#orthostaticintolerance
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elementop.bsky.social
Zeke/Storm
@elementop.bsky.social
I'm feeling pretty rough today. My resting heart rate has been really high, and I've been having tunnel vision and dizziness with position changes, and a lot of nausea and constipation. #chronicillness #POTS #gastroparesis #orthostaticintolerance #dysautonomia #sinustachycardia
January 20, 2025 at 11:16 PM Everybody can reply
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mayalongcovid.bsky.social
Maya Lindemann
@mayalongcovid.bsky.social
More #PedroPascalPapers for #LongCovidAwarenessDay (a day late)

#MECFS #LongCovid #PEM #PostExertionalMalaise #OrthostaticIntolerance #POTS #IACC #GreatestMEdicalScandal #JohnVsJonVsME #PedroPascal #MedEd #5YearsLongCovid #FundThePlan #WearAMask #LongCovidResearch #LongCovidSOS #MillionsMissing
Pedro Pascal matched to ME/LongCovid research infographic Incidence and Prevalence of Post-COVID-19 Myalgic Encephalomyelitis J Gen Int Med, 2025 ME/CFS prevalence after COVID infection in this prospective study was found to be 4.5%, up from 0.2-1% general pre-pandemic levels. Post Exertional Malaise, the cardinal symptom of ME/CFS, was the most common and most debilitating symptom among those with Long Covid. Second most common symptoms were cognitive impairment & orthostatic intolerance. Pedro Pascal matched to ME/LongCovid research infographic Long COVID science, research and policy Nature, 2024 Several mechanistic pathways are implicated in Long COVID, including viral persistence, immune dysregulation, mitochondrial dysfunction, complement dysregulation, endothelial inflammation and microbiome dysbiosis. Manifestations of long COVID, including heart disease, diabetes, myalgic encephalomyelitis and dysautonomia are chronic conditions that last a lifetime. Only 7-10% are fully recovered at 2 years. Pedro Pascal matched to ME/LongCovid research infographic High proportions of post-exertional malaise and orthostatic intolerance in Post Covid Front Med, 2023 Exercise-based treatments can worsen/exacerbate symptoms in people who have post Covid post-exertional malaise (PEM) or orthostatic intolerance (Ol). While other studies found rates of Post Covid PEM to be as high as 82%, this study found rates of PEM to be 48% (women) 41% (men) and rates of orthostatic intolerance to be 29%/28% (women/men). Standard screenings of PEM & Ol is recommended to promote appropriate therapies. Pedro Pascal matched to ME/LongCovid research infographic Oxidative Stress is a shared characteristic of ME/CFS & Long Covid BioRxiv (Preprint), 2024 Analysis of intracellular pathways shows that both Long Covid & ME/CFS share signatures of elevated oxidative stress, specifically among lymphocytes, compared to healthy controls. This work pinpoints a potential targetable cellular mechanism, where these metabolic changes clearly affect lymphocyte activation. Findings showed sex-specific redox signatures in ME/CFS patients, suggesting pathophysiology is distinct between genders.
March 16, 2025 at 6:59 PM Everybody can reply
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tomkindlon.bsky.social
Tom Kindlon
@tomkindlon.bsky.social
Resources on Orthostatic Intolerance from Dr. Peter Rowe

Image from MassME September 2024 e-newsletter

Links in image
www.youtube.com/@meactmaryland
www.press.jhu.edu/books/title/...
www.amazon.com/Living-Well-...

#OI #OrthostaticIntolerance #POTS #MEcfs
Resources on Orthostatic Intolerance from Dr. Peter Rowe Dr. Peter Rowe at Johns Hopkins University is a world-renowned expert on orthostatic intolerance, especially in children and adolescents. He generously shares his expertise through a webinar series, available on YouTube through the #MEAction Maryland channel. The first webinar covers management of pediatric ME/CFS and the second covers management of orthostatic intolerance. He has also recently published an updated book called Living Well with Orthostatic Intolerance: A Guide to Diagnosis and Treatment. It is available from Johns Hopkins University Press and Amazon, or ask your library to purchase a copy.
September 10, 2024 at 11:20 PM Everybody can reply
3 reposts 5 likes 1 saves
1 3 5
wearlumia.bsky.social
Lumia
@wearlumia.bsky.social
Happy Valentine’s Day from all of us at Lumia Health. You light up our life!
#wearlumia
#wearable #stat #pots #longcovid #pwme #orthostaticintolerance #lumia #fainting #medsky #chronicillness #brainfog #posturalorthoststictachycardiasyndome #dysautonomia #neuropathy #synuclein
February 15, 2025 at 2:32 AM Everybody can reply
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tomkindlon.bsky.social
Tom Kindlon
@tomkindlon.bsky.social
From ME Research UK @meresearchuk.bsky.social

