While logically I understand that both provide the exact same steadiness & balance support, “walking stick” just sounds so much better than “cane”.
#MultipleSclerosis #SPMS
#MultipleSclerosis #SPMS
September 21, 2025 at 4:30 PM
While logically I understand that both provide the exact same steadiness & balance support, “walking stick” just sounds so much better than “cane”.
#MultipleSclerosis #SPMS
#MultipleSclerosis #SPMS
March 5, 2025 at 5:54 PM
🌟Thank you @mstrustuk.bsky.social for inviting me to speak on adjustment to MS diagnosis & transition to SPMS at #MSTrustConference2025 It was a pleasure to share our findings from the Nottingham MS Research Group & discuss ways to better support people during these time points #MultipleSclerosis
March 26, 2025 at 4:53 PM
🌟Thank you @mstrustuk.bsky.social for inviting me to speak on adjustment to MS diagnosis & transition to SPMS at #MSTrustConference2025 It was a pleasure to share our findings from the Nottingham MS Research Group & discuss ways to better support people during these time points #MultipleSclerosis
Well, I'm SPMS now so honestly who knows if it is. There's no metric I can use to tell. I think about this all the time. But since I've been on Ocrevus and started PT (what y'all call physio I think) I haven't really gotten much worse (knocking on every wood surface).
September 24, 2025 at 12:23 PM
Well, I'm SPMS now so honestly who knows if it is. There's no metric I can use to tell. I think about this all the time. But since I've been on Ocrevus and started PT (what y'all call physio I think) I haven't really gotten much worse (knocking on every wood surface).
MS has a lot of gradations that may have been differentiated to get the first disease-modifying treatments approved in the US, via the orphan drug act. Some argue that it’s all one disease process that presents differently in different situations and the RIS/CIS/RRMS/PPMS/SPMS isn’t helpful.
August 13, 2024 at 11:15 PM
MS has a lot of gradations that may have been differentiated to get the first disease-modifying treatments approved in the US, via the orphan drug act. Some argue that it’s all one disease process that presents differently in different situations and the RIS/CIS/RRMS/PPMS/SPMS isn’t helpful.
To carry on the #MSFriday thread that @feltwright.bsky.social and @lomelindi12.bsky.social have started, a bit about me.
DX in 2015 after years of odd symptoms that came and went. Started following OvercomingMS almost straight away and got improvements, but over COVID times switched to SPMS.
DX in 2015 after years of odd symptoms that came and went. Started following OvercomingMS almost straight away and got improvements, but over COVID times switched to SPMS.
November 22, 2024 at 9:42 AM
To carry on the #MSFriday thread that @feltwright.bsky.social and @lomelindi12.bsky.social have started, a bit about me.
DX in 2015 after years of odd symptoms that came and went. Started following OvercomingMS almost straight away and got improvements, but over COVID times switched to SPMS.
DX in 2015 after years of odd symptoms that came and went. Started following OvercomingMS almost straight away and got improvements, but over COVID times switched to SPMS.
Non scientist here and I have no financial interest in it.
Just nonactive SPMS.
Using your biometric data from a Fitbit like wearable device; it analyzes info, determines your baseline energy level and projects if you’ll exceed that baseline.
Research
www.researchsquare.com/article/rs-5...
Just nonactive SPMS.
Using your biometric data from a Fitbit like wearable device; it analyzes info, determines your baseline energy level and projects if you’ll exceed that baseline.
Research
www.researchsquare.com/article/rs-5...
Smartphone-based monitoring of heart rate variability and resting heart rate predicts variability in symptom exacerbations in people with complex chronic illness
Background: Complex chronic conditions like Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome involve energy limitations and changes in heart rate variability (HRV) and resting heart r...
www.researchsquare.com
December 3, 2024 at 7:19 PM
Non scientist here and I have no financial interest in it.
Just nonactive SPMS.
Using your biometric data from a Fitbit like wearable device; it analyzes info, determines your baseline energy level and projects if you’ll exceed that baseline.
