#NKH is rare. In the UK it’s thought there are 50-100 kids living with NKH, despite an incidence ratio of 1 in 76,000 births. The gap is because of the survival rate for NKH is so low.

May 2nd is #NKHAwarenessDay. Please donate:
justgiving.com/page/nkhawarenessday2025
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#nonketoticHyperglycinemia

Happy Birthday Christina! For her birthday, she raised £100+ for NKH research in honour of her son Samuel, who lives with NKH. These funds help push gene therapy forward - because every child with NKH deserves a future. Danke, Christina! 🐝 #NKH
#nonketoticHyperglycinemia #nkh #ifhnkh

Help us give children like Cara-Grace the gift of more time this Christmas. mikaerefoundation.org/christmas

#AlliWantForChristmas #NKH #NKHAwareness #GlycineEncephalopathy #NonketoticHyperglycinemia #ChristmasWish

Huge thanks to everyone who took part in the NKH 100 Mile Challenge! 💙 Together, we raised £4,234.29 to support kids with NKH and NKH research. Every mile brings us closer to a cure! Want to join in 2026? Sign up to our newsletter! #CureNKH #NonketoticHyperglycinemia

#NonketoticHyperglycinemia is considered terminal and life limiting. #NKH Children are often moved to palliative care within days of birth, where 1 in 3 born with NKH are unlikely to see their first birthday.

🫶 Help us to help those with NKH. Please donate:
www.justgiving.com/page/nkhawar...

A child affected by Nonketotic Hyperglycinemia has two mutations in an #NKH gene and the odds of having a child with NKH if both parents are carriers is 25%.

May 2nd is #NKHAwarenessDay - please donate towards an NKH cure:
justgiving.com/page/nkhawarenessday2025

#nonketoticHyperglycinemia

Nonketotic Hyperglycinemia (NKH) is a rare disorder in children, where they can't process glycine. It's is a brutal disorder.

May 2nd is #NKHAwarenessDay - swap your coffee for a donation towards NKH Research:
justgiving.com/page/nkhawarenessday2025
⁣
#nkhawareness #nonketoticHyperglycinemia #NKH

💚 Thanks to all who joined the NKH Meet Up at the British Motor Museum! It was a really wonderful day - stories shared, an amazing sound bath, great tours. Grateful to connect with NKH families who get it. Till next time! #NKHMeetUp #NKHCommunity #NonketoticHyperglycinemia #RareDisease