As promised to a commenter last month, we have published an article clarifying the relationship between blood pressure and PoTS (a common ME/CFS comorbidity): bit.ly/potsandbp

#POTS #OrthostaticIntolerance
Do all individuals with PoTS have a low blood pressure? Short answer: No. IL In fact people with PoTS (postural orthostatic tachycardia syndrome) typically have a normal blood pressure (BP) when experiencing symptoms. Furthermore, BP can be elevated. 1 Hence... Low BP is NOT required to diagnose PoTS. The hallmark feature is tachycardia (elevated heart rate). Low BP upon standing can indicate other issues, such as postural (orthostatic) hypotension. Recap Diagnostic requirements for PoTS: A persistent heart rate increase of at least 30 beats per minute (or 40 for adolescents) within the first 10 minutes of standing. No significant BP drop. Symptoms when upright. RESEARCH SCO36942 INFORM. INFLUENCE. INVEST.
July 24, 2025 at 3:37 PM Everybody can reply
2 reposts 5 likes
2 2 5
knivesonly.bsky.social
Kolt (rustled jimmies)
@knivesonly.bsky.social
missed tagging for reach!
see prev skeet
#EDS #POTS #HSD #CTD #OrthostaticIntolerance #MCAD
July 1, 2024 at 4:02 AM Everybody can reply
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batemanhornecenter.bsky.social
Bateman Horne Center
@batemanhornecenter.bsky.social
Check out The Basics: Orthostatic Intolerance with Clayton Powers, DPT! Learn about OI, its symptoms, and tips for pacing upright activities.

Watch now: bit.ly/3W9TzNG
#OrthostaticIntolerance #BatemanHorneCenter #ChronicIllness #PatientEducation
January 10, 2025 at 3:36 AM Everybody can reply
12 reposts 2 quotes 20 likes
12 20
julesahouston.bsky.social
Julie Houston
@julesahouston.bsky.social
My copy of "Living Well with #OrthostaticIntolerance: A Guide to Diagnosis & Treatment" has just arrived! Now to read. #POTS #Dysautonomia #OI #MECFS #LongCovid #Fibromyalgia #Lyme #EDS #Myalgicencephalomyelitis #pwME
A book cover titled "Living Well with Orthostatic Intolerance: A Guide to Diagnosis and Treatment" by Peter C. Rowe, MD, resting on an oak table with an amber candle holder in the background.
August 24, 2024 at 10:41 AM Everybody can reply
2 reposts 11 likes
2 2 11
ginkgotreehealth.bsky.social
Disability & Healthy Living
@ginkgotreehealth.bsky.social
My horizontal pedaling setup for orthostatic intolerance! I put weights on it so it stays put. This is great for dysautonomia or other issues if you need to lie down while doing gentle exercise. Let me know if you want to know where I got it from! #orthostaticintolerance
November 18, 2024 at 3:53 PM Everybody can reply
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batemanhornecenter.bsky.social
Bateman Horne Center
@batemanhornecenter.bsky.social
It’s POTS Awareness Month!
#OrthostaticIntolerance (OI) includes #POTS, orthostatic hypotension & more. Our OI Overview covers evaluation (Passive Standing Test, EKG), lifestyle approaches, meds, and further resources.
🔗 https://bit.ly/4pCeOoA
#POTSAwarenessMonth #Dysautonomia #MERC
Orthostatic Intolerance Overview with resources for individuals, caregivers, and healthcare providers. Download at BatemanHorneCenter.org.
October 29, 2025 at 5:23 PM Everybody can reply
3 reposts 7 likes
3 7
rikkapik.bsky.social
RikkaPik
@rikkapik.bsky.social
I don't know if this will help anybody, but I cope with my orthostatic intolerance (symptoms in an upright position) by sitting crosslegged or in half lotus seat. It is way less taxing then sitting in a chair. #me/cfs #orthostaticintolerance
April 13, 2025 at 6:57 AM Everybody can reply
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loriinreallife.bsky.social
Lori
@loriinreallife.bsky.social
I’m having a rough day. #orthostaticintolerance #POTS #sjogrens #autonomicneuropathy
March 18, 2025 at 12:54 PM Everybody can reply
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tomkindlon.bsky.social
Tom Kindlon
@tomkindlon.bsky.social
(Melbourne, Victoria, Australia)

