🧬 Rare kidney disease causes almost all childhood kidney failure, yet many children face delays accessing new therapies.
In 2026, RaDaR will launch a CKD of unknown aetiology Rare Disease Group to help more children join future clinical trials.
#RareKidneyDisease
In 2026, RaDaR will launch a CKD of unknown aetiology Rare Disease Group to help more children join future clinical trials.
#RareKidneyDisease
December 27, 2025 at 8:00 AM
🧬 Rare kidney disease causes almost all childhood kidney failure, yet many children face delays accessing new therapies.
In 2026, RaDaR will launch a CKD of unknown aetiology Rare Disease Group to help more children join future clinical trials.
#RareKidneyDisease
In 2026, RaDaR will launch a CKD of unknown aetiology Rare Disease Group to help more children join future clinical trials.
#RareKidneyDisease
🧭 Explore the ISN Rare Kidney Diseases Toolkit — a curated resource with disease-specific tools highlighting the burden, gaps, and needs in rare kidney conditions.
🆕 ADPKD overview, PKD quiz, X Space & Tweetorials ➡️ http://lite.spr.ly/6...
Supported by Otsuka.
#RareKidneyDisease #ADPKD
🆕 ADPKD overview, PKD quiz, X Space & Tweetorials ➡️ http://lite.spr.ly/6...
Supported by Otsuka.
#RareKidneyDisease #ADPKD
December 23, 2025 at 12:00 PM
🧭 Explore the ISN Rare Kidney Diseases Toolkit — a curated resource with disease-specific tools highlighting the burden, gaps, and needs in rare kidney conditions.
🆕 ADPKD overview, PKD quiz, X Space & Tweetorials ➡️ http://lite.spr.ly/6...
Supported by Otsuka.
#RareKidneyDisease #ADPKD
🆕 ADPKD overview, PKD quiz, X Space & Tweetorials ➡️ http://lite.spr.ly/6...
Supported by Otsuka.
#RareKidneyDisease #ADPKD
🧭 Explore the ISN Rare Kidney Diseases Toolkit — a curated resource with disease-specific tools highlighting the burden, gaps, and needs in rare kidney conditions.
🆕 ADPKD overview, PKD quiz, X Space & Tweetorials ➡️ http://lite.spr.ly/6...
Supported by Otsuka.
#RareKidneyDisease #ADPKD
🆕 ADPKD overview, PKD quiz, X Space & Tweetorials ➡️ http://lite.spr.ly/6...
Supported by Otsuka.
#RareKidneyDisease #ADPKD
October 27, 2025 at 6:00 AM
🧭 Explore the ISN Rare Kidney Diseases Toolkit — a curated resource with disease-specific tools highlighting the burden, gaps, and needs in rare kidney conditions.
🆕 ADPKD overview, PKD quiz, X Space & Tweetorials ➡️ http://lite.spr.ly/6...
Supported by Otsuka.
#RareKidneyDisease #ADPKD
🆕 ADPKD overview, PKD quiz, X Space & Tweetorials ➡️ http://lite.spr.ly/6...
Supported by Otsuka.
#RareKidneyDisease #ADPKD
📝ERKReg Basic Training Session
On Monday, August 25th, we host our ERKReg training session again📚.
40 min - Basic information about ERKReg.
20 min - Questions and answers.
🔗Register right here: www.erknet.org/databases/er...
#ERKucation #rarekidneydisease #erknet #training #kidneydisease
On Monday, August 25th, we host our ERKReg training session again📚.
40 min - Basic information about ERKReg.
20 min - Questions and answers.
🔗Register right here: www.erknet.org/databases/er...
#ERKucation #rarekidneydisease #erknet #training #kidneydisease
August 6, 2025 at 8:16 AM
📝ERKReg Basic Training Session
On Monday, August 25th, we host our ERKReg training session again📚.
40 min - Basic information about ERKReg.
20 min - Questions and answers.
🔗Register right here: www.erknet.org/databases/er...
#ERKucation #rarekidneydisease #erknet #training #kidneydisease
On Monday, August 25th, we host our ERKReg training session again📚.
40 min - Basic information about ERKReg.
20 min - Questions and answers.
🔗Register right here: www.erknet.org/databases/er...
