"I found it very informative and took things from each of the talks that I feel like could use going forward to inform my own family and myself when dealing with our healthcare" Attendee Our main event of the year was held online, 1-4pm on Saturday 1 November 2025. We had wodnerful speakers, to talk about a range of aniridia-related issues: from personal experiences to cutting-edge research.

Our next event will be online,1-4pm Saturday 1 November 2025. We have put together a great line up of speakers, to talk about a plethora of aniridia related themes online: from personal experiences…

We have an opportunity to make what RNIB publishes about aniridia as good as possible. They want your valuable input on their online information. Read and critique it. What is needed RNIB maintains…

We would be nothing with the lovely people who use their skills in their spare time to do our charitabke deeds. We are very appreciative of the efforts of all our volunteers and hence what they get done for our beneficiaries. To recognise particular individuals’ input, we created an annual award scheme. Winners get a certificate and a £25 shopping voucher.

Several of our members affected by WAGR enjoyed meeting in Sussex recently Parents Aaron and Michelle brilliantly organised the 2 day event with International WAGR Syndrome Association (IWSA). Aniridia Network trustee James went along to speak with people and fly our flag. Nearly everyone with WAGR has aniridia.

Read details of what our officials, members and supporters did as well our finances between 1 April 2024 and 31 March 2025 in the Aniridia Network Annual Report for 2024/25. Key points After a year with none, 2 people did fundraising plus a legacy donation Several useful events: meetups, conference and leadership academy Moved from Twitter/X to Threads and BlueSky…

The Aniridia Network AGM will be held online on the afternoon of 1 November 2025 as part of our annual conference. We're looking forward to seeing you there.

We have an opportunity to make what RNIB publishes about aniridia as good as possible. They want your valuable input on their online information. Read and and critique it. What is needed RNIB maintains details on its website about various eye conditions. These resources are often the first point of contact for individuals, families and professionals seeking reliable information to answers queries.

We have appointed two distinguished medical experts to continue our support for the aniridia community. Mr John Brookes and Professor Mariya Moosajee are now our medical advisors, ready to respond to enquiries from our members and their families. Both are consultant ophthalmic surgeons, experienced at treating adults and children with aniridia. They work at Moorfields Eye Hospital that many with aniridia in the UK attend.

Our long-time go-to for all medical queries, Melanie Hingorani, has retired from working as a consultant at Moorfields Eye Hospital and with us too. Her career had a focus on engagement and quality in eye healthcare, including answering our members' complex questions. We first heard of and appointed Melanie as our Medical Adviser on the recommendation of our Patron Veronica van Heyningen…

Apply for a £15k grant to collect preliminary/pilot data for later research into congenital aniridia.