Have you been diagnosed with #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome (ME/CFS) or orthostatic intolerance?

www.emerge.org.au/get-involved...
#MEcfs #CFS #PwME

#PosturalOrthostaticTachycardiaSyndrome #POTS #OI #OrthostaticIntolerance
Screenshot of information on this study from link
September 14, 2024 at 9:02 PM Everybody can reply
3 reposts 2 likes
3 2
castltrastondrs.bsky.social
TRAstonDrs
@castltrastondrs.bsky.social
#MedSky🧪 #IDSky #PedSky #PublicHealth #LongCovidkids A new study shows that the majority of children diagnosed with #longCOVID .71% of children suffer from this additional condition negatively impacting their health are likely to experience #orthostaticintolerance
September 16, 2024 at 4:02 PM Everybody can reply
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tomkindlon.bsky.social
Tom Kindlon
@tomkindlon.bsky.social
3/

Extract:
"The current evidence suggests that we need to move away from viewing OI [#orthostaticintolerance] in terms of orthostatic tachycardia as the relation between the two is weak. By focusing on #POTS, researchers have overlooked the majority of patients with (unexplained) OI"

#MEcfs #PwLC
June 30, 2024 at 11:44 PM Everybody can reply
1 reposts 1 likes
1 1 1
katfat2.bsky.social
Ninni
@katfat2.bsky.social
Happy Valentines. Your heart's in the right place, but is your blood? Good article on #OI from the AHA. Folks so fortunate not to have OI, can you picture getting dizzy every time you stand, as vision fogs, hearing dulls, and heart pounds? Support research. #MEcfs #LongCOVID #OrthostaticIntolerance
From the article: "Figure 1. Physiological mechanisms involved in regulating blood flow with orthostasis (left) and order of activation of physiological changes that occur with standing (right)." The illustration shows that a supine person has high central blood volume (on the left) while a standing person (on the right) has several mechanisms that should operate to continue supplying adequate blood to the brain: "Upright position: blood volume redistributed [by] cerebral autoregulation, baroreflex counterregulation, humoral activation, splanchnic vasoconstriction [and] skeletal muscle pump activation. The order of activation is listed to the right of those figures: "Standing," then "Venous pooling and capillary filtration," then "Cerebral blood volume [lowers]," then "stroke volume [lowers]," then "baroreflex counter-regulation," and finally, "Heart rate [increases], Vasoconstriction, Humoral activation."
February 12, 2025 at 3:51 PM Everybody can reply
4 reposts 10 likes
4 10
tomkindlon.bsky.social
Tom Kindlon
@tomkindlon.bsky.social
New US research:

Phenylephrine Alters Phase Synchronization between Cerebral Blood Velocity and Blood Pressure in #ChronicFatigueSyndrome with #OrthostaticIntolerance

journals.physiology.org/doi/abs/10.1...