#ERKucation #rarekidneydisease #erknet #training #kidneydisease
Living with a #rarekidneydisease often means navigating a maze of late diagnoses, scarce treatment options, and daily symptom management. When #dialysis enters the picture, it can feel like one more heavy layer on an already complex journey.
More at www.rare360.life/post/managin...
#c3g #MPGN
More at www.rare360.life/post/managin...
#c3g #MPGN
July 24, 2025 at 10:05 PM
Living with a #rarekidneydisease often means navigating a maze of late diagnoses, scarce treatment options, and daily symptom management. When #dialysis enters the picture, it can feel like one more heavy layer on an already complex journey.
More at www.rare360.life/post/managin...
#c3g #MPGN
More at www.rare360.life/post/managin...
#c3g #MPGN
📝ERKReg Basic Training Session
On Thursday, July 31st, we host our ERKReg training session again📚.
40 min - Basic information about ERKReg.
20 min - Questions and answers.
🔗Register right here: www.erknet.org/databases/er...
#ERKucation #rarekidneydisease #erknet #training #kidneydisease
On Thursday, July 31st, we host our ERKReg training session again📚.
40 min - Basic information about ERKReg.
20 min - Questions and answers.
🔗Register right here: www.erknet.org/databases/er...
#ERKucation #rarekidneydisease #erknet #training #kidneydisease
July 14, 2025 at 12:22 PM
📝ERKReg Basic Training Session
On Thursday, July 31st, we host our ERKReg training session again📚.
40 min - Basic information about ERKReg.
20 min - Questions and answers.
🔗Register right here: www.erknet.org/databases/er...
#ERKucation #rarekidneydisease #erknet #training #kidneydisease
On Thursday, July 31st, we host our ERKReg training session again📚.
40 min - Basic information about ERKReg.
20 min - Questions and answers.
🔗Register right here: www.erknet.org/databases/er...
#ERKucation #rarekidneydisease #erknet #training #kidneydisease
🎥 New RaDaR data on #AlportSyndrome
✅ 1175 patients
✅Key for understanding disease progression
✅ Informs future trial design
RaDaR's Danny Gale discusses the most detailed AS analysis yet.
🎥Watch the HCP Live News interview: ow.ly/xo7150WbFcY
#RareKidneyDisease
✅ 1175 patients
✅Key for understanding disease progression
✅ Informs future trial design
RaDaR's Danny Gale discusses the most detailed AS analysis yet.
🎥Watch the HCP Live News interview: ow.ly/xo7150WbFcY
#RareKidneyDisease
Alport Syndrome Outcomes Linked to Genotype and Proteinuria in RaDaR Study
A RaDaR analysis from ERA 2025 provides insight into predictors of disease progression, outcomes in patients with Alport syndrome.
ow.ly
July 1, 2025 at 4:00 PM
🎥 New RaDaR data on #AlportSyndrome
✅ 1175 patients
✅Key for understanding disease progression
✅ Informs future trial design
RaDaR's Danny Gale discusses the most detailed AS analysis yet.
🎥Watch the HCP Live News interview: ow.ly/xo7150WbFcY
#RareKidneyDisease
✅ 1175 patients
✅Key for understanding disease progression
✅ Informs future trial design
RaDaR's Danny Gale discusses the most detailed AS analysis yet.
🎥Watch the HCP Live News interview: ow.ly/xo7150WbFcY
#RareKidneyDisease
FYI: LucidQuest Views >>> Rare Diseases Weekly News – June 12th 2025 #News #RareKidneyDisease #Empaveli #Mavorixafor Comment below!
Rare Diseases Weekly News – June 12th 2025
🔬 Rare Diseases Update: Orphan Drug Wins, Genomic Breakthroughs, Global Launches & Fast-Track Trials This week’s roundup delivers pivotal developments […]
The post Rare Diseases Weekly News – June 12th 2025 appeared first on LucidQuest Ventures.
dlvr.it
June 20, 2025 at 9:40 AM
FYI: LucidQuest Views >>> Rare Diseases Weekly News – June 12th 2025 #News #RareKidneyDisease #Empaveli #Mavorixafor Comment below!
📝ERKReg Basic Training Session
On Monday, June 30th, we host our ERKReg training session again📚.
40 min - Basic information about ERKReg.
20 min - Questions and answers.
🔗Register right here: www.erknet.org/databases/er...
#ERKucation #rarekidneydisease #erknet #training #kidneydisease
On Monday, June 30th, we host our ERKReg training session again📚.
