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livinglfs.bsky.social
Living LFS
@livinglfs.bsky.social
Thinking of our stage 4 friends today and those we have lost from this horrible disease. Stage 4 needs more!

#lifraumenisyndrome #livinglfs #iamlivinglfs #breastcancer #breastcancerawareness #breastcancerawarenessmonth #metastaticawareness #stage4needsmore #metastaticawarenessday #metavivor
October 13, 2025 at 9:08 AM Everybody can reply
livinglfs.bsky.social
Living LFS
@livinglfs.bsky.social
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #genetictesting #LLFS #mentalhealth #breastcancerawareness #breastcancerawarenessmonth
October 11, 2025 at 10:48 AM Everybody can reply
livinglfs.bsky.social
Living LFS
@livinglfs.bsky.social
Link to the Toronto Protocol: livinglfs.org/screening-th...

#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #cancerfighter #breastcancer #breastcancerawarenessmonth #breastcancer #feelitonthefirst
October 3, 2025 at 10:31 AM Everybody can reply
livinglfs.bsky.social
Living LFS
@livinglfs.bsky.social
You can find the book here: amzn.to/3PQnvf2

#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #childhoodcancerawareness #childhoodcancerawarenessmonth #pediatriccancer #childhoodcancer #gogoldinseptember
September 30, 2025 at 2:57 PM Everybody can reply
livinglfs.bsky.social
Living LFS
@livinglfs.bsky.social
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #childhoodcancerawareness #childhoodcancerawarenessmonth #pediatriccancer #childhoodcancer #gogoldinseptember
September 28, 2025 at 12:20 PM Everybody can reply
livinglfs.bsky.social
Living LFS
@livinglfs.bsky.social
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #childhoodcancerawareness #childhoodcancerawarenessmonth #pediatriccancer #childhoodcancer #gogoldinseptember #BrysonBrave
September 22, 2025 at 10:10 AM Everybody can reply
livinglfs.bsky.social
Living LFS
@livinglfs.bsky.social
Our applications for the 2025 Fall Living LFS Spring Hardship Grants are now closed!

If you'd like to contribute to Living LFS Hardship Grants donate here:
livinglfs.org/donate/ .

#lifraumenisyndrome #livinglfs #iamlivinglfs #cancergenetics
#LLFShardshipgrants #hardshipgrants
September 21, 2025 at 11:59 PM Everybody can reply
1 reposts
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livinglfs.bsky.social
Living LFS
@livinglfs.bsky.social
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticmutation #rarediseases #cancerfighter #genetictesting #childhoodcancerawareness #childhoodcancerawarenessmonth #pediatriccancer #childhoodcancer #gogoldinseptember
September 19, 2025 at 10:24 AM Everybody can reply
1 reposts
1
livinglfs.bsky.social
Living LFS
@livinglfs.bsky.social
Some Li Fraumeni syndrome pediatric cancer facts. But remember, not everyone gets cancer and many children live happy normal lives. Our little heroes!

#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #childhoodcancerawarenessmonth #pediatriccancer #childhoodcancer #gogoldinseptember
September 17, 2025 at 10:39 AM Everybody can reply
livinglfs.bsky.social
Living LFS
@livinglfs.bsky.social
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #genetictesting #childhoodcancerawareness #childhoodcancerawarenessmonth #pediatriccancer #childhoodcancer #gogoldinseptember
September 13, 2025 at 11:22 AM Everybody can reply
1 reposts 1 likes
1 1
livinglfs.bsky.social
Living LFS
@livinglfs.bsky.social
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #genetictesting #childhoodcancerawareness #childhoodcancerawarenessmonth #pediatriccancer #childhoodcancer #gogoldinseptember
September 7, 2025 at 12:19 PM Everybody can reply
livinglfs.bsky.social
Living LFS
@livinglfs.bsky.social
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #genetictesting #saturdayquote
August 10, 2025 at 1:34 AM Everybody can reply
1 likes
1
livinglfs.bsky.social
Living LFS
@livinglfs.bsky.social
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #genetictesting #saturdayquote
July 19, 2025 at 10:44 PM Everybody can reply
1 reposts 2 likes
1 2
livinglfs.bsky.social
Living LFS
@livinglfs.bsky.social
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #genetictesting #saturdayquote
July 12, 2025 at 6:41 PM Everybody can reply
livinglfs.bsky.social
Living LFS
@livinglfs.bsky.social
livinglfs.org/screening-th...