Research
www.researchsquare.com/article/rs-5...
Just nonactive SPMS.
Using your biometric data from a Fitbit like wearable device; it analyzes info, determines your baseline energy level and projects if you’ll exceed that baseline.
Research
www.researchsquare.com/article/rs-5...
So with how little online impact brothership had its hard to not wonder if a future PM would have a similar fate. where only PM fans will care about it and even then will not really be invested in it. Where the cahracters wont leave the type of impact Goombella, Vivian lr SPMs villain crew did.
July 10, 2025 at 9:06 AM
So with how little online impact brothership had its hard to not wonder if a future PM would have a similar fate. where only PM fans will care about it and even then will not really be invested in it. Where the cahracters wont leave the type of impact Goombella, Vivian lr SPMs villain crew did.
Researchers at Uppsala University have developed an AI model capable of detecting the transition from relapsing-remitting multiple sclerosis (RRMS) to secondary progressive multiple sclerosis (SPMS) with approximately 90% accuracy. #healthcare #SPMS #AI
AI model recognizes transition to progressive MS | ICT&health Global
Researchers at Uppsala University have now developed an AI model that can determine with 90 percent certainty which variant the patient has.
icthealth.org
May 1, 2025 at 3:22 AM
Researchers at Uppsala University have developed an AI model capable of detecting the transition from relapsing-remitting multiple sclerosis (RRMS) to secondary progressive multiple sclerosis (SPMS) with approximately 90% accuracy. #healthcare #SPMS #AI
Problema terá tido impacto em todas as aplicações - registo clínico (Sclinico), prescrições electrónicas (PEM), referenciações epedidos de consulta (SIGA), entre outras. SPMS ainda não reagiu.
Problemas nos sistemas informáticos afectam hospitais e centros de saúde
Problema terá tido impacto em todas as aplicações - registo clínico (Sclinico), prescrições electrónicas (PEM), referenciações epedidos de consulta (SIGA), entre outras. SPMS ainda não reagiu.
www.publico.pt
September 18, 2025 at 8:52 AM
Problema terá tido impacto em todas as aplicações - registo clínico (Sclinico), prescrições electrónicas (PEM), referenciações epedidos de consulta (SIGA), entre outras. SPMS ainda não reagiu.
#MSWarriors #MultipleSclerosis
If you have nonactive SPMS and live in the northeastern United States you might want to consider signing up for this clinical trial:
If you have nonactive SPMS and live in the northeastern United States you might want to consider signing up for this clinical trial:
Phase 2 trial testing foralumab in nonactive SPMS adds 6 US sites
Tiziana's Phase 2 trial testing foralumab for nonactive secondary progressive multiple sclerosis (SPMS) has added six U.S. study sites.
multiplesclerosisnewstoday.com
December 8, 2024 at 1:08 AM
#MSWarriors #MultipleSclerosis
If you have nonactive SPMS and live in the northeastern United States you might want to consider signing up for this clinical trial:
If you have nonactive SPMS and live in the northeastern United States you might want to consider signing up for this clinical trial:
📊 Study Highlights:
🔬 246 patients (2016–2022) with a median follow-up of 38 months
⚠️ 8.5% (21 patients) developed SPMs
🔹 52% Non-melanoma skin cancer (38% squamous cell carcinoma)
🔹 33% Hematologic malignancies (MDS, AML)
🔹 14% Solid tumors (bladder, prostate, breast cancer)
🔬 246 patients (2016–2022) with a median follow-up of 38 months
⚠️ 8.5% (21 patients) developed SPMs
🔹 52% Non-melanoma skin cancer (38% squamous cell carcinoma)
🔹 33% Hematologic malignancies (MDS, AML)
🔹 14% Solid tumors (bladder, prostate, breast cancer)
March 20, 2025 at 6:04 AM
📊 Study Highlights:
🔬 246 patients (2016–2022) with a median follow-up of 38 months
⚠️ 8.5% (21 patients) developed SPMs
🔹 52% Non-melanoma skin cancer (38% squamous cell carcinoma)
🔹 33% Hematologic malignancies (MDS, AML)
🔹 14% Solid tumors (bladder, prostate, breast cancer)
🔬 246 patients (2016–2022) with a median follow-up of 38 months
⚠️ 8.5% (21 patients) developed SPMs
🔹 52% Non-melanoma skin cancer (38% squamous cell carcinoma)
🔹 33% Hematologic malignancies (MDS, AML)
🔹 14% Solid tumors (bladder, prostate, breast cancer)
Thanks for posting this. I’m just starting on the #VisibleApp
I only get 8 pace points a day !!