#MEcfs #CFS #PwME #POTS
Screenshot of abstract
April 29, 2024 at 1:37 PM Everybody can reply
2 reposts 1 quotes 4 likes
3 2 4
emilyrj.bsky.social
Emily Johnson
@emilyrj.bsky.social
Terrible news for #POTS and #OrthostaticIntolerance patients who rely on Normal Saline Lactated Ringers IV fluids to stabilize dysautonomia hypovolemia issues @therealdoctort.bsky.social
Tweet from physician Sayed Tabatabai on October 3, 2024 reading “Good thing I don’t use much Normal Saline or Lactated Ringers…. wait what.” In response to a screenshot of a report reading “Due to significant damage from Hurricane Helene, Baxter's manufacturing site for IV fluids (60% of national volume) is closed to production. Disruptions are expected to continue for several months. While many types of IVF are impacted, the greatest impact is limited supply of Normal Saline and Lactated Ringers. Your help is needed to conserve IV fluids for the most appropriate patients.”
October 3, 2024 at 7:50 PM Everybody can reply
10 reposts 1 quotes 20 likes
3 10 20
wearlumia.bsky.social
Lumia
@wearlumia.bsky.social
Exciting to see the first home stand tests w/ the Lumia Health wearable. Data is not for medical use. Lumia can help people self-manage symptoms of #orthostaticintolerance and adhere to healthy lifestyle guidelines from their doctor. #pots #longcovid #pwME #chronicillness #dizziness #medsky
jessamyn-ann.bsky.social jessamyn-ann.bsky.social @jessamyn-ann.bsky.social · Feb 11
I was diagnosed with Dysautonomia/POTS via a tilt table test w/ my cardiologist, but I had never done a “5 Minute Stand Test” at home. 5 minutes laying, then 5 minutes standing, then 5 minutes laying. Proof is in the pudding, as they say. Textbook POTS right here.
#dysautonomia #pots #wearlumia
February 12, 2025 at 12:59 AM Everybody can reply
2 reposts 8 likes
3 2 8
halcionandon.bsky.social
Anna (needs a SAFE HOME)
@halcionandon.bsky.social
How are people with #Dysutonomia #POTS #OrthostaticIntolerance coping with the heat waves? (Australia, other countries having hot summers.)

I’m flat & can’t move much. Cooler days I recover a bit, then it starts all over again.
🫠😩

No aircon in this house.💨

Summer & daylight saving be gone.
December 18, 2024 at 1:23 PM Everybody can reply
1 reposts 3 likes
2 1 3
ginkgotreehealth.bsky.social
Disability & Healthy Living
@ginkgotreehealth.bsky.social
My husband bought me this cute mug for warm drinks. Since I need lots of electrolytes and salt I used it with bullion! 1tsp of this has 700mg sodium. It’s nice and small so not too heavy to carry. It is Owala brand.

#orthostaticintolerance #dysautonomia #chronicillness #healthcoach #healthcoaching
November 16, 2024 at 6:41 PM Everybody can reply
1 reposts 6 likes
1 1 6
wildswim.bsky.social
Robbie
@wildswim.bsky.social
Bizarre that one can see a cardiologist for #ExerciseIntolerance, #OrthostaticIntolerance and #PEM without the subject of #COVID_19 or #LongCovid being mentioned and that's despite wearing #FFP3 during the consultation...
May 6, 2025 at 10:16 AM Everybody can reply
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wearlumia.bsky.social
Lumia
@wearlumia.bsky.social
Our May Newsletter is out with news about NASA, Direct Sync for Lumia, DysCourse, & more!
mailchi.mp/lumiahealth....
#wearlumia #lumiawearable #bloodflow #NASA #bloodflowrestrictionbands #Hytro #lumia #pots #orthostaticintolerance #LongCOVID #pwme #mecfsawareness #dysautonomia
A female presenting person reclines in bed with the legs raised, and is checking the Lumia app to explore blood flow changes in this posture. Lumia tracks blood flow to the head with an in-ear wearable.
May 7, 2025 at 10:55 PM Everybody can reply
1 reposts 5 likes
1 1 5
tomkindlon.bsky.social
Tom Kindlon
@tomkindlon.bsky.social
21/

“If orthostasis symptoms are present, an autonomic reflex screen (including 10-minute tilt table) may be advised. In the event that this testing is not available, an in-office NASA lean test may be used to identify and to characterize #orthostaticintolerance and possible #POTS”
#MEcfs #PwME #OI
October 18, 2023 at 3:30 PM Everybody can reply
1 reposts 1 likes
1 1 1
liegenddemo.bsky.social
Initiative LiegendDemo
@liegenddemo.bsky.social
#MECFS #PostCovid #longcovid #pcs #longcovidsyndrom #MEAwareness #MillionsMissing #demonstration  #GDB #Pflegegrad #eppsteinbarrvirus #postvac #cci #cranialcervicalinstability #mcas #belastungsintoleranz #mitochondiraldysfunction #chronicillness #cfs #orthostaticintolerance #pots #chronicwarrior
November 9, 2023 at 8:16 PM Everybody can reply
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