#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #p53 #tp53 #tp53gene #lifraumenisyndromeawareness #sarcomaawarenessmonth #sarcomaawareness #sarcoma #oncology #clinicaltrials
July 11, 2025 at 2:21 PM Everybody can reply
livinglfs.bsky.social
Living LFS
@livinglfs.bsky.social
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #genetictesting #saturdayquote
July 5, 2025 at 5:50 PM Everybody can reply
1 likes
1
livinglfs.bsky.social
Living LFS
@livinglfs.bsky.social
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #p53 #tp53
#tp53gene #cancergenetics #geneticcancer #geneticmutation
#cancerawareness #cancer #rarediseases #survivor #lifraumenisyndromeawareness #sarcomaawarenessmonth #sarcomaawareness #sarcoma #oncology #clinicaltrials
July 2, 2025 at 10:37 AM Everybody can reply
livinglfs.bsky.social
Living LFS
@livinglfs.bsky.social
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #genetictesting #saturdayquote
June 28, 2025 at 8:42 PM Everybody can reply
1 likes
1
livinglfs.bsky.social
Living LFS
@livinglfs.bsky.social
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #genetictesting #saturdayquote
June 21, 2025 at 12:25 PM Everybody can reply
livinglfs.bsky.social
Living LFS
@livinglfs.bsky.social
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #genetictesting #saturdayquote
May 24, 2025 at 12:44 PM Everybody can reply
livinglfs.bsky.social
Living LFS
@livinglfs.bsky.social
Read the blog post here: livinglfs.org/port-a-cath-...

#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #portacath #port
April 20, 2025 at 9:37 AM Everybody can reply
1 likes
1 1
livinglfs.bsky.social
Living LFS
@livinglfs.bsky.social
"Everyday we are living LFS. Walter was diagnosed at 10 months old with choroid plexus carcinoma. He is turning 5 this month and we enjoy his smile everyday. We spend lots of time at the doctors but we make the best of it. We are thankful for this community and all we have learned along the way."
"Everyday we are living LFS. Walter was diagnosed at 10 months old with choroid plexus carcinoma. He is turning 5 this month and we enjoy his smile everyday. We spend lots of time at the doctors but we make the best of it. He enjoys preschool, his siblings, horse therapy and gymnastics. He loves hot wheels cars and dancing to music in the car. We are thankful for this community and all we have learned along the way." #lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #lifraumenisyndromeawarenessmonth #lfsawarenessmonth #lifraumenisyndromeawarenessday #lfsawarenessday #choroidplexuscarcinoma
March 24, 2025 at 11:26 AM Everybody can reply
livinglfs.bsky.social
Living LFS
@livinglfs.bsky.social
💙💚 We are Living LFS 💚💙

#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #LFSawarenessmonth #lfsawareness #lfsawarenessday #lifraumenisyndromeawareness
#lifraumenisyndromeawarenessmonth
March 22, 2025 at 10:43 AM Everybody can reply
1 likes
1
missandilou.bsky.social
Andi Last
@missandilou.bsky.social
We at Living LFS @livinglfs.bsky.social are awarding a total of $75K to 47 Li-Fraumeni syndrome families in need today, March 20, LFS Awareness Day.

My heart is full. 💙💚

#iamlivinglfs #LFSawareness #lifraumenisyndrome #cancer
March 21, 2025 at 12:18 AM Everybody can reply
3 likes
1 3
livinglfs.bsky.social
Living LFS
@livinglfs.bsky.social
We are so excited to see the sea of blue representing Li-Fraumeni syndrome this coming Thursday, March 20th!

#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawarenessmonth #lfsawarenessmonth #lifraumenisyndromeawarenessday #lfsawarenessday
March 17, 2025 at 10:07 AM Everybody can reply