40 min - Basic information about ERKReg.
20 min - Questions and answers.
🔗Register right here: www.erknet.org/databases/er...
#ERKucation #rarekidneydisease #erknet #training #kidneydisease
June 17, 2025 at 11:51 AM
📝ERKReg Basic Training Session
On Monday, June 30th, we host our ERKReg training session again📚.
40 min - Basic information about ERKReg.
20 min - Questions and answers.
🔗Register right here: www.erknet.org/databases/er...
#ERKucation #rarekidneydisease #erknet #training #kidneydisease
On Monday, June 30th, we host our ERKReg training session again📚.
40 min - Basic information about ERKReg.
20 min - Questions and answers.
🔗Register right here: www.erknet.org/databases/er...
#ERKucation #rarekidneydisease #erknet #training #kidneydisease
🧬 FSGS affects far too many in silence. Nearly 60% of cases impact Black Americans.
🎙️ Today, we’re talking real stories, real policy, real change.
🕛 12 PM ET
📲 Register now: bit.ly/NMQF0613
#FSGS #RareKidneyDisease #BlackHealthMatters #KidneyEquity #NMQF
🎙️ Today, we’re talking real stories, real policy, real change.
🕛 12 PM ET
📲 Register now: bit.ly/NMQF0613
#FSGS #RareKidneyDisease #BlackHealthMatters #KidneyEquity #NMQF
June 13, 2025 at 1:21 PM
🧬 FSGS affects far too many in silence. Nearly 60% of cases impact Black Americans.
🎙️ Today, we’re talking real stories, real policy, real change.
🕛 12 PM ET
📲 Register now: bit.ly/NMQF0613
#FSGS #RareKidneyDisease #BlackHealthMatters #KidneyEquity #NMQF
🎙️ Today, we’re talking real stories, real policy, real change.
🕛 12 PM ET
📲 Register now: bit.ly/NMQF0613
#FSGS #RareKidneyDisease #BlackHealthMatters #KidneyEquity #NMQF
ICYMI: LucidQuest Views >>> Rare Diseases Weekly News – June 12th 2025 #News #RareKidneyDisease #Empaveli #Mavorixafor Comment below!
Rare Diseases Weekly News – June 12th 2025
🔬 Rare Diseases Update: Orphan Drug Wins, Genomic Breakthroughs, Global Launches & Fast-Track Trials This week’s roundup delivers pivotal developments […]
The post Rare Diseases Weekly News – June 12th 2025 appeared first on LucidQuest Ventures.
dlvr.it
June 13, 2025 at 9:39 AM
ICYMI: LucidQuest Views >>> Rare Diseases Weekly News – June 12th 2025 #News #RareKidneyDisease #Empaveli #Mavorixafor Comment below!
LucidQuest Views >>> Rare Diseases Weekly News – June 12th 2025 #News #RareKidneyDisease #Empaveli #Mavorixafor Comment below!
Rare Diseases Weekly News – June 12th 2025
🔬 Rare Diseases Update: Orphan Drug Wins, Genomic Breakthroughs, Global Launches & Fast-Track Trials This week’s roundup delivers pivotal developments […]
The post Rare Diseases Weekly News – June 12th 2025 appeared first on LucidQuest Ventures.
dlvr.it
June 12, 2025 at 9:37 AM
LucidQuest Views >>> Rare Diseases Weekly News – June 12th 2025 #News #RareKidneyDisease #Empaveli #Mavorixafor Comment below!
🧬 FSGS affects far too many in silence. Nearly 60% of cases impact Black Americans.
🎙️ On Friday, June 13th, we’re talking real stories, real policy, real change.
🕛 12 PM ET
📲 Register: bit.ly/NMQF0613
#FSGS #RareKidneyDisease #BlackHealthMatters #KidneyEquity #NMQF
🎙️ On Friday, June 13th, we’re talking real stories, real policy, real change.
🕛 12 PM ET
📲 Register: bit.ly/NMQF0613
#FSGS #RareKidneyDisease #BlackHealthMatters #KidneyEquity #NMQF
June 11, 2025 at 1:28 PM
🧬 FSGS affects far too many in silence. Nearly 60% of cases impact Black Americans.
🎙️ On Friday, June 13th, we’re talking real stories, real policy, real change.