And of course, I blew them out yesterday.
So it is slow going for me to figure out what a reasonable activity rate is for me.
Can I ask how many pace points you get per day?
FWIW I have #SPMS. #MS
I only get 8 pace points a day !!
And of course, I blew them out yesterday.
So it is slow going for me to figure out what a reasonable activity rate is for me.
Can I ask how many pace points you get per day?
FWIW I have #SPMS. #MS
December 4, 2024 at 4:31 PM
Thanks for posting this. I’m just starting on the #VisibleApp
I only get 8 pace points a day !!
And of course, I blew them out yesterday.
So it is slow going for me to figure out what a reasonable activity rate is for me.
Can I ask how many pace points you get per day?
FWIW I have #SPMS. #MS
I only get 8 pace points a day !!
And of course, I blew them out yesterday.
So it is slow going for me to figure out what a reasonable activity rate is for me.
Can I ask how many pace points you get per day?
FWIW I have #SPMS. #MS
How reliable are WiFi connections on flights these days? Can I pull SPMs from GitHub during my 22-hour flight?
I plan to work on an idea, but I might need a good connection.
Or, I can work on the basics since most docs should suffice. Hmm. 🤔
What are your pre-flight hacks as a dev?
#IndieDev
I plan to work on an idea, but I might need a good connection.
Or, I can work on the basics since most docs should suffice. Hmm. 🤔
What are your pre-flight hacks as a dev?
#IndieDev
December 22, 2024 at 8:18 AM
How reliable are WiFi connections on flights these days? Can I pull SPMs from GitHub during my 22-hour flight?
I plan to work on an idea, but I might need a good connection.
Or, I can work on the basics since most docs should suffice. Hmm. 🤔
What are your pre-flight hacks as a dev?
#IndieDev
I plan to work on an idea, but I might need a good connection.
Or, I can work on the basics since most docs should suffice. Hmm. 🤔
What are your pre-flight hacks as a dev?
#IndieDev
I struggle with lower SPMs. That's something I need to work on. I bought my RowErg in early 2021 during the Pandemic. One of the best fitness decisions I've made.
April 13, 2025 at 7:35 PM
I struggle with lower SPMs. That's something I need to work on. I bought my RowErg in early 2021 during the Pandemic. One of the best fitness decisions I've made.
They deleted it, no that was not my account. I see you have SPMS, I worked at the National MS Society as a specialist for 18 years. 💙
May 13, 2025 at 10:51 PM
They deleted it, no that was not my account. I see you have SPMS, I worked at the National MS Society as a specialist for 18 years. 💙
Le laboratoire SPMS propose 2 nouvelles offres de thèseset
CentraleSupelec |
Programme ingénieur - Mastères Spécialisés - Masters Recherche - Ecoles Doctorales - MSc in Data Sciences & Business Analytics - MSc in Artificial Intelligence - Formation continue
tinyurl.com
January 9, 2025 at 1:34 PM
Le laboratoire SPMS propose 2 nouvelles offres de thèseset
A Linha de Aconselhamento Psicológico do SNS 24 atendeu em quatro anos mais de 280 mil chamadas e mais de 19 mil foram realizadas por profissionais de saúde, segundo dados dos Serviços Partilhados do Ministério da Saúde (SPMS).
