banner
LightNews
franhaddock.bsky.social
Fran H
@franhaddock.bsky.social
210 followers 86 following 43 posts
Severe ME | Activism from bed | Small joys She/her
Posts Media Videos Starter Packs
Reposted by Fran H
nlizaki.bsky.social
Liz Nevra A. @nlizaki.bsky.social · Aug 28
The same post exists on FB, Twitter, Instagram, B$ky, and TikTok, so please consider boosting there so we can get out of the echo chamber! All hands on deck! #pwME
www.gofundme.com/f/save-nevra
6 5
Reposted by Fran H
rose-mary-x.bsky.social
Rose Mary @rose-mary-x.bsky.social · Aug 10
Thank you @natashadevon.bsky.social for hosting another excellent segment on #MECFS 💙
And thank you to @swastrosarah.bsky.social , @franhaddock.bsky.social & the other contributors for getting our stories out there.
#MyalgicEncephalomyelitis is a serious disease that can happen to anyone.
abrokenbattery.bsky.social
Adam @abrokenbattery.bsky.social · Aug 9
Natasha Devon’s LBC phone-in on #MECFS (38 mins).

Callers discuss their experience, including stigma and medical gaslighting, as well as their thoughts on the largest genetic study to date. @natashadevon.bsky.social

youtu.be/-2XxcsUXRJs?...
LBC - Natasha Devon Phone In - DecodeME Results
YouTube video by Broken Battery
youtu.be
1 2 8
franhaddock.bsky.social
Fran H @franhaddock.bsky.social · Aug 20
Thank you!!
1
franhaddock.bsky.social
Fran H @franhaddock.bsky.social · Aug 8
Community video for Severe ME awareness day, please share and tag politicians and public figures who need to see this!

All participants IG handles tagged at the end 💙💙

#SevereME #SevereMEAwarenessDay #MECFS #MillionsMissing #UnitedForME
3 26 35
Reposted by Fran H
nlizaki.bsky.social
Liz Nevra A. @nlizaki.bsky.social · Jul 21
🚨 I have 10 days before August rent is due, I need 832.33£ or $1,131.18

This is an emergency, so few people have donated recently, I’m at risk of homelessness, I could not survive that

Please boost/engage with this! 🚨

Rent PayPal: www.paypal.com/paypalme/Sav...

GFM: www.gofundme.com/f/save-nevra
8 9
franhaddock.bsky.social
Fran H @franhaddock.bsky.social · Apr 18
Please support my friend Esam
esambannar.bsky.social
esambannar.bsky.social @esambannar.bsky.social · Apr 17
These are my three children who need your donations to stay alive. Please do something to help me or I promise to publish if you can't help.
💔
www.paypal.com/paypalme/Esa...

gofund.me/e2edd02f
1
Reposted by Fran H
francesryan.bsky.social
Frances Ryan @francesryan.bsky.social · Mar 17
“In 2025, long Covid is the public health crisis no one wants to talk about, taking a wrecking ball to people’s lives, the economy and NHS while those with power pretend there’s nothing to see.”

5 years on, I wrote about long Covid and national denial. www.theguardian.com/commentisfre...
Long Covid is the pandemic’s dark shadow. Why does no one in power in Britain want to talk about it? | Frances Ryan
Five years after the first lockdown, millions of lives are still being ruined by this debilitating disease. You wouldn’t know it, says Guardian columnist Frances Ryan
www.theguardian.com
12 69 140
franhaddock.bsky.social
Fran H @franhaddock.bsky.social · Mar 14
#IsItOk for @alastaircampbell2.bsky.social to complain about how many disabled people are not working on #TheLastLeg without questioning why? Have you heard of #LongCovid Alastair? And the pandemic which is an ongoing mass disabled event? And that there’s no cure and virtually zero support?
2 8
franhaddock.bsky.social
Fran H @franhaddock.bsky.social · Feb 21
A few days ago we heard the UK’s government delivery plan for ME will contain NO additional funding. How will this make a meaningful difference to #pwME?