🕛 12 PM ET
📲 Register: bit.ly/NMQF0613
#FSGS #RareKidneyDisease #BlackHealthMatters #KidneyEquity #NMQF
🎙️ On Friday, June 13th, we’re talking real stories, real policy, real change.
🕛 12 PM ET
📲 Register: bit.ly/NMQF0613
#FSGS #RareKidneyDisease #BlackHealthMatters #KidneyEquity #NMQF
🏥 Perfect for:
• Academic medical centers
• Nephrology Clinics
• Healthcare institutions serving rare kidney disease populations
📅 Timeline: Pre-applications open NOW | Framework release Fall 2025
#RareKidneyDisease #GlomerularDisease #CentersOfExcellence #Nephrology #PatientCare
• Academic medical centers
• Nephrology Clinics
• Healthcare institutions serving rare kidney disease populations
📅 Timeline: Pre-applications open NOW | Framework release Fall 2025
#RareKidneyDisease #GlomerularDisease #CentersOfExcellence #Nephrology #PatientCare
Pre-Application Form - Rare Kidney Diseases & Glomerular Diseases Centers of Excellence
Turn data collection into an experience with Typeform. Create beautiful online forms, surveys, quizzes, and so much more. Try it for FREE.
ikgplk7aacm.typeform.com
June 10, 2025 at 3:17 PM
🏥 Perfect for:
• Academic medical centers
• Nephrology Clinics
• Healthcare institutions serving rare kidney disease populations
📅 Timeline: Pre-applications open NOW | Framework release Fall 2025
#RareKidneyDisease #GlomerularDisease #CentersOfExcellence #Nephrology #PatientCare
• Academic medical centers
• Nephrology Clinics
• Healthcare institutions serving rare kidney disease populations
📅 Timeline: Pre-applications open NOW | Framework release Fall 2025
#RareKidneyDisease #GlomerularDisease #CentersOfExcellence #Nephrology #PatientCare
🧬 FSGS affects far too many in silence. Nearly 60% of cases impact Black Americans.
🎙️ On June 13, we’re talking real stories, real policy, real change.
🕛 12 PM ET
📲 Register: bit.ly/NMQF0613
#FSGS #RareKidneyDisease #BlackHealthMatters #KidneyEquity #NMQF
🎙️ On June 13, we’re talking real stories, real policy, real change.
🕛 12 PM ET
📲 Register: bit.ly/NMQF0613
#FSGS #RareKidneyDisease #BlackHealthMatters #KidneyEquity #NMQF
June 9, 2025 at 4:41 PM
🧬 FSGS affects far too many in silence. Nearly 60% of cases impact Black Americans.
🎙️ On June 13, we’re talking real stories, real policy, real change.
🕛 12 PM ET
📲 Register: bit.ly/NMQF0613
#FSGS #RareKidneyDisease #BlackHealthMatters #KidneyEquity #NMQF
🎙️ On June 13, we’re talking real stories, real policy, real change.
🕛 12 PM ET
📲 Register: bit.ly/NMQF0613
#FSGS #RareKidneyDisease #BlackHealthMatters #KidneyEquity #NMQF
Do you want to transform the future of #paediatric or #RareKidneyDisease?
We are offering funding opportunities for researchers dedicated to advancing our understanding, diagnosis, or treatment of paediatric and rare kidney conditions
Find our more and apply here: bit.ly/4jisFg1
We are offering funding opportunities for researchers dedicated to advancing our understanding, diagnosis, or treatment of paediatric and rare kidney conditions
Find our more and apply here: bit.ly/4jisFg1
Paediatric and rare kidney diseases grants - Kidney Research UK
A funding opportunity for researchers dedicated to advancing understanding, diagnosis, or treatment of paediatric and rare kidney conditions.
bit.ly
May 1, 2025 at 8:45 AM
Do you want to transform the future of #paediatric or #RareKidneyDisease?
We are offering funding opportunities for researchers dedicated to advancing our understanding, diagnosis, or treatment of paediatric and rare kidney conditions
Find our more and apply here: bit.ly/4jisFg1
We are offering funding opportunities for researchers dedicated to advancing our understanding, diagnosis, or treatment of paediatric and rare kidney conditions
Find our more and apply here: bit.ly/4jisFg1
📝 ERKReg Basic Training
Join us on Wednesday, May 7th for our next ERKReg training! 📚
🔹 40 min – Basics: ERKReg overview, patient entry, key guidelines.
