DysSupport
October 20, 2024 at 11:33 AM
💜Make a pledge to raise awareness of #PoTS throughout October #DysautonomiaAwarenessMonth
1) Share or take action with @UKPoTs daily posts/ideas.
2) Pledge an activity you enjoy and explain on your socials.
💜More details: Postural Tachycardia Syndrome
@UKPoTS
#PoTSAwarenessDay @DysSupport
October 20, 2024 at 11:43 AM
De nombreux malades #CovidLong souffrent du syndrome de tachycardie orthostatique posturale (#POTS)

Aujourd'hui c'est la journée de sensibilisation au POTS.

✨Soutien à tous les malades✨

#ApresJ20
#PotsAwareness
#PotsAwarenessDay
Plus d'infos 👇
October 25, 2023 at 10:32 AM
💙 Aujourd’hui, pensons à toutes celles et ceux qui vivent avec le #POTS.
Leur force est immense, même quand leur corps les trahit.
Continuons à informer, soutenir, et espérer des avancées scientifiques.

#POTSawarenessDay #POTSawareness #Dysautonomia #Apresj20 #CovidLong
October 25, 2025 at 4:59 PM
October 25, 2024 at 12:05 PM
Heute ist #PoTSAwarenessDay

Habe ich fast mein ganzes Leben mehr oder weniger.

Es wird immer noch nicht bei #GdB berücksichtigt ❗

Hab noch nie verstehen können, dass Leute einfach so stehen können, ohne zu leiden.

Nicht das ☙ ist das Problem, sondern Sauerstoffmangel im 🧠 ❗

...
October 25, 2025 at 1:50 PM
#PoTSAwarenessDay
When I first discovered my blue-purple feet, I couldn't classify it, until I found out that it only happened/happens when I was/am in an upright position & at the same time I have problems finding words,dizziness,tremors, visual disturbances,racing heart, fainting & much more. 1/2
October 25, 2024 at 12:58 PM
October 25, 2024 at 2:11 PM
#PoTSAwarenessDay

Den hätte ich gerne, #PoTS - Awareness - Hase.

plushiedreadfuls.com/products/plush…
Postural Orthostatic Tachycardia Syndrome (POTS) Rabbit #plushcollection
YouTube video by American McGee
youtube.com
October 25, 2024 at 5:54 PM
Heute ist #PoTSawarenessDay

Als wegen #PoTS Sitzen in der Schule nicht mehr möglich war, und ich eine machbar Körperhaltung auf dem Stuhl einnehmen musste, hatte sich der Klassenlehrer mächtig aufgeregt, weil ich auf sein Mobbing nicht mehr reagierte.

Ich war dem Tod nahe❗

...
Heute ist #PoTSawarenessDay

#PoTS tritt auch im Sitzen auf❗

Zwangsweises Aufrichten kann den Tod nach sich ziehen❗

Es kann Training unmöglich machen❗

Es ist eine Disregulation des autonomen Nervensystems, das die Anpassung der Blutgefäße an Orthosstase nicht mehr schafft❗
What is PoTS?
YouTube video by PoTS UK
youtu.be
October 25, 2024 at 10:48 AM
Happy #PoTSAwarenessDay ! I was diagnosed a little over 2 years ago now and I’m still learning how to live with PoTS day by day. I try to be open about my health issues so more people can understand what I have and how I handle it. ❤️
#disability , #chronicillness
🍂 • Hi! I’m Jackie, a shit poster on the internet and a disabled person who streams in her free time!
Consider checking me out!
Twitch.tv/jaquelantern
October 25, 2024 at 4:07 PM
💜 Sunday was #PoTSAwarenessDay. To show our support, we lit up the Hambleden Wing purple.
 
PoTS is a condition where the heart rate increases abnormally after sitting up or standing. Common symptoms include dizziness, light-headedness, and fainting.
 
Learn more ➡️ tinyurl.com/3u9xejks
October 27, 2025 at 10:53 AM
Local teen’s first full-length documentary, “Chronically,” about 5 teens’ journeys with #chronicillness, debuts in virtual program at the Awareness Film Festival in LA, starting Oct 27.

#chronicillnessawareness #potsawarenessday
#indiefilm #film #filmmaking #seeitbeit #childhealth #pediatrics
Kitchener filmmaker tells stories of teens with chronic illnesses in new doc | CBC News
Taite Koehler of Kitchener, Ont., has made a documentary focusing on five teenagers, including herself, who live with chronic illness. She says she wanted to make the film because she feels like many ...
www.cbc.ca
October 25, 2025 at 3:32 PM
...

Immer wieder, dass ich gar nicht stehen kann!

Die meisten Ärzte kennen es nicht!

Häufige Komorbität von #MEcfs!

#PoTSAwarenessDay
October 25, 2025 at 1:50 PM
💜 #PoTSAwarenessDay 💜

This day also happens to fall on anniversary of my #hEDS diagnosis #POTS dx 4 mths later, followed by #MCAS #MECFS

I recommend these help cards etc often we're unable to communicate well due to intermittent cognitive disfunction.

stickmancommunications.co.uk/product/post...
October 25, 2023 at 1:49 PM
Today is #PoTSAwarenessDay. It often affects every part of our lives. Standing still and talking escalates my symptoms to the point of being close to fainting within seconds. I've had to learn to live my life very differently. Card from stickmancommunications.co.uk/product-cate...
October 25, 2023 at 6:37 PM
💙#POTSAwarenessDay

#POTS affects circulation & the autonomic nervous system cause dizziness, a racing heart, fatigue, and the possibility of fainting

POTS often co-occurs with #Fibromyalgia, making symptoms of both conditions more difficult to manage

#Awarenessmatters #FAC
October 25, 2025 at 2:46 PM
Postural Orthostatic Tachycardia Syndrome (PoTS) - Awareness Day 25th October and its frequent co-existence with Myalgic Encephalomyelitis #mecfs

www.europeanmealliance.org/news-Q32025-...
#PoTSAwarenessDay #research #EuropeanMEAlliance
October 25, 2025 at 7:37 AM