#healthnews #apoiopsicológico
#healthnews #apoiopsicológico
Linha de Aconselhamento Psicológico do SNS 24 atendeu mais de 280 mil chamadas em quatro anos
A Linha de Aconselhamento Psicológico do SNS 24 atendeu em quatro anos mais de 280 mil chamadas e mais de 19 mil foram realizadas por profissionais de saúde, segundo dados dos Serviços Partilhados do ...
healthnews.pt
April 1, 2024 at 9:32 AM
A Linha de Aconselhamento Psicológico do SNS 24 atendeu em quatro anos mais de 280 mil chamadas e mais de 19 mil foram realizadas por profissionais de saúde, segundo dados dos Serviços Partilhados do Ministério da Saúde (SPMS).
#healthnews #apoiopsicológico
#healthnews #apoiopsicológico
É uma dificuldade imensa! Qualquer banco tem de aguentar dezenas vezes o número de utilizadores desta app.
Spms a mostrar o que vale.
A minha última consulta no sns e chorei com a médica de família a ve-la clicar
Spms a mostrar o que vale.
A minha última consulta no sns e chorei com a médica de família a ve-la clicar
July 29, 2025 at 12:23 PM
É uma dificuldade imensa! Qualquer banco tem de aguentar dezenas vezes o número de utilizadores desta app.
Spms a mostrar o que vale.
A minha última consulta no sns e chorei com a médica de família a ve-la clicar
Spms a mostrar o que vale.
A minha última consulta no sns e chorei com a médica de família a ve-la clicar
Continuo a achar estranho que o SPMS informe a comunicação social primeiro do que as farmácias. Depois ninguém sabe nada e as informações não batem certo.
February 18, 2025 at 11:28 AM
Continuo a achar estranho que o SPMS informe a comunicação social primeiro do que as farmácias. Depois ninguém sabe nada e as informações não batem certo.
on excellent up-to-date article. I am one of those SPMS diagnosed late in life so I scan everything for a glimmer of potential for my own personal benefit. I was diagnosed in 2012 and it is astonishing the amount of research since then till now.Thank you so much for your ongoing research.
June 6, 2025 at 3:55 PM
on excellent up-to-date article. I am one of those SPMS diagnosed late in life so I scan everything for a glimmer of potential for my own personal benefit. I was diagnosed in 2012 and it is astonishing the amount of research since then till now.Thank you so much for your ongoing research.
This document provides a detailed overview of emerging treatments for multiple sclerosis (MS).
The field is moving toward personalized medicine with biomarker-driven treatment selection, CNS-penetrant therapies, and high-efficacy-first approaches to slow progression.
docs.google.com/document/d/e...
The field is moving toward personalized medicine with biomarker-driven treatment selection, CNS-penetrant therapies, and high-efficacy-first approaches to slow progression.
docs.google.com/document/d/e...
June 12, 2025 at 7:50 PM
This document provides a detailed overview of emerging treatments for multiple sclerosis (MS).
The field is moving toward personalized medicine with biomarker-driven treatment selection, CNS-penetrant therapies, and high-efficacy-first approaches to slow progression.
docs.google.com/document/d/e...
The field is moving toward personalized medicine with biomarker-driven treatment selection, CNS-penetrant therapies, and high-efficacy-first approaches to slow progression.
docs.google.com/document/d/e...
"SPMS ainda não reagiu" é o estado normal da SPMS.
Problema terá tido impacto em todas as aplicações - registo clínico (Sclinico), prescrições electrónicas (PEM), referenciações epedidos de consulta (SIGA), entre outras. SPMS ainda não reagiu.
Problemas nos sistemas informáticos afectam hospitais e centros de saúde
Problema terá tido impacto em todas as aplicações - registo clínico (Sclinico), prescrições electrónicas (PEM), referenciações epedidos de consulta (SIGA), entre outras. SPMS ainda não reagiu.
www.publico.pt
September 18, 2025 at 9:07 AM
"SPMS ainda não reagiu" é o estado normal da SPMS.