🔹 20 min – Q&A: Ask live or submit questions in advance.
📩 Register here: www.erknet.org/databases/er...
#ERKucation #rarekidneydisease
Join us on Wednesday, May 7th for our next ERKReg training! 📚
🔹 40 min – Basics: ERKReg overview, patient entry, key guidelines.
🔹 20 min – Q&A: Ask live or submit questions in advance.
📩 Register here: www.erknet.org/databases/er...
#ERKucation #rarekidneydisease
April 23, 2025 at 12:30 PM
📝 ERKReg Basic Training
Join us on Wednesday, May 7th for our next ERKReg training! 📚
🔹 40 min – Basics: ERKReg overview, patient entry, key guidelines.
🔹 20 min – Q&A: Ask live or submit questions in advance.
📩 Register here: www.erknet.org/databases/er...
#ERKucation #rarekidneydisease
Join us on Wednesday, May 7th for our next ERKReg training! 📚
🔹 40 min – Basics: ERKReg overview, patient entry, key guidelines.
🔹 20 min – Q&A: Ask live or submit questions in advance.
📩 Register here: www.erknet.org/databases/er...
#ERKucation #rarekidneydisease
📝 ERKReg Basic Training
Join us on Wednesday, April 9th for our next ERKReg training! 📚
🔹 40 min – Basics: ERKReg overview, patient entry, key guidelines.
🔹 20 min – Q&A: Ask live or submit questions in advance.
📩 Register here: www.erknet.org/databases/er...
#ERKucation #rarekidneydisease
Join us on Wednesday, April 9th for our next ERKReg training! 📚
🔹 40 min – Basics: ERKReg overview, patient entry, key guidelines.
🔹 20 min – Q&A: Ask live or submit questions in advance.
📩 Register here: www.erknet.org/databases/er...
#ERKucation #rarekidneydisease
March 26, 2025 at 12:19 PM
📝 ERKReg Basic Training
Join us on Wednesday, April 9th for our next ERKReg training! 📚
🔹 40 min – Basics: ERKReg overview, patient entry, key guidelines.
🔹 20 min – Q&A: Ask live or submit questions in advance.
📩 Register here: www.erknet.org/databases/er...
#ERKucation #rarekidneydisease
Join us on Wednesday, April 9th for our next ERKReg training! 📚
🔹 40 min – Basics: ERKReg overview, patient entry, key guidelines.
🔹 20 min – Q&A: Ask live or submit questions in advance.
📩 Register here: www.erknet.org/databases/er...
#ERKucation #rarekidneydisease
🛋️ In his latest column, Dr. Ajay Singh reviews the current landscape of rare kidney disease. #rarekidneydisease #kidneydisease #nephrology #nephsky
Rare Kidney Disease: Where Are We Now? | Docwire News
Ajay Singh discusses the state of rare kidney disease research.
www.docwirenews.com
March 21, 2025 at 5:10 PM
🛋️ In his latest column, Dr. Ajay Singh reviews the current landscape of rare kidney disease. #rarekidneydisease #kidneydisease #nephrology #nephsky
Did you know there are more than 150 unique types of rare kidney diseases? Each one has its own distinct challenges and effects on health, making the world of kidney health incredibly diverse and complex!
#kidneydisease #kidneyawareness #rarekidneydisease
#kidneydisease #kidneyawareness #rarekidneydisease
March 4, 2025 at 8:15 PM
Did you know there are more than 150 unique types of rare kidney diseases? Each one has its own distinct challenges and effects on health, making the world of kidney health incredibly diverse and complex!
#kidneydisease #kidneyawareness #rarekidneydisease
#kidneydisease #kidneyawareness #rarekidneydisease
📚Upcoming webinar!
Optimizing PD with a focus on Incodextrin
🗓️ Feb. 11th
⏰4-5 PM CET
👩⚕️Dagmara Borzych-Duzalka
✏️Register here: https://register.gotowebinar.com/register/8036686072630541914
#ERKNet #Webinar #Rarekidneydisease #MedicalEducation #Icodextrin
Optimizing PD with a focus on Incodextrin
🗓️ Feb. 11th
⏰4-5 PM CET
👩⚕️Dagmara Borzych-Duzalka
✏️Register here: https://register.gotowebinar.com/register/8036686072630541914
#ERKNet #Webinar #Rarekidneydisease #MedicalEducation #Icodextrin
February 8, 2025 at 9:53 AM
📚Upcoming webinar!
