New #airwaystenosis paper out 🎉

1,200+ patients • patient-partnered research • strong Northwestern European ancestry signal → supports genetic contribution to iSGS.

🔗 doi.org/10.1002/lio2...
#iSGS #RareDisease

Please share this far and wide - you just never know when someone might spot this and think 'Yes, that's me!' and finally seek help from the right people.
#rarediseasemonth #notalwaysasthma #asthma #misdiagnosis #airwaystenosis

In the Living with iSGS community, clinician referral has been the top source of new patient engagement for two consecutive months, accounting for ~33% of all join requests.

This reflects growing clinical awareness of iSGS & the value of connecting patients with vetted peer support. #airwaystenosis

When you have a condition you can barely pronounce yourself, it helps to have a simple way to explain it! #airwaystenosis #isgs #idiopathicsubglotticstenosis

Of 1,142 members who joined Living with iSGS in 2025, >20% were referred directly by their Dr or medical professional - and in October, it reached 33%.

This provides #airwaystenosis patients with practical advice, lived experience & psychosocial support alongside clinical care.

Living with #iSGS has welcomed 1,020 new members so far this year, most referred by clinicians/medical professionals. Social platforms also play a big role - together highlighting the importance of clinical signposting and accessible peer support in improving the #airwaystenosis patient journey.

The Living with iSGS group turns 16 this year! So proud of what we have achieved together #airwaystenosis #isgs #breathe

Simultaneous Placement of Multiple Airway #Stents in Three Patients With Extensive #AirwayStenosis: A Case Series
onlinelibrary.wiley.com/doi/10.1002/...

Successful Treatment of Recurrent #AirwayStenosis With #Paclitaxel-Coated Balloons: A Case Report
onlinelibrary.wiley.com/doi/10.1002/...

🎉 Happy #May4thBeWithYou and #AirwayStenosis Awareness Day everyone.

🚨 To mark it, here's the great #GVTwitterTakeover @gemmaclunie.bsky.social did for RCSLT.

▶️ Check it out: wakelet.com/wake/WT6iNef...

Thank you to those who came to my talk, also #ASOHNS19 organisers for inviting me, Dr Brett Leavers @AirwaySurgeon who works beside me, and thank you Twitter followers for the RTs. I'm disappointed we didn't get time for questions. Feel free to ask. #airwaystenosis #trachy