Alexandra Naa Aduwah Lyyli Ankrah
@alexankrah.bsky.social
220 followers 510 following 310 posts
Public policy bod: working NHS, former Barrister-believer in social justice & being human together-Christian striving to be awake/WOKE & living life standing on Truth. Chair NBAA charity & member of The Liberal Democrat Campaign for Race Equality.
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alexankrah.bsky.social
Perhaps basic question: Could you not just use your Ghanaian passport like the rest of us?
alexankrah.bsky.social
Sadly very little to No research on older people & #EDS or its interaction with other conditions. I can understand that in relation to say Marfans because historically diagnosis was poor & life expectancy impacted. But not the case with EDS.
Reposted by Alexandra Naa Aduwah Lyyli Ankrah
mancunianmedic.bsky.social
and now we have politicians who want to interfere with the independence of the judiciary
alexankrah.bsky.social
You are so lovely: not equine - Ehlers Danlos - gets a bit worse as we age - having been bendy - may even be bendy brained. COVID19- and all that & risk! - I got EDS from my mum, gave it to my medical doctor daughter- & so on…
Reposted by Alexandra Naa Aduwah Lyyli Ankrah
mancunianmedic.bsky.social
i don't know anything about equine Covid
alexankrah.bsky.social
Proud father of NHS -NyeBevan prescribed singing 4 MinersLung! But when your Mrs is the powerhouse of cultural policy Arts Minister Jennie Lee -what would you expect! @artscouncilengland.bsky.social oh & reason post WW2 both NHS & ArtCouncil were ALBS? To prevent Gov interference like Nazi Germany!
alexankrah.bsky.social
Really interesting-given the link Between POTS & @ehlersdanlos.bsky.social - I’m assuming the additional vulnerability to COVID19 for Zebras needs to be taken more seriously? @mancunianmedic.bsky.social @ki.se
Reposted by Alexandra Naa Aduwah Lyyli Ankrah
katieholten.bsky.social
POTS is a form of #dysautonomia — a disorder of the autonomic nervous system.

A new study from @ki.se shows that #POTS is very common in people with long COVID.

The headline is misleading. POTS is way more than a "heart rhythm disorder."

news.ki.se/pots-common-...

#DysautonomiaAwarenessMonth
POTS common in patients with long COVID
A new study from Karolinska Institutet shows that an heart rhythm disorder, POTS, is particularly common in people with long COVID. The majority of those affected are middle-aged women. The study has ...
news.ki.se
alexankrah.bsky.social
This morning joining my prayers with others for release of Christians held without due process by Modern State of Israel & hurt, harmed or murdered by IDF www.chelmsford.anglican.org/news/layan-n... including Layan Nassar again unjustly held. blessed are the Peace Makers…Children of God
Layan Nassar Palestinian Christian amongst many being persecuted and harmed by IDF and modern state of Israel Jesus: Blessed are the Peace Makers they will be called children of G-d.
alexankrah.bsky.social
Blessed are the peace makers: Just peace is NOT the absence of war.
Green mountains and valleys and quote from Jesus the Beatitudes: Blessing pace makers who exemplify Gods will for all all -Peace. Real peace makers are therefore Children of God.
Reposted by Alexandra Naa Aduwah Lyyli Ankrah
malikalnasir.bsky.social
I’ll be at the Birmingham Conservatoire tomorrow to present my new book “Searching for My Slave Roots” with Kehinde Andrews. Tickets here…

www.bcu.ac.uk/conservatoir...
Reposted by Alexandra Naa Aduwah Lyyli Ankrah
hinabokharild.bsky.social
The latest police stats on hate crimes are incredibly worrying. We can't just stand by as communities of faith are targeted on Britain.
alexankrah.bsky.social
With hip being bone-on-bone doing exercise (especially when like me you are a Zebra - and have @ehlersdanlos.bsky.social ) can be tough. Aqua-Aerobics almost daily has triggered significant weight loss & strengthened & lengthened muscles in legs.
alexankrah.bsky.social
Prevalence & differential progression linked to ethnicity (or genome) is also observed. African-American more likely to have knee issues vs White American hip. I refused hip surgery. My gran & mum both done. Over last year been doing Aqua-Aerobics 5XWk, lost 32Kgs & will have surgery later.
Reposted by Alexandra Naa Aduwah Lyyli Ankrah
drianweissman.bsky.social
"The best medicine for arthritis isn't found in a pill bottle or an operating theatre – it's movement. Yet across countries and health systems, too few patients are being guided toward the one therapy proven to protect their joints and ease their pain: exercise."
www.sciencealert.com/the-best-med...
The Best Medicine For Joint Pain Isn't What You Think, Expert Says
Stiff knees, aching hips and the slow grind of chronic joint pain are often accepted as an unavoidable part of getting older.
www.sciencealert.com
Reposted by Alexandra Naa Aduwah Lyyli Ankrah
unison.org.uk
145 jobs to go at the Nursing and Midwifery Council (NMC)

“The scale of these redundancies is troubling," UNISON head of health Helga Pile

“NMC staff deserve clarity about their futures, and the union will work to minimise job losses and support those affected.”
Photo of health worker "NMC job cuts risk undermining services and staff morale"
alexankrah.bsky.social
That’s the problem- long list of members who have the same story: no tangible help - even down to Reps being no show at Grievance hearings. To be fair Union density sinking fast.
alexankrah.bsky.social
Great people are taking to the streets: but Unison - think you also need to be dealing with the rising tide of hate in the workplace- #NHSEngland - where is the support litany of Black, ethnic minority & Disabled staff bringing grievances, fully paid up members NO REPS in sight!
Reposted by Alexandra Naa Aduwah Lyyli Ankrah
helenmaguiremp.bsky.social
It’s absolutely shocking to see the Government bending to pressure from Trump after years of claiming the NHS couldn’t afford new life-saving drugs.

Patients deserve transparency about what this deal will cost, and what it means for their care.
Trump pressure to hike UK drug prices could cost NHS billions, experts warn
Anew deal will only trigger further increased price demands and make healthcare in the UK more expensive, say experts
buff.ly
Reposted by Alexandra Naa Aduwah Lyyli Ankrah
laylamoran.bsky.social
The talk of enduring and lasting peace is encouraging, but this will only come with the creation of an Independent Palestinian State.

Palestinians must be in the driving seat of their own future.
Reposted by Alexandra Naa Aduwah Lyyli Ankrah
atrupar.com
Schiff: "You begin to wonder -- do they believe they have the authority by putting some groups on a list, even domestic groups, to use lethal force against them, with no trial, no due process, no nothing? The reality is we can't rule that out."
alexankrah.bsky.social
EvieMensah on responsibility & accountability calls on NHS Trusts to be fined £ for their failure to protect staff & patients from racism & hate incidents. @nhsresolution.bsky.social have a role here, but when are they going to step into it ? @drhnaqvi.bsky.social @laylamoran.bsky.social