Optimizing PD with a focus on Incodextrin
🗓️ Feb. 11th
⏰4-5 PM CET
👩⚕️Dagmara Borzych-Duzalka
✏️Register here: https://register.gotowebinar.com/register/8036686072630541914
#ERKNet #Webinar #Rarekidneydisease #MedicalEducation #Icodextrin
Optimizing PD with a focus on Incodextrin
🗓️ Feb. 11th
⏰4-5 PM CET
👩⚕️Dagmara Borzych-Duzalka
✏️Register here: https://register.gotowebinar.com/register/8036686072630541914
#ERKNet #Webinar #Rarekidneydisease #MedicalEducation #Icodextrin
📢 𝐂𝐚𝐥𝐥 𝐟𝐨𝐫 #𝐀𝐛𝐬𝐭𝐫𝐚𝐜𝐭𝐬: ERKNet Annual Meeting 2025
#ERKNet members only! Until this Wednesday, Feb. 5th!
Your chance to showcase your work for #R𝐚𝐫𝐞K𝐢𝐝𝐧𝐞𝐲D𝐢𝐬𝐞𝐚𝐬𝐞 𝐫𝐞𝐬𝐞𝐚𝐫𝐜𝐡 or a 𝐜𝐡𝐚𝐥𝐥𝐞𝐧𝐠𝐢𝐧𝐠 𝐜𝐥𝐢𝐧𝐢𝐜𝐚𝐥 𝐜𝐚𝐬𝐞.
📝 𝐒𝐮𝐛𝐦𝐢𝐬𝐬𝐢𝐨𝐧 𝐆𝐮𝐢𝐝𝐞𝐥𝐢𝐧𝐞𝐬 & 𝐌𝐨𝐫𝐞 𝐈𝐧𝐟𝐨: www.erknet.org/events/9th-e...
#Nephrology #KidneyDisease
#ERKNet members only! Until this Wednesday, Feb. 5th!
Your chance to showcase your work for #R𝐚𝐫𝐞K𝐢𝐝𝐧𝐞𝐲D𝐢𝐬𝐞𝐚𝐬𝐞 𝐫𝐞𝐬𝐞𝐚𝐫𝐜𝐡 or a 𝐜𝐡𝐚𝐥𝐥𝐞𝐧𝐠𝐢𝐧𝐠 𝐜𝐥𝐢𝐧𝐢𝐜𝐚𝐥 𝐜𝐚𝐬𝐞.
📝 𝐒𝐮𝐛𝐦𝐢𝐬𝐬𝐢𝐨𝐧 𝐆𝐮𝐢𝐝𝐞𝐥𝐢𝐧𝐞𝐬 & 𝐌𝐨𝐫𝐞 𝐈𝐧𝐟𝐨: www.erknet.org/events/9th-e...
#Nephrology #KidneyDisease
Call for abstracts
www.erknet.org
February 4, 2025 at 9:39 AM
📢 𝐂𝐚𝐥𝐥 𝐟𝐨𝐫 #𝐀𝐛𝐬𝐭𝐫𝐚𝐜𝐭𝐬: ERKNet Annual Meeting 2025
#ERKNet members only! Until this Wednesday, Feb. 5th!
Your chance to showcase your work for #R𝐚𝐫𝐞K𝐢𝐝𝐧𝐞𝐲D𝐢𝐬𝐞𝐚𝐬𝐞 𝐫𝐞𝐬𝐞𝐚𝐫𝐜𝐡 or a 𝐜𝐡𝐚𝐥𝐥𝐞𝐧𝐠𝐢𝐧𝐠 𝐜𝐥𝐢𝐧𝐢𝐜𝐚𝐥 𝐜𝐚𝐬𝐞.
📝 𝐒𝐮𝐛𝐦𝐢𝐬𝐬𝐢𝐨𝐧 𝐆𝐮𝐢𝐝𝐞𝐥𝐢𝐧𝐞𝐬 & 𝐌𝐨𝐫𝐞 𝐈𝐧𝐟𝐨: www.erknet.org/events/9th-e...
#Nephrology #KidneyDisease
#ERKNet members only! Until this Wednesday, Feb. 5th!