So @wesstreeting.bsky.social and @ashleydaltonmp.bsky.social , please listen our lived experiences, and #FundThePlan

@thereforme.bsky.social
13 27
Reposted by Fran H
abrokenbattery.bsky.social
Adam @abrokenbattery.bsky.social · Feb 1
Highlights from yesterday's ITV News Calendar segment on #LongCovid on the 5 year anniversary of the first case of Covid in the UK. Fran Haddock talks about how her life has been "decimated" by the condition.
4 33 76
franhaddock.bsky.social
Fran H @franhaddock.bsky.social · Jan 29
😭😭😭❤️❤️❤️🫂🫂🫂
1
franhaddock.bsky.social
Fran H @franhaddock.bsky.social · Jan 28
Will a day come when my friends aren’t so unbearably, unimaginably sick?
3 1 18
franhaddock.bsky.social
Fran H @franhaddock.bsky.social · Jan 28
My friends, they are so strong. Not in the way you see on TV. In the way it takes to survive every day with severe ME. With grit, resilience, humour, hope, acceptance, despair. Why should we have to be strong like this. Is each other all we have? Or are there others who can share the weight?
1 5 19
franhaddock.bsky.social
Fran H @franhaddock.bsky.social · Jan 28
I wish we could meet for cake, watch a film under the covers or dance under the trees. Instead we exchange messages of advice and support, or rambling rants, sometimes memories or photos, sometimes gifts carefully chosen with sacrificed energy, sometimes just a word.
1 1 15
franhaddock.bsky.social
Fran H @franhaddock.bsky.social · Jan 28
Promised things will get better but the reality is often so different. Those who do get better often want nothing to do with those still in the darkest depths, too traumatised by the memories or poisoned by ableist narratives.
1 1 15
franhaddock.bsky.social
Fran H @franhaddock.bsky.social · Jan 28
You never get used to it. Maybe it gets normalised to some extent because we’ve all been living like this for a good while now.
Alone and together. Missing and forgotten.
1 1 17
franhaddock.bsky.social
Fran H @franhaddock.bsky.social · Jan 28
They live inside my phone. But they are real, scattered around the word in their own homes, living in bed just like me.
Some don’t have the care they need to get through the day. Some of them are actively harmed rather than ‘just’ neglected.
Some of them aren’t sure how they can continue.
1 2 17
franhaddock.bsky.social
Fran H @franhaddock.bsky.social · Jan 28
Every day I wake up, unrested and heavy, and open up my messages.
My friends, they are so sick.
They’re crashing, in pain, some of them can’t eat, some of them can’t see their phone, can’t stand, can’t think. So much suffering. Day after day after day.
1 1 18
franhaddock.bsky.social
Fran H @franhaddock.bsky.social · Jan 28
I don’t want my friends to keep getting sicker
🖤❤️‍🩹🖤
Words on existing in the severe ME community, TW severe illness ⬇️
1 13 36
franhaddock.bsky.social
Fran H @franhaddock.bsky.social · Jan 27
Thank you!! 🦉🐦🐦‍⬛
1
franhaddock.bsky.social
Fran H @franhaddock.bsky.social · Jan 27
A few photos from our @rspb.bsky.social Big Garden Birdwatch yesterday. Before I had severe ME I was an avid environmentalist and nature enthusiast. The prior 2 years I’ve been too sick to look out of the window, or sit up, or look through binoculars, or open the curtain. So this was a joy
1 3 13
franhaddock.bsky.social
Fran H @franhaddock.bsky.social · Jan 20
Please sign and share this petition for Line in Denmark, who is being threatened with involuntary psychiatric hospitalization if she doesn’t push through her very severe ME. Absolutely barbaric and could be life threatening www.change.org/p/prevent-fo... #SaveLine #SevereME
Sign the Petition
Prevent forced psychiatric hospitalisation of Very Severe ME patient in Denmark
www.change.org
17 30
franhaddock.bsky.social
Fran H @franhaddock.bsky.social · Jan 19
Covid precaution wise- the visitors (my mum, sister and nephew) did a pooled pluslife test for covid, & had no symptoms of anything, we had 2 air filters & windows open & all wore FFP3 auras except Lachlan. Everyone hand san’d with hypochlorous acid, and I kept my mask on a while after they’d left
1 7
franhaddock.bsky.social
Fran H @franhaddock.bsky.social · Jan 19
I was so worried because I’m really not used to kids and obviously my body doesn’t let me be very loud or enthusiastic. But he didn’t mind. He also didn’t mind the masks at all. Gives me hope that was can build a good relationship despite my health and covid boundaries and him living so far away
1 1 7
franhaddock.bsky.social
Fran H @franhaddock.bsky.social · Jan 19
knew who we were (from FaceTime too), he was obsessed with Salem (the cat). And let me pick him up (which my arms also somehow let me do!!?) and look after him a little tiny bit. We managed to find loads of things he was interested in just in my bedroom (helped by my large collection of plushies 😆)
1 1 5