Your chance to showcase your work for #R𝐚𝐫𝐞K𝐢𝐝𝐧𝐞𝐲D𝐢𝐬𝐞𝐚𝐬𝐞 𝐫𝐞𝐬𝐞𝐚𝐫𝐜𝐡 or a 𝐜𝐡𝐚𝐥𝐥𝐞𝐧𝐠𝐢𝐧𝐠 𝐜𝐥𝐢𝐧𝐢𝐜𝐚𝐥 𝐜𝐚𝐬𝐞.
📝 𝐒𝐮𝐛𝐦𝐢𝐬𝐬𝐢𝐨𝐧 𝐆𝐮𝐢𝐝𝐞𝐥𝐢𝐧𝐞𝐬 & 𝐌𝐨𝐫𝐞 𝐈𝐧𝐟𝐨: www.erknet.org/events/9th-e...
#Nephrology #KidneyDisease
Let’s break down nephrotic syndrome: a rare kidney disease that about 5 out of 100,000 children develop each year.
@kidneyomicsamps.bsky.social
#nephrology #genomics #kidneyomics #pediatrics #pediatricnephrology #nephroticsyndrome #rarekidneydisease
@kidneyomicsamps.bsky.social
#nephrology #genomics #kidneyomics #pediatrics #pediatricnephrology #nephroticsyndrome #rarekidneydisease
January 29, 2025 at 2:55 PM
Let’s break down nephrotic syndrome: a rare kidney disease that about 5 out of 100,000 children develop each year.
@kidneyomicsamps.bsky.social
#nephrology #genomics #kidneyomics #pediatrics #pediatricnephrology #nephroticsyndrome #rarekidneydisease
@kidneyomicsamps.bsky.social
#nephrology #genomics #kidneyomics #pediatrics #pediatricnephrology #nephroticsyndrome #rarekidneydisease
#MeetThePartners
🚨 @inserm.fr U1297 at I2MC leads the PICKED project, identifying biomarkers to transform care for pediatric kidney disease.
Goals:
✅ Personalized prenatal counselling
✅ Improved postnatal management
Advancing research for better outcomes! 🌟
#PICKEDProject #RareKidneyDisease
🚨 @inserm.fr U1297 at I2MC leads the PICKED project, identifying biomarkers to transform care for pediatric kidney disease.
Goals:
✅ Personalized prenatal counselling
✅ Improved postnatal management
Advancing research for better outcomes! 🌟
#PICKEDProject #RareKidneyDisease
January 27, 2025 at 1:39 PM
#MeetThePartners
🚨 @inserm.fr U1297 at I2MC leads the PICKED project, identifying biomarkers to transform care for pediatric kidney disease.
Goals:
✅ Personalized prenatal counselling
✅ Improved postnatal management
Advancing research for better outcomes! 🌟
#PICKEDProject #RareKidneyDisease
🚨 @inserm.fr U1297 at I2MC leads the PICKED project, identifying biomarkers to transform care for pediatric kidney disease.
Goals:
✅ Personalized prenatal counselling
✅ Improved postnatal management
Advancing research for better outcomes! 🌟
#PICKEDProject #RareKidneyDisease
Why Should #RareDisease Patients and Caregivers Care to Participate in #MarketResearch Studies?
www.rare360.life/post/your-in...
#C3G
#C3GN
#ICMPGN
#lupus
#PNH
#rarekidneydisease
#chronickidneydisease
#ourlivesmatter
#nothingaboutuswithoutus
#livingRare
www.rare360.life/post/your-in...
#C3G
#C3GN
#ICMPGN
#lupus
#PNH
#rarekidneydisease
#chronickidneydisease
#ourlivesmatter
#nothingaboutuswithoutus
#livingRare
December 4, 2024 at 5:47 PM
Why Should #RareDisease Patients and Caregivers Care to Participate in #MarketResearch Studies?
www.rare360.life/post/your-in...
#C3G
#C3GN
#ICMPGN
#lupus
#PNH
#rarekidneydisease
#chronickidneydisease
#ourlivesmatter
#nothingaboutuswithoutus
#livingRare
www.rare360.life/post/your-in...
#C3G
#C3GN
#ICMPGN
#lupus
#PNH
#rarekidneydisease
#chronickidneydisease
#ourlivesmatter
#nothingaboutuswithoutus
#livingRare